. Greenwich & Bexley Community Hospice 2012–2013 Quality Account Son and daughter of patient, Blackheath Version: 2.0 – June 2013 GBCH 2012-2013 Quality Account Contents Page Part 1 – Chief Executive’s Statement 3 Part 2 – Priorities for Improvement and Statements of Assurance from the Board 4-16 2.1 Priorities for Improvement 2013 – 2014 4 2.2 Priorities for Improvement 2012 – 2013 9 2.3 Statement of Assurance from the Board 12 2.3.1 2.3.2 2.3.3 2.3.4 2.3.5 2.3.6 12 12 12 13 14 Review of Services Income Generated Participation in National Clinical Audits Participation in Local Audits Research Quality improvement and innovation goals agreed with our Commissioners 2.3.7 What others say about GBCH 2.3.8 Data Quality 2.3.9 Information Governance Toolkit Attainment Levels 2.3.10 Clinical Coding Error Rate Part 3 – Review of Quality Performance 3.1 15 15 16 16 16 16-25 Comparison with National Minimum Data sets 16 3.1.1 3.1.2 3.1.3 3.1.4 3.1.5 3.1.6 17 18 19 20 22 23 Inpatients Day Care Home Care / Hospice at Home Hospital Support Teams Bereavement Support Outpatients 3.2 Clinical Governance 24 3.3 Training 24 3.4 Supportive Care 24 3.5 Peer Review 25 3.6 Challenges 25 Appendix Appendix 1: Greenwich Appendix 2: Bexley Appendix 3: London Cancer Alliance Version: 2.0 – June 2013 26-29 26 28 29 Page 2 GBCH 2012-2013 Quality Account Part 1 - Chief Executive’s Statement The Hospice has been serving the communities of Greenwich and Bexley boroughs for 19 years and throughout this time, alongside the development and growth of the services we provide; the organisation has tried to ensure that people who have a life limiting illness receive the best possible quality of care. It is my pleasure to present the Hospice’s first Quality Account which sets out our achievements for 2012/13 and aspirations for the coming year. The Hospice has moved from a service which focuses on delivering care within the main building to providing flexible care and support in whatever setting it is required; this includes care in people's homes, care homes, in hospital and at the Hospice. The new Hospice integrated end of life care service for Greenwich residents has enabled us to provide care which is tailored to each individual person’s needs and has enabled more people to be supported at home surrounded by their family, friends and their own environment. We hope that we will be able to work with others in Bexley borough to deliver similar improvements for people with life limiting illness. The Hospice is registered with the Care Quality Commission who carried out an unannounced inspection on 16th January 2013 and the Hospice was compliant against all of the Outcomes inspected. We continue to work hard to ensure that Hospice premises reflect the quality care we provide, and we are pleased that we were successful in a recent application to the Department of Health for a grant towards more improvements in our building. This dedicated capital funding will allow the Hospice to deliver some important improvements to benefit patients, including the refurbishment of our kitchen and courtyard garden, improvements to access to the Hospice building, provision of a purpose-built rehabilitation gym and development of a community hub and care coordination centre. To the best of my knowledge, the information reported in this Quality Account is accurate and a fair representation of the quality of healthcare services provided by the Hospice. Kate Heaps Chief Executive Version: 2.0 – June 2013 Page 3 GBCH 2012-2013 Quality Account Part 2 – Priorities for Improvement and Statements of Assurance from the Board 2.1 Priorities for Improvement 2013 – 2014 The following key Priorities for Improvement 2013 - 14 have been identified. These cover the three quality domains of Clinical Effectiveness, Patient Experience and Patient Safety: Improvement Priority 1: Development of a Quality and Governance Dashboard Why this was chosen as a Priority The development of clinical dashboards was a key recommendation from both Lord Darzi’s Next Stage Review (NSR) and the Health Informatics Review. The concept of the “quality or clinical governance dashboard” is to ensure a clear and visual tool to demonstrate that services being delivered are safe, effective and have high levels of patient satisfaction. Patients, providers, commissioners and policy makers need to have the best and most up to date information the Hospice can produce and the dashboard is an effective way to monitor and report on performance, activity and the quality of care in a transparent way that can reassure patients, professionals and the public or improve confidence, for example, MRSA rates etc What is a Quality and Governance Dashboard? The dashboard allows clinical staff, managers and Trustees to identify potential problems that they need to focus on, which they otherwise may not know about until they arrived in a clinical area. Quality and Governance Dashboards help to drive this process by providing timely and relevant information for clinical teams, presented in easy to understand formats, with high visual impact. A variety of appropriate quality and activity markers are identified and reported on at regular predefined intervals and can help to drive improvements by encouraging a focus on specific areas. What are the plans for this Priority? To develop a common dashboard reporting format covering the four key areas of: Patient Safety – CAS Alerts, NICE Guidance, Trips, Slips and Falls Clinical Effectiveness – Incidence of Clostridium Difficile, MRSA, Pressure Sores Patient Experience – Compliments, Complaints, Results of Patient & Carer Surveys Workforce Data – Mandatory Training, Recruitment, Vacancies, Appraisals In addition, the Hospice intends to report the level of clinical activity which is delivered as part of the Dashboard. How progress against the plan will be measured Monthly and quarterly Dashboard templates have been agreed by the Quality and Safety Committee. These will be used to populate the relevant information for the specific areas and also report comments, updates and progress against action plans. Quarter by quarter comparisons will be made, highlighting trends and potential areas of concern. Version: 2.0 – June 2013 Page 4 GBCH 2012-2013 Quality Account How progress will be reported Monthly and quarterly Dashboards will be reported to the Quality and Safety Committee and quarterly Dashboards will be presented to the Board of Trustees. Improvement Priority 2: Launch a Patient & Carer Survey Programme Why this was chosen as a Priority Although Greenwich & Bexley Community Hospice (GBCH) collects and receives various forms of feedback on services from patients and carers (for example compliments, complaints, thank you cards, satisfaction surveys, comments and focus groups), to date there has not been a standard and formalised approach to capturing feedback. As part of the Hospice’s Clinical Strategy for 2013/2014, it has been identified that the Hospice would benefit from a routine focussed process for obtaining feedback. This will also allow the Hospice to assess, review and evaluate the outcomes and impacts of the services it delivers to patients and their families, to celebrate and share good practice and to act on suggestions made for improvement. In addition, the Hospice is one of the partner organisations of the London Cancer Alliance (LCA), a collaborative partnership of NHS providers providing cancer services across South and West London. A subgroup of the LCA is the Palliative Care Pathway Group, which has also identified as one of its first priorities to “improve the access, experience and outcomes for patients requiring palliative care, irrespective of diagnosis, across the population the LCA serves”. What is a Patient & Carer Survey Programme? GBCH have decided to adopt a variety of formal approaches to collating patient and carer feedback. To capture patient feedback and outcomes, GBCH will trial the St Christopher’s Index of Patient Priorities questionnaire (SKIPP). This tool was developed in collaboration with Professor Julia Addington-Hall at Southampton University. SKIPP is an outcome measurement tool which enables hospices/palliative care providers to assess the impact on patients of the care they deliver and show changes in symptoms over time. It is an established and validated tool. To capture feedback from bereaved carers, GBCH has chosen to trial the VOICES (Views of Informal Carers) questionnaire. This is a postal questionnaire which collects information from bereaved Next of Kin a few months after the patient has died. This is also a well established and validated tool which was originally derived from the 1991 Regional Study of the Care of the Dying and then further developed by Professor Julia Addingtion-Hall, as part of the End of Life Care Strategy in 2008. VOICES is used on a national level as a proxy measure of the care experience of people who die with Cancer. Following a recommendation from the Nursing and Care Quality Forum in May 2012, the Government announced the introduction of a national standardised measure of patient satisfaction, “The Friends and Family Test”, (FFT) which will be mandatory for all acute adult providers of NHS funded services from 1st April 2013. GBCH has also decided to adopt this tool. Version: 2.0 – June 2013 Page 5 GBCH 2012-2013 Quality Account The FFT is a simple, comparable test which, when combined with a follow-up clarification question, provides a way of recognising good and bad performance. The standardised question will be ‘How likely are you to recommend “Woodlands”, “Shornells”, “The Greenwich Care Partnership” etc. to your friends and family if they needed similar care or treatment?’. There is a descriptive six point scale to answer the question, from 1-Extremely likely to 5-Not at all likely and 6-Don’t know. The second question invites a free text response by asking ‘Please can you tell us the main reason for the score you have given’. What are the plans for this Priority? The VOICES questionnaire will be launched in July 2013, initially being sent to the next of kin of those patients who received the services of the Greenwich Care Partnership. The patient questionnaire (SKIPP) will be rolled-out in July 2013 for patients utilising Shornells (Day Hospice) and then August 2013 for the Greenwich Care Partnership and Woodlands (Inpatient Unit) patients. The Friends & Family Test (FFT) will be launched in July 2013, with Let’s Get Moving, Stepping Stones (see section 3.4) and patients being discharged from Woodlands. Proposed timescales: Next of Kin (VOICES) survey launched – July 2013 Patient questionnaire (SKIPP) launched in Day Hospice – July 2013 Patient questionnaire (SKIPP) rolled out in GCP – August 2013 Patient questionnaire (SKIPP) rolled out in Woodlands – August 2013 Friends & Family Test (FFT) launched in Let’s Get Moving, Stepping Stones and Woodlands – July 2013 How progress against the plan will be measured An Initial Review will be held after 3 months of implementation of each questionnaire. This will cover the response rate (%), review of the tool and processes, and common response themes. A Formal Review will be carried out after 6 months. Along with the areas detailed in the initial review, this will also consider outcomes and trends, refinements to the process and the viability/usefulness of the scheme. How progress will be reported Initially progress reports will be reviewed at Clinical Leads meetings, with quarterly reports taken to the Quality & Safety Committee meetings, which are held bimonthly and monthly respectively, prior to a report on the project being presented to the Board of Trustees bi-annually. It is anticipated that once fully implemented, the patient and carer satisfaction results will form a part of the Quality and Governance Dashboard. Version: 2.0 – June 2013 Page 6 GBCH 2012-2013 Quality Account Improvement Priority 3: Access to Hospice Services Why this was chosen as a Priority In 2012 Help the Hospices (HtH) commissioned Cicely Saunders International to produce an evidence-based report on the future level of need for hospice care. The fundamental aim of this project, conducted under the auspices of HtH’s commission into the future of hospice care, was to predict the likely impact of demographic changes on the future demand of care provided by hospices. The report made the following conclusions: UK mortality trends have and are changing towards people living longer and dying with more complex needs and diseases at an older age. Hospices will therefore need to optimise their capacity to care for older people at the end of life Evidence from the UK shows that home is the most frequently chosen place to die, however the Older Old (85+) and non-cancer patients are less likely to die at home than patients with a cancer diagnosis. Hospices therefore need to better understand why this is and assess patients “preferred place of care” in order to respond to the needs of the local population Current models of end of life care provision have been based on past assumptions and provide “deluxe dying for the few” (Douglas 1991), hospices therefore need to review the way they do things GBCH has an ethnically and socio-economically diverse catchment area. Like most other hospices, the Hospice does not see people across the range of the population accessing hospice care; however recent changes to the model of care provided by GBCH appear to have made some in-roads in this area. What does the Access to Hospice Services Priority mean? The Hospice has developed its services over recent years to ensure that care is provided across patient pathways in a variety of settings. Opportunities to provide integrated care in hospital, at home or in a care home and in the Hospice building have already helped to improve accessibility for people regardless of their diagnosis, age, ethnicity, preferred place of care etc. However the Hospice recognises that we still have a long way to go in providing access to Hospice services for all who need it. GBCH has identified that as part of its response to the ever increasing need for Hospice and End of Life Care for people who may not have traditionally accessed these services, it wishes to redesign referral pathways, integrating existing elements of service further and developing new areas of provision. As part of this, the concept of the Hospice as “a hub” will be developed, this enables the physical space to not only be used by patients, families and staff, but also to be a “hub” for the local community. For example, the Hospice may provide a space for socialising, rehabilitation, volunteering, receiving new kinds of care and support and training and education. By opening up the Hospice to other members of the community, we aim to challenge people’s perceptions of who and what hospices are there for, opening up the doors to support more people throughout their lives. Version: 2.0 – June 2013 Page 7 GBCH 2012-2013 Quality Account What are the plans for this Priority? The Hospice strategy has identified this as a key area for development over the next 3-5 years and as such this is a long term strategic goal. There are a number of elements which sit under the goal and a number of developments already in progress. These include: Embedding Advance Care Planning into the care pathway within and outside of Hospice services Developing social support services including befriending, groups and drop-in services Developing the Hospice medical and nursing staff to better manage older people, people with life-limiting non malignant disease including dementia and those who are living with long term conditions Integrating community liaison and discharge planning across all Hospice services Delivery of integrated end of life care, working with other local providers (currently in the Royal Borough of Greenwich only) Reviewing ambulatory care services to enable access to the Hospice for reablement, complementary therapies, financial and housing advice, psychological support etc. Increasing provision of education and training to local health and social care partners In addition, the Hospice will review its referral pathways, and ensure that patients receive the most appropriate care in the most appropriate setting in a timely manner. As part of this strategic goal, GBCH intends to develop new facilities on the Hospice site including a purpose built rehabilitation gym, a new education and training facility and a coordination centre where we will provide a first contact centre, integrating specialist community services, our end of life care services and enabling our partnerships with other health and social care providers. How progress against the plan will be measured Evaluation of Advance Care Planning (ACP) across the Hospice and the impact of the ACP project using patient feedback and activity related data Evaluation of social support services using patient feedback and activity data (befriending project to be launched summer 2013) Scoping of strengths and weaknesses of the clinical team relating to non malignant disease, survivorship and older people and development of a workforce development plan – autumn 2013 Report produced for commissioners on the impact of the discharge/ community liaison roles including place of death and patient/ carer satisfaction Feedback on GCP service through SKIPP, VOICES, FFT questionnaires and activity data Review of Ambulatory Care Services including Day Hospice, lymphoedema, rehabilitation – using SKIPP and FFT questionnaires Review activity and impact of education and training to external colleagues through evaluation of teaching Version: 2.0 – June 2013 Page 8 GBCH 2012-2013 Quality Account Minimum Data Set reports show increased activity and report increased accessibility for “hard to reach” groups Project plan for capital project developed and work commenced How progress will be reported Progress on this priority will be regularly reported to Clinical Leads meetings, the Quality & Safety Committee, relevant project boards and to the Board & Trustees. In addition, formal written reports will be submitted to commissioners and grant funding bodies. It is anticipated that the capital project will commence in the autumn of 2013, the project plan is currently being finalised and a specific Capital Project Board established. This group will report to the Board of Trustees. 2.2 Priorities for Improvement 2012 – 2013 The key Improvement Priorities for 2012/13 were: Progress against Improvement Priority 1: Implementation of an Electronic Patient Record system What are Electronic Patient Records? GBCH implemented an Electronic Patient Record (EPR) system, accessible throughout all of our services to further improve assessment, communication and integration of care. Patient details are securely stored electronically, can be viewed and updated, letters to GPs and others automatically generated, patient lists easily created and viewed and commissioner and regulator reports generated. What was planned / achieved The EPR system went live on 12th April 2012. The Greenwich Care Partnership service was added to the EPR system and they have been using it since February 2013. Benefits/outcomes of this Priority The implementation of EPR helps the Hospice to: Utilise space better Utilise staff time better Improve recording and control of patient information Better comply with legislation and standards Reduce administration costs An EPR User group meets monthly, to oversee the integrity of the system. Any outstanding area to be addressed in 2013/14 The following areas still need to be progressed to improve the effectiveness of the EPR system: Activation of N3 connection - summer 2013 Allocation of roles for ongoing maintenance of EPR –summer 2013 Provision of regular EPR training and updates - ongoing Version: 2.0 – June 2013 Page 9 GBCH 2012-2013 Quality Account Improve routine and ad-hoc reporting – summer 2013 Progress against Improvement Priority 2: Service Information What is Service Information? In 2012, GBCH produced a standardised suite of Hospice information in the form of booklets, leaflets and factsheets which detail the range of services provided as well as information on specific topics. This information has been developed in line with the corporate style and mirrors that available on the Hospice website. Information has been tailored to existing and potential patients and their carers, professionals and supporters. User views have been sought to ensure that it is clear and provides the information that people need. What was planned/achieved? The Hospice identified the areas of information already provided as well as any gaps. It was identified that as well as providing a range of “service” leaflets, it would be important to develop more general “topic” themed leaflets on areas such as consent, complaints etc. In addition, it was agreed that a template would be developed for a factsheet which could be used in-house where more specific departmental information was required. Patient and carer feedback was gathered before any of the leaflets were printed. A leaflet for Health and Social Care Professionals was also developed giving a detailed overview of all hospice services and providing a directory of useful numbers. Leaflets were distributed in house and new displays created in reception and in Shornells. Additionally, leaflets were distributed to GP surgeries, advice centres etc. Benefits/outcomes of this Priority By reviewing all of the information resources at once, the Hospice can be confident that information is accurate and communicates the core aims of the service. In addition, all patients now receive standardised information about how to make a complaint, policies on confidentiality and how the Hospice is funded. The Hospice image has been improved by standardising the professional image of our materials and we also have a standard style that can be used in-house where required. Any outstanding area to be addressed in 2013/14 In 2013/14 we plan to review the Hospice leaflet on Volunteering as well as producing a general Hospice leaflet giving information on our services for people who wish to support us. Version: 2.0 – June 2013 Page 10 GBCH 2012-2013 Quality Account Progress against Improvement Priority 3: Greenwich Care Partnership What is the Greenwich Care Partnership? The Greenwich Care Partnership was established to deliver an integrated end of life care service to people in the Royal Borough of Greenwich. The service is designed to work alongside and support established core services (GPs, district nurses, specialist nurses etc.) in order to support the provision of high quality care for dying people. The GCP was commissioned by NHS Greenwich as a partnership and is delivered by the Hospice as the prime contractor with Marie Curie Cancer Care (MCCC) and Oxleas NHS Foundation Trust as subcontractors. What was planned/achieved? The Greenwich Care Partnership provides four key elements of care: Care co-ordination through a Palliative Care Co-ordination Centre Out-of-hours Rapid Response Service Multi-visit personal care and support Planned night care service Although the elements of the service are provided by different providers, they work together to ensure care is provided seamlessly around the clock, 365 days a year. In 2012/13 the partnership entered its second year of delivery as a “test and learn” project. In March 2013 the contract was awarded to the Hospice for another 3 years. Benefits/outcomes of this Priority The GCP service received 273 referrals in 2012/13 for care coordination, nursing care and personal care and enabled over half of its patients to die at home. In 2012/13 55% of people under GCP died in their usual place of residence, this is set against a benchmark of 19% of all deaths in the Royal Borough of Greenwich. It is anticipated that results will show that by providing more care for people at home, quality improves and costs across the whole health and social care system have been reduced. Patients and families reported a high level of satisfaction of the GCP service Wife of patient, West Greenwich Version: 2.0 – June 2013 Page 11 GBCH 2012-2013 Quality Account Any outstanding area to be addressed in 2013/14 The Hospice will continue to deliver services provided by the GCP in 2013/14 and plans to carry out the following developments: Provision of education to District Nurses and GPs in the Royal Borough of Greenwich Review of GCP team leader role and introduction of a band 5 nurse Implementation of ongoing care for category 1 funded patients after the end of the fast track period Development of a plan for service improvement to facilitate rapid discharge from hospital 2.3 Statement of Assurance from the Board The following are a series of statements that all providers must include in their Quality Account. Many of these statements are not directly applicable to specialist palliative care providers. 2.3.1 Review of Services During 1st April 2012 to 31st March 2013, The Hospice provided the following services: In-Patient Care Day Hospice Services Specialist Palliative Care Community Services in Greenwich and Bexley Boroughs Hospital Support Team at Queen Elizabeth Hospital Greenwich Care Partnership Rehabilitation Lymphoedema Treatment and Care Psychological, Spiritual and Social Care Education and Care Homes Support The Hospice has reviewed all the data available to them on the quality of care in all its services. 2.3.2 Income Generated The income generated by the NHS services reviewed in 2012/13 represents 100% of the total income generated from the provision of NHS services by GBCH for 2012/13. The income generated from the NHS represented 45% (unaudited) of the overall cost of running these services. The above mandatory statement confirms that all of the NHS income received by the Hospice is used to towards the cost of providing patient services. 2.3.3 Participation in National Clinical Audits During 2012/13, The Hospice was ineligible to participate in any national clinical audits or national confidential enquiries. Version: 2.0 – June 2013 Page 12 GBCH 2012-2013 Quality Account 2.3.4 Participation in Local Audits The following audits were carried out during 2012/13: Subject Matter Outcomes of Audit Follow-up Actions Transfer of patients out of hospice to hospital and reasons why From this audit of inpatient admissions in 2012, only a small percentage resulted in transfer out of the hospice to hospital for acute intervention. In the majority of these cases this was appropriate either due to unforeseen clinical issues or predictable clinical complications that could not be managed safely in the hospice. None. This is a hard area to audit as there is no gold standard to compare our activity against. Liverpool Care Pathway for the care of the dying An LCP audit tool had to be developed. Two audits were performed during 2012 Hand Hygiene Hand hygiene is now part of Mandatory training for all staff, improvements have been seen as s result of training and regular inspections Additional training needs were identified. LCP Guidelines to be developed. Audits are regularly performed as part of the annual programme for infection control. Use of Morphine and Oxycodone This audit was carried out to review the use of injectable Oxycodone in the hospice. Out of Hours contacts Problems outside core service hours can be mitigated by having an effective overnight advisory service that facilitates good collaboration with other services and prompt in-hours follow-up the next day. Version: 2.0 – June 2013 The case notes should; Describe Pain type – neuropathic, nociceptive or complex regional pain syndrome, or recognised pain syndrome description. Attempt to ascertain why Oxycodone specifically being used. Justify rationale for commencing syringe driver. Justify rationale for any opiate switch. Consider alfentanil first line in syringe driver in patients with renal impairment/failure. If the above is clearly recorded and acted upon then use of SC Oxycodone will be clinically appropriate. Audit is being repeated in 2013. Audit to be repeated annually to track any evolutionary trends, year-to-year, or to compare with the accessibility of the Greenwich outreach team via integrated GCP service and single point of access. Page 13 GBCH 2012-2013 Quality Account Mental Capacity Act documentation Evolution of the Mental Capacity Act and Hospice documentation and the move from paper to electronic patient records has given the team opportunities to reflect on how they are applying the Mental Capacity Act in day to day work without it preventing staff from having the time to give good clinical care. Refine electronic patient record to: indicate if there is a decision that needs to be made at that point or not. include specific reference to court of protection orders and independent mental capacity advocates. Audit to be repeated in 2013 Unannounced Hygiene Inspection Audits performed by Lead for Infection Control and a Trustee on a regular basis throughout 2012 Action List updated after every audit and reviewed at Quality & Safety Committee meetings 2.3.5 Research The Hospice is currently participating in the following research projects: Assessment of accuracy of prognosis prediction by the Palliative Prognostic Index (PPI): a prospective multi-centre study. Could the accuracy of prognosis prediction by PPI be improved by two assessments and could the rate of change of PPI score be used to prognosticate better? The aims of the study are to assess the accuracy of prognosis prediction by PPI in a larger population, multi-centre population to consolidate the results and to assess inter centre variability, and assess whether multiple assessment, rate of change of the PPI improve accuracy of prognosis prediction. To date, 100 patients have completed assessments. Exploring patient perception of treatment success and benefit in self-management of breast cancer-related arm swelling (lymphoedema). Secondary Lymphoedema is a common problem following treatment for breast cancer and many people have to do daily self-care to treat their arm swelling, for example wearing a compression arm sleeve. The research project aims to learn more about the patient experience of daily lymphoedema self-care, i.e. carrying out their own care at home, which usually means wearing a compression arm sleeve or glove, how the patient decides whether their swollen arm has got better or worse, and how they know if the treatment is helping the swelling. Several Lymphoedema Clinics in the London area (including Greenwich & Bexley Community Hospice Lymphoedema Clinic) have agreed to identify 25 people who are happy to participate in an interview for the research. Version: 2.0 – June 2013 Page 14 GBCH 2012-2013 Quality Account 2.3.6 Quality improvement and innovation goals agreed with our Commissioners Hospice NHS income in 2012/13 was partly conditional on achieving quality improvement and innovation goals through the Commissioning for Quality and Innovation (CQUIN) payment framework. The agreed Bexley CQUIN was: To develop an innovative proposal to increase the number of patients who die in their preferred place of death The agreed Greenwich incentive payment related to the GCP was: Reduction of 5 hospital deaths per month for the Royal Borough of Greenwich residents 2.3.7 What others say about Greenwich & Bexley Community Hospice The Hospice is required to register with the Care Quality Commission and its current registration status is that we are registered to carry out the following legally regulated activities: Diagnostic and screening procedures Treatment of disease, disorder or injury The Care Quality Commission has not taken any enforcement action against the Hospice during 2012/13. On 16th January 2013, the Care Quality Commission carried out an unannounced inspection as part of their routine inspection schedule. The following standards were inspected: Outcome 1 - Respecting and involving people who use services Outcome 4 - Care and welfare of people who use services Outcome 7 - Safeguarding people who use services from abuse Outcome 13 - Staffing Outcome 16 - Assessing and monitoring the quality of service provision The Hospice was compliant against all of the above Outcomes. The CQC stated in their report: Patients and relatives we spoke with told us that the care on the ward at the hospice was "second to none" and that staff were "always at hand". We were not able to speak to patients or staff from the day care facility which was closed during our visit. However, we saw that the same policies, governance arrangements and training apply throughout the hospice. People we spoke with told us that communication was good amongst staff and patients, and between the hospice service and the outreach services in the community. Patients said they felt secure and well cared for. We saw that people were treated with respect and involved and supported in decisions about their care and treatment. Quiet rooms were readily available for patients and relatives, and we saw that individual needs had been assessed with patients and recorded in their care plans. Patients were protected from abuse and staff respected their human rights. The hospice had made suitable arrangements to ensure that people are safeguarded from the risk of abuse, including policies and guidance, meeting with local safeguarding boards and training for all staff. Version: 2.0 – June 2013 Page 15 GBCH 2012-2013 Quality Account Patients at the hospice are cared for by staff with the right knowledge, qualifications and skills to support people. There is work in progress for further training during 2013. The hospice has systems in place to monitor the quality of the service and has shown how patient, relative, and staff feedback has informed and developed practice. 2.3.8 Data Quality The Hospice did not submit records during 2012/13 to the Secondary Uses Service for inclusion in the Hospital Episode Statistics, which are included in the latest published data. In accordance with agreement with the Department of Health, the Hospice submits a National Minimum Dataset (MDS) annual return to the National Council for Palliative Care. 2.3.9 Information Governance Toolkit Attainment Levels Throughout 2012/13 we have been working towards compliance of the Information Governance toolkit requirements. This work is still ongoing and we aim to reach a minimum of level 2 for each relevant item of the toolkit by summer 2013. Information Governance is part of annual Mandatory Training for all staff. 2.3.10 Clinical Coding Error Rate The Hospice was not subject to the Payment by Results clinical coding audit during 2012/13 by the Audit Commission. Part 3 - Review of Quality Performance The Hospice has chosen to present a number of key quality indicators to demonstrate the level of care that the Hospice services provide: 3.1 Comparison with National Minimum Data Sets Comparison with the National Minimum Data Sets (MDS) for Palliative Care, provide a National and local context to Hospice performance over time. The most recently published National Minimum Data Set for Palliative Care covers 2011/2012. Data for the Hospice for 2012/13 has been collated but currently there is no comparative National MDS data available. The Hospice has benchmarked data reports for 2011/12 under the following headings: Inpatients Day Care Home Care / Hospice at Home Hospital Support Bereavement Support Outpatients Version: 2.0 – June 2013 Page 16 GBCH 2012-2013 Quality Account 3.1.1 Inpatients MDS data for Inpatients is given in Table 1. Based upon our return, the Hospice was included in the Large category (more than 16 beds). Nationally, data was received from 58 Large units. For London, data was received from 9 Large units. Table 1 Inpatient MDS data 2012-2013 GBCH* 2011-2012 GBCH 320 2011-2012 National Median 313 2011-2012 London Median 433 New Patients 309 % New Patients 92.7 92.8 90.2 91.1 % New Patients with Ethnicity 94.2 Recorded 88.8 94.2 94.3 % New Patients with a Non- 16.1 Cancer Diagnosis 12.5 9.8 12.7 Average Cancer stay, 15 days 11 days 13 days 12 days Average Length of stay, Non- 18 days Cancer 11 days 13 days 13 days % Occupancy 75.5 78.3 80.4 Length of 80.8 The Inpatient unit has 19 beds, caring for and supporting people who have symptom control needs, complex psychological support needs, respite needs and/ or end of life care needs. The unit also provides significant support to the families and friends of those that we care for. The average length of stay increased in the inpatient unit this year. The Hospice took a strategic decision not to discharge a small group of patients who would have historically been discharged to a care home in their last few weeks of life, plus the absence of a discharge coordinator for much of the year are both likely to have had an impact on length of stay, however this post has now been filled. On a positive note, the proportion of patients with a non malignant disease who access the inpatient unit continues to increase and recording of ethnicity of patients has improved with the introduction of the electronic patient record system. Sister of patient * 2012-2013 figures are unaudited, based on our submission. These are not MDS figures. Version: 2.0 – June 2013 Page 17 GBCH 2012-2013 Quality Account 3.1.2 Day Care MDS data for Day Care is given in Table 2. Based upon our return, the Hospice was included in the Medium category (between 114 and 177 patients). Nationally, data was received from 47 Medium units. For London, data was received from 9 Medium units. Table 2 Day Care MDS data 2012-2013 GBCH* 2011-2012 GBCH 95 2011-2012 National Median 89 2011-2012 London Median 113 New Patients 129 % New Patients 74.1 56.9 64.1 59 % New Patients with Ethnicity 98.4 Recorded 91.6 91.0 91.6 % New Patients with a Non- 18.6 Cancer diagnosis 22.1 16.9 17.8 Day Care Attendances 2686 2267 1761 2495 % Places Used 74.6 62.8 57.8 62.8 163 days 137 days 128 days Average Attendances Length of 158 days Completion of the Day Care refurbishment has enabled more services to be provided including a broader range of treatments and activities such as blood transfusions and art therapy. There has been a 38% increase in new patients attending the day hospice and a significant increase in activity overall, changes to the model of care for specialist community support and improvements in transport are likely to have had a positive impact on this. As with other services, the proportion of people with their ethnicity recorded has increased following the implementation of EPR. * 2012-2013 figures are unaudited, based on our submission. These are not MDS figures. Version: 2.0 – June 2013 Page 18 GBCH 2012-2013 Quality Account 3.1.3 Home Care/Hospice at Home MDS data for Home Care/Hospice at Home is given in Table 3. Based upon the Hospice return, GBCH was included in the large category (more than 839 patients). Nationally, data was received from 11 large units. For London, data was received from 4 Large units. Table 3 Home Care/Hospice at Home MDS data 2012-2013 GBCH* 2011-2012 GBCH 968 2011-2012 National Median 911 2011-2012 London Median 1195 New Patients 895 % New Patients 71.7 69.7 69.7 68.1 % New Patients with Ethnicity 91.6 Recorded 85.4 80.9 68.8 % New Patients with a Non- 19.3 Cancer diagnosis 25.0 14.0 23.3 % Home and Care Home 48.8 Deaths 50.6 52.5 50.4 % Hospice Deaths 27.2 24.8 - - % Hospital Deaths 23.1 24.0 - - Visits per Completed Series 4.9 4.4 6.8 4.9 5.9 4.7 6.4 Telephone Contacts Completed Series per 18.5 Nurses, Doctors, Allied Health Professionals, Counsellors and Health Care Assistants provide care and support for people in their own homes, including advice and support to their carers and to other primary care professionals involved in their support. The Hospice has been awarded the contract for provision of an integrated end of life care service for the Royal Borough of Greenwich for the next 3 years. Due to funding constraints, the Hospice provides a different model of care in the two boroughs it serves. Recent mapping conducted by the London Cancer Alliance Palliative Care Pathway Group highlighted that the caseload/staffing ratio for clinical nurse specialists in Bexley Borough is the lowest in South and West London. The Hospice is currently working with NHS Bexley to address this. This year the number of new patients decreased in the main due to reduced resources in the specialist community teams, however the number of contacts significantly increased. Overall the number of deaths increased and the total number of home deaths increased, however the proportion reduced as did the proportion of hospital deaths. The number of Hospice deaths increased1. 1 See activity report for inpatient unit for further commentary. Version: 2.0 – June 2013 Page 19 GBCH 2012-2013 Quality Account The proportion of patients with a non malignant disease who access the specialist palliative care service has reduced, it is not clear why. The recording of ethnicity of patients has improved with the introduction of the electronic patient record system. Daughter and husband of patient, Abbey Wood * 2012-2013 figures are unaudited, based on our submission. These are not MDS figures. 3.1.4 Hospital Support Team MDS data for Hospital Support is given in Table 4. Based upon the Hospice return, GBCH was included in the large category (more than 721 patients). Nationally, data was received from 43 large units. For London, data was received from 19 large units. Table 4 Hospital Support Team MDS data 2012-2013 GBCH* 2011-2012 GBCH 654 2011-2012 National Median 822 2011-2012 London Median 683 New Patients 730 % New Patients 92.4 89.3 90.5 89.4 % New Patients with Ethnicity 84.5 Recorded 69.0 95.0 97.2 % New Patients with a Non- 26.7 Cancer diagnosis 33.3 24.1 30.8 % Discharged to Home 68.0 51.4 52.5 53.2 Average Length of Care 8 days 8 days 9 days 9 days The Hospice hospital support team based at Queen Elizabeth Hospital, Woolwich, provide support, advice and education to staff in the hospital on end of life care and symptom control issues, as well as supporting patients and their families directly and helping to ensure their wishes for care are met. There has been an 11% increase in new patients seen by the team, the majority of whom have a cancer diagnosis. This is likely to be due to the continued impact of the closure of the A&E service at Queen Mary’s Hospital. A greater proportion of discharges were discharged home or to a care home than in 2011/12. Version: 2.0 – June 2013 Page 20 GBCH 2012-2013 Quality Account As with other services, the proportion of people with their ethnicity recorded has increased with the implementation of EPR. Macmillan Acute Oncology Lead Nurse * 2012-2013 figures are unaudited, based on our submission. These are not MDS figures. Version: 2.0 – June 2013 Page 21 GBCH 2012-2013 Quality Account 3.1.5 Bereavement Support MDS data for Bereavement Support is given in Table 5. Based upon the Hospice’s return, GBCH was included in the large category (more than 250 services users). Nationally, data was received from 40 large units. For London, data was received from 10 large units. Table 5 Bereavement Support MDS data 2012-2013 GBCH* 2011-2012 GBCH 172 2011-2012 National Median 305 2011-2012 London Median 190 New Service Users 202 % New Service Users 92.6 68.0 67.4 68.7 with 38.6 70.3 34.4 68.0 % of Deceased with a Non- 14.8 Cancer diagnosis 8.1 10.8 11.5 Contacts per Service User 12.7 9.5 4.0 6.1 % Discharged 68.8 53.3 57.5 47.0 % New Service Users Ethnicity Recorded Bereavement Support is provided by the Hospice’s multi-professional team including Counsellors, a Social Worker, volunteer Chaplains and volunteer telephone bereavement support workers. With the introduction of EPR, data collection has improved, however recording of ethnicity for clients who are not patients appears to have deteriorated. This will be addressed with the team for future years. More new referrals were seen and the number of contacts has increased, in addition, the proportion of clients who were discharged in the year has increased. Bereavement service client * 2012-2013 figures are unaudited, based on our submission. These are not MDS figures. Version: 2.0 – June 2013 Page 22 GBCH 2012-2013 Quality Account 3.1.6 Outpatients MDS data for Outpatients is given in Table 6. Based upon the Hospice return, GBCH was included in the large category (more than 272 patients). Nationally, data was received from 49 large units. For London, data was received from 11 large units. Table 6 Outpatients MDS data 2012-2013 GBCH* 2011-2012 GBCH 158 2011-2012 National Median 271 2011-2012 London Median 116 New Clients 255 % New Clients 39.8 24.3 48.1 62.2 % New Patients with Ethnicity 90.5 Recorded 89.2 80.0 91.7 % New Patients with a non- 31.7 cancer diagnosis 50.0 20.3 30.9 Total Outpatient Attendances 1320 1019 227 2.0 2.0 2.7 Attendances per Patient Clinic 1496 2.3 The heading “outpatients” includes Hospice Lymphoedema, Rehabilitation and Social Worker support. The Lymphoedema team has recently been restructured and now includes additional resource. The rehabilitation service was also restructured in 2012/13and the breathlessness nurse post disestablished. As a result of these changes and as a result of the introduction of new treatments in lymphoedema, more new patients have been seen, but proportionately less patients with a non malignant diagnosis. As Hospice staff try to use limited resources as efficiently as possible, we have seen the number of outpatient clinic appointments increase. Lymphoedema patient * 2012-2013 figures are unaudited, based on our submission. These are not MDS figures. Version: 2.0 – June 2013 Page 23 GBCH 2012-2013 Quality Account 3.2 Clinical Governance The Hospice underwent a re-structure in 2012/13 in order to better support the recent development of clinical services as well as to ensure the best use of precious resources towards patient care. Following this restructure, a review of the subcommittees of the Board was also carried out. This resulted in the dissolution of the Health and Safety Committee and the Clinical Governance and Development Committee and the formation of the Quality & Safety Committee. The Quality & Safety Committee is supported by a number of topic/ project based advisory groups e.g. medicines, EPR, education, GCP. The Quality and Safety Committee has a rolling agenda with regular reports which now include the Clinical Dashboard and in 2012/13 was also responsible for the review of existing and development of new policies and for monitoring the clinical audit programme. The new Quality & Governance Officer is a member of the committee as is the new Estates Manager who is operationally responsible for Health & Safety across the organisation. In 2012/13 the Hospice invested in new T34 syringe pumps and training of staff in their use in response to a patient safety alert. The Hospice also introduced new annual drug competency tests for all RNs and negotiated a service level agreement with an outside contractor to support infection control. 3.3 Training The Education team was restructured as part of the Hospice restructure in 2012/13 and this has enabled the continuation of significant external education to be delivered particularly for care home staff and community nurses, as well as the development of a new mandatory training programme for clinical and non clinical staff. Links with external organisations including the University of Greenwich and Kings College London have been further developed in the year. 3.4 Supportive Care As part of the Hospice restructure, some changes to supportive care services were made. In particular: Shornells, the Day Hospice, was refurbished to improve the patient environment and regular multidisciplinary team meetings were established in Day Hospice. The Rehabilitation team continue to support all areas of service delivery within the Hospice, including GCP. The team now runs a 6 week rolling ‘Rehabilitation Programme’ for patients attending Day Hospice, to support their mobility, function and management of symptoms. They have also developed a number of new initiatives including a rehabilitation programme ‘ Let’s Get Moving’ for people with lymphoedema, as well as supporting and developing ‘Stepping Stones’ a drop-in service for patients, carers and those who have been bereaved, with in excess of a 1,000 attendees over the past year. A review of the Lymphoedema team took place enabling more capacity and improvements to the patient pathway. Version: 2.0 – June 2013 Page 24 GBCH 2012-2013 Quality Account 3.5 Peer Review From 2013 it was mandated that Hospices participate in The National Cancer Action Team’s Peer Review process. The Hospice’s self assessment was completed within required timescales and the Hospice has fed into the development process of the measures for the next round. 3.6 Challenges A number of challenges have been encountered in 2012/13, in particular: The Hospice encountered difficulties in recruiting sufficient quality staff throughout the year, a problem which was mirrored across the whole local health economy. Some progress has been made with this over recent months and we are now optimistic that where services have had to be adapted to ensure they are safe with reduced staff, they will soon be able to return to full capacity. The difficult economic climate has had an impact on Hospice services in 2012/13 with some areas being reduced until additional resource has been secured. We are pleased that NHS Bexley has provided some additional investment to support the increased workload in the community in order to improve quality and outcomes for dying people living in the borough. The Hospice’s voluntary income has also been impacted by the external economic climate and we continue to work hard to maintain voluntary income. The changes in NHS and social care structures locally and at a national level have had an impact on the way that hospice staff work, from relationships with commissioners, to communication with referrers, GPs, district nurses, etc; every element of the health service has been impacted. The Hospice is maintaining its efforts to link with external professionals in all settings. Version: 2.0 – June 2013 Page 25 GBCH 2012-2013 Quality Account Appendix 1: Greenwich NHS Greenwich Simon Shenton-Tan – nominated person within NHS Greenwich The accounts are clear, and give a good analysis of targets and achievements. In future we would like to see more quantitative/ performance analysis, against the standards we have in our contracts. Royal Borough of Greenwich Healthier Communities and Older People Scrutiny Panel Alain Lodge - Scrutiny Officer for our Healthier Communities and Older People Scrutiny Panel Introduction The panel supports the work of the Hospice and is impressed by the quality of the services provided for Royal Greenwich residents. The panel would like to develop stronger links with the Hospice during 2013/14 and identify possible areas of joint working. Part 1- Chief Executive’s Statement The Panel strongly support the aim of the Hospice to ensure that people who have a life limiting illness receive the best possible quality of care. The Chair of the Panel has visited the Hospice on several occasions and was impressed by the Integrated End of Life Care Services for Greenwich residents. This new service which is tailored to each individuals needs will have an important positive impact on the experience of care that people receive. The Panel is pleased to note the successful application for Department of Health funds and the improvements that will result from this funding including the provision of a purpose built rehabilitation gym and the development of a community hub care coordination centre. Part 2- Priorities for Improvement and Statements of Assurance from the Board 2.1 Priorities for Improvement 2013-14 The Panel recognises the importance of the priorities for 2013-14 particularly as the Dashboard will be an effective way of monitoring performance activity and quality of care and the feedback from the Patient and Carer Survey Programme will allow the Hospice to assess, review and evaluate service outcomes. The Access to Hospice Services will improve accessibility for people regardless of their diagnosis, age ethnicity, and preferred place of care. However, the Panel shares the Hospices view that there is still scope for further improvement. Also developing the concept of the Hospice as a Community Hub will be an important step in challenging and changing people’s perceptions of the role of a Hospice. 2.2 Priorities for Improvement 2012-13 The Panel noted the good progress the Hospice has achieved against its 2012-13 priorities and the ongoing work they are undertaking. Particularly continuing training on the Electronic Patient Records system; reviewing the Hospice leaflet on volunteering and producing a general leaflet giving information on services for people who wish to support the Hospice; and provision of education and training on the Hospice services to District Nurses and GPs in Royal Greenwich. 2.3.7 What others say about Greenwich and Bexley Community Hospice. Version: 2.0 – June 2013 Page 26 GBCH 2012-2013 Quality Account The Panel were pleased to note that the Hospice was compliant against all the outcomes following the Care Quality Commission (CQC) unannounced inspection in January 2013. They were particularly pleased to note the favourable comments in the CQC report from patients regarding care on the wards; communication between staff and patients; and the respect shown to patients by the staff. Part 3- Review of Quality Performance 3.1.1-3.1.6 Benchmarked data reports 2011/12 The panel noted that the Hospice was using the data reports on inpatients; day care; home care/ Hospice at home; hospital support team; bereavement support; and outpatients to improve services. They were also pleased to note that there had been a 38% increase in new patients attending the day Hospice and a significant increase in day care activity overall. And the positive impact on data collection of the introduction of the Electronic Patient Record system. 3.6 Challenges The panel shared the Hospices concern regarding the difficulties in recruiting sufficient quality staff and the impact of the external economic climate on the Hospice’s voluntary income. The panel strongly supports the Hospice’s actions to recruit high quality staff and to maintain their voluntary income. Healthwatch Greenwich Rosaline Ha - nominated person within Healthwatch Greenwich See Healthwatch Bexley response. Version: 2.0 – June 2013 Page 27 GBCH 2012-2013 Quality Account Appendix 2: Bexley NHS Bexley Anjum Fareed – nominated person within NHS Bexley I am pleased to say that the accounts were helpful and informative and easy to read. Congratulations on the glowing CQC inspections also. The benchmarks applied were particularly useful. I noted you have said there is an absence of comparable MDS data in some areas, it might be good though if you could explore your own internal trend data in relation to hospital admissions or percentage that choose to die at home for next year’s report. The higher than average length of stays and the explanations for this are also noted and appreciated. Having only recently taken on the management of this contract I can’t really add much further. Bexley Overview and Scrutiny Committee Cllr Ross Downing - Chair of the Health OSC Louise Peek – Support Officer for the Health OSC No response provided. Healthwatch Bexley Anne Hines-Murray – nominated person within Healthwatch Bexley The Healthwatch organisations for Bexley and Greenwich welcome the opportunity to comment on the Greenwich and Bexley Community Hospice’s Quality Account for 2012-13. Please note that Healthwatch was established on 1st April 2013, replacing Local Involvement Networks (LINks). Recognising that Healthwatch is in its embryonic stage, we are unable to provide a detailed commentary this year. We look forward to compiling a full and thorough commentary next year. Version: 2.0 – June 2013 Page 28 GBCH 2012-2013 Quality Account Appendix 3: London Cancer Alliance London Cancer Alliance Dr Nigel Sykes - Chair of the Palliative Care Pathway Group Thank you for sending me a copy of the latest GBCH Quality Account. I appreciate your thoughtfulness in including the LCA in your consultation exercise. The document appears to me to be very well put together and to meet the requirements of the Quality Accounts exercise. I am particularly pleased to note the congruence of your service's key 2012-2013 Priorities for Improvement - User Feedback and Access to Hospice Services - with the priorities of the LCA Palliative Care Pathway Group. On a personal level I will be interested to hear of the hospice's experience with SKIPP. The LCA is keen to encourage participation by palliative care units in audit and research, particularly collaborative research, and it is good to see the efforts of GBCH in this regard so clearly stated. The EPR and N3 connection initiatives are also exactly the facilities that need to be in place if we are going to be able to implement and demonstrate high quality, integrated palliative care across London. Getting these in place is challenging and it must be a relief that you are nearly there. Also on the subject of information, it is pleasing that GBCH contributed to the MDS exercise, in which London units were relatively poorly represented. I note the challenges that GBCH is facing and suspect that these would ring true for most hospices - I wish you well for 2013/14. Congratulations on both a well presented Quality Account and also the work and achievement that it reflects. Version: 2.0 – June 2013 Page 29