St Teresa’s Hospice The Darlington & District Hospice Movement Quality Account for the Year 2014/2015 St Teresa’s Hospice, The Woodlands, Woodland Road, Darlington, DL3 7UA | (01325) 254321 www.darlingtonhospice.org.uk PART 1 CHIEF EXECUTIVE’S STATEMENT 3 PART 2 PRIORITIES FOR IMPROVEMENT 2015/16 AND MANDATORY STATEMENT OF ASSURANCE FROM THE BOARD 4 2.1 2.2 2.3 2.4 PART 3 3.1 3.2 3.3 3.4 INTRODUCTION FUTURE IMPROVEMENT ASPIRATIONS FOR 2015/2016 PROGRESS ON IMPROVEMENT ASPIRATIONS FOR 2014/2015 MANDATORY STATEMENT OF ASSURANCE FROM THE BOARD REVIEW OF QUALITY PERFORMANCE 2014/15 PATIENT SAFETY CLINICAL EFFECTIVENESS 2014/15 PATIENT, CARER, STAFF AND VOLUNTEER EXPERIENCE OTHER COMMENTS FROM PARTNERS & STAKEHOLDERS 4 4 10 14 17 17 19 28 34 SUPPORTING STATEMENTS 35 ST TERESA’S HOSPICE QUALITY ACCOUNT 2014-15 35 THE BOARD OF TRUSTEES STATEMENT ENDORSEMENT BY SENIOR DIRECTORS DARLINGTON CLINICAL COMMISSIONING GROUP STATEMENT HAMBLETON, RICHMONDSHIRE & WHITBY CLINICAL COMMISSIONING GROUP STATEMENT COMMENT FROM HEALTHWATCH, DARLINGTON COMMENT FROM HEALTH & PARTNERSHIPS SCRUTINY COMMITTEE, DARLINGTON 35 35 36 37 38 39 2 Part 1 Chief Executive’s Statement I am pleased to present the Quality Account for St Teresa’s Hospice 2014-15. The Quality Account looks back on the progress we have made during the past year, and also outlines future aspirations to improve services for patients and families. The Darlington & District Hospice Movement, also known as St Teresa’s Hospice is an independent charity (registered number 518394) and Company limited by guarantee (registered number 2080756). The Board of Trustees is responsible over all for Governance of the Charity. The Strategic Management Team of 6, led by the Chief Executive, is comprised of CEO, Director of Clinical Services, Finance Director, Head of Nursing, Education Manager and Operations Manager. St Teresa’s Hospice is a highly-regarded and well-loved organisation and we continually strive to provide care of the highest standard. The support we receive from the business community, from clubs and organisations, and from private individuals in the community is wonderful, and is a tribute to the hard work and dedication of the Board of Trustees, and our wonderful staff and volunteer team. Through this Quality Account, we have the opportunity to show all stakeholders our commitment to quality as intrinsic to everything we do. Our culture of continuous review and improvement through Clinical Governance ensures continuous quality monitoring, so that any shortfalls are speedily identified, reported, rectified and learned from, to improve future practice. We strive constantly to remain up to date and respond to changing needs, from the recommendations in the Neuberger Report and Care of the Dying Framework, to meeting the revised standards which are inspected by the Care Quality Commission. Excellent patient care remains at the heart of everything we do. It is widely known that, in the next 20 years, Hospice Care is set to increase dramatically as Britain’s older population increases. The number of young adults with life limiting conditions is also on the increase and there is evidence that growing numbers of young people with highly complex needs are moving from children’s services into adult care, however adult services may not be ideal or adaptable for their age range or conditions. Following a full needs assessment, the Hospice’s major building development programme will help to address this changing demographic, providing services which can help more people, with more complex needs, in the most appropriate setting. (see 2.2 Aspirations 1. and 3.) This Quality Account is written in consultation with service users, and the Hospice team, and is endorsed by our Board of Trustees, whose members enthusiastically support quality improvement; to the best of my knowledge, I confirm it as a true and accurate assessment. Jane Bradshaw Chief Executive 3 Part 2 Priorities for Improvement 2015/16 Mandatory Statement of Assurance from the Board 2.1 and Introduction All of the work that St Teresa’s Hospice does is inspired by needs of people affected by a palliative or life limiting illness. This includes patients themselves, their loved ones referred to throughout the remainder of the document as carers and the general public who may look to us for support around Public Health issues associated with palliative care. The Hospice has worked hard over recent years embedding a culture of continuous improvement. But we are not complacent and strive not only to maintain our exceptionally high standards today but to keep moving forwards, being innovative and developing our services so that we can meet needs in the future of an ever changing population demographic but also to keep apace of the changes in the commissioning landscape. The following quality improvements you are about to read, and reports on quality performance, pertain only to clinical care and relevant support services necessary to provide care. The report does not take into account fundraising and administrative functions of the organisation where separate quality initiatives are employed. The Board of Trustees and Senior Management of St Teresa’s Hospice are committed to the delivery of high quality care which is safe, clinically effective and provides the best possible patient experience. 2.2 Future Improvement Aspirations for 2015/2016 The following improvement aspirations have been developed with staff teams and people who use our services including patients, carers and volunteers and are detailed across the domains of patient safety, patient experience and clinical effectiveness. Improvement Aspiration 1: To build a purpose built, 10 bedded In Patient Unit Quality Domain- Patient Safety, Patient Experience, Clinical Effectiveness How was this aspiration identified? The population is growing alongside changing demographics with an expected increase in life expectancy. By 2020 over 40% of the Darlington population will be over 50 years and 10% will be over 75 years. With a rise in life expectancy it is also expected that more people will have co-morbidities and will suffer with complex illnesses related to older age, such as Dementia, nationally it is widely recognised that a third of over 85 year olds will suffer from Dementia. The annual death rate is growing and is expected to rise steeply from 2016; this will have a corresponding rise in the numbers of people requiring palliative and end of life care. The Hospice carried out a local needs assessment in July 2013, identifying the need for more In-patient beds for Darlington and District catchment area. The Cancer Care Alliance in 2005 carried out a needs 4 assessment identifying the need for additional beds and the current (draft) North Eastern Cancer network wide needs assessment indicates that based on epidemiology, demographics and socioeconomic factors, considering a population of Darlington alone of 105,584 (St Teresa’s Hospice serves Darlington and District including patients from Durham Dales Clinical Commissioning Group and Hambleton, Richmondshire and Whitby Clinical Commissioning Group) there should be between 8.610.6 In-patient beds. Furthermore, the current 6 bedded In Patient Unit although offering consistently high quality services also poses some barriers to care due to accessibility and limitations of the Grade 2 listed building. The In Patient Unit is on the first floor, with a split level landing giving stretcher access to only 3 bedrooms. There is frequently a waiting list in operation as patients can only be admitted to the upper floor either if they are mobile or in a wheelchair. The Care Quality Commission on every visit has raised concerns regarding the open landing, comments that were also flagged in an independent audit of the Hospice for a Dementia friendly environment. Patients who are confused, agitated or wandering cannot be admitted to the upper floor, again limiting the number of referrals that can be accepted and taking into account expected rise in incidence of dementia, this will be exacerbated in coming years. In addition, the very high ceilings potentially pose an infection control risk due to difficulties in cleaning. Fire risk assessments support the need for a purpose built unit. Currently in the event of a fire, palliative or end of life patients would need to exit the building in a “toboggan”, down 2 flights of stairs. Patients have also commented on the heat and ventilation in the rooms and although all bedrooms have en-suites, only patients on the upper floor can access the bathroom (unless mobile). Carers and relatives, who may be struggling to deal with what is happening to a loved one, have access only to a very small room which doubles up as a staff room. Staff have very little space to work away from patients, or to discuss patient care and access to computers can be difficult which together can at times compromise patient care. Patients who have sadly died whilst at the Hospice currently exit the building via the stretcher lift and through a link corridor, which does not offer the optimum dignity and privacy. How will it be achieved? During 2014/2015 St Teresa’s Hospice submitted a planning application to develop a purpose designed 10 bedded In Patient Unit on the Woodlands site. The planning permission was approved in November 2014. Each of the ground floor bedrooms will have an en-suite and access to the gardens. All rooms will be uniform in size and shape, with more natural light and proper ventilation, with improved access for patients using mobility aids. The whole unit will offer privacy and dignity to all patients during their entire stay with us and have a separate area for relatives and carers to use if they wish. Overall the aim is to achieve a superior facility that will provide significant improvements in the physical environment for patients, carers and staff, enable improved patient safety and patient experience and delivery of high quality clinical effective care. During 15/16 we are ready to deliver our ambitious plan in line with the following milestones: Identify Project Construction Management business* April 2015 5 Site Preparation Commence Build Programme Commence Capital Fundraising Campaign Practical Completion Date and Handover Internal Furnishing Commission Unit May 2015 June 2015 October 2015 February 2016 March 2016 31st March 2016 *Building client engages an external consultant to plan, manage and coordinate the whole project How will it be monitored and measured? Weekly site meetings with the site manager and monthly project team meetings, with bimonthly reports into the Board of Trustees. Improvement Aspiration 2: To develop a comprehensive, Hospice based Lymphoedema Service Quality Domain- Patient Safety, Clinical Effectiveness, Patient Experience Lymphoedema is a chronic inflammatory disease developed following obstruction or failure of the lymphatic system, resulting in swelling of limbs, trunk, head and neck, breast or genitalia. It can be classified as Primary (intrinsic defects of the Lymphatic system) or Secondary (due to extrinsic damage surgery, infection or disease). Lymphoedema services in Darlington have been unstable for many years, and there has historically been a lack of substantive funding. Impacts on patients suffering with Lymphoedema can be catastrophic including pain, cellulitis, significantly swollen and infected limbs, impacts on body image and mental health and in some cases amputation. How was this aspiration identified? The need for a dedicated, comprehensive Lymphoedema service was identified primarily by patients. GP’s have supported the development of the Lymphoedema proposal via the GP End of Life Care Leads forum hosted at the Hospice. Lymphoedema is on the Hospice clinical risk register and is also a locality priority. The development of the proposal has been in partnership with County Durham and Darlington Foundation Trust. How will it be achieved? There has been commitment from all partner organisations to develop the Lymphoedema service. Patients can expect to be treated at the optimum time to prevent deterioration of their condition therefore avoiding avoidable use of antibiotics and hospital admissions. A dedicated Lymphoedema practitioner will deliver the clinic supported by Health Care Assistants. The referral pathway will be developed enabling GP’s to refer direct to the clinic. A key worker training course for District Nurses will be established enabling them to identify and support housebound patients in their own home. A patient self-management support group will help patients to manage their condition themselves providing independence and improve patient experience. Getting to know patients and managing 6 their care through the clinic effectively will improve patient safety and clinical effectiveness and should also avoid unnecessary hospital admissions. The Lymphoedema practitioner will develop networks within the locality to enable a rich knowledge base at the Hospice and develop improved inter-organisational links supporting seamless patient care delivery. Appoint Practitioner 2 day per week clinic provision commence Key Worker course Develop self-management programme Key worker course Service evaluation and commissioning discussions commence June 2015 June 2015 August 2015 October 2015 January 2015 January 2015 How will it be monitored and measured? Progress against key milestones will be monitored at the Quarterly Clinical Governance Sub Committee. Improvement Aspiration 3: To explore the role of St Teresa’s Hospice in Transitional Care Quality Domain- Patient Experience How was this aspiration identified? St Teresa’s Hospice is registered to provide services to patients age 18 and above. In 2013, a 17 year old Darlington resident was referred to the Hospice by the paediatric palliative care team at James Cook University Hospital. Unfortunately, as the patient was underage we were unable to provide care until the patient reached 18 years of age, although the Family Support Team were able to support her family. The population of young people with life limiting conditions is growing and it is vital that their needs are addressed and planned for as they transition into adulthood. Together for Short Lives have begun to raise the profile of the need for better transition services nationally and the local Palliative and End of Life Steering group have also identified this as a priority. St Teresa’s Hospice has always been a pioneering Hospice, and our drive is to meet patient needs as safely and clinically effectively as possible. Therefore, the Hospice is keen to explore how and if we may serve this growing patient population and importantly how we can support them to achieve their ongoing wishes and hopes for their future and their care as they live with their life limiting illness. How will it be achieved? Link/Network Local Paediatric Network Join local CCG group June 2015 June 2015 7 Ascertain local baseline Ascertain locally available services Ascertain what young people need from Hospice Services Recommendations for the Hospice relating to Transition October 2015 October 2015 February 2015 March 2015 How will it be monitored and measured? Progress against key milestones will be monitored at the Quarterly Clinical Governance Sub Committee. Improvement Aspiration 4: To develop Day Hospice Satellite for North Yorkshire patients Quality Domain- Patient Safety, Patient Experience, Clinical Effectiveness How was this aspiration identified? Evaluation of the Day Hospice Satellite has proven how beneficial the service is to patients, their carer and also a useful resource for health care professionals to offer to patients. However, data analysis and discussion with health care professionals indicated that only some patients in the Hospice catchment are able to access the service because of travel constraints due to their ambulatory oxygen supply. How will it be achieved? The Hospice will develop a Day Hospice Satellite service for 10 patients located in Scorton or Richmond. The Patients will be able to access the “CHOICES” programme on a morning. In addition 6 patients will be able to access the 8 week respiratory programme which will rotate around three localities within North Yorkshire. Milestones will include: Agreement of Programme with Commissioners Identify Venue Equipment procurement and set up at venue Service Promotion Commence CHOICES Programme Commence Respiratory Programme 1 Commence Respiratory Programme 2 Commence Respiratory Programme 3 Service Evaluation and negotiation with commissioners May 2015 May 2015 June 2015 June 2015 June 2015 July 2015 October 2015 January 2016 January 2016 How will it be monitored? Monitoring of the Day Hospice Satellite will be via the Clinical Governance Group which meets quarterly. 8 How will progress be monitored and reported on for all future improvement aspirations 2015/2016? St Teresa’s Hospice Board of Trustees will monitor and report on progress through a variety of methods including: Annual return to the Charity Commission Annual review and audited reports and accounts Quality Account and reports to Clinical Governance Sub Committee Annual General Meeting Hospice Newsletter and other publications Events, such as open days 9 2.3 Progress on Improvement Aspirations for 2014/2015 The purpose of the Quality Account is to not only set out future improvement aspirations but to also evidence achievements on aspirations for improvement for the previous year. In last year’s report we set out 4 aspirations for improvements for our services. All aspirations were specifically selected as they would directly impact on the care our patients and carers received, through improving patient safety, clinical effectiveness or the patient’s experience. The quality improvement aspirations for the previous year were: 2014/15 - Aspiration 1: To build a purpose built, 10 bedded In Patient Unit Quality Domain- Patient Safety, Patient Experience, Clinical Effectiveness This aspiration during 14/15 represented the first stage of this important development for the Hospice, it continues to be an aspiration for 15/16. The needs analysis completed in 2013 highlighted the changing demographics in Darlington and District, with a significant increase in death rate expected from 2016, an ageing population who will have co-morbidities and require more complex care, both culminating in increased need for Palliative and End of Life Care. The current 6 bedded In Patient Unit, will not be sufficient to meet these needs. Furthermore, the existing In Patient Unit although offering consistently high quality services also poses some barriers to care due to accessibility and limitations of the Grade 2 listed building. The In Patient Unit is on the first floor, with a split level landing giving stretcher access to only 3 bedrooms. There is frequently a waiting list in operation as patients can only be admitted to the upper floor either if they are mobile or in a wheelchair. What we have achieved: Development of architects plans, staff consultation Submission of architects drawings and planning application Decision on planning application- resubmission required -DELAYED Identify and engage company for Design and Build Scheme-DELAYED Consultation and engagement with local stakeholders Commence Capital Campaign for interior outfitting Commence building within 2015/2016 April 2014 End of May 2014 November 2014 March/April 2015 May2014-April 2015 July 2014 May 2015 How we will continue to improve: Unexpected delays were incurred due to delays in the agreement of the planning application which necessitated slight design amendments and resubmission of plans before planning permission was granted. Furthermore, tender returns were over budget and a value engineering process was required before successfully appointing a building firm. The builder has now been commissioned and the build programme will commence in May 2015. 10 2014/15 - Aspiration 2: To develop leadership on the In Patient Unit and to have a named nurse responsible for each patient on the In Patient Unit and Day Hospice Quality Domain- Patient Safety, Clinical Effectiveness What we have achieved: Re-structure of the 2 Band 6 Registered Nurse posts so that one post holder can focus on operational management and the other provide clinical leadership Recruitment to the vacant Band 6 post Named nurse allocated to every patient on IPU, who takes responsibility and accountability for patients in their care Every day the named nurse introduces themselves to the patient and writes their name on the board in the patient bedroom, and leads on care delivery for their patients The named nurse is present at ward rounds and ward level discussions about patient care The named nurse responsible for ensuring handover to the clinician at the MDT Significant review and development of nursing shift handover process ensuring that factual, up to date clinical information is passed on between shifts (enhanced SBAR tool), named nurse is responsible for their patient hand over at the end of each shift Significantly improved transparency to the public with staffing levels displayed alongside the name of senior nurse on shift at ward level, updated twice daily Production of bi-annual staffing report which triangulates staffing levels, occupancy and patient harms How we will continue to improve: RGN Core Competencies are under development, draft version includes further areas for development of nurse leadership The comprehensive Clinical Governance work plan is designed to support development of nurse leadership across all staff grades Visible introduction of Compassion in Practice through delivery of Clinical Governance work plan action areas 11 2014/15 - Aspiration 3: To transform Day Hospice services to offer a range of services to meet patient needs and ensure we reach as many patients as possible Quality Domain- Patient Experience Clinical Effectiveness Key objectives for the transformation process were to increase the REACH of our services to noncancer patients, and to improve patient experience. Significant progress has been made and transformation is embedded. What we have achieved: Away Day to agree transformation objectives with team Appointment of Team Leader post for transformation Staff and patient evaluation pre service transformation Commenced Neurological MDT at Hospice for Darlington Patients’ Commenced CHOICES programme, Neurology Clinic, Respiratory Clinic Heart Failure Clinic, Complementary Therapy outpatients Service promotional activity, GP’s, District Nurses, Macmillan Nurses, Respiratory CNS, Heart Failure CNS and Support Groups Commenced Satellite Day Hospice pilot for North Yorkshire Service evaluation- excellent evaluation for CHOICES, disease specific clinics and Day Hospice Satellite Service evaluation- Day Hospice Satellite May 2014 July 2014 June 2014 June 2014 July 2014 July 2014 Oct 2014 Nov 2014 Jan 2015 How we will continue to improve: Develop lead nurse role in Day Hospice Work with North Yorkshire Commissioners to develop Day Hospice Satellite for 2015/2016 Introduce RGN core competencies into Day Hospice Review Health Care Assistant role to look at extended practice and responsibilities 2014/15 - Aspiration 4: To develop a Clinical Risk Management Framework Quality Domain- Patient Safety Patient safety is our top priority at the Hospice. Significant work has been undertaken in key risk areas such as patient falls and pressure ulcer management and our approach to monitoring risk has also improved. In August 2014, the Clinical Commissioning Group undertook a Hospice visit incorporating reviews of patient safety around medicines management, infection control and patient experience, the feedback following the visit was excellent. 12 What we have achieved: Introduction of clinical risk register, reviewed quarterly May 2014 Review and improved Pressure Ulcer Management- annual monitoring and improvement plan developed as part of CQuIN April 2014 Review and improved Falls Management- annual monitoring and improvement plan developed as part of CQuIN April 2014 Progressed with introduction of electronic incident reporting system – under development How we will continue to improve: Review and develop the Business Continuity Policy Fully introduce single incident reporting system Develop a “Whole Hospice” approach to risk management. Develop Clinical Audit to include both processes and outcomes in patient care Introduce a Patient Related Outcome Measure -PROM 13 2.4 Mandatory Statement of Assurance from the Board The following statements must be provided within the Quality Account by all providers. Many of these statements are not directly applicable to specialist palliative care providers including St Teresa’s Hospice, therefore explanations of what these mean are given. 2.4.1 Review of Services During the reporting period 2014/2015 St Teresa’s Hospice, Darlington provided the following services to the NHS: 6 Bedded In Patient Unit Day Therapy Service Hospice at Home Rapid Response Service Lymphoedema Services Family Support (including welfare benefits) Complementary Therapies During the reporting period 2014/2015 St Teresa’s Hospice, provided or sub contracted 7 NHS services (no funding received for Complementary Therapies). The Hospice has reviewed all the data available to them on the quality of these NHS Services. The income generated by the NHS services reviewed in 2014/2015 represents 100 per cent of the total income generated from the provision of NHS services by St Teresa’s Hospice, Darlington for 2014/2015. The income generated represents approximately 30% of the overall costs of running these services. What this means: St Teresa’s Hospice is an independent Charity which provides all services free of charge. The income generated from the NHS (Darlington Clinical Commissioning Group and Hambleton, Richmondshire and Whitby Clinical Commissioning Group) in 2014/2015 represents approximately 30% of the overall costs of service delivery, with the remaining income to fund our services from voluntary charitable donations, legacies, Hospice shops, the One Wish Lottery, events and community fundraising. St Teresa’s Hospice for the accounting period 2014/2015 signed an NHS contract with Darlington CCG, and a voluntary sector grant with Hambleton, Richmondshire and Whitby CCG, similar arrangements are in place for 2015/2016. Contracts for Rapid Response (partnership service St Teresa’s Hospice and Marie Curie) have rolled over as part of a pilot project and are due to expire in March 2016. 14 2.4.2 Participation in Clinical Audit During 2014/2015 no national clinical audits or confidential enquiries covered NHS services provided by St Teresa’s Hospice. During 2014/2015 St Teresa’s Hospice participated in no national clinical audit and no confidential enquiries of the national clinical audits and national confidential enquiries as it was not eligible to do so. The national clinical audits and national confidential enquiries that St Teresa’s Hospice was eligible to participate in during 2014/2015 was none. The national audits and national confidential enquiries that St Teresa’s Hospice participated in, for which data collection was completed during 2014/2015, are listed below alongside the number of cases submitted to each audit or enquiry as a percentage of the number of registered cases required by the terms of audit or enquiry. St Teresa’s Hospice was not eligible to participate; therefore, there is no information to submit or list here. What this means: St Teresa’s Hospice as a provider of palliative care was not eligible to participate in any national audit or confidential enquires as these have not pertained to palliative care during the accounting period St Teresa’s Hospice has not reviewed any national or local audits during 2014/2015 and therefore has no actions to implement 2.4.3 Research The number of patients receiving NHS services provided or sub-contracted by St Teresa’s Hospice in 2014/2015 that were recruited during that period to participate in research approved by an ethics committee was none. There was no appropriate, nationally, ethically approved research studies in palliative care in which St Teresa’s Hospice could participate. 2.4.4 CQUIN Payment Framework Darlington CCG St Teresa’s Hospice NHS income in 2014/2015 was conditional on achieving quality improvement and innovation goals through the Commissioning for Quality and Innovation payment framework for 3 elements within the contract. The 3 CQuINS represented 2.5% of the overall contract value. (CQuIN measures included Friends and Family Test, Patient Safety and Day Hospice Transformation). The Hospice has qualified for full payment of all 3 CQuINS. Hambleton, Richmondshire and Whitby - St Teresa’s Hospice NHS income in 2014/2015 was not conditional on achieving quality improvement and innovation goals through the Commissioning for Quality and Innovation payment framework because it had a voluntary sector grant in place. 15 2.4.5 Statement for the Care Quality Commission St Teresa’s Hospice is required to register with the Care Quality Commission and its current registration status is for the following regulated activities: Diagnostic and screening procedures Treatment of Disease, disorder or injury Personal Care St Teresa’s Hospice is registered with the following conditions: Services are provided for people over 18 years old The maximum of 6 patients may be accommodated overnight Notification in writing must be provided to the Care Quality Commission at least one month prior to providing treatment or services not detailed in the Statement of Purpose St Teresa’s Hospice is subject to periodic and unplanned reviews by the Care Quality Commission (CQC), the last on-site inspection was in December 2013. St Teresa’s Hospice was fully compliant with all the essential standards of Quality and Safety as set out in the Care Quality Commission registration and the Health and Social Care Act. The CQC has not taken any enforcement action during 2014-2015 and St Teresa’s Hospice has not participated in any special reviews or investigations by the CQC in this time period. The CQC has issued new regulations and the Hospice category “Adult Social Care Services: Hospice Services”. The Hospice has baselined current activity against new regulations and a development plan is in place in readiness for the new inspection process. 2.4.6 Data Quality St Teresa’s Hospice did not submit records during 2014/2015 to the Secondary Users Service for inclusion in the Hospital Episode Statistics. What this means: St Teresa’s Hospice is not eligible to participate in the scheme. In the absence of this we have our own system in place to collect and monitor data through the electronic patient information system, SystmOne. St Teresa’s Hospice also submits data to the National Minimum Dataset for Specialist Palliative Care Services collected by the National Council for Palliative Care on an annual basis. 2.4.7 Information Governance Toolkit Attainment St Teresa’s Hospice participated in completion of the Information Governance Toolkit in 2014/2015, the outcome was satisfactory and an appropriate action plan for improvements has been developed which is timetabled for review on an annual basis. All clinical staff have completed annual top ups for information governance as part of mandatory training. 2.4.8 Clinical Coding Error Rate St Teresa’s Hospice was not subject to the Payment by Results clinical coding audit during 2014/2015 by the audit commission. 16 Part 3 Review of Quality Performance 2014/15 The review of Quality at St Teresa’s Hospice can be considered across the three domains of Patient Safety, Clinical Effectiveness and Patient, Staff and Volunteer Experience. The following information provides information on these areas during the accounting period 2014/2015. 3.1 Patient Safety Risk Assessments Risk assessments are carried out as part of everyday practice, are reviewed at least annually, and are in place to address health and safety hazards in all areas of the organisation. Additionally COSHH risk assessments have been carried out for hazardous substances. CAS alerts monitoring system in place. Incident Reporting For the period 1st April 2014-31st March 2015 there were 61 health and safety and clinical incidents reported. All In Patient Unit incidents are reported via Safeguard System (incidents involving NHS Staff on the In Patient Unit) and also reported via internal governance processes and reviewed and monitored by the Clinical Governance sub group. The number of incidents has increased since the last reporting year, however, the Clinical Governance Sub-committee view this as a significant development as all staff are now aware of their responsibility and accountability in reporting and subsequent investigation of incidents. Table 1 Demonstrating Clinical Incidents during Accounting Period 2014/2015 Clinical Incident Number Slips, trips, falls and accidents - patients 8 Slips, trips, falls and accidents – staff and 4 volunteers, and visitors Pressure ulcers 10 Infections 0 Drug errors and adverse effects 2 Incidents relating to medication 6 Other clinical incidents 16 Other non-clinical incidents 9 Information Governance 6 17 Slips, trips, falls and accidents- Patients There were 8 incidents involving patients, none of which resulted in major injury requiring reporting to the Care Quality Commission Health and Safety Executive or North East Commissioning Support Unit. 8 were patient falls, (4 patient falls in the In Patient Unit, 1 patient fall when taken home and fell in the street, 1 patient fall in Day Hospice, 1 patient fall in doorway of Woodlands Reception, 1 H@H patient fell out of bed). Slips, trips, falls and accidents- Staff, Volunteers and Visitors There were 4 health and safety incidents reported involving staff, volunteers and members of the public. 1 incident involved member of staff with swollen face, lips and eyes watering, cause unknown. 1 paper cut, 1 incident involved boiling water leaking from thermos missing patient’s legs, 1 incident staff cut hand on glass, no serious injury was sustained during any accident. Pressure Ulcers Infections and pressure ulcers cause pain and distress to patients and families. Improvement work has taken place over the past 12 months on identification of pressure ulcers and it is acknowledged that this is an ongoing training requirement for the Hospice. 10 pressure ulcers were recorded, 7 patients were recorded to be admitted with existing pressure ulcers, the remaining 3 were investigated and were unavoidable. Infections There were no hospital acquired infections during the accounting period. Incidents relating to medication There were 6 incidents relating to medication, (1 where medication was written up incorrectly by Darlington Memorial Hospital, 1 discrepancy in total amount when destroying controlled drugs, three where syringe drivers was faulty, 1 patient arrived with no drug chart therefore no regular medication could be administered until GP arrived). Drug Errors There were 2 drug errors; both were investigated fully and improvements in practice implemented, both still within safe prescribing limits of administered medications. Safety Thermometer St Teresa’s Hospice has completed the patient safety thermometer for the past 12 months and reported its findings nationally to the Department of Health. The Safety thermometer is a “snapshot” measure taken across pre-determined domains on the same day each month. During April 2014March 2015 time period, the following harms were recorded in domains measured. Clinical Area IPU 18 Pressure Ulcer 5 Catheter & UTI 5 VTE Falls 0 0 3.2 Clinical Effectiveness Many components contribute to demonstrating clinical effectiveness including quantitative data, Key performance indicators, audit and an overarching, strong clinical governance steer. Data collection at St Teresa’s Hospice has developed significantly over recent years due to the installation of SystmOne patient information system. However, reporting continues to be a challenge due to the design of original data inputting templates, this has been acknowledged and addressed and as a consequence over coming months confidence in data will grow so that dual recording mechanisms can stop and the Hospice can rely on a “paper-light” system. All departments are now paper light except IPU (paper systems are reduced, however are still necessary for Medication Charts and some patient held information such as DNACPR forms). During 14/15 the Data Quality manager has perfected data collection, however, when comparing previous years data, it has been recognised that there are some inaccuracies and that in some areas statistics have been counted twice. Hospice Performance against National Council for Palliative Care Minimum Dataset The Hospice collects statistical information on activity and submits this to the National Council for Palliative Care for inclusion in a National Minimum Dataset (MDS). This allows comparison of local data to the national average similar sized Hospices. The following table displays performance of St Teresa’s Hospice to the National MDS from the previous reporting year, as the actual data for this accounting period will not be available until September 2015. Comparing St Teresa’s Hospice to the National Minimum Dataset Area Inpatient Services Total number of Patients Total New Patients Re-referred Patients Average Bed Occupancy Cancer Diagnosis (%) Non Cancer Diagnosis (%) Average length of stay (days) Died in Hospice (%) Discharge care home (%) Discharge acute (%) St Teresa’s Hospice 2011/2012 St Teresa’s Hospice 2012/2013 St Teresa’s Hospice 2013/2014 St Teresa’s Hospice 2014/2015 Nat’l Min. Data Set 2012/13 181 141 134 106 - 122 131 128 93 - 14 6 6 11 - 86% 64% 69% 55% 75% 82% 84% 83% 83% 87% 18% 13% 11% 17% 11% 7.7 8.1 8.6 11.42 13.4 40% 46% 51% 63% 55% 1% 5% 4% 3.7% 4% 2% 2.5% 5.50% 4.7% 2% 19 Area Discharge home (%) St Teresa’s Hospice 2011/2012 St Teresa’s Hospice 2012/2013 St Teresa’s Hospice 2013/2014 St Teresa’s Hospice 2014/2015 Nat’l Min. Data Set 2012/13 49% 33% 35% 26.4% 38% Other Day Therapy Total number of Patients treated Number of New Patients Total Days available places Total Places attended Total Places booked DNA Average length of care (days)* Cancer Diagnosis (%) Non Cancer Diagnosis (%) Hospice at Home Total Number of Patients treated 0% 13.5% 5% 1.8% 1% 146 121 129 129 - 80 54 70 81 - 3920 3840 3900 3240 - 1947 1852 1794 1578 - 794 847 873 637 - 300 326 287.5 226 183 80% 65% 62% 64% 78.% 20% 17% 36% 36% 18% 184 182 196 101 - New Patients Patients died in Hospice (%) Patients died at Home (%) (achieving PPC) Patients died acute or Community Cancer Diagnosis Hospital (%) (%) 132 132 137 94 - 15% 12% 22.50% 2% - 68% 68% 65% 95% 49.8% 1% 0 0 2% 24% 52% 55% 53.50% 78% 80% 48% 45% 40% 22% 16% 127 120 88 37.8 115 Non Cancer Diagnosis (%) Length of Care (days) *Day Hospice Transformation 14/15 figure represents CHOICES Programme only In Patient Unit During the accounting period the Hospice had a total of 106 patients on the In Patient Unit, 93 of which were new referrals. Bed occupancy was 55%, which was lower than the MDS at national average of 75%. 83% of the In-patient population were treated having a cancer diagnosis compared to the MDS of 87%, this figure has remained stable for several years. Average length of stay was 11.4 days, an increase on previous years but is shorter than the national average of 13.6 days which also includes planned respite which we do not currently offer due to limitations on capacity. The number of patients dying in the Hospice is also higher than national average at 63% compared to the MDS of 55%. The majority of referrals were for symptom management followed by End of Life Care. The overall picture demonstrates that patients are coming into the Hospice and staying 20 longer than previous years and also more patients are choosing the Hospice at the end of life, suggesting we are seeing more complex patients. Although our occupancy is lower than previous years, we have had a waiting list in operation throughout the year on many occasions. It can be suggested that the longer length of stay and the reason for referral have significance in relation to occupancy, as only mobile/wheelchair patients can be admitted into the upper first floor of the building as the stretcher lift provides access only to the lower first floor, the data suggests a more poorly cohort of patients have been accessing the service and whilst occupancy appears low, we could not admit more patients possibly due to limitations of the building. (There has been a waiting list in operation on several occasions when we have only had 3 patients on IPU as we cannot admit stretcher patients to upper first floor). Bar Chart demonstrating Reason for Referral to In Patient Unit 2014-2015 Reason for Referral to IPU 45 40 35 30 25 20 15 10 5 0 Qtr 1 Qtr 2 Symtpon Control Qtr 3 End of Life Crisis Respite Qtr 4 Not recorded Day Hospice The Day Hospice has undergone transformation during the accounting period. The Day Hospice now includes the pioneering CHOICES programme, 3 days per week and disease specific clinics, 2 days per week (Neurology, Respiratory, Heart Failure). The total number of places for CHOICES was 3240, with an attendance rate of 1578. However, attendance to Day Hospice overall was 4798, a significant increase on total attendances when compared to previous accounting period when total attendances were 1794. Individual patient attendances to Day Hospice increased from 129 patients in 13/14 to 358 patients during 14/15. Average length of care was longer than the national average of 183 days with Hospice average length of care being 226 days for CHOICES programme, however, we expect this to come in line with national average as the CHOICES programme is embedded (operates on a 12 week programme). 21 In CHOICES programme 64% of patients had a cancer diagnosis, however, looking at Day Hospice overall the non-cancer population accounts for 41% of the total population. The Day Hospice transformation has achieved its aim of improving access and REACH to non-cancer patients. Service evaluation has been extremely positive from all patients attending. Hospice at Home The Hospice at Home service supported 101 patients during the accounting period, 94 of these patients were new referrals. In addition, there was a further 30 referrals to the service, taking referral rate to 132, however, no action could be taken due to either the patient dying before first visit, declining the service or service being at capacity. 95% of those patients supported who reported home as their preferred place of care, were supported to die at home compared to a national average of 50%. Again the Hospice was able to support non-cancer patients extremely well with 22% of total patients having a non-cancer diagnosis compared to a national average of 16%. Bar chart showing total Hospice at Home Hours of Care provided 2013/2014 Hospice at Home no of visits provided No of Visits 100 80 60 40 20 0 22 General Information The total number of patients accessing all services in the graph below appears to be less than previous years. However, in reality in previous years, data quality was less accurate, patients were counted every time they accessed a different service. 2014/2015 represents individual patients. Bar Chart of Total number of people accessing our services cumulatively (Patients, Carers and Bereaved) Individual Patients 900 800 700 600 500 400 300 200 100 0 2010/11 2011/12 2012/13 2013/14 2014/15 The bar chart below actually demonstrates that overall patient referrals across all services have remained fairly static. Bar Chart of Total number of people accessing Hospice by service type No of Patients Accessing Each Service 400 350 300 250 200 150 100 50 0 2010/11 IPU 2011/12 Day Hospice 2012/13 Hospice at Home 2013/14 Family Support 2014/15 OP NB During 14/15 outpatients are included with Day Hospice activity due to transformation. 23 The bar chart, shows an apparent reduction in IPU, Hospice at Home and FST however, in reality this is not the case but more accurate data collection has allowed us to count actual patients, avoiding duplicate counting when a patient accesses more than one service. The Bar Chart does demonstrate the enormous success of Day Hospice. Key Performance Indicators (KPI) 2014-2015 The Hospice reports quarterly on Key Performance Indicators to meet contractual requirements. A summary of the performance for the accounting period can be seen below. Performance against KPI has been excellent in the majority of areas where there are shortfalls explanations are provided. 24 Measure Time for In-patient referral to decision to admit/not to admit Number of Inpatients who have been offered an Advance Care Plan Threshold 90% within 2 hrs Q1 92% Q2 92% Q3 97% Q4 100% Notes 90% 0% 86% 86% 80% Number of inpatients who are on Liverpool Care Pathway or equivalent at time of death Inpatient bed availability (i.e. are all beds available for usenot vacant beds) Inpatient bed occupancy 90% 22% 0% 0% 0% ACP are not appropriate for patients admitted for End of Life Care LCP Phased out July 2014 95% 85% 91.5% 78% 88% Maintenance work accounts for reduction 85% 55% 59% 62% 64.5% Explanation provided in detail above % Of Day Hospice/Outpatients receiving a care plan Time from Day Hospice/outpatient referral to assessment 100% 100% 100% 100% 100% >90% within 7 days 100% 100% 83% Hospice at Home- record made as to whether patient has an Advanced Care Plan Hospice at Home- referral for assessment made to key worker within 24 hours for those patients who don’t need an Advance Care Plan 100% 100% 100% 100% 100% >95% 100% 100% 94% 50% 70% Changes to “assessment day” as part of Transformatio n Shortfall when RGN has completed ACP rather than referring to DN- but an improvement for pt. Measure Hospice at home- number of patients who the service are facilitating nursing care at their time of death whose referred place of care is achieved Family Support team and Bereavement – client to be contacted within 7 working days of receipt of referral Family Support team and Bereavement- client assessment to commence within 15 working days of receipt of referral Family support team and Bereavement- written assessment of needs and action plan agreed with client Family support team and Bereavement- family and friends of deceased to be supplied with information/card about the bereavement service within 7 days of the service being notified Family support team and Bereavement- Hospice to have an individual service action plan with clear objectives and delivery dates Threshold >85% by 31st March 2014 Q1 100% Q2 91% Q3 Q4 100% 75% >95% 100% 98% 97% 98% >95% 80% 96% 94% 97% 100% 100% 100% 100% 100% 100% 96% 100% 100% 94.5% 100% 100% 100% 100% 100% Notes 25 Patient related Outcomes The Hospice is in the process of introducing patient related outcome measures. This means measuring the efficacy of their care. The MYCAW tool allows a patient to score their “problem” for example pain, or nausea prior to treatment and following a course of 6 treatments. The Graph below demonstrates that every patient using MYCAW receiving acupuncture has improved significantly as a direct result of treatment received. A broader range of patient related outcome measures will be introduced during 15/16. Complementary Therapy MYCAW Scoring Local Audit To ensure high quality of services audit is important and the annual audit programme is now well established using nationally agreed formats such as Help the Hospice audit tools and also locally developed audit tools. For audits undertaken, action plans for improvement are developed, and monitored by the clinical governance sub group. This enables us to monitor quality and make improvements where needed. All clinical staff are encouraged to participate in at least 1 audit per annum and audit is on every staff meeting agenda. The audit programme for the forthcoming year will focus on patient outcomes as well as processes. Clinical Governance There is a strong culture of continuous improvement at the Hospice. Clinical Governance systems and processes have dramatically improved and the Hospice has a Clinical Governance Sub strategy with a dedicated annual work plan, performance managed by the Clinical Governance subcommittee of the Board of Trustees. The work plan, updated annually focuses on key areas of improvement, across patient safety, clinical effectiveness and patient experience. 26 Safeguarding All clinical staff have received safeguarding training appropriate to their required level. Deprivation of Liberty training has also been delivered and annual refresher training planned. Other Quality Initiatives 2014-15 During the accounting period the additional Quality Initiatives have been introduced: Development days- Quarterly development days for In Patient staff have been established, these are themed education and training days which focus on either patient safety or clinical effectiveness. Every member of the IPU team attends (IPU covered by bank staff). Care of Dying Patient –The Hospice has taken part in the North East pilot for the “Care of the Dying Patient”. The documentation is intended to replace the Liverpool Care Pathway and the Hospice will introduce the new documentation internally and cascade training locally to GP’s, District Nurses etc. Patient handover- The patient handover documentation and processes has been reviewed and improved Patient Discharge – Patient Discharge process has been reviewed and improved Medicines Management – The Hospice procurement of medicines has been reviewed in light of new MHRA guidance. A new system is under negotiation. Deprivation of Liberty Safeguards – DOLS- The Hospice reacted quickly to new national guidance regarding DOLS and has trained every appropriate staff member. Protected Learning Event for GP’s- All Darlington practices attended a PLT in Palliative Care during April 2015, the programme was designed to provide education in symptom management at the end of life and to develop a strategic vision for integrated working. 27 3.3 2014/15 Patient, Carer, Staff and Volunteer Experience Staff Experience Staff experience is measured in three ways: Accurate monitoring, reporting and review of sickness levels Confidential annual staff experience survey Line management support including 1:1 contact meetings and annual Appraisal process. Hospice Staff Sickness levels The reporting system for staff sickness in all departments is now firmly established and a report produced quarterly for the HR Sub Committee of the Board of Trustees and monthly updates provided to department heads. Capability procedures and sickness monitoring systems enable any worrying trends to be identified; however, there are no current trend alerts. The average sickness rate was 4.42% per wte. Confidential Annual Staff Experience Survey An annual staff experience survey was carried out with an 85% response rate. Overall, staff morale displays no worrying trends. Line Management and Appraisal The Hospice ensures all staff regularly meet with their line manager for contact meetings and have an annual appraisal, 100% of staff received an annual appraisal during 2014/2015. The Hospice management also operates a vital open door policy. Clinical Supervision All clinical staff are offered the opportunity to partake in clinical supervision and this is a firmly established practice. During the accounting period, this has also been extended to administrative staff, recognising that they can also have potentially distressing conversations with patients and their families. Clinical supervised practice is reviewed annually to ensure it is effective, and as a result of this year’s review a new supervisor has been identified. Board Development The Hospice Board of Trustees is currently going through a Board Development programme and new members have been elected onto the Board. The Hospice has a strong management structure in place with a Chief Executive Officer with delegated responsibility from the Board who is supported by a Deputy CEO/Director of Clinical Services and Finance Director, additional members of the Strategic Management Team include the Operations Manager, Head of Nursing and Education Manager. The following officers are also in place: Anti-fraud officer (Hospice Trustee) Caldicott Guardian, (CEO) responsible for safeguarding patient information 28 2 Privacy officers (CEO & Deputy CEO/Director of Clinical Services) Accountable Emergency Officer (CEO) Prevent Lead (Hospice Trustee) Accountable Officer for medications, (Hospice Education Manager) Volunteer Experience Throughout the year we have held 4 induction courses for prospective volunteers who wish to help at the Hospice, this has totalled 60 people, and most of those who attend do go on and contribute in some way at the Hospice as a volunteer. We have been delighted to welcome volunteers into the In Patient Unit, Day Hospice, kitchen, driving, complementary therapies or the shops and warehouse. Some of the volunteers are students either from Sixth Form College, Gap year students or Access students or newly retired people as well as others who are looking for a fulfilling volunteer role at this stage in their life. In addition to the induction courses we have also held extended visits for 22 Sixth Form students who are looking towards a career in the medical profession. Following the visits, those who wish to pursue volunteering are offered the opportunity to attend the induction course and there are opportunities for them to help on the In Patient Unit either at teatime or at weekends. We have held an education programme for volunteers, this covered Food Hygiene, Moving and Handling, Fire training and an update on services offered by the Hospice. We have also started a programme of visits for shop volunteers so that they can see the Hospice and hear and understand the range of work that goes on for patients with life limiting illnesses so they can inform customers and people in their communities about our work and the opportunities that are available for those in need. Education and Training Induction - The Hospice continues to develop the induction programme and the Education Manager is developing a standard operating procedure for all managers to follow when inducting staff. GP and student placements - GPs access the Hospice for palliative care placements whilst completing the Diploma in Palliative Medicine, and medical, nursing and social work students are present throughout the year. Palliative Care Core Competencies – Core competencies for Health Care Assistants are in place and are being developed for Registered Nurses and will be introduced during the summer 2015. Journal Club- A monthly journal club runs with different departments taking a lead, an “article library” has also been introduced to improve staff research awareness. Dementia Awareness - Is continuing to be a high priority with the aim that all clinical staff access the advanced Alzheimer’s accredited training. The Hospice is also part of a support group developed with other Hospices to share best practice. Volunteer Training has been introduced in the last year for all Hospice based volunteers. In addition, three volunteers have been trained in Moving and Handling skills to enable them 29 to support the Neurological Clinic. All volunteers have also been given an opportunity to complete the dementia awareness workbook and have received training on hand hygiene, equality and diversity, fire training, updates on clinical services and much more. The Family Support Team run an extensive programme of education for all their volunteers in areas such as attachment theory, creative writing, grief loss, bereavement and mindfulness. There is a continuous programme of personal development and supervision. The FST also continue to support schools as requested. Mandatory Training- There is a programme of mandatory training in place and identified mandatory training mapped to specific roles. All clinical and non-clinical staff now undertake Dementia Awareness Training, as part of the mandatory training. Education in Care Homes - We have commenced education in Care Homes in partnership with Teesside University around palliative care. Management Training Programme- Our second six month management training course is underway and will finish in May 2015. This enables the development of management and leadership skills for department heads. The Complementary Therapy lead has completed his BSc in complementary therapy and the Nurse Consultant has started an MSc in Health and Social Care Studies (End of Life Care). We have several Health Care Assistants completing an Introduction to Palliative Care, for People with Cancer and Long Term Conditions, at Teesside University (run by the Hospice Education Manager). All staff have appraisals where education needs are identified and mapped against Hospice Strategy. Awards and Complaints The Hospice has the 'two ticks' positive about disability symbol, which is awarded by Jobcentre Plus to employers who have made commitments to employ, keep and develop the abilities of disabled staff (renewed annually on submission of return). The Hospice is awarded the FRSB symbol, being regulated by the Fundraising Standards Board: the regulator of charity fundraising in the UK (renewed annually on submission of return). Several volunteers received awards at the last Evolution Darlington (volunteer bureau) presentations. The Hospice was awarded the 5 star Food Hygiene Award by Environmental Health Feb/March 2015. The Hospice was highlighted in Hospice UK (formerly Help the Hospices) Dementia Project as a beacon Hospice of good practice for Dementia Care. The Hospice receives many letters of thanks and recommendations from patients and families which are celebrated with staff teams. Complaints are seen by the Hospice as an integral part of service improvement as they provide valuable feedback about the quality of service we are providing. Complaints are rarely received. In the reporting period, 2014/2015 no patient complaints were received. However, the Hospice does have a complaints process in place. Serious Untoward Incidents and Never Events would be reported to both the Care Quality Commission and Clinical Commissioning Groups. 30 Patient and Service User Satisfaction St Teresa’s Hospice continues to invest significant time in exploring patient and service user experience over the past year. User feedback has been sought in a variety of ways including the following: Patient Questionnaires Carer Questionnaires Semi-Structured Interviews Focus Groups Suggestion Boxes Use of patient outcome measures e.g. MYCAW Additional, volunteered information is also recorded from comments, thank you cards, letters and feedback on the Hospice website. All of the methods of seeking patient and carer feedback have been valuable, but one of the most valuable has been semi-structured interviews, conducted by a Hospice Trustee; feedback has enabled us to improve patient care almost instantaneously. All comments are discussed at the monthly Strategic Management meeting, and “what you said, what we did” developed for example; What you said- Carer indicated difficult to drop off patient What you said- Patients requested Wifi What we did- Made a “no parking area, drop off only adjacent to reception” What we did- Provided Wifi access in IPU lounge What you said- Patient requested music in treatment room What we did – Music available now in all treatment rooms Comments from the Inpatient Unit: “I am eternally grateful for the absolutely wonderful way in which you looked after her and made her departure from this world so peaceful.” “Just a big “thank you” to all the staff who cared for xxxx during his brief admission 21st/22nd October. The care he received was excellent and he was able to die peacefully surrounded by staff who provided excellent care” Comments from the Day Hospice: “Thank you all for keeping me alive, you are all lovely people.” “Thank you so much for your kindness and friendship and for looking after me so well in the time I have been at St Teresa’s”. 31 Comments from Hospice at Home: “.. being able to rest at night knowing mum was safe was invaluable and helped us cope with whatever came along during the day!”. “With grateful thanks for the services you have provided, without which I myself may have succumbed. Will remember you forever”. Comments from Family Support: “I have really appreciated the time during our sessions to reflect on, and try to make sense of so many things. I know there is no ‘quick fix’ but I think now I can face whatever the future holds, with all its up and downs.” “Thank you for helping me about my Grandad” The following letter was received during Q4 and has been included as it clearly outlines the value of what the Hospice delivers to patients and families, across all our service areas and our effectiveness and working across organisational boundaries to deliver seamless patient care. XXX was diagnosed with pancreatic cancer in mid-June 2013 and eventually had major surgery at the Freeman Hospital, Newcastle, on 3rd of August followed by a 24 week course of chemotherapy at Darlington Memorial Hospital starting on 30th October once the surgical wound had healed sufficiently. Treatment ended on 2nd April 2014 but we learned on 18th of June that the disease had returned at the bed of the earlier surgery. XXX was offered palliative radiotherapy/chemotherapy which she declined. XXX wish was that she should be cared for at home for as long as that was a realistic option and we managed to achieve this with the help and support of or GP surgery and the district and Macmillan nurses until what turned out to be the last 6 days of her life. She had also been previously referred to St Theresa’s Hospice and following an introductory visit XXX attended some counselling sessions and the day unit once but then declined any further participation. Her decision was not made because of any concerns about the quality of either activity but rather because visiting the Hospice reminded her of the stark reality of the state of her health and the terminal prognosis, realities that she was determined should not dominate what remained of her life. The Hospice arranged weekly home visits by a member of the family support team. Stephen always arrived on time and XXX looked forward very much to his visits which we both found of great help. We also had a visit from Helen, head of Hospice Care at Home, who detailed the at home and in-patient facilities and services provided by the Hospice. During the week of Monday 16th September, XXX condition began to deteriorate more rapidly and because she had become disorientated and somewhat delirious by Sunday 21 st I arranged a doctor visit via 111. He 32 diagnosed possible urinary tract infection and prescribed antibiotics but her condition continued to deteriorate and following an early morning 111 call on Tuesday 23rd a nurse visited late morning to assess XXX. Helen visited about 2 hours later. She indicated that a bed would be available in the In Patient Unit and that transport would arrive within an hour to take XXX to the Hospice. Once admitted, XXX received care that I can only describe as truly exceptional, delivered by a team of amazing professionals clearly skilled in caring for terminally ill patients in what I would class as a haven of peace and tranquillity. Her admission to the Hospice lifted an enormous burden from my shoulders. Within 2 days the team had achieved control over XXX symptoms. She became very settled spending progressively less time awake until she died peacefully on Monday September 29 th. I was fully briefed about the care plan when XXX was admitted and was fully informed throughout her stay. I discussed the situation with members of the Hospice team each morning, during each day and last thing at night before I left the premises. Although XXX was the main focus of the team’s attention, there was also a very keen interest in how I was coping and that continues today. At no time did I have even the slightest concern about the quality of XXX care. Although the outcome was sadly inevitable, I remain eternally indebted to St Theresa’s Hospice for the superb care provided to my late wife.” Patient Questionnaires and Evaluations During 2014/2015, the Friends and Family test has been introduced. We received 111 responses and of these 103 patients reported they would be extremely likely to recommend our service to Friends and Family. The following bar chart demonstrates both improvements made over the year in distribution and return of the questionnaires following improved engagement with service leads, and the overwhelmingly positive response highlighted in returns. FFT Distribution and Responses 2014/15 70 60 50 40 No Distributed 30 No of Responses 20 No of "Extremely Likely" 10 0 Quarter 2 Quarter 3 Quarter 4 33 3.4 Other Comments from Partners & Stakeholders Partnership Working with CDDFT, Jane Haywood, Clinical Director Adults and Integrated Services: “The district nursing staff work closely in partnership with St Teresa’s to improve the quality of life, for those patients living with a life limiting illness. Together with the hospice the community nursing team undertakes; Emergency Health Care Planning DNACPR Advanced care planning. Shared care of patients Wherever possible we provide integrated services to ensure the highest quality of care” Partnership-working with Macmillan, Andrea Williams, Service Development Manager: “Macmillan Cancer Support has worked in partnership with St Teresa’s Hospice now for 2 ½ years and have co-created therapy and assistant posts to support people affected with cancer. The partnership has been hugely beneficial to patients as the national and local Charities have worked together to develop measurable, key patient outcomes. The Day Hospice transformation over the past year has allowed even more patients to benefit from the rehabilitation model of care. The investment Macmillan has made in the service has been beneficial and it is great to see ongoing progress” Partnership-working Macmillan Team, North Yorkshire, Jane Bond Macmillan Nurse: “From a personal and professional perspective the service supports me in knowing that patients and carers truly have a multidisciplinary team around them, giving more opportunities to identify and address concerns and provide additional and/or alternative support to the Macmillan Community Service Partnership-working with Marie Curie Karen Torley, Divisional General Manager, NE: “The development of the Darlington Community Rapid Response Service is testament to the effective partnership working between St Teresa’s Hospice and Marie Curie. This is an innovative project which has influenced other provision and demonstrates the efficacy of local and national charity partnership work.” St Teresa’s Hospice Comment (extract from our Quality Assurance Policy) All feedback is invaluable. We encourage positive comments and we ensure that service users are aware of how to make complaints. We see these feedback mechanisms as providing vital intelligence to help us to learn and to continuously improve our services at St Teresa’s Hospice. 34 Supporting Statements St Teresa’s Hospice Quality Account 2014-15 The Board of Trustees Statement As we approach our 30th Anniversary year, this Quality Account document is evidence of the ongoing commitment of St Teresa's Hospice to deliver safe, effective, patient-centred end of life and palliative care, that is timely, efficient and equitable. It demonstrates also the ongoing commitment of our organisation to move with the times, to respond to changing demographics and to identify unmet needs in our community and having done so, to make every possible effort to fulfil those needs. The development of our new purpose built in-patient unit, improvements in day hospice care and the delivery of a satellite day-hospice service in North Yorkshire are just a few examples of this commitment in action. This Quality Account also reflects the commitment of St Teresa's Hospice to the delivery of an holistic model of care, the hallmark of the Hospice Movement; ensuring that compassion takes centre stage in our care and giving our patients and their families the time and support they need. The value placed on our services by those we serve is reflected in the amazing feedback and practical support we receive from the local community in fundraising and volunteering for the hospice. The Board of Trustees remains confident that the robust organisational framework that has been established by our Chief Executive and Senior Management Team will ensure that we are successful in achieving our aims and Board members are further assured by actively participating in corporate and clinical governance activities. Dr Harry Byrne, Chairman Endorsement by Senior Directors We the undersigned confirm this Quality Account as a true and accurate assessment of the standards at St Teresa’s Hospice: Dr Harry Byrne Jane Bradshaw Chairman, Board of Trustees Chief Executive Victoria Ashley Nicola Myers Director of Clinical Services Finance Director 35 Darlington Clinical Commissioning Group Statement Statement from Darlington Clinical Commissioning Group for St Teresa’s Hospice Quality Account 2014/15. The CCG welcomes the opportunity to review and comment on the Quality Account for St Teresa’s hospice for 2014/15 and would like to offer the following commentary. As commissioners, Darlington Clinical Commissioning Group (CCG) is committed to commissioning high quality services from St Teresa’s Hospice and take seriously their responsibility to ensure that patients’ needs are met by the provision of safe, high quality services and that the views and expectations of patients and the public are listened to and acted upon. Overall the CCG felt that the report was excellent, well written and presented in a meaningful way for both stakeholders and users and provides an accurate representation of the services provided during 2014/15 within the Hospice. We recognise the work that the Hospice has undertaken to drive quality improvements throughout the year particularly around patient experience, clinical effectiveness and patient safety. The changes implemented as a result of patient and carer feedback, in particular the inclusion of this feedback within the monthly Strategic Management meetings is to be commended. The Hospice’s structured approach to governance and quality improvement is demonstrated by the development of the two lead nurse roles with clearly defined responsibility for clinical leadership and operational management. We further welcome the continued compliance with the commissioning for quality and innovation (CQUIN) schemes agreed with ourselves throughout 2014/15. The CCG is pleased to see the progress made in embedding clinical risk management processes within the Hospice and supports the work undertaken to improve staff awareness of incident reporting procedures. The introduction of a named nurse allocated to each patient is viewed as a positive step towards ensuring professional accountability and continuity of care is maintained. The CCG also acknowledges the data quality improvements that are being realised following the implementation of SystmOne. Darlington Clinical Commissioning Group (CCG) welcome the specific priorities for 2015/16 highlighted in the report and feel that they are appropriate areas to target for continued improvement. The CCG look forward to continuing to work in partnership with the Hospice to assure the quality of services commissioned in 2015/16. Lisa Tempest Chief Finance and Operating Officer Darlington CCG 36 Hambleton, Richmondshire & Whitby Clinical Commissioning Group Statement 37 Comment from Healthwatch, Darlington Feedback from Healthwatch Darlington on St Teresa’s Hospice Quality Accounts 2014-2015. These comments are on behalf of the Healthwatch Darlington Limited Board and active volunteers. Healthwatch Darlington have welcomed the opportunity to comment on the Quality Account and look forward to an active involvement in the coming year. We are pleased to note the accounts have been written in a very open and honest manner and are easily understandable for the public. Healthwatch Darlington members have been pleased to see a lot of progress has been made towards the previous Aspirations in particular the work around patient safety and experience. Under the Patient Safety section of the Account we are happy to note that no falls had resulted in major injury and there had been zero avoidable pressure ulcers during the reporting year. It is comforting to note that where incidents are reported and investigated, plans for improvement are applied. Healthwatch Darlington is pleased to note such high figures under the Key Performance Indicators (KPI’s) section of the document. The group were happy to read about the support and training given to volunteers and the awards received by them. Again, we are happy to note the staff support and experience, and applaud the 100% appraisal monitoring and the operation of a vital open door policy. The comments received about the service are inspirational and we have heard nothing but positive things from local residents. Healthwatch Darlington agree with all of the aspirations for the upcoming year and look forward to observing the development of the 10 bedded inpatient unit. Thank you for involving Healthwatch Darlington in the Quality Account, we look forward to working with St Teresa’s Hospice in 2015-2016. 38 Comment from Health & Partnerships Scrutiny Committee, Darlington Health and Partnership Scrutiny Committee Response to St. Teresa’s Hospice Quality Accounts 2014/15 Health and Partnerships Scrutiny Committee is happy to respond to the Quality Accounts which are comprehensive and written so as to be easily understood by the public. The inclusion of comments from parents and carers is good and reflects the excellent care provided by staff and volunteers. Future Improvement/Aspirations for 2015/16 1. The Committee is pleased to note the continuing aspiration to provide a purpose built 10 bedded Patient Unit. The Hospice is planning for future needs of patients, taking into consideration demographic changes and the limitations and challenges of the existing building. We wish them well and hope they are successful in commissioning this Unit by April 2016. 2. We welcome the aspiration to develop a comprehensive, Hospice based Lymphoedema service. It seem that this service has been somewhat fragmented and we are pleased to note the commitment to work with partners to provide a more streamlined service, with a dedicated Lymphoedema Practitioner, referral pathway for GP’s, training, a patient self-management group and development of networks within the locality. We feel that this will provide a much better patient experience as well as potentially reducing hospital admissions. 3. This refers to exploring the role of St Teresa’s Hospice in Transitional Care. The Committee is pleased that this has been identified as a priority to meet the needs and support younger people. Committee would welcome the opportunity to consider recommendations when the report becomes available. 4. The Committee notes the aspiration to develop a Day Hospice Satellite for North Yorkshire Patients which will give them access to beneficial services closer to home. The Committee has considered the evidence presented in respect of the Aspirations for 2014/15 and has made the following comments:1. The plan to provide the 10-bedded purpose-built In Patient Unit is on track and this aspiration will continue into 2015/16. 2. We are happy to note that the aspiration to have a named nurse for each patient within the In Patient Unit has been achieved and indeed the Hospice seems to have gone above and beyond the original ambition. 3. We note the significant progress made in the range of services offered to non-cancer patients and are pleased that the Hospice recognises the needs of patients with other life limiting conditions. 4. This Committee notes the progress made in Clinical Risk Management and the proposals for the 39 future including Patient Related Outcome Measure (PROM). Finally, the Hospice is to be commended on achieving full payment of 3 CQuINS – Friends and Family Test, Patient Safety and Day Hospice Transformation. Councillor Wendy Newall, Chair, Health and Partnerships Scrutiny Committee 40 St Teresa’s Hospice | The Woodlands | Woodland Road | Darlington | DL3 7UA 01325 254321 | enquiries@darlingtonhospice.org.uk www.darlingtonhospice.org.uk 41