Quality Account 2011 – 2012 Supporting patients and their families living with cancer and other life-threatening diseases 2011/ 2012 Quality Account -1- Statement from the Group Chief Executive At St Giles Hospice we’re proud to consider ourselves a part of the community which we serve, and one of our key roles as a registered charity is to make sure the community is kept informed about everything we do. The Board of Trustees, the Senior Management Team and all of the staff and volunteers at St Giles are committed to providing the best possible experience for patients and their families. We aim to achieve this by providing high quality, cost effective care underpinned by sound governance across all aspects of the organisation. As a result of unannounced visits undertaken during this year, no shortfalls in the service we provide were identified by the Regulator. This reflects the commitment of all staff and volunteers to the Hospice and the care we provide for those affected by cancer and other life threatening illnesses. The Hospice has worked hard to develop a culture of continuously monitoring the quality of our services to ensure any shortfalls are identified and addressed as quickly as possible. This culture is the responsibility of every employee and volunteer at the Hospice and their commitment to the Hospice and the care of our service users is reflected in the assessment of the Care Quality Commission and most importantly is evident in the responses we receive directly from our service users. I am responsible for the preparation and content of this report and, to the best of my knowledge, it is an accurate and fair representation of the quality of our services. This account considers 2011/12 and looks forward to some of our priorities in 2012/13 as we continue to strive for improvements that benefit patients and carers and their experience of the Hospice’s services. Peter Holliday Group Chief Executive 2011/ 2012 Quality Account -2- Part 1 1.1 Priorities for improvement 2012/2013 St Giles Hospice remains compliant with the National Minimum Standards (2002) and has satisfied the Care Quality Commission that criteria identified in ‘Essential standards of quality and safety’ are being met as evidenced through self assessment and via visits from CQC in July 2011 and February 2012. As such, the Board did not have any areas of regulatory shortfall to include in the priorities for improvement for 2012-2013 but expects and actively supports a culture of continuous quality improvement. The Care Quality Commission has categorised the hospice as a low risk organisation. To maintain the Quality Risk Profile at this level, the hospice provides quarterly reports to the Care Quality Commission. These reports are also provided to the commissioners of hospice services. St Giles’ strategy identifies the Board’s key principles and strategic aims for the future. These aims are dependent upon obtaining or securing the necessary funding. Three key developments to support the strategy planned for 2012/13 are outlined below. Implementation of a twilight Hospice at Home Service The Hospice successfully bid for a grant of £39,000 from St James Place. This will fund, for one year, an extension of the existing model of care for Hospice at Home (H@H) patients to include a service providing Registered Nurse cover between the hours of 4pm - 11pm every day. This service will greet and settle patients and families after discharge from Hospice or hospital where their choice is to die at home. The role will provide support to district nursing teams where they have difficulties in responding rapidly, will provide evening based care, and mentor and support the existing night team of Healthcare Assistants (HCA) to ensure patients remain at home should that be their wish Integrated Hospice Community Services Model The Hospice intends to move towards an integrated service delivery model for its community services in 2012/13. This is to address the increasing demand for CNS and Hospice at Home services without substantive increased investment being available, the desire to enhance service availability 24 hours a day and further improve the co-ordination and responsiveness of our community services. Through both service and role redesign we will be able to respond to assessed patient and carer need in a timely way, deploying staff with the most appropriate skill set. This will release capacity and ensure the best use of all available resources for the benefit of patients and carers. 2011/ 2012 Quality Account -3- Development of care co-ordination and advice for St Giles patients We know that our patients turn to us, often as a first port of call, for advice and support with any issues that they have concerning their end of life care. This is evidenced by the volume of calls received by us each year, currently some 29,000. Some of these calls are from patients and families not currently known to St Giles. These calls enter the organisation via a number of routes and callers have an array of requirements ranging from simple signposting through to advice on symptom management and psychological support. Many calls then require coordination with other services, both internal and external, in order to meet the needs of patients and families. St Giles has the required technology to develop this service further and create a single point of access for telephone advice, in effect a co-ordination centre for patients and families. We are currently seeking investment to supplement service redesign to enable us to offer an improved 7 day care co-ordination centre. This will substantially improve efficiency of Hospice services and provide an improved response to patients and carers. 2011/ 2012 Quality Account -4- 1.2 Priorities for improvement 2011/2012 St Giles Hospice is fully compliant with the Care Quality Commission: Essential standards of quality and safety. As such, the Board did not have any areas of shortfall to include in the priorities for improvement for 2012/2013. To meet the increasing demands of the local community, during 2011/12 St Giles identified areas of improvement to improve care and support for patients and their families. Examples of developments in 2011/12 are outlined below. Widening access through Supportive Care in Day Therapies The Family Support & Bereavement services and Complementary Therapies moved into the new Day therapies Centre in May 2011. The refurbishment of this centre was funded by a Department of Health grant and financial support secured from a variety of grant-making trusts. During 2011/12 a number of patient and carer programmes were piloted. In addition, the facilities have been used by external groups for a variety of purposes. Through a restructure of the Supportive Care Department in 2011/12 we have been able to recruit a Supportive Care Co-ordinator who commences in July 2012. The post holder will further develop the use of volunteer and patient led groups as well as activities for mutual education and peer support for patients and their families. This will further increase our community engagement and break down barriers to accessing Hospice care caused by fear and an assumption that Hospices are only for people dying of cancer. Establishment and consolidation of St Giles Walsall inpatient service The inpatient service commenced operation in April 2011 following a successful tender by the Hospice. The inpatient team is now well established. Bed occupancy has increased and reflects the expected bed occupancy according to the National Council for Palliative Care’s minimum data set. The patient mix reflects a higher than expected percentage of non-cancer disease which we are especially pleased about. The service is fully compliant with regulatory standards. Its quality and audit programme demonstrates that it is providing a high standard of service and care delivery and patient and carer feedback is excellent. Review of inpatient respite care delivered by the Compassus Centre A review of our inpatient respite provision was undertaken in 2011/12. We have now ensured that we are able to meet urgent as well as planned respite needs in a more timely way. This has meant we have been better able to respond to patient and carer need and avert potential care crises. This ability to respond to urgent need for respite has been welcomed by patients, carers and professionals. 2011/ 2012 Quality Account -5- Implementation of the Bereavement Needs Assessment tool for inpatient services Hospice staff had supported work at a national level to develop an evidenced based bereavement needs assessment tool. This tool considers existing levels of resilience and support and builds on these, as well as recognising when individuals need higher intervention levels. This was successfully implemented in 2011/12. 2011/ 2012 Quality Account -6- 2 Statement of assurance from the Board The following are a series of statements that all providers must include in their Quality Account. Many of these statements are not directly applicable to specialist palliative care providers. Review of services During 2011/12 St Giles Hospice was contracted to provide six core services to the NHS: The services were as follows: Clinical Nurse Specialist Community Team Hospice at Home services Day Hospice Outpatient care Lymphoedema Clinics In-patient care St Giles Hospice has reviewed all the data available to them on the quality of care in all of these services. The income generated by various contracts for service provision to the NHS in 2011/12 represents 41.8% of the total income generated to enable the provision of these services by St Giles Hospice. The remaining funds were generated through fundraising and the Hospice’s own subsidiary companies working with the local community. The total value of services provided in 2011/12 was £7,898,086. Research The Family Support and Bereavement Team has been involved in a research project with Keele University to explore the different ways in which people react to bereavement and the things which make it more or less possible to cope with the consequences of bereavement. 58 bereaved clients have been enrolled onto the research. The data collection for the project will end in August. Research undertaken by the Nurse Consultant in the Lymphoedema Clinic relating to application frequency of a new lymphoedema bandaging system (Coban 2) has now been published in the British Journal of Dermatology The Lymphoedema Team are also involved in an ACE Study (At home Compression Evaluation) Comparison of 2 intermittent pneumatic compression pumps for home use in maintenance phase of lymphoedema management. Interim findings will be published internationally to inform evidence-based practice. The Community and Hospice at Home teams and St Giles family carers have been involved in a feasibility study to evaluate the impact of a Carer Support Needs Assessment Tool (CSNAT) intervention in Hospice home care. The research study tests whether the CSNAT intervention makes a difference to family carers and how. St Giles’ Hospice home care (HHC) service is one of 2011/ 2012 Quality Account -7- six Hospice HHC services to use the CSNAT intervention with family carers at home. The research team will compare carers who had usual care with those who had the CSNAT intervention by using a postal survey of carers to find out if those who had the intervention had better health, well being, levels of grief and feelings of being supported. The clinical teams have given feedback on using CSNAT to the researchers with the researchers also considering if assessment frequency made any difference. All of the learning from this study has been used to formulate a training guide to enable services across the UK to use the CSNAT intervention in the future. The study concluded in April 2012; however the teams continue to use CSNAT as a service improvement initiative. Participation in clinical audits During 2011/12, there were no national clinical audits or national confidential enquiries covering NHS services relate to palliative care. St Giles Hospice only provides palliative care services. St Giles Hospice undertook a range of audits as evidence of compliance against stated standards and criteria. Each report contained recommendations and an action plan and were reviewed by the Clinical Governance Committee. Many of these audits used evidence based tools developed by the National Audit Tools Group affiliated to our national body, Help the Hospices. St Giles Hospice’s Quality & Audit Manager is a member of this national group. The following actions have been undertaken to ensure St Giles Hospice continues to improve the quality of healthcare provided. Participation in an international research study on the management of lymphoedema Participating in a national study evaluating the use of a Carers’ Needs Assessment Tool. Implementation of the Help the Hospices national audit tool to ensure full compliance for the role of Accountable Officer. The purchase of McKinley T34 syringe drivers to replace Graseby drivers in line with the National Patient Safety Agency directive. Investment and implementation of an e-learning suite Development of a creative therapy area in the Compassus Centre The Hospice implementation of version 12 of the Liverpool Care Pathway Quality improvement and innovation goals agreed with our commissioners St Giles Hospice’s income in 2011/12 was not conditional on achieving quality improvement and innovation goals through the Commissioning for Quality and Innovation payment framework. 2011/ 2012 Quality Account -8- What others say about us St Giles Hospice is required to register with the Care Quality Commission and its current registration status is unconditional and no enforcement action has been taken against St Giles Hospice during 2011/12. Two reviews of the Hospice were undertaken by the Care Quality Commission during 2011/12. The first was a periodic visit within the routine schedule of planned reviews. The inspectors visited during July and undertook a check of patients’ records, observed how people were being cared for, talked to staff, reviewed information from stakeholders and talked to people who use services. The inspectors reviewed standards relating to appropriate care, protection from abuse, medicine administration and quality monitoring. The final report was published in September 2011 and stated that ‘St Giles Hospice - Whittington was meeting all the essential standards of quality and safety’ The second visit was to review information held with regard to the Hospice premises at Lindridge Road, Sutton Coldfield. The unannounced visit took place on 14 February and the inspectors observed how people were being cared for, talked to staff and talked to people who use services. The inspectors reviewed standards relating to appropriate care, medicine administration and quality monitoring. The final report was published in March 2012 and stated that ‘St Giles Hospice – Sutton Coldfield was meeting all the essential standards of quality and safety’ As a result of these visits St Giles Hospice has no corrective actions to take and is rated as low risk. In January 2012 an announced visit was undertaken by the Assistant Director of Quality and the Quality Manager from the Staffordshire Cluster of PCTs. The visit examined provision of services, environment, staffing and care and treatment undertaken. The conclusion of the report was: “Services are provided to a very high standard within the Hospice and via Hospice at Home and the Community Specialist Team. The visit was very positive with the focus very firmly on meeting the needs of patients and their families” Data Quality In accordance with agreement with the Department of Health, St Giles Hospice submits a National Minimum Dataset (MDS) to the National Council for Palliative Care. St Giles Hospice provides the MDS to the local PCTs. St Giles Hospice score for 2011/12 for Information Quality and Records Management was not assessed using the Information Governance Toolkit because this toolkit is not applicable to palliative care. 2011/ 2012 Quality Account -9- 3 Quality overview The National Council for Palliative Care: Minimum Data Sets for Palliative Care 2010/11 (This is the latest nationally available published data) St Giles Hospice National Median In-Patient Unit % New patients 89.2 89.3 % Occupancy 75.9 77.3 % Patients returning home 46.1 44.5 Average length of stay – cancer 14.8 14.4 11 St Giles Hospice 11.9 National Median Day Hospice % New patients – cancer 83.5 85.1 % New patients – non cancer 16.5 14.9 50.4 St Giles Hospice 59.6 National Median Community : Clinical Nurse Specialist % New patients 65.5 67.4 % New patients with a non-cancer diagnosis 5.5 11.4 Visits per completed series 4.7 4 Average length of stay – non cancer % Places used In addition to the limited number of suitable quality metrics in the national dataset for palliative care, we have chosen to measure our performance against additional metrics identified below. Indicator 2010/11 2009/10 2008/09 4,070 3,394 2,727 Total number of referrals not proceeding 633 653 582 Total number of patients admitted to the in-patient unit 334 307 280 % of patients who went home 46.1% 44.3% 46.2% Number of available bed days 6,699 6,053 6,474 % Bed Occupancy 75.9% 74% 75.5% Total number outpatient attendances 4,173 4,540 3,962 Total number of attendances by patients at the Day Hospice 1,854 2,342 2,240 Total number of new referrals to St Giles Hospice 2011/ 2012 Quality Account - 10 - Indicator 2010/11 2009/10 2008/09 Total number of contacts with patients by the community service 40,840 46,198 31,553 Total number of Hospice at Home sessions provided 4,328 5,404 4,802 Total hours of Hospice at Home input 12,121 9,154 Not collected Total number of complaints 10 16 12 The number of complaints which were investigated and resolved in full 6 6 11 The number of complaints which were investigated, resolved but only upheld in part 3 8 1 The number of incidents reported to RIDDOR involving patients 3 1 1 The number of incidents reported to RIDDOR involving staff 2 0 1 The number of patients known to be infected with MRSA on admission to the in-patient unit 3 1 3 Patients infected with MRSA whilst on the in-patient unit 0 0 0 1 2 3 1 1 0 Number of patients admitted to the in-patient unit with pressure sores 67 78 57 Number of patients who developed pressure sores whilst on the In-patient unit. 21 7 15 12.9 13.5 15.4 80 61 82 4.06 4.6 6 The number of patients known to be infected with Clostridium difficile, Pseudomonas, Salmonella, ESBL or Klebsiella pneumonia on admission Patients who were diagnosed with these infections whilst on the inpatient unit. Average length of stay on the in-patient unit (days) Slips, trips and falls Number of falls per occupied bed (Number of beds multiplied by bed occupancy and divided by number of falls) Our participation in clinical audits Each department within St Giles Hospice is responsible for developing their forward audit programme with the assistance and guidance of the Quality and Audit Manager. A proposed start and finish date together with project lead is identified together with topics and standards. The forward audit programme for each department together with Hospice wide audits – those involving all departments and led by the Quality and Audit Manager – are then reported to the Clinical Governance Committee. 2011/ 2012 Quality Account - 11 - The Clinical Governance Committee meets quarterly and consists of four trustees – one of whom chairs the meeting – together with the Chief Executive, Nursing Director, Business Support Director, Medical Director (i.e. the Hospice’s Senior Management Team) and the Quality and Audit Manager. Clinical Audit is part of the standing agenda for each meeting. A report is tabled by the Quality and Audit Manager identifying progress against the forward audit programme, outcome of completed audits together with identified actions and recommendations. Below is a selection of audits undertaken together with outcomes: Infection Control Re-audit of Prevention and Control of Healthcare Associated Infections (HCAI) undertaken in June 2011. The audit reviewed the recommendations and action plan developed in June 2010 and re-audited against the Code of Practice – the outcome was 97% compliance. To meet the rationale of effective infection control policies, process and structures to reduce the risk of microbial contamination in everyday practice and ensure there is a managed environment that minimises the risk of infection to patients, clients, staff and visitors the clinical departments utilised the 12 modules developed by Help the Hospices’ National Audit Tools Group. Each department reviewed their content and suitability for use within their clinical area. The overall average for Inpatient Unit, Day Hospice and Lymphoedema Clinic was 87%. The findings were used to develop action plans which will be implemented by Infection Control Champions within each area and re-audited as part of the 2012/13 audit programme. Medicines Management Self assessment audit undertaken by the Accountable Officer to evidence the discharge of their responsibilities in the management of Controlled Drugs was undertaken in September – the outcome evidenced 100% compliance against national regulations and legislation. To support the Accountable Officer the following audits were undertaken by the Inpatient Unit: o Management of Controlled Drugs – overall compliance 93% o Non-controlled general medicines - overall compliance 97% o Safe and secure handling of medicines. Pharmacy led against national standards comprising an annual audit which evidenced 100% compliance and quarterly monitoring which averaged 80% Documentation The Hospice is required to keep accurate records in respect of each service user which shall include appropriate information and documents in relation to their care and treatment. Each clinical department is required to undertake annual audits of their documentation practice to ensure compliance with standards. The average score across the Hospice was 87% 2011/ 2012 Quality Account - 12 - What our patients say about the organisation All departments are required to undertake an evaluation of their service which entails seeking the views, comments and suggestions of patients and their families and carers who use the service. The Community, Hospice at Home and Lymphoedema Teams undertake annual snapshot surveys; Inpatient Services and Day Hospice use ‘real time’ monitoring and the Family Support and Bereavement Team elicit views of all clients upon discharge from the service. Community team Overall the feedback received was highly positive and grateful for service input by the nurse specialist team. Particularly gratifying was the response to the question ‘Was there anything we didn’t do that you think we should have done for you’ – 98% of respondents indicated no. These are just some of the comments received: o o o The support my family and I have received from the Hospice is exceptional. I have found it very reassuring and feel very lucky to live in an area which has such a great support team. Thank you all very, very much. We, the cancer sufferers, could not do without great people like yourselves. God bless you all and thank you once again Without the care and attention, kindness and understanding from all the nurses who have seen or spoken to me I do not think I would be here today. I was in such a poor state of mind and physical condition – they have been ‘stars’ in every way Hospice at Home Overall feedback was extremely gratifying and there were no specific issues raised that require action by the team. 100% of respondents answered ‘Yes’ to the question ‘During the time our staff are with you do you feel they are immediately responsive to your needs?’ 100% of respondents either strongly agreed (53%) or agreed (47%) with the statement ‘You are receiving co-ordinated care from all the professionals supporting you’ These are just some of the comments received: o o o The care and support my husband (the patient) and I (his carer) have both received from our CNS, the Hospice at Home team and the staff at St Giles Hospice has been amazing. To feel that we have people who genuinely care about our well being at this difficult time is very humbling and I cannot find words to express our gratitude – don’t change a thing! St Giles Hospice at Home service has made such a difference to our lives and always such lovely professional staff The help and support we have received at this very difficult time has been invaluable and most appreciated Lymphoedema Clinic Adult (annual survey) The feedback from patients was excellent – 100% of respondents indicated that they always felt welcome when arriving at the Hospice 2011/ 2012 Quality Account - 13 - 94% of respondents indicated that they were very satisfied with their involvement in planning their care 100% of respondents confirmed that they had received written information and guidance about their swelling, These are just some of the comments received: The Hospice is about as near perfect as I think it could be, you all do a wonderful job, I would like to thank you all All your staff are excellent I found both clerical and clinical staff went out of their way to be helpful and arrange as early an appointment as possible for both assessment and treatment Children (annual survey) An excellent response received from the young people and their families 100% of respondents indicated ‘always’ to the question ‘Overall, did you have confidence in the staff who were caring for you / your child?’ and also to ‘Overall, did you understand the explanations given to you about you / your child’s treatment and care?’ These are just some of the comments received: Always make me welcome. Always smiling and kind You have always been very professional and caring i.e. reassuring to my child St Giles convinced me to trust them with bandaging A new Day Therapies Centre was opened in May 2011 – concerns were voiced regarding the suitability of the therapy / counselling rooms in terms of dignity, respect and noise. An evaluation was undertaken to elicit client experience when attending sessions: Complementary Therapy 100% of respondents strongly agreed that their privacy and dignity were always respected, that their therapy room was clean and comfortable Respondents were asked ‘how beneficial did you find the service overall?’ – 67% indicated ‘excellent’ with 33% indicating ‘very good’. The final question asked if they would recommend the service to a friend – 100% of respondents indicated yes. Some of the comments received: The facilities were all modern and up to date and in a very relaxing atmosphere From reception to therapist 100% - thank you I have never had therapy before and I found it very relaxing and a comfort after the death of my husband Being introduced to St Giles has been invaluable with my mother suffering from cancer – the relaxation has been great. I wasn’t sure if she would enjoy the sessions at the first point – it’s not something she would normally do. However, she enjoyed it so much and looked forward to each treatment. She doesn’t really go out very much so for her it was fantastic. 2011/ 2012 Quality Account - 14 - Family Support and Bereavement 100% of respondents indicated that their privacy and dignity were always respected and that they were satisfied with the confidential nature of the service. ‘How beneficial did you find the service overall?’ 72% indicated excellent and 22% very good. Some of the comments received: Had it not been for xxx I would not have been able to reach the place / be the person I am today after the death of my husband. I have been equipped with ‘tools’ to help me find my way in my ‘new‘ life The service offered addresses all the issues for those of us, without a family or friends, who may need help in the aftermath of a cruel death of a close relative or loved one Since our introduction to St Giles my wife and I find that we are not alone with the fight against my wife’s cancer. It is good to know that help is there when it is needed Evaluation of support provided by specialist counsellors and dedicated support volunteers Were you satisfied with the confidential nature of the service?’ – 100% responded ‘Yes’ ‘Were you treated in a respectful and sensitive manner’ – 100% responded ‘Yes’ ‘Would you recommend this service to others?’ – 95% responded ‘Yes’ Some of the comments received: I should have requested earlier but I wanted my daughter to use the service first as I felt her needs more important but actually we both needed help to help each other. I can’t see you could make things any better or more comfortable. I was very satisfied with the whole experience and I found Xx very caring. I think I would like to meet up with him again in the future to let him see how I’m coping I loved doing all the activities to help me remember the good things Due to my personal situation – being able to talk things through instead of bottling up. Our brick walls are not so supportive. My first experience of St Giles frightening. Having visited new build, talked to people and visits I now see St Giles in a different light. I would be content to spend my last days at St Giles or in their care at home. Day Hospice Bi monthly real time monitoring of patient satisfaction. Patients were asked: Have your recent visits been satisfactory? - 95% responded ‘Always’ Do you understand the reasons for attending Day Hospice? - 76% responded ‘Always’ Do you understand what we are trying to achieve for you? - 76% responded ‘Always’ 2011/ 2012 Quality Account - 15 - Patients were asked to indicate their impressions of the service and its ability to meet their on-going need. The areas audited are: Environment Understanding how the 12 week programme works Confidence in staff Support to maintain independence Being involved in planning care Access to medical and nursing support Initial assessment with Doctor and Nurse Information received about Day Hospice and how to contact the team Catering and meeting dietary requirements Overall 87% indicated ‘completely satisfied’ Following completion of their 12 week contract: Patients were asked if they would recommend the Day Hospice to someone else 100% of respondents indicated ‘Yes’ Patients were asked to rate the support they had received from Day Hospice: 57% indicated that it had ‘Exceeded their expectations’ and 43% indicated that it has ‘Met their expectations’ Inpatient Services Real time monitoring through the use of 3 different questionnaires: 1. Patients or families / carers to complete 3 days post admission 2. Patients and families / carers to complete upon discharge 3. Families of bereaved patients 3 days post admission - questions asked Have the first three days of your stay been satisfactory? Have you understood the reasons for your admission and what we are trying to achieve for you? Have you found the staff approachable? Have you been given the opportunity to discuss treatments? Have you been able to express any concerns or issues you may have? Are we doing everything for you that you would wish us to do? If you had a complaint about the care you are receiving, would you know what to do? 2011/ 2012 Quality Account Compassus Patients Families (n = 61) (n = 5) Walsall Patients Families (n = 25) (n = 3) 82% always 15% mostly 80% always 20% mostly 88% always 12% mostly 100% always 76% always 24% mostly 93% always 7% mostly 84% always 16% mostly 100% always 80% always 20% mostly 87% always 10% mostly 100% always 88% always 12% mostly 100% always 100% always 85% always 13% mostly 100% always 83% always 17% mostly 100% always 87% always 11% mostly 100% always 96% always 4% mostly 100% always 58% always 25% mostly 40% always 20% mostly 70% always 13% mostly 100% always n/a n/a - 16 - What did we do Each unit has a patient information leaflet which is given to patients and their families either before or on admission. The leaflet contains information about the service, what will happen during their stay, what they should bring and how to raise concerns or make suggestions. The Compassus leaflet was updated and re-issued in December 2011. An additional information booklet was also developed for each unit. This contains detailed information including meal times, visiting, the environment, recreational activities and is aimed at both the patient and their visitors. Following discharge Overall, did you have confidence in the staff who were caring for you? Overall, did you understand the explanations given to you about your treatment and care? Were you given the opportunity to talk to someone about your fears and worries? Was there anything we didn’t do that you think we should have done for you? Overall, how would you rate the quality of care / treatment you received? Compassus (n = 12) Walsall (n = 16) 92% ‘Always’ 8% ‘Most of the time’ 83% ‘Always’ 8% ‘Most of the time’ 83% ‘Always’ 8% ‘Most of the time’ 81% ‘Always’ 12% ‘Most of the time’ 100% responded ‘No’ 80% responded ‘No’ 92% ‘Excellent’ 8% ‘Fair’ 94% ‘Excellent’ 6% ‘Very good’ Compassus (n = 17) Walsall (n = 22) At that time, was everything done how you wanted it done? 100% ‘Yes’ 95% ‘Yes’ Was there something not done that you wanted? 100% ‘No’ 95% ‘No’ Did you always feel that you knew what was going on? 100% ‘Yes’ 95% ‘Yes’ Families of bereaved patients 100% ‘Always’ 100% ‘Always’ Outcome: All questionnaires are initially read by the Quality and Audit Manager – any immediate concerns are fed back to either the Complaints Manager or relevant head of department for urgent action A quarterly report containing all responses is developed by the Quality and Audit Manager and circulated to the Nurse Consultant, Senior Nursing Team and Nursing Director. The response percentages can be used to benchmark the service to ensure we are maintaining high standards or alternatively to look deeper into specific areas indicating poor performance. The report including all the comments will then be shared with ward based staff and volunteers The results of the real time monitoring will be reported to the Care Quality Commission and NHS Commissioners as evidence of continual eliciting of patient and family experience. 2011/ 2012 Quality Account - 17 - ‘Thank you’ letters and cards are received by all departments across the Hospice. Below is a small selection of those received during 2011/12: Community: “Just a note to say thank you for all the support and help that you gave not only to mom but to us during her short illness. The work that you do is absolutely fantastic. We know that the support and help you gave was very much appreciated by her.” “I don’t know how I would manage without the help and support I receive in the community from my lovely nurse” “thank you from the bottom of my heart for the help and support you gave me through the hard times...you were my rock and I am sure many more people in the future will feel the same” Lymphoedema: “Thank you to everyone at the Lymphoedema clinic for trying to make me look pretty” “Thank you very much for the help and support over the last 2 years...all of you have been superstars looking after me and I felt very honoured” Hospice at Home: “We couldn’t have asked for – and never expected – such professionalism, kindness and sensitivity and you managed to bring smiles and laughter to our home each day you visited.” “They have all made his situation so much easier to cope with and when he had got to know each one and gained their trust he looked forward to their daily visits.” Inpatient Services: ‘Words cannot express how grateful we are for the care, compassion and dignity shown to dad, and indeed to all our family during his stay at St Giles.’ ‘Just a heartfelt thank you to you all for the many kindnesses and compassion you showed to us....it has meant so much to us’ I cannot speak too highly of my care. The staff and volunteers I came in contact with were all exceptional in their friendliness and concern for my wellbeing at all times. My physical and mental stated improved 100% due to this stay at St Giles – thank you all so much Feedback received through Face book: 2011/ 2012 Quality Account - 18 - Supporting staff and volunteers to have a voice within our organisation Employee Forum The Hospice has taken part in a staff survey conducted by Birdsong Charity Consulting and Third Sector magazine that enables benchmarking against other charitable Hospices. One of the outcomes from the 2010 survey was the formation of an Employees’ forum to encourage active participation by employees in organisational matters. The Forum was launched in November 2011 and its purpose is to: Provide a medium where new ideas, policy changes and organisational issues can be discussed freely and proactively Encourage communication and consultation on matters affecting the joint interests of management and staff Complement existing channels of communication Provide an effective two way feedback mechanism in order to promote an improved understanding and trusting relationship between management and staff The forum is chaired by the Group Chief Executive and attended by other members of senior management team, a representative from the Volunteer Forum and 14 employee representatives as elected by their fellow employees. The forum meets quarterly to discuss topics such as financial performance, economic environment and other issues which may impact on the future direction of St Giles’ income generation initiatives, clinical developments, areas of potential development, employment issues, new ways of working and use of technology, training and development and health and safety. The terms of reference and minutes of meetings are available to all staff on the Hospice intranet. Volunteer Forum There has been a ‘committee’ of volunteer representatives since about 2000. Over time the number of meetings dwindled as membership decreased. When the Hospice established its Employee Forum in 2011, it seemed a good time to revisit this body and reconstitute in line with the Employee Forum. The Volunteer Forum meets once every quarter, two weeks after the Employee Forum in order to receive a report to ensure that the two committees both complement and enrich each other. So far an informal meeting has taken place, followed by our first full session, and a member of the forum will be joining the Hospice’s 30th Anniversary Committee. 2011/ 2012 Quality Account - 19 - What our regulators say about the organisation “People we spoke to, and their carers, talked enthusiastically about the care and support they received in all areas of the service” The unannounced visit by the Regulator recorded the following judgements: The provider is compliant with Outcome 04: Care and welfare of people who use Services: ‘People who use the service received appropriate care and support and the service was managed so people felt their welfare was protected and their needs were met.’ The provider is compliant with Outcome 07: Safeguarding people who use services from abuse: ‘People who use the service felt informed when giving consent and were able to make decisions of their choice. Information about consent was recorded to demonstrate how decisions have been made.’ The provider is compliant with Outcome 09: Management of medicines: ‘People receiving Hospice care benefited from systems in place to monitor medication practices to ensure they received their prescribed medication in a safe way. The medication practices within the Hospice at Home service is being reviewed to ensure staff have suitable training and guidance.’ The provider is compliant with Outcome 16: Assessing and monitoring the quality of service provision: ‘There were quality assurance arrangements to formally monitor and review the health, safety and welfare of the people who use the service.’ The Board of Trustees’ commitment to quality The Clinical Governance Committee met on 5 May 2011, 9 August 2011, 18 October 2011 and 7 February 2012. The committee comprises 4 trustees of the main Board and the senior management team and reports directly to the main Board. At every meeting, held for each quarter, they consider all Accidents, Incidents and Near Misses, Complaints, Patient Journeys, Quality & Audit reports and the quarterly report to the Care Quality Commission. In year they also considered the National Patient Safety Agency report on syringe drivers, Patient Group Directives, Pressure ulcer reporting and safeguarding, Winter pressures and supportive care, Peer Review measures and Never Events. The Board of Trustees has demonstrated its commitment to, and responsibility for, quality by ensuring a robust governance structure for all aspects of the organisation, with four other governance committees meeting on a regular pattern. 2011/ 2012 Quality Account - 20 - Annex Staffordshire Clusters of PCTs commented: We are pleased to comment on this Quality Account for 2011/12 which includes accounts of patient and carer views and experiences. Review of 2011/12 It is pleasing to note the Hospice’s commitment to providing the best possible experience for patients and their families and its drive for continuous quality improvement. It is clear that these values have contributed to the positive, announced and unannounced, inspection visits from the CQC and Commissioners during the year. During 2011/12 the Hospice has sought to improve access to its services by the refurbishment of the Day Therapies Centre and the restructuring of the Supportive Care Department. This has increased community engagement and helped address barriers to accessing hospice care. Access to inpatient services has been addressed by the establishment of the St Giles Walsall inpatient service and a review of inpatient respite provision at the Compassus Centre. This has enabled the Hospice to respond to patient and carer need and avert potential care crises. Both services have received positive patient and carer feedback. The Hospice has successfully implemented an evidence based bereavement needs assessment tool to support work at a national level. Priorities for 2012/13 The Hospice has identified funding to provide a twilight Hospice at Home Service. This will support patients to remain at home should that be their wish. There is an intention to move towards an integrated service delivery model for its community services which should enable the Hospice to ensure the best use of their available resources to meet patient and carer needs in a timely way. The development of a 7 day care co-ordination centre will improve the response to patients and carers who have issues around end of life care. Quality Overview The hospice has demonstrated robust process for monitoring and reporting the quality and safety of the care they provide which includes a schedule of internal clinical audits using national audit tools. The organisation is a participant in both local and national research projects and has introduced service changes as a result of learning from a number of studies. The Hospice’s approach of listening to, and acting upon patient views and engaging carers, volunteers and staff is to be praised. The Hospice uses a variety of methods to elicit patient and carer feedback including ‘real time’ and annual surveys. The organisation also has both an Employee and a Volunteers Forum to encourage active participation in organisational matters. To the best of the commissioner’s knowledge, the information contained within this report is accurate. (Comment approved by PCT Executives July 2012) 2011/ 2012 Quality Account - 21 - Birmingham and Solihull Cluster of PCTs commented: St Giles Hospice has continued to work as a major partner in delivery of Specialist Palliative care to people in the city. St Giles clearly focus on the clinical quality priorities raised through feedback of people who have used the service and of the population needs based on local data and information which supports the overall Quality priorities of Birmingham and Solihull PCT Cluster. St Giles Hospice is working jointly with colleagues within GP practices and Community services and the local acute trusts to improve delivery of the pathway and patients journey and achieve a collaborative and partnership where quality and safety of care can be enhanced. This is demonstrated in their commitment to their staff, their patients and the carers and wider community. The amount of research and review of services demonstrates their commitment and their mind set to pursue quality improvements as part of everyday working life. On that basis, I support this quality account as it reflects local priorities and those of service users and has a direct impact on the quality of service people and their families receive. Mary Bosworth, QIPP Account Director for End of Life (comment received 17/07/2012) Walsall Healthcare NHS Foundation Trust commented: Having received and reviewed the Annual Quality Account, NHS Walsall feels it provides a fair reflection of the quality of the services provided by St Giles, and to the best of our knowledge the information included in the report is accurate. Alan Turrell, Assistant Director of Contracting and Procurement (comment received 03/08/2012) 2011/ 2012 Quality Account - 22 -