BIRMINGHAM ST MARY’S HOSPICE QUALITY ACCOUNT 2011-12 Our vision is for a future where the best possible care is available to everyone at the end of life We will achieve this by providing specialist palliative care, education and support to families and carers, sharing our expertise and working with others to meet the diverse needs of our community Birmingham St Mary’s Hospice 176 Raddlebarn Road Selly Park, Birmingham B29 7DA Registered Charity Number 503456 Page 1 of 31 INDEX Part 1 - Statements 1.1 1.2 Statement from Tina Swani, Chief Executive Endorsement from Judi Millward, Chairman of Trustees Part 2 – Priorities for Improvements and Statements of Assurance 2.1 Priorities for Improvements 2011-12 (what we achieved last year) Priority 1 - Patient safety Increase access to bed rail assessment training Priority 2 - Clinical effectiveness Full review of the Day Hospice Therapeutic Clinic Priority 3 - Patient experience Refurbishment of Day Hospice environment 2.2 Priorities for Improvements 2012-13 (what we will do this year) Priority 1 - Patient safety Root cause analysis for pressure ulcers and serious falls Priority 2 - Clinical effectiveness Implement use of NHS clinical portal to access patient information Priority 3 - Patient experience Development of the Inpatient Unit garden area 2.3 Statement of assurance from the Board Review of services Participation in clinical audit Research Use of the CQUIN payment framework 2011-12 Use of the CQUIN payment framework 2012-13 Statement from the Care Quality Commission Data quality Information Governance toolkit Clinical coding error rate Page 2 of 31 Part 3 – Review of quality of performance 3.1 Clinical data Inpatient Unit Day Hospice Community Palliative Care Team 3.2 Quality markers Patient slips, trips and falls Pressure ulcers Infection control Complaints 3.3 Clinical audit 3.4 Feedback from patients and families on services 3.5 Statements on Birmingham St Mary’s Hospice Quality Account for 2011/12 QIPP Account Director for End of Life, Birmingham and Solihull PCT Cluster Programme Manager End of Life Care and Dementia, Sandwell NHS 3.6 Feedback and comments ABBREVIATIONS CPC CQUIN IPU MHRA NICE OOH RCA SCCM Clinical Practice Committee (part of the Hospice’s governance framework) Commissioning for Quality and Innovation (payment) Inpatient Unit Medicines and Healthcare Products Regulatory Agency National Institute for Clinical Excellence Out of hours Root cause analysis Senior Clinicians Communications Meeting Page 3 of 31 Part 1 - Statements 1.1 Statement from Tina Swani, Chief Executive At Birmingham St Mary’s Hospice patients and families are at the centre of all we do. The approach taken for the Quality Account for 2011-12 has been to focus on three specific priorities across patient safety, clinical effectiveness and patient experience. These relate to identified aspects of care that may not otherwise have received public attention and yet have made a difference to quality of care and outcomes for those patients and families. We have also followed the recommended format to demonstrate compliance with Department of Health requirements. Our service quality, standards and approach to care are not limited to simply what is required but to the needs and aspirations of our service users, driven by our own high standards and specialist expertise in end of life care and supported by our commitment to maintaining a well run, sustainable organisation. A wider picture of successes and improvements along with our approach to governance and quality can be found in the following public documents due for publishing this year: • • St Mary’s Hospice Ltd Annual Report 2011-12 Birmingham St Mary’s Hospice – The Next Four Years – Reaching More People Reaching more people Strong foundations Working in partnership to achieve high standards in more settings The priorities for the next four years are shown in below. They reflect our successes and wider plans for improvement: 1. 2. 3. 4. Make it easier for people to know how to get help More care at home Increase confidence and independence of patients and carers Expand our expertise across a wider range of conditions and services 5. Work with communities to foster the contribution of local society 6. Grow our education so more people are able to deliver & influence care 7. Pioneer and explore innovative ways to meet changing needs 8. Our impact: prove the difference we make 9. Our people: attract the best workforce and supporters 10. Our funding: continue to build financial strength 11. Our organisation: well run and organised 12. Our reputation: well known, well regarded and influential We hope that by sharing the more specific improvements and practice in this Quality Account, there is practical value to all readers of this document. Page 4 of 31 1.2 Endorsement from Judi Millward, Chairman of Trustees Trustees have an active role in our Governance Framework. Each Trustee has, as part of his or her portfolio, a Governance Committee or Board Sub-Committee. This way, Trustees are actively engaged in understanding their responsibilities as individuals and conducting them collectively as a Board. I confirm that I endorse this Quality Account on behalf of the Board of Trustees. Page 5 of 31 Part 2 - Priorities for improvement and statements of assurance from the Board (in regulations) 2.1 Priorities for improvement 2011-12 – what we achieved last year Patient safety Priority One: Increase access to Bed Rail Assessment Training Standard: • All relevant clinical staff will be trained in risk assessment of the use of bed rails • Risk assessments will be documented in patient notes How was the priority identified? In February 2011 the hospice commissioned an independent Health and Safety Report which identified that all staff should undertake training in bed rail use in accordance with MRHA document Safe Use of Bed Rails 2006(06). The inpatient unit had, in place, a risk assessment tool which was used regularly but staff training was not routinely done. In order to comply with MRHA guidance of safety for patients this was identified by senior managers as a priority for the organisation How was Priority One achieved? A training plan for all relevant clinical staff was developed as part of the mandatory training day during 2011-12. All clinical staff who attended received bed rail assessment training. Audit of compliance with the standard was undertaken in January 2012 and is due to be repeated in September 2012. How was progress monitored and reported? Attendance at mandatory training is monitored and reported through hospice governance committees. Page 6 of 31 Clinical Effectiveness Priority Two: Provide a full Review of the Day Hospice Therapeutic Clinic to ensure continued effectiveness of service. Standard: Undertake a review of services provided in the Therapeutic Clinic and make changes to service provision How was the priority identified? The Therapeutics Clinic had been operational for a number of years on Tuesdays which was specifically for patients requiring therapies and was not for patients who attended for a regular scheduled visit. Numbers of patients had reduced over the past three years as clinical treatments had changed – specifically patients requiring intravenous bisphosphonate drugs are more commonly now prescribed oral medication which they can take at home. The review scoped: • Need for the service • Treatments required • Service delivery • Cost effectiveness • Patient views • Resource implications – staff, volunteers, facilities How was Priority Two achieved? A full appraisal of the service was undertaken and resulted in a change in service in January 2012. Summary of changes • Increased access and flexibility - Patients can now attend for therapies on one of four days in Day Hospice, according to personal choice. • Re-marketing of service to referrers was undertaken, allowing referrers and commissioners to understand the wider service provision • Improved patient involvement – with commitment to continually receive feedback from service users on impact of changes • Establishment review and changes to staffing levels, allowing more appropriate staffing levels to meet the diverse needs of users. How was progress monitored and reported? Progress was monitored and reported through Senior Management Team, Hospice Leadership Team and Board of Trustees Page 7 of 31 Patient Experience Priority Three: Refurbishment of Day Hospice environment Standard: Refurbishment of Day Hospice will be completed within agreed timeframe and comply with patient expectations How was the priority identified? The priority was identified through consultation with patients who were attending the Day Hospice, key staff who work in the area and volunteers who support Day Hospice. All these groups expressed concerns about various aspects and limitations of the building as it was. The priority was also evident due to a general deterioration of the fabric of the building in spite of regular maintenance and was required to ensure compliance with health and safety legislation and to update some facilities e.g. toilets and access to building. How was Priority Three achieved? Careful logistical planning was carried out to minimise impact on patients who were attending Day Hospice. Patients were relocated to an area within the Inpatient Unit for the duration of the refurbishment works. The works were carried out to: • Improve access and the look of the main entrance • Provide more privacy for patients by incorporating access to treatment and counselling areas without the need to walk through the main patient area • Create a garden terrace area • Improve the craft and art area • Provide more flexible spaces for people to be in groups or have private space • Improve lighting throughout the area • Improve toilet facilities How was progress monitored and reported? Progress was monitored and reported through Premises Sub- Committee, Senior Management Team and Board of Trustees Page 8 of 31 BEFORE - Day Hospice dining area before the refurbishment AFTER - Day Hospice lounge area (taken from the same angle as the picture above) - lighter, brighter with easy outside access to a terrace with seating Page 9 of 31 BEFORE – the corridor to Day Hospice AFTER – automatic doors and better lighting Page 10 of 31 BEFORE –the main entrance to Day Hospice (dark and unwelcoming) AFTER – automatic doors with ramp access Page 11 of 31 2.2 Priorities for improvement 2012-13 – what we will do this year Patient Safety Priority One: Undertake Root Cause Analysis (RCA) for pressure ulcers and serious falls and the organisation will share learning from this Standard: Root Cause Analysis will be carried out on • All Grade 3 and 4 pressure ulcers • Any serious fall or where a patient has fallen on more than 3 occasions How was this identified as a priority? Pilot of RCA in these two groups has been carried out and has demonstrated that effective learning and improvements in safety take place. How will Priority One be achieved? • • • Education to ensure that staff identify incidents that require RCA Senior Clinical staff to set up RCA in a timely manner involving relevant clinical staff Feedback of action plans disseminated to staff How will progress be monitored and reported? Progress will be monitored through a Quarterly report of all RCA’s undertaken and reported to two governance committees: the Clinical Practice Committee and the Environment and Risk Committee. Clinical Effectiveness Priority Two: Implement use of NHS clinical portal to access patient information Standard: Hospice clinical staff will be able to access patient letters, scans, x rays and pathology reports from Queen Elizabeth Hospital system How was this identified as a priority? Use of clinical and administrative resources to follow up results and information has become more significant. Information such as discharge and outpatient summaries from hospital need to be available in a timely manner to be able to provide effective care and this is currently not the case How will Priority Two be achieved? Hospice staff will work with the hospital team to ensure all information governance arrangements are in place to introduce the new system. Clinical staff will be trained on the use of the clinical portal Page 12 of 31 How will progress be monitored and reported? Progress will be monitored and reported through the Information Governance Committee and Senior Clinicians Communication Meetings. Numbers of staff trained to use portal and numbers regularly accessing patient records will be audited. Patient Experience Priority Three: Development of the Inpatient Garden area, by improving access to all areas & reducing the risk of slips and falls due to uneven paths. Standard: The Inpatient Garden project will be completed within timescale and access to all areas improved. How was this identified as a priority? The hospice garden is used by patients and their visitors all year round and provides relaxation and a space to reflect. The state of the paths and patios has deteriorated and require work to restore to a safe and enjoyable environment. Following risk assessment we have had to restrict the use of wheelchairs and patients in beds to the patio areas as the paths are unsafe for moving and handing reasons but this is not a situation we wish to continue. Consultation with patients and carers has taken place to elicit their views on the work. How will Priority Three be achieved? Contractors will be instructed to undertake the work and logistics around maintaining the inpatient clinical service will be planned. Consultation will continue with patients and key staff groups at all stages of the work. How will progress be monitored and reported? Progress will be monitored against an action plan which will be reported at Senior Management Team meetings and the Environment and Risk Committee. Page 13 of 31 2.3 STATEMENT OF ASSURANCE FROM THE BOARD The following are statements that all providers must include in their Quality Account. Many of these statements are not directly applicable to specialist palliative care providers, and therefore explanations of what these statements mean are also given. Review of services During 2011-12 Birmingham St Mary’s Hospice supported Birmingham and Sandwell PCT’s commissioning priorities with regard to the provision of local specialist palliative care by providing the following services which were also part-funded through charitable funding: • • • • • • Inpatient Unit Community Palliative Care Team Day Hospice Occupational therapy Physiotherapy Family & Carer support services, including bereavement support Participation in Clinical Audit • During that period Birmingham St Mary’s Hospice participated in no national clinical audits and no confidential enquiries of the national clinical audits and national confidential enquiries as it was not eligible to participate in any. • The reports of 0 national clinical audits were reviewed by the provider in 2011-12. This is because there were no national clinical audits relevant to the work of Birmingham St Mary’s Hospice. What this means: As a provider of specialist palliative care Birmingham St Mary’s Hospice is not eligible to participate in any of the national clinical audits or national confidential enquiries. This is because none of the 2011-12 audits or enquiries related to specialist palliative care. The Hospice will also not be eligible to take part in any national audit or confidential enquiry in 2012-13 for the same reason. Page 14 of 31 Research The Hospice participated in the following research studies during 2011: Bereavement and Immunity in Older Adults Researcher: Dr Anna Phillips, University of Birmingham Start date: January 2008 End date: December 2011 Aim: To examine whether bereaved individuals suffer from poorer immune function than non-bereaved individuals around the time of bereavement. A qualitative study exploring the perceived barriers of healthcare professionals to the delivery of effective palliative care to patients with chronic obstructive pulmonary disease Researcher: Sandy Cherry Start date: July 2010 End date: March 2012 Aim: To explore what are healthcare professionals perceived barriers in relation to the delivery of effective palliative are to patients with chronic obstructive pulmonary disease. Does the End of Life Education Consortium work as a community of practice Researcher: Vivienne Forrester Start date: April 2010 End date: January 2012 Aim: To explore the theory that the End of Life Care Consortium work together as a community of practice. To investigate whether the participants and the education departments have learnt from each other through collaborative working. Data Collection and Information Giving Activities Research commissioned by: Dimbleby Cancer Care and Marie Curie Cancer Care Date: December 2011 Aim: To assess the value of directly involving volunteers in palliative care and their families. Page 15 of 31 The benefits of complementary therapy on pain relief within hospices throughout the UK Researcher: Hannah Cooke, Stratford College Date: December 2011 Aim: To gain knowledge n the techniques used by complementary therapists across the country. Guideline Development The Hospice contributed to the development of the following Pan Birmingham Cancer Network Guidelines: • June 2011 o Prescribing algorithm for restlessness in the dying patient o Prescribing algorithm for nausea and vomiting in the dying patient o Prescribing algorithm for excessive secretions in the dying patient • August 2011 o Guidance for the prescription, administration and monitoring of oxygen therapy in the hospice setting o Guidance on management of pain in the dying patient using subcutaneous diamorphine for injection o Guidance on management of pain in the dying patient using subcutaneous morphine for injection o Guidelines for primary prophylaxis for venous thromboembolism in palliative patients with malignancy where treatment is primarily palliative NICE guidance applicable to hospice clinical practice • April 2011 o Lung cancer o Ovarian cancer • May 2011 o Common mental health disorders • November 2011 o Colorectal cancer • December 2011 o Anaphylaxis o Organ donation Use of the CQUIN payment framework 2011-12 A proportion of Birmingham St Mary’s Hospice income in 2011-12 was conditional on achieving quality improvement and innovation goals agreed between the Hospice and the South Birmingham Primary Care Trust, through the Commissioning for Quality and Innovation payment framework. Details of the pilot initiative for 2011-12 are given below. Description of CQUIN indicator We provided clinical staff in nursing homes with the opportunity to identify their end of life care learning needs using a reflective learning approach and so facilitating ‘live’ learning Page 16 of 31 over a period of 8 months. This learning was led by a clinical nurse specialist (CNS) in palliative care from Birmingham St Mary’s Hospice who facilitated discussion and reflection around clinical management taken from past or present clinical cases. The sessions were delivered in 5 nursing homes identified by the Primary Care Trust who are contracted to provide end of life care. Each nursing home was assigned a palliative care CNS from the Hospice to facilitate 6 (1 hour long) sessions at approximately 6 weekly intervals between July 2011 and February 2012. Aim The aim of the CQUIN, which was to provide clinical staff in nursing homes with the opportunity to discuss clinical cases and issues relating to end of life care, was completed and an evaluation report submitted to the PCT. Domains covered in the sessions were: • • • • • • • Communicating with patients Recognition and management of the dying phase Symptom management strategies Bereavement issues Dealing with ethical dilemmas Staff training needs and signposting to resources End of life care planning tools Use of the CQUIN payment framework 2012-13 CQUIN has been agreed with Birmingham & Solihull Cluster for 2012-13 ‘Patient/Carer Experience’. Description of CQUIN Indicators • • • To ensure that providers have real-time systems in place to monitor patient/carer experience To demonstrate improvements in patient/carer experience Demonstrate clear commitment from Board to improve patient/carer experience Statement from the Care Quality Commission Birmingham St Mary’s Hospice is required to register with the Care Quality Commission and is currently registered to carry out the following regulated activities: Diagnostic and screening procedures Transport services, triage and medical advice provided remotely Treatment of disease, disorder or injury The following conditions of registration apply to all regulated activities listed above: • The Registered Provider must ensure that the regulated activities are managed by an individual who is registered as a manager in respect of the activity, as carried on at or from the location St Mary’s Hospice Limited Page 17 of 31 These regulated activities may only be carried on at the following location: 176 Raddlebarn Road, Selly Park, Birmingham B29 7DA • The following additional conditions apply: • This hospital is registered to provide treatment and care under the following service user categories only: Hospice for adults H(A). Reason for condition: To ensure that only treatment and services within the scope of the providers’ knowledge, skills and experience are offered. • A maximum of 25 patients may be accommodated overnight. Reason for condition: To ensure that only treatment and services within the scope of the providers’ knowledge, skills and experience are offered. • A maximum of 20 persons only may receive services provided on a day-case basis. Reason for condition: To ensure that only treatment and services within the scope of the providers’ knowledge, skills and experience are offered. • Notification in writing must be provided to the Care Quality Commission at least one month prior to providing any treatment or service not detailed in your Statement of Purpose Reason for condition: To ensure that only treatment and services that are safe to be undertaken in the premises and within the scope of the providers’ statement of purpose are offered. The Care Quality Commission has not taken any enforcement action against Birmingham St Mary’s Hospice during 2011-12. Birmingham St Mary’s Hospice has not participated in any special reviews or investigations by the Care Quality Commission during 2011-12. We were last inspected by the Care Quality Commission in May 2008 – the inspection was unannounced - the Commission’s main findings were: • • • The hospice supplied a number of documents which were supported by interviews with staff that showed a high level of compliance with the National Minimum Standards. Where minor deficiencies were noted the hospice has plans already in hand to address these. Patients spoken to at the hospice were positive about their experiences and felt involved in planning their care. Nursing staff interviewed were enthusiastic about their work and displayed a commitment to put the patient at the centre of care. No requirements have been made following this visit. Data Quality Birmingham St Mary’s Hospice did not submit records during 2011-12 to the Secondary Users Service. Page 18 of 31 This is because: Birmingham St Mary’s Hospice is not eligible to participate in this scheme. We have a Clinical Information Officer who collects and collates data extracted from the electronic patient records system and a data integrity sub-group reviews the data quarterly. Information Governance Toolkit attainment levels We have policies, procedures and training in place and are currently working with our NHS Cluster Information Team partners towards compliance in line with the IGSOC toolkit. We will manage this process through the Hospice Information Governance Committee. Clinical coding error rate Birmingham St Mary’s Hospice was not subject to the payment by results clinical coding audit during 2011/12 by the Audit Commission. This is because Birmingham St Mary’s Hospice receives payment under a mix of block contracts and payment on a cost per case basis when delivered, not through tariff and therefore clinical coding is not relevant. Page 19 of 31 Part 3 - Review of quality of performance Birmingham St Mary’s Hospice uses ‘SystmONE’, an electronic patient records system which all patients are entered onto. We have therefore chosen to present data extracted from that system for the year 1 April 2011- 31 March 2012 for the following services: • Inpatient Unit (IPU) o There were 433 admissions to our IPU – this includes those patients that may have been admitted more than once. o The clinical team arranged for 19 patients (4.3% of all admissions) to be transferred from the IPU to an acute unit during the year for investigation or treatment. 15 of these patients returned to the Hospice for ongoing care, 3 patients were discharged home from hospital and 1 patient died in hospital. • Day Hospice o Attendance in our Day Hospice was 2,199 o Patients were unable to attend Day Hospice for a variety of reasons on 789 occasions • Community Palliative Care Team o 776 new referrals were received for this service o 10,067 patient contacts were made during the year o There were between 250-300 patients per month on the Team’s caseload during the year. Page 20 of 31 Quality Markers we have chosen to measure Patients slips, trips and falls Patient slips, trips and falls are monitored. Serious incidents are reported under Statutory notifications to the Care Quality Commission. The following new policy was implemented during the period under review: • Policy and procedure for fall assessment prevention and management A Root Cause Analysis is undertaken when: • Fall results in hospital assessment or admission • Patient suffers loss of consciousness • The patent has abnormal neurological observations • The patient has had repeated falls – more than 3 on current admission • Death occurs as result of fall or within 24 hours of fall April June July - Sept OctDec JanMar TOTAL Number of Slips, Trips and falls 22 No Injury Minor injury Serious Injury Reported to CQC RCA Undertaken 15 6 1 1 2 11 31 10 25 1 6 0 0 0 0 0 3 27 19 8 0 0 0 91 69 21 1 1 5 Page 21 of 31 Pressure ulcers (Inpatient Unit) The total numbers of pressure ulcers that patients are admitted with or develop whilst on the Inpatient Unit are monitored. Root cause analysis was undertaken for all grade 3 and above pressure ulcers and statutory notifications were also made to the Care Quality Commission. Home Grade 1 Grade 2 Grade 3 No. reported to CQC No. of RCA under-taken 19 (18%) 15 (79%) 4 (21%) 1 0 0 0 2 113 22 (19%) 18 (81%) 4 (19%) 4 5 0 2 2 97 28 (29%) 21 (67%) 7 (33%) 7 5 1 1 4 115 24 (21%) 18 (75%) 6 (25%) 2 1 0 0 0 433 93 (21%) 72 (77%) 21 (23%) 14 11 1 3 8 OctDec JanMar Total Hospital Admitted with pressure ulcer 108 No of admissions to IPU April June Developed on IPU July – Sept Admitted from Complaints – April 2011 to March 2012 Total No. Complaints received Number of Complaints Upheld in Full Number of Complaints Upheld in Part Number of Complaints Not Upheld 5* 1 3 1 * 1 complaint re-opened from 2009. Page 22 of 31 Clinical audit Clinical audit is a way in which the organisation can learn and improve the delivery of its services, the outcomes for patients and the experience they have. The Audit group has undertaken a programme of audits. The following tables show the audits completed in 2011. Where issues are identified during an audit an action plan is developed to put the problems right. Progress on the action plans is monitored through the Hospice’s clinical governance committee, the Clinical Practice Committee, to ensure that they are completed. We undertake a further audit to see if the actions we have taken have resolved the issues identified. General Date Title of Audit 1. January CPR documentation 2. 3. February March Smartcard compliance Response to blood sample requests 4. March Delayed discharge 5. May 6. July Labelling of Mobility Equipment on IPU Use of bowel charts 7. 8. July August 9. September Management of delirium guideline Incidence of pressure ulcer development/progression Complaints management 10. 11. 12. September September September Use of Interpreters Study Day Attendance Study Day Evaluation form 13. September 14. October Preferred place of care at time of death Falls management documentation 15. November Waiting times for admission 16. December Diabetes monitoring Learning outcomes achieved Further work required – S1 inclusion High compliance Month 1- 100% compliance in 3 standards, 55% compliance in 1 standard Month 2 –100% compliance all 4 standards 100% compliance for 1 standard. 33% compliance nd for 2 standard Further staff education needed 100% compliance with Standard 1. No protocol available for Standard 2 Guideline to be reviewed 100% compliance in two of three standards 100% compliance in 2 of 4 standards. Learning outcomes/actions plans to be recorded and implemented 50% compliance 100% compliance Two out of four study days failed to meet standard 1 standard met 1 standard not fully met Staff education on assessment and care planning • Network standard met for 2 day admission • 97% for 7 day admission 1 /6 standards met CQC Outcome 1 21 16 16 11 16 4 4 17 1 12 12 16 16 16 4 Page 23 of 31 Medicines Management Audit Programme 2011 Date Title of Audit 1. 2. 3. February April July Sedative drugs in last days of life Electronic verbal orders Steroid guideline/monitoring 4. August 5. September Oxygen prescribing and administration Drug chart documentation 6. September Medication storage 7. 8. 9. September October November Drug fridge temperature recording Medicines storage Prescription Turnaround times 10. 11. December December Controlled drug management Electronic verbal orders 12. December 13. December Documentation of indication for oxycodone use Patient Group Direction Learning outcomes achieved Staff education required Further education required 3 out of 6 standards met. S1 template developed Much improved from previous audit (Aug 2010) 100% compliance in 3 out of 9 standards CQC Outcome 4 9 9 9 9 9 1 out of 3 standards met 1/5 standards met 1 standard met 1 standard not met 4 out of 5 standards met 5/7 standards met. Staff education 2 standards 9 9 9 9 9 9 2/4 standards met. Staff education required 9 Surveys/reviews Date Title Reported to 2011 January February August September Patient satisfaction survey – Day Hospice Family Reported Outcomes- Inpatient unit MDM Review Patient satisfaction survey- Community (Dr visits) 1 1 16 1 Patient Satisfaction survey – Inpatient Unit Patient Medication survey – Inpatient Unit Admission Process – Inpatient Unit Patient Experience – Inpatient Unit SCCM/CPC SCCM/CPC SCCM Ongoing in 2012 SCCM/CPC SCCM/CPC SCCM/CPC SCCM/CPC Patient Experience – Inpatient Unit SCCM/CPC 1 September September October December 2012 March CQC Outcome 1 1 1 1 Page 24 of 31 Feedback from patients and families on services Patients’ Forum In addition to conducting regular patient surveys across our services, we also have a patient participation group – Patients’ Forum. This Forum meets monthly on alternative days of the week. The membership is mainly drawn from patients attending the Day Hospice, although meetings are open to in-patients and community patients as well. The meetings are supported by the Head of Nursing Services, a non-clinical Senior Manager (rotating role) and one member of the Board of Trustees with the specific remit to represent user views to the Hospice’s Board. The dates the Patients’ Forum met, issues consulted on and patient numbers in attendance are shown below: Meeting date 2011 20 April 26 May 17 June 18 July 31 August 15 Sept 21 October 14 Nov 2012 16 February 16 March Patient attendance 8 10 5 4 4 7 5 6 6 12 Main topics covered in the above meetings of Patient Forum • Refurbished Day Hospice – views requested • Donations – discussion regarding envelopes versus collection boxes • Blood transfusions – views on change to schedule • Hospice food – views on IPU patients being offered a cooked breakfast each day • Discharge of patients from Day Hospice • IPU garden – plans shared and proposal for using donation from a patient’s husband • Patient Information Booklet – views requested • Hospice menu – views requested • Day Hospice Administrator – new role • Bereavement booklet – views requested • Views on newly refurbished Day Hospice • Serving meals on the IPU – ways of identifying those patients needing assistance with feeding • Education – information from Medical Director on the Summary Care Record • IT support for patients Page 25 of 31 • • • • • • • • • • • • • • • • • • • • End of life terminology Therapeutic Activities feedback and ideas DVD on patient/doctor scenario for views Armillary sphere – artwork for the garden Hospice 3-Year Plan – patient feedback Day Hospice staff changes ‘Small is beautiful’ new way of giving feedback and sharing ideas Patients requested that more cardboard collection boxes be made available in the Day Hospice for them to take home. Garden - further discussion about the garden refurbishment and particularly the Armillary sphere inscription Hospice 3-Year Plan - further discussion and patient feedback Afternoon snack - discussed whether to have one – patients decided this was not necessary. Complementary therapy treatments - clarification about what is available to patients ‘Bald Statements exhibition’ – patients views sought on whether to host an exhibition by a local artist depicting her personal journey through cancer diagnosis and treatment. Hospice developments – explained to patients: o Oxygen system on Inpatient Unit o Garden project (already discussed) o Bathroom/sluice refurbishment on Inpatient Unit o Proposal to build a new flat/family area on Inpatient Unit Care Agency – explained to patients the possibility of the Hospice setting up a Care Agency to provide a variety of care in the Community Bereavement booklet – patients and carers asked to review the new booklet Patients asked for their thanks to be passed to Day Hospice staff and volunteers for all they do New mini bus – patients viewed it and named it ‘Carrie’ National Volunteers Week – patients asked to help with the National Volunteers Week display as part of their arts and crafts group Hospice branding – discussed the need for a brand and asked for patient feedback The Patient Survey We conducted 7 patient surveys during September 2010 and March 2011 in our Inpatient Unit and Day Hospice. Surveys of up to 20 questions were sent to a sample of patients receiving care from the Hospice at the time. The surveys were used to gather data to measure patient satisfaction, the admission process and patient medication. Page 26 of 31 Inpatient Unit – patient experience (14/20 - 70% response rate) Did we treat you as an individual and fully respect your privacy and dignity? • 78% of patients selected ‘all of the time’ • 14% of patients selected ‘most of the time’ 100 80 60 Patients response % 40 20 0 All of the time Most of the time Other How effective were we in controlling pain and other symptoms? • 64% of patients selected ‘excellent’ • 36% of patients selected ‘good’ 100 80 60 Patients response % 40 20 0 Excellent Good Other Additional comments: • Thank you for all you support and care • Couldn’t be any better • Couldn’t fault the care given in any way • Felt that nurses were rushing around trying to get things done and not spending enough time with patients because everything was too far away medication wise Action: Keeping controlled drugs in PODS - commenced May 2011 • Would prefer to self-medicate Action: remind staff of the policy and the options for patients if appropriate Page 27 of 31 Inpatient Unit – admission process (16/20 - 80% response rate) Overall did you think that you were given enough information to make the admission process as smooth and as easy as possible? • 88% of patients selected ‘yes’ • 12% of patients selected ‘not sure’ 100 80 60 Pt response % 40 20 0 Yes Not Sure Thinking about the admission assessment conducted by the doctor and the nurse, how happy were you with the process • 81% of patients selected ‘very’ • 19% of patients selected ‘it was ok’ 100 80 60 Pt response % 40 20 0 Very It was OK Additional comments: • Too long waiting for a bed / think I should have got a bed a lot sooner, felt let down Action: revisit audit collection tool to identify reason for waiting time • Too long waiting for a doctor / feel like waited too long for doctor to admit patient Action: Changed the process of admitting patients • Staff were brilliant and very welcoming • Very happy with everything • Happy with the whole admission process • Would have liked to have the choice of a side room or ward bed Action: Admissions process adjusted, patients now given full information re location of bed pre admission • Prefer admission not to be at mealtimes Action: nursing and medical staff will strive to avoid mealtimes Page 28 of 31 Inpatient Unit – patient medication survey (9/14 – 64% response rate Did you feel fully involved with your medications whilst at the Hospice? • 33% of patients selected ‘all of the time’ • 56% of patients selected ‘most of the time’ 60 50 40 30 Pt response % 20 10 0 All of the time Most of the time Were your drugs administered at a suitable time during the day? • 67% of patients selected ‘all of the time’ • 33% of patients selected ‘most of the time’ 70 60 50 40 Pt response % 30 20 10 0 All of the time Most of the time Additional comments were requested on how things could be improved: • Would like better nausea control • Service was wonderful • Not at all you do an excellent job Page 29 of 31 Day Hospice – patient experience (29/40 – 72% response rate) Did we treat you as an individual and fully respect your privacy and dignity? • 93% of patients selected ‘all of the time’ 100 80 60 Pt response % 40 20 0 All of the time In overall terms how do you rate the support that we gave you? • 70% of patients selected ‘excellent’ 80 60 Pt response % 40 20 0 Excellent Additional comments were requested to explain/comment further on responses: • I am always made to feel welcome and everyone is so friendly and helpful I think the staff and volunteers do a wonderful job • As a day centre patient I would like to see the return of the envelopes for donations back on the table as other patients I have spoken to feel the same • A wide range of activities or entertainment would be appreciated and more group participation. Action: New therapeutic activities coordinator in post – developments planned. Ensure post holder is aware of issue. Discuss at Patients’ Forum for ideas and suggestions. Raise staff awareness • Everything that you do or provide for us at the Hospice cannot be faulted. It is brilliant support for everyone that has the opportunity to come to St Mary’s. Cannot think of anything that you can add to make it any better. Page 30 of 31 STATEMENTS ON BIRMINGHAM ST MARY’S HOSPICE QUALITY ACCOUNT FOR 2011/12 QIPP Account Director for End of Life Birmingham and Solihull PCT Cluster Birmingham St Mary’s Hospice has continued to work as a major partner in delivery of Specialist Palliative care to people in the city. St Mary’s clearly focus on the clinical quality priorities raised through feedback of people who have used the service and of the population needs based on local data and information which supports the overall Quality priorities of Birmingham and Solihull PCT Cluster. Birmingham St Mary’s Hospice is working jointly with colleagues within GP practices and Community services and the local acute trusts to improve delivery of the pathway and patients journey and achieve a collaborative and partnership where quality and safety of care can be enhanced. The amount of research and review of services demonstrates their commitment and their mind set to pursue quality improvements as part of every day working life. On that basis, I support this quality account as it reflects local priorities and those of service users and has a direct impact on the quality of service people and their families receive. Programme Manager End of Life Care and Dementia Sandwell NHS The Hospice is to be congratulated on its achievements in 2011/12, and the plans for 2012/13 represent a good mix of priorities. The implementation of an NHS clinical portal to access patient information offers opportunities for using the learning from this to expand to other hospitals and benefit more patients. The priorities identified for the next 4 years, in terms of reaching more people, are completely in line with Sandwell and West Birmingham CCG's aims for end of life care, and Birmingham St Mary's are providing leadership in a key work area for the CCG to achieve this. FEEDBACK AND COMMENTS If you would like to provide feedback on the report or make suggestions for content for future reports, please contact: Helene Trebinska PA to Chief Executive Birmingham St Mary’s Hospice Tel: 0121 472 1191 Email: helene.trebinska@bsmh.org.uk Page 31 of 31