Overgate Hospice Quality Account for 2011/2012 Mission Statement: Overgate Hospice is a charity providing specialist palliative care for the people of Calderdale living with a life limiting illness. Philosophy of care o We care for the whole person and their family, friends and carers. o We respect patients’ priorities and strive to enable them to achieve their personal goals. We Value o The support of our community through fundraising and volunteering and in all aspects of hospice life. o Team work and Professionalism o Diversity in our staff, volunteers and all those we care for. Overgate Hospice 30 Hullen Edge Road Elland West Yorkshire HX5 0QY Registered Charity No: 511619 Part 1: Statement from the Chief Executive I have pleasure in presenting our first Quality Account Report for Overgate Hospice. In previous years we have presented an Annual Review which sets out what we have achieved during the year and our plans for the future. We are now required to report about the quality of the services that we provide in the format of a Quality Account. You will know that quality is central to the care we provide. We are a charity that provides specialist palliative care for the people of Calderdale living with a life limiting illnesses. We care for the whole person and their family, friends and carers; we respect patients’ priorities and strive to enable them to achieve their personal goals. We value: The support of our community through fundraising and volunteering and in all aspects of hospice life. Team work and Professionalism Diversity in our staff, volunteers and all those we care for. Quality services are defined by looking at patient safety, the effectiveness of treatments that patients receive and their feedback about the care provided. This report provides information on each of these definitions in separate chapters. We provide a range of specialist palliative care services that include: A 12 bedded Inpatient unit Day Hospice Social Work Complementary Therapies Bereavement Counselling Spiritual care Physiotherapy Carers Support 1 An Out of Hours telephone advice line for professionals Our services are monitored by the Care Quality Commission as well as by our local commissioning organisation – NHS Calderdale. We are also currently preparing for all our services to be measured against National Cancer Peer Review Quality Standards. Feedback from the community that we serve is important to us so we undertake an annual satisfaction survey as well as encouraging feedback from patients/families and their carers as they are receiving care. We have nearly 31 years of experience in hospice care and we are looking to the future to consider how we can meet the growing demand for our services. We are working with local partner organisations to agree how we can better work together to strengthen community provision as we know more people towards the end of life want to die at home but they need support around them to enable this to happen. I hope you find this report interesting and I would like to thank you for all your support over the years – because you care we can. Janet Cawtheray Chief Executive 2 Part 2: Priorities for improvement and statements of assurance from the Board of Trustees 2012 – 2013 1. Improvement The Board of Trustees continues to support the continuous development and improvement of hospice services to ensure that the care and support provided evolve to meet patient and carer needs. The priorities for quality improvement identified for 2012/13 are set out below. These priorities have been identified in conjunction with patients and carers, staff and stakeholders. The priorities we have selected will impact directly on each of the three priority areas: patient safety clinical effectiveness and patient experience. Future planning priority one: Patient Safety Introduction of a new Falls Policy the FRASE - Fall Risk Assessment Score in the Elderly Assessment tool Research shows that there is significant morbidity and mortality due to falls on inpatient units, including serious head injuries, spinal injuries and fractures. These can be reduced by primary and secondary prevention of falls, and by reducing harm after falls. Minimising fall risks can benefit all people at the hospice, including patients, visitors, volunteers and staff. As hospice patients have advanced life-limiting illnesses it will not always be appropriate to send a patient to hospital for treatment or investigation should a fall occur. However the needs and wishes of patients should be assessed individually, as some patients may have a prognosis and quality of life that would warrant investigation and treatment, especially if this reduces pain (eg internal fixation of fractures if the patient is systemically well enough). All patients admitted to the hospice will be assessed using the FRASE within 24 hours of being admitted. 3 How was this identified as a priority? This was identified as a priority following the hospice’s audit on accidents and the increasing frailty and complex condition of patients treated. The audit suggested a need to improve the initial and continuing assessment of those patients at greater risk of trips and falls. The introduction of a recognised assessment tool to support frail and vulnerable patients was considered a priority by the multi-disciplinary team. How will this priority be achieved? The FRASE tool was introduced into the clinical areas by the Senior Nurse in March 2012 who supported staff training needs, produced guidance documents and the assessment tool. Ongoing training is provided as part of mandatory Manual Handling and any additional training needs will be met by the Manual Handling key trainers, with the support of the Senior Nurse. The hospice has purchased further supplies of seat and bed alarms which indicate when a patient who has been assessed at risk of a fall or trip, gets up unaided from either their chair or bed. The alarm receivers are carried by named members of the caring team: should the alarm be activated, the person carrying the receiver will be required to check and assist the patient. If a fall or trip occurs, a record of the accident will be completed giving details of who, where, how, why and what occurred. The report will then be forwarded to the Clinical Services Manager for information and any further action if necessary. How will progress be monitored and reported? Progress will be monitored through audit of The Reportable Accident forms which are passed to the Clinical Services Manager for scrutiny and storage. All accidents involving patients are reported on (anonymously) at the monthly Clinical Governance meeting and these are then passed to the Manual Handling team for further discussion and review of practice. Audit of the Reportable Accidents is usually performed annually or more frequently if it is felt necessary. Due to the introduction of the FRASE tool an audit will be performed after 6 months of implementation (September/October 2012) in order to assess the impact and determine whether further actions are required to reduce the impact of falls. 4 Future planning priority two: Clinical Effectiveness Strengthening community provision How was this identified as a priority? Overgate Hospice, as a lead specialist provider locally, has been provided with some non recurrent money from Calderdale PCT to work with other end of life care providers to develop a business case which will demonstrate to the PCT how we can strengthen local services. The partner organisations are Marie Curie, Calderdale Care Scheme, Calderdale Social Services, Calderdale and Huddersfield Foundation Trust (acute and community nursing services), including the involvement of Dr David Wild who is a GP in Hebden Bridge and an associate member of the shadow Clinical Commissioning Group. All of the above providers currently deliver excellent services but it is felt we could all provide a better service for patients and their families if we work together in collaboration to offer an integrated approach. It is clear that together we have a vast amount of knowledge of what works well and what needs to be improved, including additional capacity, new services, better co-ordination, training and education and better information. The context we are working with is that: Demand for specialist palliative care is going to increase as a result of the UK’s ageing population: the number of deaths per year is expected to rise by 17% between 2012 and 2030. In addition, many people will be dying at an older age and will therefore be likely to have more complex needs and multiple co-morbidities as they near the end of their lives Community services are central to the health agenda and a key area of focus for the NHS The ongoing reform agenda signals a shift in focus from acute care to primary and community based care for patients 5 Calderdale has a higher than average number of people reaching the end of their lives in a hospice compared to the national average – 6.4% compared to 5.2% nationally. However with the number of deaths expected to rise by 17% up to 2030, joint work is needed to plan how to meet this increased demand in an appropriate and sensitive manner. More people die in hospital in Calderdale 57.7% compared with national average of 56.7% (3245 people). It is clear that if community services are central to the health agenda, then there needs to be a big shift from a hospital focus to enable more people to be supported, in line with their wishes, in dying at home or within the hospice. At Overgate we know that the projected increase in numbers of people dying each year will result in a smaller percentage being able to access hospice care in Calderdale unless alternative hospice services can be developed. We aim to explore potential service models to enable hospice care to be delivered in the community. This work is an exciting opportunity for Overgate Hospice to work in partnership with other local providers and agree what contribution we can make. A Hospice at Home service has been discussed for some time but we need to develop a proposal with our partners How will this priority be achieved? The PCT funding has allowed Overgate Hospice to purchase project management support to develop a proposal for Calderdale to improve local services. We have identified a project lead that is going to consult with staff in the hospice and within the other partner organisations to determine what is needed locally. In addition, the project lead will research evidence from the literature and other models across the country, so that as much information as possible is available to inform an effective service model for Calderdale. How will progress be monitored and reported? Progress will be monitored by the project steering group that we have set up. A business case will be developed for consideration by NHS Calderdale/Clinical Commissioning Group. If the business case is successful, a service level agreement will be established with the local commissioners. 6 Future planning priority three: Patient Experience Increased engagement with Day Hospice Service Users How was this identified as a priority? Following the recent extension and refurbishment of Day Hospice which was funded through the Department of Health’s Capital Grant in 2010/11, the services which Overgate Hospice provides as part of Day Hospice provision were reviewed to ensure that they are as effective as possible. An Away Day took place on 4th May 2012. Day Hospice patients, carers, volunteers and staff were invited to attend and discuss what Day Hospice meant to them, what they liked, what they disliked and what they would like to be considered as part of the service in the future. The day was well attended with 10 patients, 4 carers, 15 volunteers and 10 staff members. The event was facilitated by an experienced facilitator and a report was prepared on the feedback received. How will this priority be achieved? The report has been sent to the Senior Management Team (SMT) at the Hospice for further discussion at Board level. A copy of the report has been forwarded to the patients, carers, volunteers and staff who attended the day, for their information. A Service User Forum is planned, involving users from the Day Hospice and the Inpatient Unit, to enable information to be passed between all parties concerned. How will progress be monitored and reported? The SMT will organise meetings with staff to develop an action plan to meet the issues identified in the report and to inform the Hospice’s 5 year strategy. There will be consultation with service users as part of the planning, development and implementation of any changes or introduction of new services within the Day Hospice. Their input will remain crucial to the developments implemented and the introduction of a Service User Group can now be explored for the future on the back of this successful event. 7 2. Statement of Assurance from the Board All providers must include the following statements in their Quality Accounts. Many of these statements are not directly applicable to specialist palliative care providers, and therefore, where appropriate, further explanation of the meaning of certain statements is also provided. 2a. Review of Services During 2011/12 Overgate Hospice supported NHS Calderdale’s commissioning priorities with regard to the provision of specialist palliative care. The following services were provided: Inpatient Unit Day Hospice Social Work Physiotherapy Bereavement/Counselling Carers’ Group Out of hours advice line for professionals NHS Calderdale supported Overgate Hospice with over 25% of its core running costs. In order for Overgate Hospice to provide its full range of services, the remaining funding was generated through fundraising, shops, lottery activity and investments. 2b. Participation in Clinical Audit During 2011/12 Overgate Hospice did not participate in any national clinical audits. 2c. Research During 2011/12 Overgate Hospice did not participate in research approved by a research ethic committee. 2d. Care Quality Commission Overgate Hospice is required to register with Care Quality Commission (CQC) and is currently registered to undertake the following regulated activities: Treatment of disease, disorder or injury Diagnostic & screening procedures 8 The CQC did not attach any conditions of registration for Overgate Hospice. The Regulated Activity may only be carried out on the following location: Overgate Hospice, 30 Hullen Edge Road, Elland, West Yorkshire, HX5 0QY The CQC has not taken any enforcement action against Overgate Hospice during 2011/12 Overgate Hospice has not participated in any special reviews or investigations by CQC during 2011/12 Overgate Hospice was inspected by the CQC on 24th November 2011 as part of their routine schedule of planned reviews. Overgate Hospice was reviewed against the following CQC standards: Outcome 01: People should be treated with respect, involved in discussions about their care and treatment and able to influence how the service is run. Outcome 04: People should get safe and appropriate care that meets their needs and support their rights. Outcome 07: People should be protected from abuse and staff should respect their human rights. Outcome 14: Staff should be properly trained and supervised, and have the chance to develop and improve their skills. Outcome 16: The service should have quality checking systems to manage risks and assure health, welfare and safety of people who receive care. Overgate Hospice was ‘compliant’ with all of the above outcomes and no sanctions or requirements were made by CQC following the inspection. 2e. Data Collection Overgate Hospice is currently using the electronic patient information system SystmOne. The system allows, with patient consent, for Overgate Hospice to share data with other health professionals to support the care of patients in the hospitals trust and the community. During the period 2011/12 Overgate Hospice developed a structured system for Advance Care Planning within the hospice for both Inpatients and Day Hospice 9 patients. The new system aimed to incorporate the various models in existence and improve the quality of information gathered making it standard across the locality. During the period 2011/12 Overgate Hospice has adopted the use of the Do Not Attempt Cardio Pulmonary Resuscitation (DNA CPR) document which has been implemented across the region following discussion and agreement with the Yorkshire Ambulance Service. Part 3: Review of quality performance The National Council for Palliative Care (NCPC): Minimum Data Sets (MDS) We have chosen to present information from the NCPC MDS which is the only information collected nationally on hospice activity. The figures below provide information on the activity and outcomes of care of patients. Inpatient Unit Services 2010/11 222 Total number of patients 90% % New patients 7% % Re-referred patients 70% % Occupancy 30% % Patients returning home 12.4 days Average length of stay - cancer Average length of stay – non cancer 8.6 days 2011/12 256 94% 13% 71% 25% 8.2 days 7.2 days Inpatient Unit The number of patients accessing the Inpatient Unit during 2011/12 has increased by 13% from the previous year. This means that more patients have been cared for in what is likely to be one of their preferred places of care at the end of life. There has been a significant reduction in the average length of stay for cancer patients in Overgate Hospice by 34% in 2011/12. This reduction could be due to the improved partnership work between the hospice and community teams in supporting patients to remain in their homes for longer periods before they need to access hospice inpatient services. 10 Day Hospice Due to a change in IT systems we are only able to provide base line information regarding Day Hospice. The following information relates to the period 2011/12. 204 patients accessed Day Hospice services of which 188 (92%) were new patients and the remaining 16 (8%) were patients re-referred to the service. The new Day Hospice building which was completed in June 2011 allows the team to deliver services in a comfortable, bright and appropriate setting which meets the needs of the service users and the staff. The feedback regarding the accommodation is positive from service users and the recent Away Day provided an opportunity for them to provide such feedback to the organisation. Quality Markers we have chosen to measure In addition to the limited number of suitable quality measures in the national data set for palliative care, we have chosen to measure our performance against the following: INDICATOR 2010/11 Patient Safety Incidents Number of patients admitted to the Inpatient Unit with pressure damage 52 Number of patients who developed pressure damage whilst in the Inpatient Unit 1 Number of patients admitted to the hospice with Grade 3 or above pressure damage 11 Number of patients who developed grade 3 or above pressure damage following admission to the Inpatient Unit 0 2011/12 33 2 11 1 Overgate Hospice asks about pressure damage at the point of referral to the service. Pressure damage is graded from 1 (minor) to 4 (serious). Overgate Hospice records and reports all pressure damage at the monthly Clinical Governance meeting. All patients undergo an individualised holistic assessment with regards to pressure area care and recommendations are recorded within their notes. Any patient who develops a grade 3 pressure ulcer whilst in the hospice will be reported to the CQC as part of Regulation 18 - Notifiable Events. 11 The one patient, who developed a grade 4 pressure ulcer whilst a patient on the IPU was admitted with a grade 3 pressure ulcer. The patient, who did have the mental capacity to make this informed decision, chose not to comply with some of the pressure relieving measures recommended by the clinical team. INDICATOR 2010/11 Infection Prevention and Control The number of patients admitted to the Inpatient Unit with MRSA 5 The number of patients infected with MRSA whilst in the Inpatient Unit 0 The number of patients admitted to the Inpatient Unit with C, difficile 1 The number of patients infected with C. difficile whilst in the Inpatient Unit 0 2011/12 2 0 1 0 Overgate Hospice asks about the patient’s infection status at the point of referral to the service. Where capacity allows, all patients admitted with an infection will be nursed in a single room and any treatment relating to the infection will be continued on admission as appropriate. Clinical Audit Clinical audit is a way in which the organisation can learn more about and improve the delivery of services, the outcomes for patients and the experiences they have. A patient and relatives’ survey is also performed on the Inpatient Unit using paper questionnaires and earlier this year we introduced a verbal process of gathering patients’ and relatives’ experiences of the Inpatient Unit. A volunteer with a nursing background talks to patients and relatives on the Inpatient Unit about their experience of the hospice and transfers the information provided to a proforma for collation and report at a later date. The outcome of this data will be reported later in 2012. Clinical audits are initiated by the Audit Lead with the support of clinical staff who are involved in the process. Infection Control audits are performed by the Infection Control Team with the support of the Housekeeping Team where appropriate. 12 Where issues are identified during an audit an action plan is developed to address the problem. Progress on the action plan is monitored through the Clinical Governance Group and all Clinical Audits are presented at the Clinical Governance Meeting. Should audit show remedy is required, further audit will be undertaken, following an agreed time, to see if the action taken has resolved the issues identified. Overgate Hospice has become part of a pilot group working with other Yorkshire Hospices trialling a hand held device to perform audits. The aim of the group is to develop standardised audit which will allow organisations to ‘benchmark’ findings. The device allows audits to be undertaken, collated, uploaded and reported in real time. Overgate Hospice is working in partnership with the company and other hospices to achieve standards across the region. Below is a selection of clinical audits undertaken at Overgate Hospice during 2011/12: Audit Completed Emergency March Equipment 2012 *Multidisciplinary Notes relating to clinical decision making Visiting Student Placements Complaints Destruction of patient records Disinfection solutions used on IPU Action Plan NO Feb 2012 NO May 2012 YES Dec 2011 NO Jan 2012 NO March 2011 YES Liverpool Care Pathway (LCP) July 2011 Counselling Actions to be undertaken to Improve practice YES N/A N/A Full completion of the placement document N/A N/A Education of clinical staff in relation to the correct dilution Change of product type Attention to detail – remind staff of importance Review areas which are being missed and update document accordingly to minimise omissions A need to review the 13 Action Plan Completed N/A N/A In process of review N/A N/A Completed Completed questionnaire – simpler to understand Completed A need to include preprinted boxes on the drug sheet for anticipatory drugs 2011 YES Completed Review of current drug sheet * As part of this audit it was noted that hospice staff had been the instigators of service client satisfaction Anticipatory drug prescribing May 2011 YES Advanced Care Planning in 74% of the notes studied. There was little evidence that Advanced Care Planning had taken place prior to patients being admitted to the Hospice. Feedback from patients and families on services. Overgate Hospice values the feedback it receives from patients and families as this is an important way in which the organisation can identify issues, resolve problems and improve the quality of the care we provide. As part of our commitment to listening to service users, we provide separate questionnaires to patients and families who are discharged from the Inpatient Unit. Further questionnaires are sent to families of patients who have died on the Inpatient Unit. All patients who attend Day Hospice are also provided with a questionnaire on discharge from the service and all Carers who attend the Carers’ Group are also provided with a questionnaire when their programme is ended. The questionnaires are anonymous but where concerns are raised, even if no identity is given, the issues are raised with the team/persons involved in a timely manner and all efforts are made to resolve the issue and to learn from what has occurred. The annual Inpatient Questionnaire from March 2011 until February 2012 had a response rate of 48% (n=) a slight reduction from the previous recorded for 2010/11 which was 50%. The annual Relatives/Carers Satisfaction Survey from March 2011 to February 2012 had a response rate of 43% (n=) a slight improvement on the rate for 2010 which was 37%. The current questionnaires used to obtain feedback from patients and families is due for review and a more structured approach using the CQC Essential Standards of Quality and Safety (2009) as our guide will be considered in the future. 14 As part of improving how feedback is obtained, Overgate Hospice has been piloting alternative ways of gathering information from a wider group of Service Users. One of the ways being piloted at present is the engagement of an experienced volunteer with a nursing background to speak directly to patients on the IPU about their experience of Overgate Hospice. Six months data will be reported in August 2012. A copy of the full surveys and audits are available in Overgate Hospice’s reception and through contact with info@overgatehospice.nhs.uk How feedback influences service provision The issue of individual patient bedrooms continues to be a subject raised regularly as part of patient and family feedback. The Inpatient Unit currently operates with 2 four-bedded bays and 4 single rooms and the development of more single rooms for the future requires further discussion. The organisation has secured funding from the PCT to undertake a review of the IPU facilities. This review is due to commence later this year and the Board of Directors and members of the SMT will share the findings with service users and staff. Comments from Calderdale Primary Care Trust (PCT) Local Involvement Network (LINK) and Health Scrutiny Committee for Calderdale The Quality Account was sent to the appropriate commissioners at the PCT on the 1st June 2012 for comment and statement as required. Unfortunately there has been no comment from the PCT received to date. Attempts to engage with LINK and the Health Scrutiny Committee for Calderdale has been difficult and to date all efforts on the part of Overgate Hospice to engage with them have been unsuccessful. Overgate Hospice will continue to try and engage with the PCT commissioners, LINK and the Health Scrutiny Committee for Calderdale. All efforts will be made to try and ensure their comments are included in next years Quality Account. Conclusion This is our first Quality Account Overgate Hospice has undertaken so we hope you enjoy reading it. We continue to put quality at the heart of everything we do and by explaining about the care we provide in reports like this we can demonstrate the 15 effective, safe care and excellent patient experience to the public, staff and our commissioners. It is not surprising that health and social care colleagues have not yet made comments on this report given the amount of changes taking place but we continue to work in collaboration with them and value their continued support. 16