May 9, 2013 Fibromyalgia Stephen K. Holland, MD Chief Medical Officer Univita Health, Inc. Long Term Care International Forum, New Orleans Agenda • Amen to underwriting • How common are LTCI claims for fibromyalgia? • One Carrier’s LTCI claims experience • Can we actively manage fibromyalgia claims? • Conclusions Fibromyalgia and Disability UNUM Long Term Disability Claims 1. Cancer 12.1% 2. Complications of pregnancy 11.7% 3. Joint/muscle/connective tissue 10.1% 4. Back Injuries 8.1% 5. Cardiovascular disease 8.0% UNUM Corporate Disability Data Base, 2010 Fibromyalgia Understanding LTCI Claims Experience LTCI Claims Experience Carrier A - TQ Group LTCI policy 150,000 active members, Average Issue Age 69.0 years 73% Comprehensive, 22% Facility-only, 4% Partnership Gender: 60% Female, 40% Male Average policy duration: 11.7 years (max 17+ years) Over 16,840 paid claims, average paid claim: $66,816 Paid Claims: 75% Closed, 25% Open; attained age 81.5 years 29% recovered, 68% deceased, 2.6% exhausted benefits - Average Open Claim: $93,067, Average Recovered Claim: $23,111 - Average Deceased Claim: $58,821, Average Exhausted Claim: $116,376 2.5 million member years of exposure, $1.125B paid to date Univita LTCI Underwriting and Claims Data Base 2013 LTCI Claims Experience Risk Pool Disability Profile - 25% Cognitive Impairment (CI) - 45% 2+ ADL dependency - 30% Combined ADL dependency & CI Setting of Care - 56.8% Home Health Care - 30.5% Assisted Living - 12.7% Nursing Home Univita LTCI Underwriting and Claims Data Base 2013 LTCI Claims Experience Most frequent paid claimed events* 1. Pure Dementia 2. Cancer 3. Stroke 4. Fractures/Injuries/Falls/Gait issues 5. Arthritis and other Rheumatic diseases 6. Parkinson’s disease 7. Respiratory disease 8. CHF, Cardiomyopathy 9. Spinal disorders 10.Diabetic complications 24% 14% 11% 7% 5% 5% 4% 4% 4% 2% *Account for 80% of Paid Claims Univita LTCI Underwriting and Claims Data Base 2013 LTCI Claims Experience Most frequent paid claimed events 1. Pure Dementia 2. Cancer 3. Stroke 4. Fractures/Injuries/Falls/Gait issues 5. Arthritis &other Rheumatic diseases 6. Parkinson’s disease 7. Respiratory disease 8. CHF, Cardiomyopathy 9. Spinal disorders 10.Diabetic complications Mean $78,315 $15,874 $79,679 $56,588 $67,857 $76,830 $38,852 $43,658 $69,532 $34,766 Univita LTCI Underwriting and Claims Data Base 2013 LTCI Claims Experience Most frequent paid claimed events 1. Pure Dementia 2. Cancer 3. Stroke 4. Fractures/Injuries/Falls/Gait issues 5. Arthritis &other Rheumatic diseases 6. Parkinson’s disease 7. Respiratory disease 8. CHF, Cardiomyopathy 9. Spinal disorders 10.Diabetic complications Fibromyalgia Mean Median $78,315 $15,874 $79,679 $56,588 $67,857 $76,830 $38,852 $43,658 $69,532 $34,766 $68,562 $54,899 $4,024 $51,854 $26,406 $49,050 $53,119 $16,866 $23,575 $41,921 $21,699 $37,584 Univita LTCI Underwriting and Claims Data Base 2013 LTCI Claims Experience As of 12/31/2012: 22,119 Approved & 16,834 Paid Claims Fibromyalgia: 639 request for benefits • 532 approved (83% approval rate) and 421 paid Fibromyalgia 2.6% • Age at issue: 70.2 years • Age at time of claims: 79.9 years • $28,864,602 paid to date • $68,562 average claim payment All others: 27,903 benefit requests • • • • • Other than Fibromyalgia 97.4% 22, 119 Approved (89% approval rate) and 16,834 paid Age at issue: 69.2 years Age at time of claims: 77.3 years $1.12 Billion paid to date $66,799 average claim payment Univita LTCI Underwriting and Claims Data Base 2013 LTCI Claims Experience Typical fibromyalgia claim: 80 years of age, female, living at home Fibromyalgia complicated by OA and depression PCP care only 2+ ADL dependencies Home Health Care, 35 months, $68,322 paid Most costly claim to date: 84 years of age, female Fibromyalgia complicated by dementia PCP care only 5 ADL dependencies + cognitive impairment Nursing home, 11.4 years, $512,853 Univita LTCI Underwriting and Claims Data Base 2013 LTCI Claims Experience Age Distribution Fibromyalgia versus All Other Diagnoses 60% 50% 40% Fibromyalgia 30% All Others 20% 10% 0% ≤69 years 70-79 years ≥80 years Univita LTCI Underwriting and Claims Data Base 2013 LTCI Claims Experience 70% Gender Distribution Fibromyalgia versus All Other Diagnoses 60% Fibromyalgia 50% All Others 40% 30% 20% 10% 0% Female Male Univita LTCI Underwriting and Claims Data Base 2013 LTCI Claims Experience Fibromyalgia Location of Care Nursing Home 14.5% Assisted Living 26.4% Home Care 59.1% Univita LTCI Underwriting and Claims Data Base 2013 LTCI Claims Experience 70% Fibromyalgia versus All Other Location of Care 60% Fibromyalgia 50% 40% All Others 30% 20% 10% 0% Home Health ALF SNF Univita LTCI Underwriting and Claims Data Base 2013 LTCI Claims Experience Fibromyalgia Claim Closure 100% 90% 82% Closure Rate 80% 70% 60% Deceased Recovered 50% 40% 30% 20% 10% 0% ≤69 years 70-79 years ≥80 years Univita LTCI Underwriting and Claims Data Base 2013 LTCI Claims Experience 80% Claim Closure Fibromyalgia versus All Other Diagnoses 70% 60% Fibromyalgia 50% All Others 40% 30% 20% 10% 0% Recovered Deceased Exhausted Univita LTCI Underwriting and Claims Data Base 2013 LTCI Claims Experience 90% Claim Closure Fibromyalgia versus All Other Diagnoses 80% 70% Fibromyalgia 60% All Others 50% 40% 30% 20% 10% 0% Recovered Deceased Exhausted Univita LTCI Underwriting and Claims Data Base 2013 LTCI Claims Experience Age at Recovery 45% 40% Fibromyalgia versus All Other Diagnoses Fibromyalgia 35% 30% All Others 25% 20% 15% 10% 5% 0% ≤69 years 70-79 years ≥80 years Univita LTCI Underwriting and Claims Data Base 2013 LTCI Claims Experience Age at Recovery 45% 40% Fibromyalgia versus All Other Diagnoses Fibromyalgia 35% 30% All Others 25% 20% 15% 10% 5% 0% ≤69 years 70-79 years ≥80 years Univita LTCI Underwriting and Claims Data Base 2013 LTCI Claims Experience Time of Recovery 60% Fibromyalgia versus All Other Diagnoses 50% Fibromyalgia 40% All Others 30% 20% 10% 0% In Deductible ≤12 months 12-24 months Univita LTCI Underwriting and Claims Data Base 2013 LTCI Claims Experience Has there been anti-selection? – Research on incidence and prevalence of fibromyalgia is sparse – Little published about the natural history of this disorder – Very little information on levels of disability LTC Claims Experience Dementia Stroke Parkinson's Huntington's Fibromyalgia Cases Cases/1000 Members 4,069 1,686 811 16 421 19.57 8.11 3.90 0.08 2.84 Incidence per 100K Average % of Total Total Payments Mem Yrs Paid Claims Claim Exposure 162.8 67.4 32.4 0.64 14.0 $88,011 $86,223 $80,221 $140,469 $68,562 $358,118,113 $145,388,054 $65,058,989 $2,247,504 $28,864,602 Less than 10% of Fibromyalgia Claimants had the Disorder at Time of Application 31.9% 12.9% 5.8% 0.2% 2.6% Fibromyalgia as a Comorbidity Primary Diagnosis versus Comorbidity Cases Average Paid Open Average Paid Closed Primary Diagnosis 421 $144,790 Comorbid 788 $125,132 Open/Closed Approval Rate Recovered $51,770 6.1/2.2 yrs 83% 16% $39,735 4.9/2.2 yrs 95% 20% Duration Claims are Longer and More Expensive when Fibromyalgia is a Primary Diagnosis 22 Fibromyalgia LTCI Claims Can LTCI Claims for Fibromyalgia be Managed? The Spectrum of Benefit Eligibility Grey Zone Benefit Eligible 6/6 ADL Dependencies Three or More ADL Dependencies Two ADL Dependencies Ineligible for Benefits ADL Independent Careful Benefit Eligibility Determination is Critical Fibromyalgia Approval Rate: 83% Fibromyalgia All Other Approval Rate: 89.1% Univita LTCI Underwriting and Claims Data Base 2013 Active LTCI Claims Management • Higher non-approval rates at claim submission - Claimed event heavily biased towards IADL dependencies • Claim closure a challenge - Only 16% of closed claims close via recovery - More than 51% recover during deductible period - An additional 37% recovery during the next 36 months • There will be obstacles to recovery - IADL abilities slow to recover - Reinstatement of deductible - Depression is a major obstacle to recovery - Significant potential for secondary gain (DI, SSI, etc.) • There will be fraud Case Study 31 year old woman, comprehensive, unlimited lifetime benefits, $200 per day, Annual premium $996. Effective Date 4-1-1995, MGI 1st benefit period • 5-1-1997 Initial RFB, Financial advisor called stating insured is completely disabled and is in need of immediate assistance. He thinks she has lupus and some type of auto immune disorder. • 5-2-97: requested use of an IP , she has one in mind, Needs an IP as she is fearful or strangers in her home. Stated she needs help bathing and driving. • 5-2-97: Initial BEA: 31 year old female residing in a large nicely decorated impeccable home. Current support includes assist from church members and mother, reports diagnoses of fibromyalgia, chronic fatigue, immune dysfunction, chronic pain, arthritis in feet, claimant reports her chronic fatigue exasperates her fibromyalgia, resulting in severe depression with prolonged crying, followed by panic attacks. • BEA shows her to be dependent with B, D and IADL care. • Medical records requested prior to decision to approve – MD confirms chronic pain issues resulting in an inability to function and care for self. • Claimant requests 2 female Independent Providers (IPs) Case Study Ongoing Active Claims Management • 9-1-1997 claims exam notes that IPs replaced with a single male caregiver – Care Manger inquiries, on-site assessment attempted, claim goes inactive. • 10-5-1998 request for back payment of IP care from 9-15-1997 to 10-1998, submits letter from psychiatrist in support of ongoing dependency – Request for proof of payment, in-person assessment – multiple ADL dependencies – Surveillance, MD investigated – Claimant immediately reports that care ended and does not pursue back payment – Claim put on Fraud Watch Status 2nd Benefit Period 6-2002 • Auto Accident exacerbated fibromyalgia and chronic fatigue • Onsite assessment 6/6 ADL dependencies, requests IP • Insurance activity background investigation performed • Multiple claims with multiple insurers • IP request denied and no claims submitted Case Study 3rd Benefit Period 3-2005 • Called in to submit new claim due to exacerbated fibromyalgia and chronic fatigue • Referred to original Care Manager • Insured decided to drop request for benefits 4th Benefit Period 3-2005 • Called in to submit new claim due to exacerbated fibromyalgia and chronic fatigue • Referred to original Care Manager • Insured decided to drop request for benefits 5th Benefit Period 11-2009 • Called in to submit new claim anticipating hysterectomy • Referred to original Care Manager, requested auth for med records • No authorization received, RFB closed Active LTCI Claims Management Significant potential for fraud Symptoms are subjective LTC Insurance as a means of qualifying for SSI or DI Requests for Independent Providers and informal care Provider records poorly document daily function - Pain symptoms predominate - Provider as advocate Always entails a significant amount of investigation Useful investigatory tools Surveillance – direct and social media Coordination with other insurers Neighbor interviews Independent medical exam Active LTCI Claims Management What Can We Learn from Acute Care A disorder in search of a biomarker Often complicated by depression and fatigue Pain and limitations wax and wane Early mobilization and continued activities are critical Mode of therapy seems less critical Disabled patients should be managed by a specialist Active care management can be effective - Adequate analgesia and prescribed exercise program - Home Physical Therapy as bridge to outpatient therapy - Coaching and self management Fibromyalgia LTCI Fibromyalgia Claims Conclusions Conclusions Fibromyalgia is a fairly uncommon LTCI claimed event Most claims for fibromyalgia are shorter than others Early intervention is important – active claims management - Some will recover during their deductible period - A most recover during the first 12 months of claim Care Management can be very effective - Encourage close medical follow-up - Reach out to insured’s PCP and care manager; coordinate efforts - Encourage rehabilitation - A diagnosis highly associated with fraud Recognize and focus on mitigating obstacles to recovery