. Charity Number : 517656 Quality Account Reporting period: 1st April 2012 to 31st March 2013 The Hospice is regulated and inspected by the Care Quality Commission, provider number 1-101634329. 1 Patients’ Feedback ‘From the doctors, nurse to housekeepers and volunteers all people communicative and open’ ‘The nursing staff were exceptionally sensitive, perceptive and thorough in their care’ ‘The kindness and respect for patients was impressive. They treated each one as an individual’ ‘I am amazed at the standard of care I received was so consistently high’ ‘All staff very helpful above their call of duty’ Source Patient survey 2011 Carers’ Feedback “It is without question that she received an outstanding level of professional care, but we also want to thank you for so many other things that go beyond training or experience” “We know that mum felt safe with you. You always spoke to her, and to us, with genuine care and respect, and always had the time.” Source Correspondence 2012 / 2013 2 Chief Executive’s Statement I am pleased to present our 2012 - 13 Quality Account on the work of The Mary Stevens Hospice. Although we are a charity separate from the NHS, we welcome the opportunity to prepare this report in recognition of the financial support we receive from the NHS and the contribution we in turn make to local NHS services. Mary Stevens Hospice delivers specialist palliative and end of life care for people with a progressive and life threatening illness, their families and carers. The Board of Trustees, the Senior Management Team and all of the staff and volunteers at Mary Stevens are committed to providing the best possible experience for patients and their families. We aim to achieve this by providing consistent, high quality, cost effective care, underpinned by sound governance across all aspects of the organisation. Our care is based on an active collaboration with patients, their families and carers to establish their wishes and needs, underpinned by expert holistic assessment by our multi-professional team. Mary Stevens Hospice is answerable to several regulatory bodies in terms of our quality standards. Following an unannounced visit by the Care Quality Commission undertaken during this year we received a very positive assessment with no requirement for action. The Hospice has worked hard to develop a culture of continuously monitoring the quality of our services to ensure any shortfalls are identified and addressed as quickly as possible and opportunities for improvement addressed. This culture is the responsibility of every employee and volunteer at the Hospice and is reflected most importantly of all in the feedback we receive directly from the people who receive our care, as illustrated on the previous page. Our care is provided without cost to those that need it. In 2012/13 we received 21% funding from the NHS with the remaining £1.837 million being raised from the local community. This in itself is testament to the regard in which we are held by those we serve. I am responsible for the preparation and content of this report, working through the Clinical Director: to the best of my knowledge, it is an accurate and fair representation of the quality of our services. This account considers 2012/13 and looks forward to some of our priorities in 2013/14 as we continue to strive for improvements that benefit patients and carers and their experience of the Hospice’s services. Peter Holliday Chief Executive 3 Section 1 Improvement priorities Introduction The Mary Stevens Hospice aims to achieve the best care possible for patients and support of their families; we focus on excellence and continuous improvement, not merely compliance with minimum standards. Through internal quality measures and feedback from patients, the hospice can demonstrate that the care we offer is over and above the essential minimum standards of quality and safety. The current system of health care regulation by the Care quality Commission assesses for compliance with standards and does not highlight where these standards have been surpassed, neither does it acknowledge excellence in care. The Mary Stevens Hospice is fully compliant with the essential standards of quality and safety set by the Care Quality Commission (CQC). These consist of a significant number of the Health and Social Care Act 2008 (Regulated Activities) Regulations (2010) and the Care Quality Commission (Registration) Regulations 2009. These regulations describe the essential standards of quality and safety that people who use health and adult social care services have a right to expect. Mary Stevens Hospice had its annual unannounced inspection on 16 th January 2013 and were inspected against, and met, the following standards: Respecting and involving people who use services – Outcome 1 (Regulation 17) Consent to care and treatment – Outcome 2 (Regulation18) Care and welfare of people who use services – Outcome 4 (Regulation 9) Cleanliness and infection control – Outcome 8 (Regulation 12) Management of medicines – Outcome 9 (Regulation 13) Supporting staff – Outcome 14 (Regulation 23) There were no recommendations or requirements as a result of the inspection. The hospice’s internal audit programme, which utilises Help the Hospices’ audit tools based on CQC essential standards and national guidance, has not identified any significant areas of non-compliance. The hospice is reviewing its quality strategy which will be implemented during 2013 / 2014 and will then be evaluated by the Clinical Director and Medical Director who report to the Clinical governance Committee. 4 Priorities for improvement 2013-2014 Following discussions at clinical services meetings, Mary Stevens Hospice confirms the top three quality improvement priorities for 2013 to 2014 to be as follows: Future planning Priority 1 Quality Domain: Patient Experience Timely capture of patient feedback to facilitate improvements in care The hospice will participate in the Help the Hospices Patient Survey The hospice will introduce an internal patient feedback mechanism to effectively capture patient experience and identify areas for improvement. Future planning Priority 2 Quality Domain: Safety The reduction of patient trips, slips and falls. All patients will have a falls risk assessment on admission which will be revised as the patient’s condition changes. All patients identified at risk will have a care plan in place to minimise their risk of falling. All clinical staff will have training to increase their awareness of the risk of patient falls and measures to take to reduce the incidence of falls. The prevention of urethral catheter related infections Patients will only be catheterised if it is the most appropriate method of managing their clinical need. All catheter interventions will be managed in accordance with urinary catheter care guidance The duration of insertion will be minimised to reduce the potential for catheter related urinary tract infection. 5 Future planning Priority 3 Quality Domain: Effectiveness Evaluation of care and support provided The hospice will introduce St Christopher’s Hospice Index of Patient Priorities (SKIPP) within the Day therapies Clinic to measure patient and staff reported outcome measures to monitor and improve the effectiveness of interventions. Quality Improvements made in 2012/2013 These are the first quality accounts published by Mary Stevens Hospice and therefore there are no formal quality priorities against which to evaluate progress. However, the following improvements were made during 2012/2013 and reported through the Clinical Services and / or Clinical Governance Committees. Clinical Governance The hospice reviewed its governance structure in 2011 and introduced a Clinical Governance Committee to provide assurance about the quality of clinical care. The committee is chaired by a Trustee who is a medical Consultant and comprises of the Chief Executive, Clinical Director (Registered Manager), Medical Director and three lay Trustees. Meetings are held quarterly and reports sent internally to the Board of Trustees and externally to the Care Quality Commission to inform the hospice Quality and Risk Profile. Essence of Care The hospice used Essence of Care benchmarks to improve the following areas of clinical care. Essence of Care 2010 is a useful benchmarking tool which identifies best practice and highlights how this can be achieved. Skin care and the prevention of pressure sores The working party for skin care and the prevention of pressure sores reviewed this aspect of care within the hospice against essence of care benchmarks and introduced a systematic approach to patient assessment, care planning, implementation and evaluation. Training was then included as part of clinical staff’s mandatory training to raise awareness and improve practice in this aspect of clinical care. 6 Diet and nutrition. The essence of care group, which includes nurses and catering staff, worked together to improve how we meet patients’ dietary needs. A nutritional assessment has been introduced to personalise nutritional care and catering staff work as part of the multidisciplinary team to ensure individual needs and preferences are met. Falls Prevention A new patient falls assessment and care plan bundle has been implemented to ensure early identification of patients at risk of falling and minimise the risk of harm. Falls prevention has been added to the annual mandatory training of clinical staff. Medicines Management The hospice has a very low rate of untoward incidences associated with the management and administration of medicines. It is important that this does not lead to complacency which may then threaten care quality. The following changes have been made to practice to support patient safety, efficacy of treatment and promote a positive experience of care for patients: Introduction of a revised prescription chart to improve clarity and accuracy and reduce risks associated with administering medicines. All Registered Nurses have achieved 100% in a new drugs calculations test implemented to assure clinical competency. Introduction of a new policy for the reporting and management of drugs incidences which further promotes learning from incidents and therefore aims to reduce reoccurrences. Hospice November 2012 Cohort: Patient Dependency, Nursing Activity, Quality and Staffing Benchmarked against UK Hospices During November 2012 a comprehensive review of the clinical workforce was completed within the in-patient unit which included the assessment of patient dependency and an 7 evaluation of the quality of care. The review was facilitated by St. Anne’s Hospice Practice Development Department with data collected by independent professionals. The project confirmed that patients cared for have high dependency needs and made recommendations regarding staffing ratios and skill mix based on academic evidence gained within the speciality. In response to the report the hospice will modify its staffing in the inpatient unit to increase the hours provided by experienced Registered Nurses and will also introduce a new higher level Health Care Assistant role, increasing the level of support worker hours. The hospice now has a robust workforce plan underpinned by robust evidence. Day Hospice Re-structure In May 2012, as part of a wider hospice consultation, the Day Hospice was re-structured to develop a new Day therapies Clinic with integrated complementary therapies. The skill mix comprises Registered Nurses, Higher Level Health Care Assistants and qualified complementary therapists equipped to manage the complex holistic needs of patients and carers. The restructure included the introduction of a new level of Health Care Assistant to provide a higher level of holistic support to patients under the supervision of registered nurses. Level 3 Health Care Assistants have completed training to discuss advance care planning with patients and are achieving palliative care competencies for Health Care Assistants. 8 Section 2 Mandated Statements Statements of assurance from the board The following are a series of statements that, although not directly applicable to hospices, all providers must include in their Quality Account: Review of services During 1st April 2012 to 31st March 2013, Mary Stevens Hospice provided the following services: In-Patient Unit Day Therapy Unit Bereavement Service The Clinical Services Committee comprises clinical staff representing all services and disciplines and meets bimonthly to discuss operational issues including patient care delivery, policy development, training, and quality and risk management. The Clinical Governance Committee, which is a sub-committee of the Board, meets quarterly to scrutinise quality indicators and challenge Clinical Directors to exercise their responsibilities of clinical governance and to assure clinical quality and safety. The committees providing clinical governance oversight receive quality reports which enable them to review the quality of care provided by all clinical services. The Clinical Governance report is submitted to the Board of Trustees on a quarterly basis. Participation in clinical audits During 2012/13, Mary Stevens Hospice did not participate in national clinical audits. 9 Research During 2012/13, Mary Stevens Hospice did not participate in national or regional programmes of research. Quality and Safety Performance Measures Measures 2011 / 2012 2012 / 2013 Number of patients cared for with MRSA 0 1 Number of patients contracting MRSA when in the hospice’s care 1 0 Number of patients contracting MRSA per 100 bed days 0 0 Number of patients cared for with C Difficile infection 1 4 Number of patients contracting C Difficile infection when in the hospice’s care 0 0 Number of patients contracting C Difficile infection per 100 bed days 0 0 Number of patients developing pressure sores whilst in the hospice’s care 3 11 Number of patients developing pressure sores whilst in the hospice’s care per 100 bed days. 0.1 0.4 Number of formal complaints received 1 0 Number of formal complaints received as a % of patients accessing services 0.2 0 Number of adverse comments received 0 4 Number of adverse comments received as a % of patients accessing services 0 0.8% Number of required actions specified by the Care Quality Commission 0 0 Number of recommendations made by the Care Quality Commission 0 0 Number of reported drug errors 11 6 Number of reported drug errors per 100 bed days 0.4 0.2 Number of patient accidents reported in the year (trips, slips &falls). 35 53 Number of patient accidents per 10,000 hours of care (trips, slips &falls). 4 4 10 What others say about us Mary Stevens Hospice is required to register with the Care Quality Commission and its current registration status is unconditional. The Care Quality Commission has not taken any enforcement action against Mary Stevens Hospice during 2012/13. Mary Stevens Hospice is subject to periodic reviews by the Care Quality commission. The last on-site inspection was on 16th January 2013. The CQC website states that Mary Stevens Hospice has been inspected and that “all standards were found to have been met following our assessment of declarations and evidence supplied by the service itself during registration” and the unannounced inspection which took place on 16th January 2013. The Quality Risk Profile of the hospice states that the hospice is low risk and the hospice provides a comprehensive quarterly quality report to the CQC to maintain this ranking. Data quality In accordance with agreement with the Department of Health, Mary Stevens Hospice submits a National Minimum Dataset (MDS) to the National Council for Palliative Care. Mary Stevens Hospice provides a copy of the quarterly quality report to the local CQC. Mary Stevens Hospice will be taking the following actions to improve data quality: The Registered Manager will continue to review the data outputs in order to improve the quality of patient data reporting. Data will be audited and systems involved in the collection and reporting of information reviewed with the aim of improving reliability. 11 Section 3 Quality overview Comparison with national minimum data sets The most recent National Minimum Dataset covers the period 1st April 2010 to 31st March 2011. Mary Stevens Hospice data for 2011-12 have been collated but there are no comparative national data available at the time of writing. Comparison with regional data sets The hospice participates in regional benchmarking of quality data on a quarterly basis, discussed at the West Midlands Hospices Nurse Managers meetings. With regard to the safely dimension of quality, the West Midlands Region is collating data on a monthly basis in the following areas: Percentage occupancy Pressure ulcers Slips trips and falls Infection control Deaths and discharges The West Midlands Nurse Managers (WMNM) scrutinise the data on a quarterly basis. Following reflective discussion, the WMNM are in agreement that there is consistency between the hospices in the West Midlands Region. Through this process of continuous quality monitoring, the WMNM would quickly identify any significant differences between hospices and act to identify the underlying cause(s). In-Patient Unit The minimum data set for the In-Patient Unit is given in Table 1; there is no National MDS available for this period. Table 1 In-Patient Unit MDS data Mary Stevens Hospice Admissions % Occupancy 75% % Patients discharged 38% Average length of stay - 2009-2010 - 2010-2011 224 75% 28% 13 2011-2012 233 72% 22% - 2012-2013 239 76% 21% 9 46% 12 National Median 2010-2011 - 75% 12 The hospice is committed to supporting patients to return to their home, or alternative preferred place of care, as soon as their symptoms have been managed; the reduction in the percentage of patients returning home in the two years since 2010/2011 from 28% to 21% reflects both the increase in patients referred for terminal care for whom the hospice is their preferred place of death and patients being referred to the hospice closer to the moment of death. Since 2006-7, the In-Patient Unit has seen a decrease in the average length of stay (LOS) for patients from 14 days to 9 days. The reduction in LOS is in part the result of effective use of the admission and discharge criteria but is also due to the late referral of patients in the terminal phase of their illness. Feedback from one of our patients “The nursing staff were exceptionally sensitive, perceptive and thorough in their care” “The kindness and respect for patients was impressive. They treated each one as an individual” “I am amazed at the standard of care I received was so consistently high” “All staff very helpful above their call of duty” 2010/2011 Hospice Patient Survey 13 Day Therapy Unit MDS data for the Day Therapy Unit is given in Table 2. Table 2 Day Therapy Unit MDS Data Mary Stevens Hospice MDS New patients % Occupancy % Occupancy 2012-2013 62 96% _ 2011-2012 43 87% _ 2010-2011 58 97% 74% The percentage occupancy of patients attending the Day Therapy Unit is 96%. There are no national data for 2012/2013 but in 2010/2011 MSH percentage occupancy was 97% which was 22% more than the national mean which is 74%. During the past year, the hospice has changed the focus of this unit from a day hospice to a day therapy unit, with an emphasis on therapeutic interventions. Feedback from the Patients’ Survey and the Carers’ Group indicates that this support is highly valued. Patients’ Feedback “What a lovely place, my needs have always come first to them.” “They have given me a purpose to carry on with life and enjoy what's left.” “The staff at the hospice were extremely compassionate in the way they handled the "end of life" information and how the final days would be adapted to suit my wishes.” 2010/2011 Hospice Patient Survey 14 Local quality measures Referrals Over the past five years the total number of referrals to the hospice has increased from 326 to 476 i.e. an increase of 46%. Tables 3 and 4 illustrate the upward trend in in-patient referrals and admissions. The decrease in referrals to the day therapies clinic but increase in new patients may indicate a greater awareness of referral criteria resulting in fewer inappropriate referrals. Table 3 Referrals to the hospice between 1st April 2008 and 31st March 2012 st st st st st Service 1 April 2008 st 31 March 2009 1 April 2009 st 31 March 2010 1 April 2010 st 31 March 2011 1 April 2011 st 31 March 2012 1 April 2012 st 31 March 2013 Day Therapies Clinic IPU 215 131 148 138 113 111 212 233 287 363 Table 4 Admissions to the hospice between 1st April 2008 and 31stMarch 2012 st st st st st Service 1 April 2008 st 31 March 2009 1 April 2009 st 31 March 2010 1 April 2010 st 31 March 2011 1 April 2011 st 31 March 2012 1 April 2012 st 31 March 2013 Day Therapies Clinic (New patients) IPU (Admissions) 64 77 58 43 62 200 233 244 233 239 During the period 2008 / 2013 there has been a 227% increase in referrals to IPU resulting in a 20% increase in the number of admissions. The increase in the number of patients referred to the hospice may reflect an increase in awareness of hospice services by referrers and the local population. It may also be indicative of an increase in the need for palliative care services and may be affected by changes to NHS community services. It does however demonstrate a high level of confidence in the care provided by Mary Stevens Hospice. 15 The lack of parity between referrals to the in-patient unit and actual admissions can be accounted for by the number of patients choosing to stay at home following support from hospice staff and those referred late for terminal care who die before admission shown in table 5. Table 5 2012 / 2013 No. Referrals to IPU No. admissions to IPU No. Patients who died No. Patients who died prior to admission at home following support 363 239 72 32 Supporting patient choice The hospice supports patients in their choices and all patients attending the Day Therapies Clinic are offered the opportunity to complete an advance care plan; patients admitted to the In Patient Unit are offered support to do this as appropriate depending on the reason for admission and clinical condition. All patients are involved in care planning decisions to the level they choose and participate in the evaluation of their care and its outcomes. Although the hospice does not have a community team the senior nurses responsible for the assessment of patients prior to admission / attendance perform roles often associated with hospice community staff. Patients are sometimes referred to the hospice for care but on assessment reveal alternative preferences; community support sisters discuss care available and liaise with other services to achieve the care package which best meets the patient’s preferences. This activity was not captured fully during 2012/2013 but table 5 demonstrates the difference between the number of patients referred and those admitted, together with those patients that died before they were admitted. 16 Reducing Acute Hospital Admissions Mary Stevens Hospice reduced the number of occupied bed days within acute hospitals by the following actions: Admission of patients from community who would have been admitted to an acute hospital Transfers to the hospice from acute hospitals Table 6 below shows the impact of these actions. Table 6 2012 / 2013 Prevented hospital admission (Admissions from Transfer from hospital home excluding respite) 97 86 A quality indicator: Prevention and management of pressure ulcers Between 1st April 2012 and 31st March 2013, 239 patients were admitted to the IPU. A Waterlow score, which is evidence based tool used to assess a person’s risk of developing a pressure sore, was determined for 94% of patients. The average Waterlow score was 20 with a range of 7- 37 (high risk = a score of ≥20), which is an indication of the frailty of the patients being cared for. 65 patients had pressure ulcers (sores) on admission. All pressure ulcers, and areas at risk of developing into a pressure ulcer, were given a grading using the European Pressure Ulcer Advisory Panel (EPUAP) classification system. This system grades sores depending on their size, depth and the extent of damage to tissue. All at risk patients had a documented care plan, which includes monitoring on an ongoing basis. Preventative measures were put in place for all at risk patients, such as pressure relieving mattresses and cushions. 17 Our participation in clinical audits To ensure that the hospice is providing a consistently high quality service, we undertake our own clinical audits, using national audit tools developed specifically for hospices by the National Audit Group at Help the Hospices. The tools have been peer reviewed and quality assessed. This allows us to monitor the quality of care being provided in a systematic way and creates a framework by which we can review this information and make improvements where needed. Each year, the Clinical Services Committee approves the audit schedule for the coming year. Priorities are selected in accordance with what is required by our regulators and any areas where a formal audit would inform the risk management processes within the hospice. Through the Clinical Governance report, the Board of Trustees is kept fully informed about the audit results and any identified shortfalls. Through this process, the Board has received an assurance of the quality of the services provided. Table 7 shows the audits completed between 1st April 2012 and 31st March 2013. Table 7 Audits completed between 1st April 2012 and 31st March 2013. Self-assessment by the Accountable This audit has to be completed annually. Officer The hospice was fully compliant with the legal requirements. Management of controlled drugs This audit has to be completed annually to provide evidence to support the self assessment by the Accountable Officer. A few minor shortfalls were identified in the documentation of advice given to patients which have now been resolved. The Board is assured that the hospice is now fully compliant. Management of general medication The hospice was fully compliant with the legal requirements. 18 Storage, prescribing and This audit was completed in response to concerns administration of oxygen. highlighted nationally by the Medicines and Healthcare products Regulatory Agency (MRHA). The hospice modified its systems to achieve compliance with the recommendations. This included the development of standard operating procedures and staff training related to the ordering, procurement, storage, prescribing and administration of oxygen. Infection control: Code of Practice The hospice is fully compliant with the code of Practice. Infection control: Hand washing To ensure a high level of practice and compliance this audit is completed on a quarterly basis. In May 2012 the hand hygiene audit showed 96% compliance, a 10% increase on the previous audit. The provision of hand washing facilities and hand washing practice by staff and visitors achieved 100% compliance through observation and documented evidence. The only area of non-compliance was the absence of a foot operated pedal bin in one of the areas. Management of Pain This audit is conducted to measure the outcomes of symptom control measures at the hospice. A high level of compliance with best practice standards was achieved. Nutrition and hydration This audit was completed as part of the hospices “Essence of Care” programme. It informed changes to practice and the development of staff training. A nutritional tool to identify patients’ nutritional needs has been introduced within the day therapies clinic to ensure we are meeting the individual dietary and nutritional needs. 19 Bereavement Support One of the Charity’s aims is to offer professional advice and support to families and carers during the patient’s illness and during the initial stages of bereavement. Between 1st April 2012 and 31st March 2013, the bereavement service provided support provided by registered nurses and trained bereavement volunteers. The hospice also provided training for pastoral care staff employed by Dudley Local Education Authority. What our staff say about the organisation Mary Stevens Hospice values the opinions of the staff regarding the quality of the service provided. The hospice plan to survey staff during June 2013 using an external charity called “Birdsong” which will benchmark responses against those of other participating hospices and charities. Representatives of the Board of Trustees undertake a bi-annual visit. At the last visit, carried out on 06/02/12, the Trustees found the staff to be very open and helpful and very supportive of the hospice. The Board of Trustees’ commitment to quality The Board of Trustees is fully committed to the quality agenda. The hospice has developed a new governance structure which has included the development of a Clinical Governance Committee. Members of the Board having an active role in ensuring that the hospice provides a high quality service in accordance with its Statement of Purpose. The Board is confident that the treatment and care provided by the hospice is of high quality and is cost effective. 20 Appendix 1 What the Clinical Commissioning Group (CCG) says about the organisation Dudley CCG and Sandwell and West Birmingham CCG were provided with the proposed draft of the Quality Account with the request for comments and feedback on the following: 1. The presentation of the accounts 2. How readable you find the accounts 3. The specific measures proposed on page 8 of the accounts 4. Whether you feel there are any omissions in the accounts 5. Whether you feel there are other measures the hospice should be considering. At the time of publishing these Quality Accounts the hospice had not received feedback from the Clinical Commissioning Groups. Their comments will be added when they are available. 21 Appendix 2 What Dudley Healthwatch says about the organisation Dudley Healthwatch were provided with the first draft of the Quality Account with the request for comments and feedback. They made suggestions about the content, such as wording and the need for definitions for some clinical measures, which has been used to produce this final draft. They provided the following comments relating to the presentation, readability, priorities chosen and additional measures; their suggestions will be incorporated into future accounts. 1. Presentation Healthwatch were satisfied with the presentation overall but made the following suggestions for future Quality Accounts from the perspective of stakeholders or readers with less specific knowledge of some of the issues addressed or interest in tables, figures; consider making it less formal in appearance more use of colour to make it more exciting to look at 2. Readability From the reviewers perspective it was clear and readable document but they felt it may be useful to assess the report in terms of its ease of reading from a public perspective, for example by applying the standards of “plain English” 3. Priorities Healthwatch thought that the priorities were reasonable and will want to comment more in the future when they can assess what progress is made is made in achieving them. 4. Additional measures. It is hard to judge at this stage what other measures might be considered - in future we will be able to compare reports and outcomes, however, case studies, narratives, etc that set out stories, experiences, etc in rich detail can be useful addition to more quantitative data. 22