Garden House Hospice Quality Account 2012 - 2013 “When my partner said she wanted her last days at a Hospice I didn’t know what to expect but from the minute we got there I was totally amazed by the staff and surroundings. Every single person there was fantastic.” Quote from a Family Carer Questionnaire 2012 Garden House Hospice Part 1: A Statement on Quality from the Hospice Management Team Welcome to the second Quality Account of Garden House Hospice; a summary of our performance against selected quality measures for 2012 - 2013 and our initiatives and priorities for quality improvement in 2013 - 2014. It has been produced to inform service users (current and prospective), their families, our staff, our supporters, commissioners and the public. Garden House Hospice Philosophy of Care Palliative care is the total care of patients at a time when their disease is no longer responsive to curative treatment and when life expectancy is relatively limited. Our philosophy of care is based on the following principles: That palliative care v respects the patients wishes v is a team approach composed of both professional staff and trained volunteers v integrates psychological and spiritual care for patients, so that they may come to terms with their own death as fully and constructively as they can v aims to provide relief for patients from pain and other distressing symptoms v helps the family cope during the patient’s illness and in bereavement v offers a support system to help the patient live as actively and creatively as possible until death v affirms life and regards death as a normal process; it seeks neither to hasten nor to postpone death The word ‘hospice’ often conjures up an image of a peaceful death with dignity in hushed surroundings. The very essence of hospice, then, is quality care and as this report shows; hospice care now embraces a whole range of services aimed at improving ‘quality of life’ well before the final curtain is drawn down. But exactly what is ‘quality of life’ and how can it be measured is a much more vexed question. We need to make some attempt to demonstrate ‘quality’ through words and numbers. Sententious platitudes no longer suffice as we all have to strive to increase the quality of care in an increasingly businesslike culture in times of financial constraint. -1- Garden House Hospice Such a culture can have adverse effects so we are determined to continue to provide compassionate care to our patients and their families. And when all is said and done it is their views that matter, so let them have the final word as they encapsulate the values of our organisation. Comments received by letter from a patient’s daughter; “All without exception, both the medical and voluntary staff throughout my father’s three week stay, at the hospice, were amazing, and that is a gross understatement. The whole three week experience, had a powerful effect on us all, and renewed my faith in human nature. The Doctors and nurses all looked after my father with the greatest patience, kindness, respect and diligence. Also the catering and voluntary staff gave my father the most incredible consideration and respect and nothing was ever too much trouble for them.” Comments posted on our Facebook page by a patient’s children; “There is no way that my family or I can say ‘thank you’ enough ….. the level of care and the compassion you showed were above and beyond what we expected ….. the volunteers, nurses & doctors have made this terrifyingly painful experience easier to deal with, because we know our mum is being treated with the love and dignity she deserves.” Comments received by email from a patient’s son; “I am writing to thank you for the quality care that you gave to my father ….. who died in your care ….. At first when I heard he was going to a hospice, I was really worried that he would suffer & would be neglected. I heard a few stories of hospices but I had never seen one for myself. After the very warm welcome that all of you gave us and after a good conversation my worry was put to rest straight away. I have never seen such a caring staff and nice place to be. I can’t thank you all enough for the quality care you gave to my father. You didn’t let him suffer and gave him pain relief when required. You were always there and just so friendly. You even offered advice and after care for me and my family if we required it. I really appreciate this and you all gave me good advice on what to do after (his) death.” Comments posted on our Facebook page by a patient’s sister; “During December and early January, my lovely little sister was cared for by the wonderful staff and volunteers at Garden House. My husband described them as “angels with their wings folded away”. I cannot praise everyone at Garden House highly enough, we were loved and cared for at the most difficult time in our lives. Thank you!” Dr Viv Lucas Medical Director Sally Alford Matron Jenny Lupton General Manager -2- Garden House Hospice Part 2: Priorities for Improvement and Statements of Assurance from the Hospice Management Team Priorities for Improvement Garden House Hospice is situated in Letchworth Garden City. It opened in 1990 to provide specialist palliative care to the residents of Stevenage and North Hertfordshire. Due to its location, close to the Bedfordshire border, some patients come from Bedfordshire. Since 1990 the services offered by Garden House Hospice have grown and developed to meet the needs of the community. From an initial In-Patient only service, Garden House Hospice now provides: § 12 bedded In-Patient Unit § Hospice at Home § Day Services § Outpatients § Family Support Services § Specialist Palliative Care Advice Line Mission Statement Garden House Hospice offers hospice care and support to patients with life limiting illnesses and their families. All those who work at Garden House Hospice, in whatever capacity, share in the common purposes, to: § provide relief for patients from pain and other distressing symptoms. § help patients to live their lives with dignity, by bringing together the psychological, emotional, spiritual and physical aspects of care. § provide care in a variety of settings, appropriate to the individual needs of each patient. § offer support to families and carers both during a patient’s illness and into bereavement. Garden House Hospice is constantly seeking ways to improve the quality of care provided, for patients and their families. -3- Garden House Hospice Garden House Hospice was inspected by the Care Quality Commission on 5th February 2013. These are the results of our most recent checks showing whether this care service is meeting each of the standards that the government says you have the right to expect. 1 Standards of treating people with respect and involving them in their care Overall 2 Standards of providing care, treatment and support that meets people's needs Overall 3 Standards of caring for people safely and protecting them from harm Overall 4 Standards of staffing Overall 5 Standards of quality and suitability of management Overall Key to our latest checks on standards All standards were being met when we last checked. Summary Inspection Report During our inspection on 5 February 2013 we spoke with four people who had experienced a service from the in-patient hospice, day hospice and hospice at home service. We also spoke with one person’s relatives. Without exception, people praised the service they, or their relative, had received. People told us that the staff understood and met their needs. One person’s relative told us, “The quality of care is excellent. All staff are very understanding and respond quickly. It’s a service they can be proud of.” People told us that they were given information about the service and the care and treatment they received and what they could expect. People were cared for by staff who were trained and well supported to deliver care and treatment safely and to an appropriate standard. People praised the staff saying they were, “very professional” and, “always had time to talk”. One person told us, “[The staff] have always been able to answer my questions. They’ve given me information on what help I can get and numbers to call if I do need help. They give me reassurance. They’ve talked to my [relative] and explained things to [them] too.” -4- Garden House Hospice Priorities for Improvement 2013 – 2014 Safety Priority I All six individual patient rooms will have overhead tracking hoists fitted. How was this identified as a priority? When the In-Patient Unit was redeveloped, in 2008, an overhead tracking hoist was fitted in one of the six side rooms. In January 2011, funding was secured for two additional overhead tracking hoists. At present, if a patient, known to require hoisting, is admitted they are allocated one of the three individual patient rooms with an overhead tracking hoist. It has become apparent that this is not always possible due to these rooms already being occupied by other patients. There has been an increase in admissions of patient’s with more complex needs; more patients are requiring hoisting. Additionally, patients’ needs may change during an admission making hoisting necessary; it is not Hospice policy to move patients between rooms during an admission (unless infection risk makes this mandatory). Garden House Hospice does have a mobile hoist which can be used, when and where necessary but: § The overhead tracking hoists have much better manoeuvrability than the mobile hoist. § There is potential for spreading infection when using the mobile hoist. § There is only one mobile hoist to cover three individual patient rooms and two three bedded bays. It has therefore been identified that fitting another three overhead tracking hoists, one into each of the remaining three individual patient rooms, will alleviate some of the current issues and improve safety for patients and Hospice Team Members. How will this be achieved? § Hospice Management Team to source grant funding. § Order will be placed for three overhead tracking hoists. § Capacity of In-Patient Unit to be temporarily reduced by one bed to allow fitting of tracking and hoists. § Hoist testing to be carried out prior to first patient use. -5- Garden House Hospice How will progress be monitored and reported? Successful sourcing of grant(s) will be reported to Clinical Governance Group. Support Services Manager will liaise with hoist manufacturers and the Senior Sister In-Patient Unit to ensure a suitable time is arranged for fitting the tracking and hoists. Installers will provide written proof that the new hoists have been tested and are ready for patient use. Clinical Governance Group will be informed when the new hoists are operational. -6- Garden House Hospice Priority II All Garden House Hospice syringe drivers will be the same make and model as used throughout the East of England Strategic Clinical Network. How was this identified as a priority? To date, two types of syringe driver have been in use throughout the East of England Strategic Clinical Network: Graseby MS16A rate measured in millimetres per hour used in the community Graseby MS26 rate measured in millimetres per day used at the Hospice There has been the potential for confusion leading to under or overdosing of medication if the wrong rate calculation was used for the type of syringe driver. At Garden House Hospice, patients admitted with a community syringe driver (MS16A) in place have always had these replaced, immediately; a fresh batch of medication drawn up and administered via a hospice syringe driver (MS26). No medication errors or ‘near miss’ incidents have been reported at Garden House Hospice. On 16th December 2010 the National Patient Safety Agency (NPSA) issued a Rapid Response Report (NPSA/2010/RRR019) ‘Safer ambulatory syringe drivers’, which stated; “Between 1 January 2005 and 30 June 2010 the NPSA received reports of eight deaths and 167 non-fatal reports involving ambulatory syringe drivers. Four of the deaths were reported in 2009. Many of these incidents described infusions that had either run through much quicker than expected or had not infused at all….. … Errors include the wrong rate of infusion caused by inaccurate measurement of fluid length or miscalculation or incorrect rate setting of the device. Dose errors also occur because of different models using mm per hour or mm per 24 hour. Other issues include syringes becoming dislodged, inadequate device alarms and lack of internal memory (a technical issue which makes establishing the reason for any over or under-infusion difficult).” The NPSA required the following action, with an agreed date to complete transition to syringe drivers with additional safety features, within five years; “Develop a purchasing for safety initiative that considers the following safety features before ambulatory syringe drivers are purchased: o rate settings in millilitres (ml) per hour; o mechanisms to stop infusion if the syringe is not properly and securely fitted; o alarms that activate if the syringe is removed before the infusion is stopped; o lock-box covers and/or lock out controlled by password; o provision of internal log memory to record all pump events.” -7- Garden House Hospice How will this be achieved? Meetings have already taken place within the East of England Strategic Clinical Network to consider: § Choosing an appropriate ‘new’ syringe driver. § Purchasing arrangements for the ‘new’ syringe driver. § Education on how to use the ‘new’ syringe driver; for all staff who will set up and administer medications by syringe driver. It has been agreed that Garden House Hospice will purchase fifteen T34 syringe drivers; this has been made possible by a generous grant from the Graham Rowlandson Foundation. All Registered Nurses, from Garden House Hospice, will undertake training in setting up and administering medication via a T34 syringe driver; this training has been planned, for June and July 2013, at various locations within the East of England Strategic Clinical Network. Four Registered Nurses, from Garden House Hospice, will undertake additional training to become ‘trainers’ in the use of T34 syringe drivers. The ‘trainers’ will; § Assess the competency of every Registered Nurse, in the use of the T34 syringe driver, prior to their introduction at Garden House Hospice. § Train every Healthcare Assistants and Senior Healthcare Assistants how to monitor a T34 syringe driver, prior to their introduction at Garden House Hospice. § Provide annual refresher training on the use of the T34 syringe driver (to all Registered Nurses, Healthcare Assistants and Senior Healthcare Assistants); as part of the rolling programme of Clinical Mandatory Training. § Re-assess the competency of every Registered Nurse, in the use of the T34 syringe driver, annually. § Provide full training in the use of the T34 syringe driver to any newly appointed Registered Nurses and assess their competency before they are able to set up and administer medication, at Garden House Hospice, via a T34 syringe driver. § Provide training on how to monitor a T34 syringe driver to any newly appointed Healthcare Assistants and Senior Healthcare Assistants. Once all the Registered Nurses, at Garden House Hospice, have been trained and assessed as competent in setting up and administering medication via a T34 syringe driver, a date will be set for transferring from the current MS26 syringe drivers, to the new T34 syringe drivers. To avoid confusion, there will not be a phased introduction; on the designated day all MS26s will be withdrawn and only T34s will be available to use. It is expected that the transfer will take place on 1st September 2013. -8- Garden House Hospice How will progress be monitored and reported? All Registered Nurses will be asked to complete pre and post training confidence questionnaires, to measure the effectiveness of the training. The Senior Sister In-Patient Unit will keep a record of when each Registered Nurse: § attends Network training in setting up and administering medication via a T34 syringe driver; § is assessed as competent in setting up and administering medication via a T34 syringe driver. Once the T34 syringe drivers are in use, Registered Nurses will be required to complete an Accident, Incident, Near Miss Report Form for any issues that arise relating to syringe drivers. Any accidents, incidents or near misses which occur will be investigated, within 48 hours. Resulting changes in practice, if any, will be cascaded to the Nursing Team, at the earliest opportunity, via the appropriate internal mechanism(s). In accordance with the North Herts Hospice Care Association Procedure for Reporting Adverse Incidents Relating to Medical Devices; failure of or adverse incidents related to syringe drivers must also be reported to the Medicine and Healthcare products Regulatory Agency (MHRA). -9- Garden House Hospice Priority III The needles, intravenous cannulae and administration sets, used at Garden House Hospice, will have safety features, to minimise the risk of sharp injuries occurring during use and disposal. How was this identified as a priority? In 2010 the European Commission published the EU Directive 2010/32/EU on the prevention of sharps injuries in the hospital and healthcare sector. Much of the Directive already formed part of health and safety law in Great Britain. Other parts of the Directive were already accepted ‘best practice’, in Great Britain, and together with the existing legal requirements were used as the basis for the North Herts Hospice Care Association Policy for the Safe Management of Sharps. On 11th May 2013 those requirements of the Directive which are not already law in Great Britain will be published as the Health and Safety (Sharps Instruments in Healthcare) Regulations 2013. Regulation 5(1)(b) Use safer sharps (incorporating protection mechanisms) is explained as follows (by the Health and Safety Executive): – The employer must substitute traditional, unprotected medical sharps with a ‘safer sharp’ where it is reasonably practicable to do so. The term ‘safer sharp’ means medical sharps that incorporate features or mechanisms to prevent or minimise the risk of accidental injury. For example, a range of syringes and needles are now available with a shield or cover that slides or pivots to cover the needle after use. How will this be achieved? Garden House Hospice has a Service Level Agreement, for Infection Prevention and Control, with the East and North Herts NHS Trust. In the light of this, it has been decided that, where possible, Garden House Hospice will stock & use the same ’safer sharp’ products as the Trust. The Garden House Hospice designated Infection Prevention and Control Lead Nurse has obtained a list of products and suppliers from the Trust and is in the process of arranging for representatives from the suppliers to come to the Hospice and demonstrate their products. Products will be considered against the following factors (from the Health and Safety Executive) before a final decision is made on what products to stock: § the device must not compromise patient care; § the reliability of the device; § the care-giver should be able to maintain appropriate control over the procedure; - 10 - Garden House Hospice § other safety hazards or sources of blood exposure that use of the device may introduce; § ease of use (taking into account the existing clinical practices commonly in use by the relevant health professionals – but not assuming custom and practice is safest); § is the safety mechanism design suitable for the application? The following are relevant: o if activation of the device is straightforward, it is more likely to be used; o if the safety mechanism is integral to the device (ie not a separate accessory) it cannot be lost or misplaced; o for many uses a single-handed or automatic activation will be preferable; o an audible, tactile or visual signal that the safety mechanism has correctly activated is helpful to the user; and o the safety mechanism is not effective if it is easily reversible. Once a decision has been reached over which products will be stocked & used, at Garden House Hospice, training sessions will be arranged for the Clinical Team; this may be by ‘trainers’ being trained and cascading the knowledge or by every Clinical Team Member being expected to attend training with a representative from the supplier. Sharp Safety will become part of the rolling programme of Clinical Mandatory Training. This will include refresher training in the use of ‘safer sharps’ as well as other aspects of Sharp Safety set out in the Health and Safety (Sharps Instruments in Healthcare) Regulations 2013 and existing Health and Safety legislation. The designated Infection Prevention and Control Lead Nurse will review the North Herts Hospice Care Association Policy for the Safe Management of Sharps to ensure that it complies with the Health and Safety (Sharps Instruments in Healthcare) Regulations 2013. How will progress be monitored and reported? Decisions regarding which products will be stocked & used, at Garden House Hospice, will be reported to the Clinical Governance Group and Health and Safety Committee. Once ‘safer sharps’ are in use, the Clinical Team will be required to complete an Accident, Incident, Near Miss Report Form for any issues that arise relating to ‘safer sharps’. Any accidents, incidents or near misses which occur will be investigated, within 48 hours. Resulting changes in practice, if any, will be cascaded to the Nursing Team, at the earliest opportunity, via the appropriate internal mechanism(s). Reports will also be made, to external agencies, as required by legislation. - 11 - Garden House Hospice Effectiveness Priority The patient notes will be redesigned to: § make them more user friendly for the whole Multidisciplinary Team; § avoid duplication; How was this identified as a priority? The annual audit of multidisciplinary patient notes, 2012, made the following recommendations: § All patient documentation needs to be reviewed for usability. § Divide the notes into sections to make the notes easier to navigate. A discussion took place, at the Clinical Governance Group; the Multidisciplinary Team agreed that improvements could be made to the patient notes. How will this be achieved? The Quality and Practice Development Facilitator has been nominated to lead on this project. Requests have been made to other local hospices for copies of their patient documentation. Two sets of ‘dummy notes’, containing copies of all the current documentation, in the order it is currently filed, have been made up and circulated around the Multidisciplinary Team for them to comment on: § order of documentation; § usability of each individual document; § what works well; § what needs to be improved; § how the notes as a whole could be improved; § how individual documents could be improved. Sets of notes received from other hospices have also been circulated for the Multidisciplinary Team to look at and gain ideas from. - 12 - Garden House Hospice It has been decided that: § File dividers will be used to create 12 separate sections in the notes. § Each section of the notes will have a specified content (with documents being present according to individual patient need); the standard content of each section will be listed, in order, on the divider. § Some documents will be redesigned, to make them more user friendly, or removed, to avoid duplication. § The Multidisciplinary Team will receive training in the use of the newly designed notes. § There will be a 3 month trial of the new notes, during which any issues can be identified e.g. documents in the ‘wrong’ section, documents that need revising or documents that are no longer required. § After the initial trial of the new notes, (once the content has been standardised), local printers will be approached to quote for printing the dividers and documents. How will progress be monitored and reported? The Quality and Practice Development Facilitator will delegate work, to members of the Multidisciplinary Team, but will remain in over all control of the project. When work is delegated it will be: § Specific; § Measurable; § Achievable; § Realistic; § Time Bound. The Quality and Practice Development Facilitator will report back to each Clinical Governance Group on progress that has been made. After the new notes have been trialled, for the 3 month, their use will be reviewed, by:§ asking the Multidisciplinary Team to comment on them; § undertaking a multidisciplinary notes audit. - 13 - Garden House Hospice Experience Priority Planned discharges, from the In-Patient Unit, will be managed smoothly, efficiently and in a timely manner for the patient, their family and carers. How was this identified as a priority? Several issues have arisen which have highlighted the need to further improve how discharges are managed: § Staff, on the In-Patient Unit, have identified the need for greater collaboration and understanding between the In-Patient Unit and the Community Teams; so that more patients experience seamless discharges. § Patients with complex needs have sometimes had their discharge delayed by a lack of available services in the community. § An audit highlighted that discharge planning paperwork was not always being correctly or completely filled in. § Some patients and/or their families and carers have been confused or anxious, about; o the discharge process; o who is responsible for what after discharge. How will this be achieved? Nursing Team Members from the In-Patient Unit will rotate in to Hospice at Home. This will enable them to experience what it is like to work and to be cared for in the community. It is hoped that when they return to the In-Patient Unit their discharge planning will be more informed because of this experience. Following the audit of discharge planning paperwork, the Senior Sister In-Patient Unit has been asked to devise an Action Plan for improvement. Each discharge will be overseen by a designated member of the In-Patient Unit Team who is responsible for co-ordinating the discharge planning. A discharge leaflet will be produced, to be given to patients at the start of the discharge planning process, so that they (and their family and carers) have a written explanation of the process, which they can refer back to. The leaflet will include sections on: § what to expect during discharge planning; § what each agency’s responsibilities are after discharge. A Family and Professionals Meetings Procedure has been written, to be followed, when required, to facilitate complex discharges. - 14 - Garden House Hospice How will progress be monitored and reported? Rotation in to Hospice at Home will be monitored at appraisal and six month review. Feedback from the first Nursing Team Member(s) to rotate will be used to develop the experience for subsequent Team Members. The Action Plan from the discharge planning paperwork audit will be presented at the June 2013 Audit Meeting. If appropriate, changes in practice will be reported to the Clinical Governance Group in July 2013. Re-audit will be undertaken six months after any changes in practice have been implemented. The Information Group will be responsible for agreeing the final wording of the Discharge Leaflet and reviewing this on an annual basis. The Nursing Team will be required to log which patients are given a Discharge Leaflet. This log will be compared against the actual number of patient discharges to indicate whether the leaflet is being used. A record will be kept, by the Senior Sister In-patient Unit, of those occasions when a patient is ready for discharge but this is delayed, to include the length and reasons for this delay. This record will be analysed to indicate whether the delay was due to a failure to commence discharge planning early enough or due to circumstances beyond the control of Garden House Hospice. - 15 - Garden House Hospice Priorities for Improvement 2012 – 2013 Safety Priority All Healthcare Assistants and Senior Healthcare Assistants (HCA) will have to achieve designated competencies and demonstrate on-going proficiency. What has been achieved § The Senior Sisters and Sisters have identified skills for which competencies are required. § Work is well under way in writing appropriate competencies. § It has been identified that, in order for the work on writing and assessing competencies (both HCA and Registered Nurses) to progress at the desired rate, ongoing, designated, Senior Registered Nurse time is required. § At the Business Planning Meeting, held on 1st February 2013, it was proposed that a Competencies and Education Senior Staff Nurse post, 15 hours per week, be created. § The Hospice Management Team and Trustees have undertaken a feasibility study for the creation of a Competencies and Education Senior Staff Nurse post. § It has been agreed that a Competencies and Education Senior Staff Nurse post, 15 hours per week, will be created in 2013 – 2014. § Whilst formal HCA competencies have not been in place during 2012 -2013, any concerns about an individual’s competence have continued to be addressed immediately with re-training and/or supervised practice provided, where necessary. Whilst it is disappointing that this priority has not been fully achieved in 2012 – 2013 significant progress has been made and there is a plan in place to ensure the profile of competencies is raised further in the future. Patient safety has not been compromised in 2012 -2013 because the measures already in place are adequate. Once fully implemented, competencies will further enhance patient safety. - 16 - Garden House Hospice Effectiveness Priority The PEPSI COLA Holistic Needs Assessment framework will be used to present in-patients at Multidisciplinary Team meetings and to record patient outcomes and decisions made. What has been achieved § Several different documents have been trialled, by the In-Patient Team, for presenting patients at Multidisciplinary Team Meetings and recording the outcome(s) and any follow up action that has been decided upon. Each document trialled so far had benefits and drawbacks. The Clinical Team continue to work towards a document, based on Holistic Needs Assessment, which is user friendly and records the necessary information. § The PEPSI COLA Holistic Needs Assessment continues to be used on admission to the In-Patient Unit. § Medical discharge letters are produced using a standard template based on the PEPSI COLA Holistic Needs Assessment. § Nursing discharge letters are now produced using a standard template based on the PEPSI COLA Holistic Needs Assessment. Where possible these letters are now typed. The review of Patient Notes, planned for 2013 – 2014 will include the further development and use of the PEPSI COLA Holistic Needs Assessment framework, including a document/tool for use at Multidisciplinary Meetings. - 17 - Garden House Hospice Experience Priority The format of Day Hospice will be changed to better reflect the needs of the patient group and their families. This will include offering more outpatient appointments, therapies and treatments. What has been achieved § Day Hospice has been renamed Day Services during 2012 – 2013; it is hoped this new name better reflects the variety of services/sessions on offer and the on-going developments that are planned. It may also make the services more accessible to patients, as illustrated by the following comment form a Patient Questionnaire; “How do you improve on an already excellent service? The only problem is the word ‘Hospice’. Not enough people know of the Day Care Hospice, so automatically link the word with only one thing. I know you are working on this problem.” § The current structure of Day Services is as follows; DAY Monday AM PM Lung Clinic Complementary Therapy and Physiotherapy Outpatients ‘Traditional’ Day Hospice 10am – 3pm; patients may attend full or part day Tuesday Drop In and Medical Outpatients Complementary Therapy and Physiotherapy Outpatients ‘Traditional’ Day Hospice 10am – 3pm; patients may attend full or part day Wednesday Drop In and Medical Outpatients Complementary Therapy and Physiotherapy Outpatients Outpatient Medical Treatments e.g. blood transfusions Thursday Drop In and Medical Outpatients Complementary Therapy and Physiotherapy Outpatients Lung Clinic Friday Patient and Carer Relaxation Complementary Therapy and Physiotherapy Outpatients - 18 - Garden House Hospice § There is capacity within the week to run additional groups and/or services. The Day Services Review Steering Group are considering the following options; o o o o a ‘non-cancer’ patient morning extending Lung Clinic to incorporate patients with heart failure art therapy groups additional patient and carer relaxation sessions § Hospice Medical Team hours were increased in April 2012 and this has allowed more Outpatient appointments to be offered, at Garden House Hospice. § Lung Clinic continued, following recommendations from the pilot clinic, offering flexible attendance for patients with advanced, incurable lung disease. In the 12 months 1/01/12 – 31/12/12 there were 139 attendances (28 patients). Patient’s satisfaction with Lung Clinic were audited in December 2012 – January 2013. Nine patients were asked the following question, by a Hospice Team Member who had never been part of the Lung Clinic Team; o What were Your Expectations of the Hospice Lung Clinic? “I thought it would be all old people & a depressing place. I thought I came here to prepare me for when the worst happens & I want to die here.” “I was not too sure. Meeting other people with similar conditions.” o Were Those Expectations Met? “Would like to attend more.” “I was wonderfully surprised to be able to do exercises other than breathing ones.” o What did you like or find useful about Lung Clinic? “The support that I am getting as it also helps my wife. I have felt since 2009 that I ‘fell through the net’.” “It made me get out of the house & it was good to talk to other people with lung problems.” o Have you found it beneficial attending? “ Yes, 100%. I know that someone is caring for me – not just leaving me ‘on the heap’.” “Relaxing. I enjoy the social side as I live on my own. Lovely place. I go home quite content.” o Is there anything else you can suggest that would improve this service? “No, not really.” (5 of 9 patients audited) “Yes. Relaxation sessions after every lung clinic.” - 19 - Garden House Hospice Patients and Staff at Lung Clinic Day Services Patients and Staff Enjoying a Game of Cards - 20 - Garden House Hospice § The Patient and Carer Relaxation sessions have been well attended and received. Between 13th April 2012 and 11th January 2013; o 129 patient attendances o 070 carer attendances o 007 average attendance (minimum 1, maximum 14) o 018 Hospice Team Members trained to assist the complementary therapist, physiotherapist and Sister who run these sessions § The Hospice team Members who received relaxation training have been able to offer 1:1 relaxation sessions for patients and carers across all Hospice Services. § Hand massage training was given, to staff and volunteers, in November 2012. Hand massage can now be offered to patients and carers across all Hospice Services. § Acupuncture continues to be offered to patients and the number of treatments given doubled in the year 2012 – 2013; 53 treatments were given. The Day Services Review Steering Group will continue to meet every 6 – 8 weeks and the services offered will continue to evolve, according to patient need and preference. The Day Services Team will continue to raise the profile of their services. Early referral will be encouraged to enable patients to benefit from the full range of services on offer. - 21 - Garden House Hospice Statements of Assurance from the Hospice Management Team The following are statements that all providers must include in their Quality Accounts. Many of these statements are not directly applicable to specialist palliative care providers; explanation of these statements and why they do not apply to Garden House Hospice has been included, in italics, where appropriate. Review of Services During 2012 - 2013 the Garden House Hospice provided the following NHS services: § In-Patient Unit § Hospice at Home § Day Services – including Outpatients § Family Support Services § Specialist Palliative Care Advice Line Garden House Hospice has reviewed all the data available to them on the quality of the care in all of these NHS services. The income generated by the NHS services reviewed in 2012 - 2013 represents 100% of the total income generated from the provision of NHS services by the Garden House Hospice for 2012 - 2013. The income generated from the NHS in 2012 - 2013 represents 40% of the overall running costs of Garden House Hospice in 2012 - 2013; 38% from NHS Hertfordshire and 2% from NHS Bedfordshire. The remaining 60% of overall running costs is sourced through voluntary income generation; donations, fundraising, charity shops, lottery activity and income from investments. Participation in Clinical Audit Garden House Hospice was not eligible in 2012 - 2013 to participate in any national clinical audits or national confidential enquiries and therefore there is no information to submit This is because Garden House Hospice only provides palliative care and none of the 2012 2013 national audits or confidential enquires related to specialist palliative care. Research The number of patients receiving NHS services provided or sub-contracted by Garden House Hospice in 2012 - 2013 that were recruited during the period to participate in research approved by a research ethics committee was NIL. While Garden House Hospice has not recruited any patients to participate in research in 2012 - 2013 it has fully supported any patients who were participating in research for other providers during this period. - 22 - Garden House Hospice Use of the CQUIN Payment Framework A proportion of Garden House Hospice income in 2012 - 2013 was conditional on achieving quality improvement and innovation goals agreed between Garden House Hospice & NHS Hertfordshire and Garden House Hospice & NHS Bedfordshire, through the Commissioning for Quality and Innovation payment framework. Further details of agreed goals for 2012 - 2013 and for the following 12 month period are available in Appendix 1. and Appendix 2. For NHS Hertfordshire the CQUIN payment equates to 1% of their total contribution. For NHS Bedfordshire the CQUIN payment equates to 1% of their total contribution. Statement from the Care Quality Commission North Herts Hospice Care Association is required to register with the Care Quality Commission and its currently registered to carry out the following regulated activities: a. Diagnostic and screening procedures b. Personal care c. Treatment of disease, disorder or injury For Regulated Activities a. and c. the Nominated Individual is: Vivian Lucas For Regulated Activity b. the Nominated Individual is: Sally Alford North Herts Hospice Care Association has the following conditions on registration: 1. The Registered Provider must ensure that the regulated activities a. b. or c. is managed by an individual who is registered as a manager in respect of the activity, as carried on at or from the location Garden House Hospice. 2. This Regulated Activity may only be carried on at or from the following locations: Garden House Hospice, Gillison Close, Letchworth Garden City, Hertfordshire, SG6 1QU The Care Quality Commission has not taken enforcement action against Garden House Hospice During 2012 - 2013. Garden House Hospice has not participated in any special reviews or investigations by the Care Quality Commission during the reporting period. - 23 - Garden House Hospice Data Quality Garden House Hospice did not submit records during 2012 - 2013 to the Secondary Uses service for inclusion in the Hospital Episode Statistics which are included in the latest published data. This is because Garden House Hospice is not eligible to participate in this system. Information Governance Toolkit Attainment Levels Garden House Hospice did not participate in formal Information Governance Assessment in 2012 - 2013. Garden House Hospice has policies and procedures in place for confidentiality, information management and records management. As a voluntary sector organisation, Garden House Hospice plans to explore the requirements for establishing an N3 connection and use of the NHS Information Governance Toolkit in 2012 - 2013. Information Governance Assessment, leading to an Information Governance Grading, is achieved through completion of the NHS Information Governance Toolkit. Clinical Coding Error Rate Garden House Hospice was not subject to the Payment by Results clinical coding audit during 2012 - 2013 by the Audit Commission. - 24 - Garden House Hospice Part 3: Review of Quality Performance The National Council for Palliative Care (NCPC): Minimum Data Sets The NCPC minimum data sets are the only information on hospice activity collected nationally. The figures provide one measure of activity and outcomes of care for patients, at Garden House Hospice, during the period 2012 – 2013 (2011 – 2012 figures provided for comparison). In-Patient Unit 2012 - 2013 2011 - 2012 Total number of admissions 268 265 Total number of patients 224 225 Number of new patients 199 209 % Occupancy 067 071 % Patients returning home 038 039 Average length of stay – cancer patients 11.5 days 11.4 days Average length of stay – non-cancer patients 09.5 days 13.0 days 2012 - 2013 2011 - 2012 Total number of patients 108 95 % New patients 080 64 % Patient attendances 086 79 % Patient non attendances 014 21 2012 - 2013 2011 - 2012 Total number of patients 230 270 % New patients 091 091 % Re-referred patients 002 002 2094 2208 Day Hospice Hospice at Home Total face to face contacts Total telephone contacts Average length of care 820 - 21 days 41 days - 25 - Garden House Hospice Outpatients 2012 - 2013 2011 - 2012 103 100 Patients Diagnosis; Cancer/malignant diagnosis 172 177 Other diagnosis 125 016 Not recorded 126 007 % New patients 173 180 % Re-referred patients 104 102 Seen by Palliative Care Doctor 137 171 2012 - 2013 2011 - 2012 Total service users 089 096 Number of telephone contacts 146 144 Number of individual counselling sessions 354 467 Total number of patients Bereavement Support In addition to individual bereavement counselling sessions, group bereavement counselling sessions were trialled in 2012 – 2013. The aims of this were to: § enable people to have a choice of how they are supported § make bereavement support available for more people Quantitative evaluation of these sessions is currently been undertaken. Qualitative evaluation (from telephone ‘interviews’) indicates that the sessions are well received and meeting a need; it is therefore planned to continue and extend these sessions in 2013 – 2014, with more open access for bereaved family/carers. There is currently no data recorded on these sessions; the process for formally recording attendance will be developed in 2013 – 2014. - 26 - Garden House Hospice Performance against Commissioning for Quality and Innovation (CQUIN) Payment Framework 2012 - 2013 - NHS Hertfordshire For all palliative care patients regardless of diagnosis who are expected to be within the last year of life, to ensure that they have received the appropriate assessment and care planning from the provider at key points during their patient journey. CQUIN Target In-Patient Unit Hospice At Home No. of Holistic Needs Assessments completed on admission > 85% 100% 98.08% No. of end of treatment plans completed for transfers of care > 85% 100% 96.85% > 85% 86.63% 81.34% > 80% 73.10% 94.49% No. of patients offered an Advance Care Plan (ACP) with no prior offer or ACP at time of admission Preferred Place of Death Achieved The reporting of all patient activity regardless of diagnosis who have received a service from the provider in any setting. In-Patient Unit Hospice At Home Requests for admission to the service; non-cancer 13.74% 13.21% Requests for admission to the service; cancer 86.26% 86.79% 0% 07.01% Admission to the service; non-cancer 12.75% 13.11% Admission to the service; cancer 87.25% 86.89% No. of appropriate patients not; admitted within 5 days 0% - No. of appropriate patients not; assessed within 3 days - 0% 12% - No. of requests that were inappropriate No. of Out Of Hours admissions - 27 - Garden House Hospice Complaints During the period 2012 - 2013: Total Number of Complaints 6 Total Number of Complaints Upheld in Full 2 Total Number of Complaints Upheld in Part 2 Total Number of Complaints Not Upheld 1 Total Number of Complaints Still On-Going 1 Complaints Upheld in Full: § Verbal Complaint; Attitude of a member of staff. Findings; o Staff member aware that her manner was not acceptable and has reflected on how she may manage similar situations in the future. § Written Complaint; Attitude of a staff member Recommendations; o Staff member to undergo further communication skills training o Staff member’s conduct to be monitored by Line Manager Complaints Upheld in Part: § Verbal Complaint; Concerns regarding husband’s care (patient sustained a fall). Findings; o Patient was checked regularly overnight and had his call bell to hand. o An injection for nausea may have contributed to the patients fall; the injection may have contributed to the patient becoming confused. o No changes in practice recommended. § Verbal Complaint arose during bereavement support. Complaints process for Garden House Hospice explained. Written Complaint; Issues with patient care at Lister Hospital, by Macmillan Team and at Garden House Hospice. Outcome and Recommendations; o Family invited to discuss issues with the Medical Director, a member of the Nursing Team and a member of the Family Support Service. o Advice and support given on how to follow up complaints relating to Lister Hospital and Macmillan Team. o Further meetings with Family Support Service offered. o Hospice Medical Team to ensure opportunities to communicate with families of deteriorating patients are fully utilised. - 28 - Garden House Hospice Complaints Not Upheld: § Written Complaint; Access to Hospice Services - Community Professional unhappy with response to a request for an Out Of Hours Admission for a patient not previously referred to the Hospice. Findings; o Correct procedures were followed by Garden House Hospice Clinical Team. o Patient’s condition required Acute Hospital admission for urgent treatment for a reversible cause. o Awareness to be raised, among the community team, of the prompt questions used by the hospice team when taking requests for admission and to clarify admission criteria. o The question ‘has the patient deteriorated rapidly within last 24-48 hrs?’ to be added to the list of prompt questions. Complaint Still On-Going: § Written Complaint; Son and daughter unhappy with their father’s care Concerns During the period 2012 - 2013 no concern were raised. - 29 - Garden House Hospice Patient Accident, Incidents and Near Misses The following patient related accidents and incidents were reported and investigated during the period 2012 – 2013 (2011 – 2012 figures provided for comparison). Medicines Related Incidents 20 (24) Slips, Trips and Falls 27 (53) Other* 18 (05) Pressure Damage on Admission 34 (data not collected 11 - 12) Pressure Damage During Admission 09 (data not collected 11 - 12) The majority of slips, trips and falls related to deteriorating patients trying to maintain their independence. Other * One patient spilt his hot drinks. * One patient made an allegation of assault; the patient was confused and had made similar allegations against her husband and other carers. * One patient lost their dentures; patient’s family aware that he repeatedly removed his dentures and put them down anywhere. * One patient knocked his leg on his wheelchair. * Unexplained haematoma found on a patient’s leg. * One patient was found smoking a cigarette in bed. * £5 was found in the safe which had not been returned with a patient’s property. * Patient confidentiality was breached by a Reception Volunteer; re-training has taken place. - 30 - Garden House Hospice Clinical Audit During the period 2012 - 2013 the following, audits, were undertaken, using national audit tools designed specifically for hospices, by Help the Hospices. Audit Title Date Recommendations Actions Completed Infection Prevention and Control 1. Policies and Processes 11/12 None 2. Hand Hygiene 03/13 None N/A 3. Patient Areas 02/13 Floor seals need to be redone in some areas* Partial 4. Clinical Rooms 03/13 Alcohol hand gel replaced Yes 5. Bathrooms 10/12 None N/A 6. Patient Toilets/Bidets 11/12 None N/A 7. Sluice/Dirty Utility 04/12 Bed pans/ urinals and jugs must Yet to be be stored inverted or on racks re-audited 8. Domestic Rooms 05/12 None N/A 9. Care of Deceased Patients 11/12 None N/A 10. Sharps 11/12 Sharps containers labelled with date/locality and signed when assembled Temporary closure mechanism in use when bin not in use Both issues raised with Clinical Team; Yet to be re-audited 11. Protective Equipment 11/12 None N/A 12. Kitchen Areas (excluding Main Kitchen) 04/12 Checklists and rotas for cleaning Yes Beverage Rooms need to be put in place 04/12 None Bereavement Support Bereavement support service audit tool; Policies and Procedures, Confidentiality and Record keeping, Personnel, Training, Information Provision, Service Evaluation N/A * In some patient areas, the joints in the Altro flooring are not fully sealed. This issue was already known about at the time of the audit and alternative solutions are being investigated and trialled by the manufacturers. - 31 - Garden House Hospice Internal clinical audits in the period 2012 - 2013 included: Audit Title Date(s) Recommendations Audit of Patients on the 1/04/12- Ensure correct and complete 30/09/12 paperwork is being used. Liverpool Care Pathway (LCP) at Time of Death Ensure all necessary information is transferred to the LCP documentation. Audit of Patients Not on the 1/04/12- All patients to be coded correctly on 30/09/12 iCare. Liverpool Care Pathway (LCP) at Time of Death All patients, in the terminal phase, should be commenced on the LCP. Actions Completed To be re-audited To be re-audited To be re-audited To be re-audited Nutritional Screening Tool Audit 21/03/13 None. N/A 4 Monthly Controlled Drug Checks 30/04/12 Alterations to be made correctly. No 10/09/12 None N/A 28/01/13 Alterations to be made correctly. To be re-audited Patients own drugs; one page To be re-audited required for each drug. Discharge Paperwork Audit 1/01/1230/06/12 Discharge paperwork to be fully and accurately completed. All entries to be dated, timed and signed (even if marked N/A). Action Plan awaited from Nursing Team; to be re-audited No brackets or dittos to be used. Discharge Letter Audit Waiting Time for Bereavement Support 1/01/1230/09/12 01/1211/12 Amend standard template to include additional items including; Preferred Place of Care, Preferred Place of Death, Advance Care Plans, resuscitation status and follow up. Yes None. N/A - 32 - Garden House Hospice Staff Survey Garden House Hospice was one of 30 Hospices to use a Staff Survey run by Birdsong Charity Consulting, in June - July 2012. Questionnaires could be completed, anonymously, on-line or paper copies were available from the Staff Room. The questionnaire was divided into four sections: 1. The Organisation and Communication 2. Morale and Work Life Balance 3. People Management 4. Development and Reward Each section consisted of a number of statements which could be scored; strongly agree, agree, neutral, disagree or strongly disagree. Birdsong reported back, to the Hospice Management Team, on the Garden House Hospice results, with comparative data for other Hospices. In addition, Birdsong provided comparative data to a further survey they had conducted across 170 charities in the UK. 49 of 120 members of paid staff responded to the survey (27 on-line and 22 on paper); a response rate of 41%. Response to the questionnaire was varied with Garden House Hospice employees indicating higher levels of satisfaction, than both other Hospices and charities in general, in some areas and lower levels of satisfaction in other areas. § 85% (42 people) Understand what the organisation wants to achieve § 88% (43 people) Were proud to work for the charity § 90% (44 people) Felt they were making a difference § 40% (19 people) Felt that they got stressed at work § 31% (15 people) Did not feel they were well informed about what was happening in the charity § 37% (18 people) Felt their views were not listened to and valued In response to the results, a series of focus groups have been held for staff to, anonymously, put forward comments and suggestions on the outcome of the survey and the way forward. The results of these have been taken back to the Hospice Management Team and an Action Plan has been drawn up. It is hoped that the Action Plan will address some of the areas where staff satisfaction was lower. This will be measured by undertaking the 2013 Birdsong Staff Survey. - 33 - Garden House Hospice Feedback from Patients and Families on Services Garden House Hospice values the feedback we receive from patients and families; the Hospice Team is constantly looking for ways to maintain and improve the quality of care for patients and their family/carers. Patient Questionnaires are given out during a patient’s stay on the In-Patient Unit, in conjunction with their first Day Hospice Review (usually the 4th visit) and by the Hospice @ Home Team, to respite patients, on their fourth visit. Matron reviews returned questionnaires and acts on any issues raised, immediately. Questionnaires are confidential but patients are given the option to give their name; if they would like a written response or the opportunity to comment further on our services. Questionnaires are audited every six months. Family/Carer Questionnaires are sent out, via the Family Support Team, with the offer of bereavement support, six weeks after the patient’s death, given to family/carer on a patient’s discharge from the In-Patient Unit and displayed around the Hospice for families and carers to pick up. Matron reviews returned questionnaires and acts on any issues raised, immediately. Questionnaires are confidential but family/carers are given the option to give their name and address; if they would like a written response or the opportunity to comment further on our services. Questionnaires are audited every six months. Family Support Service Questionnaires are sent out to all individuals who have completed a series of planned support sessions, with the Family Support Service, within two weeks of their sessions finishing. The Family Support Service Manager reviews returned questionnaires and acts on any issues raised, immediately. Questionnaires are confidential but individuals are given the option to give their name and address; if they would like a written response or the opportunity to comment further on our services. Questionnaires are audited every six months. All these questionnaires ask the individual to score statements, about the various Hospice Services and Departments, from 1 – 4; 1=very dissatisfied, 2=dissatisfied, 3=satisfied, 4=very satisfied N/A=Not Applicable. In November 2012 the Hospice Medical Team started using a Doctor Feedback Questionnaire. This is sent (with a reply paid envelope) to patients who have attended Garden House Hospice for an Out Patient consultation. There are ten questions about the consultation which can be scored; Yes definitely, To Some Extent, Not Really, Definitely Not or Does Not Apply. There is an additional question, ‘Overall, how satisfied were you with the doctor that you saw?’ This can be scores; Very Satisfied, Fairly Satisfied, Not Really Satisfied or Not At All Satisfied. - 34 - Garden House Hospice Patient Questionnaires Comments relate to Patient Questionnaires received back between 1.1.2012 and 31.12.2012. During this year 37 Patient Questionnaires were received back. Care and Support How satisfied were you with your involvement in planning your care? § Scored 92/92; 100% satisfaction “Staff in all areas were very professional, caring and considerate. Everyone listened & acted upon requests. All services worked together to provide a very high standard of care.” “I have been very fortunate to receive such caring.” “A wonderful experience when I was feeling low.” Nutrition and Diet Were your dietary needs met § Scored 73/76; 96% satisfaction “Exceptional staff throughout. Needs well supported.” Day Hospice Structure of the day § Scored 38/40; 95% satisfaction “The days I attended Hospice Day Centre was very pleasurable & delightful.” Inpatient Suitability of bedroom facilities § Scored 67/68; 99% satisfaction Suitability of bathroom facilities § Scored 67/68; 99% satisfaction “We are unanimous in our view that J could not have had a better or suitable place to spend the last few days of her life.” Hospice at Home Is the service reliable? (Yes/No response) § Scored 16/16; 100% satisfaction “Hospice at Home well done we need this help.” “A team of very pleasant nurses all of whom are very kind and considerate and very helpful. They inspire confidence.” - 35 - Garden House Hospice Family/Carer Questionnaires Comments relate to Family/Carer Questionnaires received back between 1.1.2012 and 31.12.2012. During this year 153 Family/Carer Questionnaires were received back. In Patient Care Information regarding changes in care § Scored 344/364; 95% satisfaction “Everyone at the Hospice cares about patients and their carers. Service is second to none. Atmosphere is caring and helpful and happy. Well done to all staff and management.” “We felt that staff at Garden House Hospice dealt with mum superbly and were not only for her but the family as well. They made Mum’s last few weeks as easy and comfortable as they could. Thank you for everything.” Quality of your relative’s meals § Scored 324/332; 98% satisfaction “I couldn’t have coped without all the wonderful staffs help and neither could my brother. Also full credit to the kitchen staff for their meals and sandwiches.” Suitability of environment; Privacy § Scored 389/420; 93% satisfaction “My husband’s care was beyond the call of duty. We were treated with the utmost respect and love. His final hours were peaceful and serene.” “Overall no complaints at all about the service provided. However, felt all inpatients should have had own rooms felt communal wards were not very private.” Day Hospice How valuable is/was your relatives attendance at Day Hospice to you? § Scored 96/96; 100% satisfaction “My brother really enjoyed coming on Wednesdays and looked forward to it each week. We couldn’t have asked for anything more. Brilliant staff and volunteers.” “There was always a friendly welcome in day hospice and always someone for me as a carer to talk things over with and receive help and understanding.” Hospice at Home Your involvement in planning care § Scored 199/204; 98% satisfaction “The care given to my husband and the kindness and help given to me was outstanding. I don’t think the help given to me could have been improved." “I cannot express how much I appreciate the help we received. It was there when we wanted it, the amount of help we needed and delivered with kindness, understanding and love.” - 36 - Garden House Hospice Family Support Service Questionnaires Comments relate to Family Support Service Questionnaires received back between 1.3.2011 and 29.2.2012. There was a response rate of 51% (36/71). Before your first appointment Was the time you waited for your first appointment acceptable? § Scored 133/140; 95% satisfaction “I was very impressed & appreciative of the way I was treated by the staff – very timely communication, always phoned me back, quick to get counselling sessions organised for me. Thank you very much. Very empathic, friendly and understanding.” “It would have been more helpful if I could have seen someone sooner, but it was over Christmas/New Year period and could not be helped.” Your sessions with the Family Support Service Do you feel the person supporting you was actively listening to you? § Scored 135/136; 99% satisfaction Do you feel the person supporting you understood what you talked about in the sessions? § Scored 135/136; 99% satisfaction “I cannot fault the support I was given. Anne was brilliant, she understood my moods, and it was easy to open up to Anne my feelings, which I felt I could not talk to my family.” “Anne, my counsellor was very supportive. She would ask me sometimes to clarify things, which really made me think. She mad me feel it was OK how I felt, that it is a big thing to have happened, made me understand.” Now your sessions with the Family Support Service have come to an end Do you feel the support from the Family Support Service has been helpful to you? § Scored 137/140; 98% satisfaction “I really wasn’t sure about approaching the hospice for support, but after persuasion from my school and my best friend I finally did. The care and support I have received has been excellent and really put me at ease to start to help me work through my bereavement and other issues. Thank you so much Garden House.” How likely would you be to recommend the Family Support Service to another person? § Scored 139/140; 99% satisfaction “This service was a lifeline at a time of extreme distress. I had lost six members of my family within two years, although I had been offered counselling I had declined this as I thought I was managing the grieving process, then my mother passed away and my whole world fell apart. My counsellor was fantastic, she helped me through the grieving process and enabled me to focus. I would highly recommend this service. Thank you.” - 37 - Garden House Hospice Doctor Feedback Questionnaire As Doctor Feedback Questionnaires have only been in use since November 2012 they have not been formally audited yet. Questionnaires and comments are reviewed, as soon as they are returned, so that any necessary actions can be taken. No actions have been necessary to date. The following comments relate to the 10 Doctor Feedback Questionnaires received back between 1.11.2012 and 31.3.2013. Overall, how satisfied were you with the doctor that you saw? § Very Satisfied 9/10 § Fairly Satisfied 1/10 § Not Really Satisfied 0/10 § Not At All Satisfied 0/10 “Excellent treatment.” “It was so nice to have as much time as needed. You feel with most doctors they do not have much time.” “Very often during the course of my illness I have felt as though I was not treated with much dignity and compassion. Of course there are exceptions. I count Dr Lucas and his team most helpful and compassionate, and that I was treated like a human being that mattered. Thank you.” “Best treatment I have had for a long time. Dr Vooght was very professional and considerate. - 38 - Garden House Hospice External Statements: NHS Hertfordshire Garden House Hospice has continued in 2012/13 to maintain the high standards of care and intervention expected by its Hertfordshire Commissioner. Offering a range of services for those with palliative care needs and particularly those within the last year of life, the Hospice remains a valued and valuable resource to its patients as well as relatives and carers. Of particular note is the willingness of the Hospice to support a range of initiatives which has included supporting the education of health and social care students, supporting Dying Matters week and the Hospices involvement in the local community. Under new CCG arrangements, the Hospice remains a keen and willing partner to continue to develop best quality practice in supporting those who are at the end of life or need a Hospice environment and to be involved in the further development of services for those with a palliative care need. The Hospice will in 2013/14, be further developing it’s learning through implementation of the Friends and Family Test, as well as monitoring those it cares for through use of the NHS Safety Thermometer. Gordon J Pownall Community Commissioning Manager - Commissioning Lead for End of Life and Palliative Care NHS Hertfordshire Hertfordshire Overview and Scrutiny Committee To date (27th June 2013) no response has been received from Hertfordshire Overview and Scrutiny Committee. - 39 - Garden House Hospice Healthwatch Hertfordshire Healthwatch Hertfordshire thanks Garden House Hospice for the opportunity to read and comment on their draft Quality Account. However we do not feel that we are in a position to make comments about the quality of service provided this year but note the following: · The Quality Account is informative with some excellent examples of patient feedback. · The priorities are presented clearly showing why they have been chosen and how they will be achieved. · Actions taken to improve discharge from the In Patient Unit by collaborative working with the Community Teams is welcomed. · Review of the effectiveness of last year’s priorities has allowed the Hospice to make plans for further quality improvement. · The increase in day services offered to reflect patient need is commended. We look forward to seeing the results from your chosen priorities and would value increased engagement with the Hospice through our Stakeholder Panel. Sarah Wren MBE, Chairman Healthwatch Hertfordshire, June 2013 - 40 - Garden House Hospice NHS Bedfordshire I have passed this to our quality Team for a response. (3rd June 2013) Deborah Cakmak; NHS Bedfordshire Lead on Quality Accounts 2013 No further response has been received to date (27th June 2013). Bedfordshire Overview and Scrutiny Committee Thank you for sending this through to me, l have no comments to make. Cllr Mrs Rita J Drinkwater (Chairman) SOCIAL CARE, HEALTH & HOUSING OVERVIEW & SCRUTINY COMMITTEE Healthwatch Bedfordshire To date (27th June 2013) no response has been received from Healthwatch Bedfordshire. - 41 - Garden House Hospice - 42 - Garden House Hospice Appendix 1: Commissioning for Quality and Innovation payment framework goals 2012 - 2013 NHS Hertfordshire To improve the care of patients who are on a cancer or palliative care / pathway End of Life – 50% of total CQUIN Description of Indicator For all palliative care patients regardless of diagnosis who are expected to be within the last year of life, to ensure that they have received the appropriate assessment and care planning from the provider at key points during their patient journey. To ensure: A. A Holistic Needs Assessment is completed at key points for any patient with cancer, while the patient remains under the active care of the provider, and at the point of any transfer of care B. An end of treatment plan is in place where the provider is transferring care to another provider following active or palliative treatment C. The offer of an Advance Care Plan for all patients who have been identified by any provider to be within the last 12 months of life CQUIN Goal o To improve the quality of care for patients with cancer and any other life limiting illnesses. o Ensuring that the health and social care needs of all patients are comprehensively assessed. o To ensure that all patients within the last 12 months of life, regardless of diagnosis are offered the opportunity to complete an Advance Care Plan accessible to all professionals who may provide health or social care support, including emergency services. Baseline value Quarter 1 data will form baseline. Following the setting of the baseline, value indicators for quarters 2, 3 and 4 will be set by the commissioner. This will be based on the expectation within the NICE guidance that 85% of patients will have had their holistic needs assessed. In addition where relevant 85% of patients will have received an end of treatment plan and / or will be offered the opportunity to complete an advance care plan. Both holistic needs assessment targets and (for patients within the last 12 months of life) Advance Care Plan targets must be met consistently for the full year to achieve the CQUIN. - 43 - Garden House Hospice Activity and Performance Reporting – Informing strategic planning – 50% of total CQUIN Description of Indicator The reporting of all patient activity regardless of diagnosis who have received a service from the provider in any setting. The key elements of this indicator upon which the providers will be measured will be evidence of: a. Reporting template completion and return to the Commissioner applying agreed definitions of data reporting to maintain reporting consistency across all providers of similar services b. Achieving the timescales for reporting as defined within the CQUIN c. Achieving data completeness in terms of detail ensuring that gaps in data do not exist in any aspect of the information required d. Use of the agreed template to facilitate collation of all reporting across a range of services and settings CQUIN Goal o To improve planning of quality care for patients on an end of life pathway o To ensure that Commissioners have access to comprehensive activity data to facilitate strategic planning o To evidence activity across Hertfordshire Hospice provider services to inform benchmarking reviews and correlate financial investments with referral and discharge activity across the wider population o To improve the use of existing service provision through understanding current activity and trends Baseline value Quarter 1 will form baseline for review of the reporting template. Following the setting of the baseline, value indicators for quarters 2, 3 and 4 will be set by the commissioner. This will be based on the expectation of full data completion. - 44 - Garden House Hospice NHS Bedfordshire Goal no. Description of Goal Quality Domain(s) Indicator Indicator name number 1 The development of internal pathways, that include key trigger points to deliver and embed NICE Quality Standards into service delivery. Effectiveness/ 1 Patient experience 1a (I) Effectiveness/ 1a To develop and implement Patient clear systems and processes experience for staff to follow when communicating and providing information appropriate to the stage reached by the person who is approaching end of life and for responding to people’s change in circumstances. 1a (II) Appropriate education and training is delivered to staff to ensure they are confident to communicate and provide information to patients, families and carers. 1a (III) NHS Bedfordshire patients, families and carers are provided with information on PEPS. 1b (I) To develop and implement systems and procedures for the provision of comprehensive holistic assessments in response to the changing needs of the patients, families and carers. 1b (II) To have clear systems and processes in place for referring NHS Bedfordshire patients to PEPS. Effectiveness/ 1b Patient experience Indicator weighting Deliver and embed NICE Quality Standards. 100% QS 2: Communication and Information. 100% QS3: Assessment, care planning and review. 100% - 45 - Garden House Hospice Appendix 2: Commissioning for Quality and Innovation payment framework goals 2013/14 NHS Hertfordshire Goal number Goal name Indicator number Indicator name Indicator weighting (% of CQUIN scheme available) Description of indicator Numerator Denominator Rationale for inclusion Data source Frequency of data collection Organisation responsible for data collection Frequency of reporting to the commissioner 1 Friends and Family Test 1 Friends and Family Implementation 1.0% Implementation of Friends and Family Test n/a n/a National CQUIN scheme Local provider response to local commissioners. Review of returns submitted to commissioners. Data to be presented on the MS Excel Template as provided for activity reporting. Garden House Hospice At the end of each Quarter of the financial year – to be received by the commissioner within one calendar month of the end of the preceding quarter. Baseline period/date n/a Baseline value n/a Final indicator period/date Payment may be made in Quarter 3 of the financial year (on which payment is based) 2013/14 providing full achievement to date for quarters 1-3. Final indicator value Full delivery of the nationally set milestones (payment threshold) Provider to demonstrate to commissioner that milestones Rules for calculation of have been met as indicated in the associated Friends and payment due at final Family Guidance. indicator period/date (including evidence to be supplied to commissioner) Final indicator reporting Response from the providers to the commissioners at the date end of February 2014 Are there rules for any Needs to be full and consistent implementation for payment agreed in-year milestones in line with national guidance that result in payment? None Are there any rules for partial achievement of the indicator at the final indicator period/date? - 46 - Garden House Hospice Milestones (only complete if the indicator has in-year milestones) Date/period Rules for achievement of milestones Date milestone (including evidence to be supplied to milestone relates to commissioner) to be reported End of Quarter 1 End of Quarter 2 End of Quarter 3 Provider to have established processes and implemented the friends and family test, have tested the processes and evidence achievement of responses from a minimum 5% of the potential respondents. Full delivery of friends and family test achieving a minimum of 15% of all possible respondents. Full delivery of friends and family test achieving a minimum of 15% of all possible respondents and evidence of provider review of the outcome scores with an action plan, if needed, to achieve improvement in service provision End of Quarter 1 Milestone weighting (% of CQUIN scheme available) N/A End of Quarter 2 End of Quarter 3 N/A Total N/A N/A Rules for partial achievement at final indicator period/date (only complete if the indicator has rules for partial achievement at final indicator period/date) Final indicator value (payment threshold) % of CQUIN scheme available N/A N/A - 47 - Garden House Hospice Goal number Goal name Indicator number Indicator name Indicator weighting (% of CQUIN scheme available) Description of indicator Numerator Denominator Rationale for inclusion Data source Frequency of data collection Organisation responsible for data collection Frequency of reporting to the commissioner Baseline period/date Baseline value 2 Implementation of the Safety Thermometer 1 NHS Safety Thermometer Implementation 1% To collect data on the following three elements of NHS Safety Thermometer: pressure ulcers, falls and urinary tract infections in patients with a catheter. To increase the proportion of patients receiving harm free care by reducing the prevalence of pressure ulcers, and the proportion of patients with harm from a fall in care using Quarter 1 as a baseline of activity. Improvements will be to year end and to achieve CQUIN will be a 50% improvement in new pressure ulcers in bed based units and community teams and 20% improvement in falls with harm in bed based units subject to exclusion of patients with clinical conditions that predispose them to fractures. The number of patients recorded as having a new category 2-4 pressure ulcer as measured using the NHS Safety Thermometer on the day of each monthly survey. The number of patients recorded as being harmed by a fall, as measured using the NHS Safety Thermometer on the day of each monthly survey. The number of patients who have a UTI, as measured using the NHS Safety Thermometer on the day of each monthly survey. The total number of patients surveyed on the day National CQUIN scheme Provider submission to the commissioner – reporting template (MS Excel) is available at http://www.ic.nhs.uk/thermometer One day per month Garden House Hospice At the end of each Quarter of the financial year – to be received by the commissioner within one calendar month of the end of the preceding quarter. April 2013 – June 2013 For each of the elements requiring improvement (pressure ulcers, falls and UTI, the median of three consecutive monthly data points between April 2012 and June 2013 forms the baseline. - 48 - Garden House Hospice Final indicator period/date (on which payment is based) Final indicator value (payment threshold) Rules for calculation of payment due at final indicator period/date (including evidence to be supplied to commissioner) Final indicator reporting date Are there rules for any agreed in-year milestones that result in payment? Are there any rules for partial achievement of the indicator at the final indicator period/date? Payment may be made in Quarter 3 of the financial year 2013/14 providing full achievement to date for quarters 1-3. For each element, achievement of an increasing trajectory of improvement across each area maintained at a rate better than the baseline. Improvement on the baseline as evidenced using the MS Excel reporting framework. Response from providers to commissioners at the end of February 2014 Needs to be full and consistent implementation and improvements as described above for payment. No Milestones (only complete if the indicator has in-year milestones) Date/period Rules for achievement of milestones Date milestone (including evidence to be supplied to milestone relates to commissioner) to be reported Quarter 1 Quarter 3 Baseline established and monthly reporting/audit being undertaken Evidence of consistent reporting and improvements made and maintained at a rate better than baseline End of Quarter 1 End of Quarter 2 Total Milestone weighting (% of CQUIN scheme available) N/A N/A N/A Rules for partial achievement at final indicator period/date (only complete if the indicator has rules for partial achievement at final indicator period/date) Final indicator value (payment threshold) % of CQUIN scheme available N/A N/A - 49 - Garden House Hospice Goal number Goal name Indicator number Indicator name Indicator weighting (% of CQUIN scheme available) Description of indicator Numerator Denominator Rationale for inclusion Data source Frequency of data collection Organisation responsible for data collection Frequency of reporting to commissioner 3 Non Cancer Patients 1 Improvement in referral rates to hospice services for non cancer diagnosed patients 0.5% Increased referral rate for non cancer patients Total number of patients referred to the service across all service areas Total number of patients with a non cancer diagnoses as a percentage of all referrals Strategic priority to respond to non- cancer diagnosed patients in response to Herts CC Scrutiny (awareness raising) and CCG strategic plans Local provider response to local commissioners Review of returns submitted to commissioners. Data to be presented on the MS Excel Template as provided for activity reporting. Garden House Hospice At the end of each Quarter of the financial year – to be received by the commissioner within one calendar month of the end of the preceding quarter. Baseline period/date Quarter 1 in FY 2013 - 2014 Baseline value The response rate (which must be at least 15%) Final indicator period/date Payment may be made in Quarter 3 of the financial year (on which payment is based) 2013/14 providing full achievement to date for quarters 1-3. Final indicator value Provider achieving an increase in response rate that (payment threshold) improves on Q1 and is 10% or over for the number of non cancer patients referred to the service (for services offering IPU and Community services, an aggregate score will be used across all services provided) Final indicator reporting Response from providers to commissioners at the end of date February 2014 Are there rules for any N/A agreed in-year milestones that result in payment? No Are there any rules for partial achievement of the indicator at the final indicator period/date? - 50 - Garden House Hospice Milestones (only complete if the indicator has in-year milestones) Date/period Rules for achievement of milestones Date milestone (including evidence to be supplied to milestone relates to commissioner) to be reported Milestone weighting (% of CQUIN scheme available) Total Rules for partial achievement at final indicator period/date (only complete if the indicator has rules for partial achievement at final indicator period/date) Final indicator value (payment threshold) % of CQUIN scheme available N/A N/A - 51 - Garden House Hospice NHS Bedfordshire Bedfordshire 2013/14 CQUINS are not yet agreed - 52 - Garden House Hospice Gillison Close Letchworth Garden City Herts SG6 1QU Telephone: 01462 679540 E-mail: enquiries@ghhospice.co.uk Website: www.ghhospice.co.uk North Herts Hospice Care Association Registered Charity Number 295257