Isabel Hospice Quality Account 2012 – 2013 MISSION STATEMENT To maximise the quality of life of those living with cancer and other lifelimiting illnesses; to provide high quality specialist palliative care including support for those who are in the terminal phase of their illness and to support the families and carers of patients and to continue such support into bereavement. “I have been most impressed with the very high standard of care and food, which is delicious. Unfortunately, I was admitted quite quickly and did not have any details of what to expect. I did not know what to bring in or leave behind. Overall, an absolutely wonderful experience. I would have no qualms to come again.” Isabel Hospice 61 Bridge Road East Hertfordshire AL7 1JR Registered charity number: 1046826 Isabel Hospice Quality Account 2012/13 FINAL 1 1. Statement from the Chair, Chief Executive and Hospice Director It gives us great pleasure to present the inaugural Quality Account for Isabel Hospice for 2012/13. The Hospice is an independent charity (registered number 1046826) and is constituted as a company limited by guarantee. Care and support is provided through an integrated team of Community Nurse Specialists; Hospice at Home nurses and support workers; a day Hospice service in four geographically spread locations; and a twelve bed in patient unit, together with family support team members offering pre- and postbereavement counselling, psychosocial and spiritual care. We also provide benefits advice, complementary therapies and a twenty four hour seven day a week advice line. The charity does not charge patients, carers or their families for any of the services provided. The charity is run by a Board of Trustees and has strong corporate and clinical governance arrangements. Quality is at the heart of the service provided. We evidence this through the Board’s approach to corporate and clinical governance, and our commitment to staff training and development. We develop, implement and maintain systems and processes to ensure that we grow as a viable and responsible organisation, meeting the needs of the communities we serve. We ensure that our services are of the highest quality and deliver the aspirations set out in our mission statement, philosophy and strategy. Our philosophy is about recognising the uniqueness of each individual, valuing their autonomy and promoting choice; it also recognises that each patient is in a continual state of change – physically, emotionally and spiritually and that staff are sensitive to these changes, providing care that is competent, sensitive and compassionate. Our service is about putting the patient’s needs first, treating them as individuals with dignity and respect and looking ahead to meet their needs in a constantly changing healthcare climate. Feedback from patients, relatives and carers in the form of forums and satisfaction surveys is used to develop service provision. Quality is a key factor in our delivery of care and therefore emphasis is set on having clear achievable standards which are monitored and regularly audited. Hospice management aims to ensure that every member of staff and volunteer feels valued and then has appropriate access to regular support and/or clinical supervision. The views of staff are sought through a staff forum and findings form the ongoing review of the organisation’s corporate and clinical strategies. Isabel Hospice Quality Account 2012/13 FINAL 2 We recognise that the excellent care provided cannot happen without the knowledge, skills and support of the whole Isabel Hospice team, including the valuable contribution of volunteers and so our thanks go to all of them at this time. To enable all staff to support the charity’s mission statement, objectives and strategy, we invest in staff continuing professional development; ensuring competence is assessed and maintained. In the past year the Board has strengthened the governance processes and management by introducing more focused Board committees including Clinical Governance and by the appointment of a new position; a Head of Quality, Clinical Compliance & Training. Also during 2011/12 Isabel Hospice began to implement the Productive Ward (this is part of the national initiative called Quality, Innovation, Productivity and Prevention) which is aimed at ensuring the organisation maintains the highest levels of quality whilst promoting efficiency and cost effectiveness. A team of nurses and nursing assistants lead this initiative and have been delighted at the impact it has had on improving their ability to provide more timely and efficient care. Several nurses within the inpatient unit have additional lead responsibilities, e.g. diabetes, wound care, infection prevention and control,. This enables quality improvement to be led by nurses with specialist interests by working directly with clinical colleagues to determine standards and education needs. Prevention of infection is given a high priority and this is reflected in the Infection Control Strategy 2011. We are delighted to present this Quality Account for 2012/13 and, to the best of our knowledge the information contained therein is accurate. Signature: Charles Lewis, Chairman, Board of Trustees Signature: Nigel Furlong, Chief Executive Signature: Helen Dodd, Deputy Chief Executive and Hospice Director Isabel Hospice Quality Account 2012/13 FINAL 3 2. Priorities for improvement and statements of assurance from the Board 2012/13 Isabel Hospice is committed to continuously reviewing the quality of care delivered to its patients. Monitoring occurs in clinical and department team meetings; the Board and sub-committees of the Board such as the Clinical Governance Committee; Audit and Risk; Trustees annual inspection; Clinical Audit Forum; analysis of incidents and complaints; undertaking patient and relatives surveys; clinical audits; self assessment against the Care Quality Commission and the collection of the minimum dataset required by the NHS all of which is regularly reported to and reviewed by the Board. This list is not exhaustive, merely indicative of the amount of quality monitoring undertaken at the Hospice. Monitoring is supported by the use of strong information management such as Crosscare, the Electronic Patient Record. 2.1 Future planning priorities Priorities for improvement – Patient Safety An analysis of patient safety incidents in 2011/12 has revealed that there is the potential to reduce the number of drug errors and improve the management of drug errors that may be under-reported; and the number of slips, trips and falls incidents could be reduced. These are therefore the priority for improving patient safety in 2012/13. The Trustees annual inspection also identified falls in patients as an area for improvement. Priority one A) Falls By the end of 2012/13, the charity aims to reduce the number of falls by a minimum of 10%, compared to 2011/12. How this will be achieved Through review of the incidents to date Review of the data collected to ensure trends are better identified Review of the use of assessment tools to identify those at risk Review of the effectiveness of any aids used Review the information needs of patients and their families Review national guidance and best practice such as that developed by the NHS Institute for Innovation and Improvement and the National Institute of Health and Clinical Evidence Review the Isabel Hospice falls strategy and its implementation Strengthen the departmental role for managing the prevention of falls; supporting better health and personal wellbeing Review of care practices; managing gaps in care Strengthening the patient rounds and ensuring they are documented on Crosscare Staff training and development Isabel Hospice Quality Account 2012/13 FINAL 4 Clinical audit This will be supported by the Quality, Compliance and Education department and monitored through the Clinical Audit and Effectiveness Forum. B) Reduction in the number of drug errors and an improvement in the management of drug errors The number of drug errors are low, however, Isabel Hospice would like to reduce the number of drug errors and improve the management of any that occur as we recognise that any drug error can be a source of additional anxiety to the patient and the family. How this will be achieved Thorough review of the incidents to date to clearly identify gaps in the investigation and management Review of medicines management policy and its implementation Strengthen the role of the nurse with responsibility for medicines Clinical audit Continue the implementation of the competencies developed for all nurses in relation to syringe drivers, controlled drugs, general administration of medicines via a number of routes Ensure nurses are up to date with intravenous therapy administration and blood transfusion How this will be monitored and reported Progress with reducing the number of incidents for both priorities will monitored through a number of mechanisms: Clinical Audit Drugs and Therapeutics Committee Clinical Governance Committee, through to, The Senior Management Group and Board of Trustees Priorities for improvement – clinical effectiveness The charity recognises that clinical effectiveness is not achievable unless there are skilled and competent staff. At the same time, it is not possible to confirm this without having a patient information management system to document all aspects of care planning and delivery. Our priorities therefore for clinical effectiveness are to implement e-learning as a means of improving education for clinical staff and continuing to develop the patient information management system. Priority two A) Implement e learning and continue roll out of competencies Isabel Hospice recognises that people learn in a variety of different ways and that a variety of mechanisms for learning are best provided. During 2011/12 the charity commenced a review of e-learning packages for introduction in 2012/13. In addition the Competencies Working Group developed a range of competencies in relation to high risk elements of clinical care and Isabel Hospice Quality Account 2012/13 FINAL 5 implemented a competency for record keeping. This requires continued roll out during 2012/13. How this will be achieved Pilot two modules – data protection and manual handling Evaluate learning from the modules Introduce any changes to the modules and develop a plan to introduce other suitable modules; identifying leads to design the modules according to best practice The Compliance and Training department will work closely with clinical senior staff to ensure robust roll out of competencies and the development of future ones according to clinical risk and policy needs. How this will be monitored and reported Review and update the Education and Training Strategy Implement an Education & Training Strategy committee to oversee the continuous development and implementation of all areas of education and training. In addition, the roll out of the competencies will be closely monitored by the Quality, Compliance and Training department Reports on progress will go to the Liaison committee and Senior Management Group B) Development of patient information management system Crosscare is the charity’s patient information management system that documents all aspects of clinical care – documenting their physical, psychological, emotional and spiritual needs and the delivery of care. All members of the multidisciplinary team can input and view records and the system can be accessed by all care professionals across inpatient and community services. As well as documenting care needs and delivery it is a mechanism for audit across all areas of Hospice care provision. How this will be achieved The Crosscare Enhancement Group has identified its priorities for implementation along with timescales Close working with the Quality, Compliance and Training department ensures development considers best practice and ease of audit. Regular meetings will be held to ensure enhancement of the system meets objectives. How this will be monitored and reported This will be monitored through the Crosscare Enhancement Group to the Clinical Audit and Effectiveness Committee. Isabel Hospice Quality Account 2012/13 FINAL 6 Priorities for improvement – patient experience Priority three A) Agree service strategy with East & North Herts Clinical Commissioning Group The current contract for services with the PCT expires in March 2013, so our priority is to agree the service configuration with the new Clinical Commissioning Group (CCG), ready for April 2013 and beyond. The focus of the strategy will be on providing patients with the best possible experience in the place they call home, commensurate with their safety and their family’s/carers needs. This will entail revising the balance of resources deployed by the Hospice with the community nurses and the inpatient unit and improving the quality of service delivery in the community by all healthcare professionals. Measures Increased achievement of preferred priorities of care Avoidance of unnecessary and/or inappropriate admissions to hospital How this will be monitored and reported The Senior Management Group will monitor progress, using accurate data collected from Crosscare and the skills of the auditor. Reports will be received by the Board from the Clinical Governance Committee B) Planning for reconfiguration of services at QE2 site in Welwyn Garden City The Hospice’s inpatient unit is currently attached to the QE11 hospital which will be replaced by a new local general hospital on an adjacent site by the middle of 2014. The Hospice is exploring options for a major rebuild that will put the patient experience at the heart of the design concept. The project team is examining the options for facilities that meet the needs of patients that are not better able to be addressed in the community, starting with a drop in centre for those recently diagnosed through day care to intensive specialist care. The initial strategy development and design briefing has so far involved staff and our professional advisers, but later stages, in particular the detailed design briefing given to architects, will involve a wider range of stakeholders including GPs and other healthcare professionals, our catering and cleaning contract partners and patients themselves. Success criteria Ease of access Ease of use Patient satisfaction with services, physical environment and ambiance Isabel Hospice Quality Account 2012/13 FINAL 7 How this will be monitored and reported The Board of Trustees will receive regular reports from the Senior Management Group and Project team. 2.2 Statements of Assurance The Hospice undergoes a series of reviews – internal and external reviews throughout the year. Internal Trustee’s unannounced inspection The Trustees undertake an annual unannounced inspection. This inspection looks at the quality of the care environment, quality of care and quality of documentation and interviews patients, their families, Hospice staff and volunteers to inform their findings. In 2011/12 the Trustees inspection revealed a requirement to update and improve the complaints file and review the storage of large equipment. Both actions have been achieved. Review of Quality and Education department A review of the Education and Quality department was undertaken which demonstrated the need to reorganise roles and responsibilities. It was identified that the department should be led by a Head of Quality, Clinical Compliance and Training, supported by a Lecturer/Practitioner (already in post) and an Auditor. During 2012/13 – this new structure will be implemented and embedded. Day services During 2011/12 service delivery in the day Hospice and four satellites was undertaken. This led to reorganisation of day services without reducing the quality of care as patients are able to access day care at a site close to their home. Among the services delivered in these settings are medical, nursing observation, complementary therapies, family support, art therapy and mild forms of exercise though patients often use day services to meet socially and support each other through illness. Crosscare restructure The use of the patient information management system continues to be an important part of care planning and provision. During 2011/12 it continued to be reviewed with new information requirements added. Access is controlled so that there is only access for those providing clinical care and audit or to support clinicians in their roles. Staff attitude survey During the year the Hospice undertook its first ever, independently run, organisation wide staff satisfaction survey. With 58% participation the result benchmarked well, but key areas for management action were training and development and communications. Specific actions plans are in the course of implementation and the survey will be repeated annually to track the results and monitor changes in attitudes. Isabel Hospice Quality Account 2012/13 FINAL 8 Clinical audits Clinical audit is an essential element of assessing and monitoring the quality of care provided. During 2011/12 a programme of audits was in place across inpatient and community care; undertaken by doctors, nurses and teams such as the Lymphoedema Specialist, Family support and complementary therapies. Audits included though this list is not exhaustive: hand hygiene, record keeping, documentation of spiritual needs, controlled drugs management, inpatient admissions, pressure ulcer management, blood transfusion and antibiotic prescribing. External PCT contract reviews The Hospice meets quarterly with the End of Life Commissioner from NHS Hertfordshire and key finance, performance management and clinical activity indicators are reviewed and discussed as appropriate. Commissioning for Quality and Innovation Incentive Scheme Payment (CQUIN) During 2011/12 Isabel Hospice were required by its commissioners, East & North Herts to achieve the CQUIN target related to end of life care. There were three goals, all of which were achieved: 50% of patients identified as being in the last year of life are offered the opportunity to complete and advanced care plan identifying their preferred place of care 75% of patients identified as entering the last days of life are cared for an Integrated care pathway (Liverpool Care Pathway or similar) 30% of all patients able to die in their preferred place of care 3.Review of quality performance stakeholders in 2011/12 and engagement with other 3.1 Review of Quality performance 2011/12 Services provided: Community – clinical specialist nurses, palliative care support workers and Hospice at Home Day care from Hall Grove, Welwyn Garden City and four satellites – Thorley, Hoddesdon, Bishop Stortford and Waltham Cross In-patient care Cross setting i.e. medical input, psychological therapy, art therapy, lymphoedema therapy, bereavement counselling, complementary therapies such as massage, and the support of allied health professionals such as physiotherapy and occupational therapy Specialised clinics such as Fatigue and Breathlessness and teenage bereavement Isabel Hospice Quality Account 2012/13 FINAL 9 How funded: 37% of charitable costs are met from the NHS contract with the commissioning organisation, which requires the Hospice to provide a minimum level of care for NHS patients. The rest is received through fundraising and trading activities. Achievement against plans for 2011/12: In the Annual Review 2010/11, the following aims and plans were identified for 2011/12: Continuing to improve the quality of care to more patients, including those with a non-cancer diagnosis, in all settings Enabling more patients to live and die in the place of their choice Developing the use of end of life care tools such as the Gold Standards Framework, Liverpool Care Pathway and Advanced Care Planning Continuing to evaluate and develop the Hospice at Home service; evaluating the Palliative Care Support Worker (PCSW) role Enabling our patients to be admitted into the Inpatient Unit seven days a week Developing education and training to support other providers of care for the less complex palliative and end of life patients. Key performance measures Isabel Hospice collects a range of information for the purposes of quality monitoring. This includes requirements set out nationally in the minimum dataset and measures developed internally. This data is continuously reviewed and where possible measures include outcomes as well as activity. The National Council for Palliative Care: Minimum dataset The time period for this data is 1st April 2011 through to 31st March 2012 Inpatient Services Unit Number of admissions Total number of patients New patients Re-referred patients % occupancy (monthly) Patients returning home Average length of stay - cancer Average length of stay – non cancer Day Hospice Total number of patients New patients Re-referred patients Average length of care Day care attendances Number face to face consultations Isabel Hospice Quality Account 2012/13 FINAL 386 278 236 31 Ranged from 66% to 84% 202 11 days 12.8 days 218 153 7 173.5 days 1701 4140 10 Community Total number of patients New patients Re-referred patients Patients that died at home Patients who died in hospital Average length of care Number CNS face to face contacts Number other face to face contacts Bereavement Total clients Number new clients Number of face to face contacts Average length of care 1205 784 87 260+90 in Care Home 164 140 days 7466 3074 1410 1030 1777 (including Group work) 132 days Quality Markers we have chosen to measure In addition to measuring the minimum dataset, Isabel Hospice chose to monitor the following. Incident and complaints that are reported below are based on clinical services provided in the inpatient unit and community. Indicator % Preferred place of care documented Number of complaints Number of patient safety incidents Number of slips, trips and falls Number of drug errors Needlestick injuries Other incidents Number of C Diff and MRSA occurring whilst inpatient 45% 13 115 43 18 1 53 1 C Diff 3.2 Stakeholder engagement Isabel hospice works closely in the following ways with a range of stakeholders including: GP’s in their role as providers of care as well commissioners PCT - Regular review meetings and mapping exercises Mount Vernon Cancer Network; often providing training for them to other health care professionals across the sector University of Hertfordshire – to provide training to pre-registration student nurses Carers - a forum to ascertain their views and experience Care providers across the country where a patient may wish to relocate in order to meet their preferred priorities of care One Clinical Specialist Nurse works closely with nursing home providers; supporting nursing staff with delivery of care. The Hospice Isabel Hospice Quality Account 2012/13 FINAL 11 also works closely with schools, helping to create an understanding of the work of the Hospice The East And North Herts Acute Trust– clinical supervision for CNS’s provided by a psychologist Specialist equipment providers to meet the specific care needs the patients and community we serve. Work in partnership with Citizens Advice Bureau on provision of Hospice Benefits Advisor Attend Hertfordshire Local CD Intelligence Network Statement from NHS Hertfordshire (Commissioners) “During 2011/12, The Isabel Hospice provided a high quality service to the population covered within Hertfordshire. Their inpatient and community service continues to be an important community resource and the flexibility and willingness to respond to complex patients and adapt their approach to meet individual needs has been highly valued by the commissioner. The Isabel Hospice has contributed to the wider review and development of palliative and end of life care services in the County and was a useful and informative participant in the recent End of Life scrutiny carried out by the County Council recently. 2012/13 presents new demands for all Hospices including The Isabel Hospice including establishing its compliance with new NICE guidelines, responding to a more comprehensive review of the service against agreed performance metrics and responding to the challenges of adapting to the new environment of clinical commissioning groups. The Hospices’ positive and enthusiastic support for these initiatives and willingness to be a partner for improvement will benefit those who need the general and specialised care and support services that the Hospice offers.” Gordon J Pownall Community Commissioning Manager - Commissioning Lead for End of Life and Palliative Care Isabel Hospice Quality Account 2012/13 FINAL 12