Review of the Medical Monitoring Project Outcomes of Interest Pilot Year Data MMP PAB/CAB Meeting May 31, 2007 Department of State Health Services Epidemiology & Surveillance Unit Sylvia L. Odem, MPH Project Coordinator Acknowledgements to the Pilot Year TX-MMP Team: Katharine Carvelli, Epidemiologist Mark Heinzke, Data Manager Sharon K. Melville, Principal Investigator Nita Ngo, Epidemiologist Jim Phillips, Data Collector Renee Ridgley, Data Collector Tammy Sajak, Co-Principal Investigator Jose Velez, Data Collector Simone Wooden-Jackson, Data Collector What is the Medical Monitoring Project (MMP)? A survey and medical chart review about the experiences and needs of people living with HIV and AIDS in the US Behaviors Clinical outcomes Type and quality of care received Identify met and unmet needs for HIV care and prevention services MMP Goals Determine access to and use of prevention and support services Provide local and national estimates for the population in care for HIV Examine variations of factors by geographic area and patient characteristics (i.e. risk behaviors, quality of care etc.) How you might use the MMP data Supplement your local needs assessments Determine need for new programs in your organization Use for grant applications and RFP’s Use as a benchmark for your programs Requests for special data runs Nationally Representative Three Stage Sampling Design 1st stage - Site 20 states + 6 cities randomly selected Chicago San Francisco New York City Philadelphia 2nd stage - Provider 40-60 facilities randomly selected - large, medium, and small LA County Houston Alaska Hawaii High Puerto Rico Medium Low 3rd stage - Patient 400 randomly selected patients MMP Success MMP PROVIDERS COMMUNITY MMP Data collection Pilot Year – 2005 Preliminary data 13 sites Sampled 27 facilities Sampled 150 patients 81 interviews 86 chart abstractions Project Year – 2007 Full year – all 26 sites participating Sampled 47 facilities 27 recruited to-date 400 patients to be sampled 400 interviews & abstractions to be done Demographics & Patient Characteristics Gender 100% 80% 84% 60% 40% 20% 16% 0% Birth Gender Female Male Race/Ethnicity B la c k 24% Whit e 45% R e f us e d t o A ns we r 1% O t he r 5% H is pa nic 25% Age by Race 30% 25% 20% 17% 15% 16% 15% 15% 10% 5% 7% 9% 7% 5% 1% 3% 1% 1% 1% 0% Under 30 30-39 40-49 Age White Black Hispanic Other 50-59 Age by Race 1 40 13 30 2 11 20 0 10 7 4 2 2 6 0 13 11 6 0 Under 30 (14%) 30-39 40-49 (21%) (48%) 50+ (18%) Age White Black Hispanic Other Education by Race White Black Hispanic Other Total Grades 1-11 6% 37% 25% 0% 18% Completed high school or GED 22% 37% 20% * 24% Some college, associate's degree or technical degree 44% 26% 45% * 39% Bachelor's degree or postgraduate studies 25% 0% 10% * 17% Total 45% 24% 25% 4% 100% *Cell suppressed for n<3 Age First Positive by Race 35 3 30 7 1 10 25 20 9 7 15 10 16 3 3 5 14 5 1 0 Under 30 (44%) White 30-39 40-49 (40%) (15%) Age Black Hispanic 50+ (1%) Other Number of Years HIV Positive 50% 40% 34% 30% 30% 18% 20% n=25 16% n=22 10% n=13 n=12 3% * 0% 0-5 6-10 11-15 Years HIV Positive *Cell suppressed for n<3 16-20 20+ Alcohol and Drug Use Alcohol or noninjection drug use in past 12 months n=21 Ever injected drugs Injected drugs in past 12 months 0% 57% n=46 25% 0% 15% 30% 45% 60% 75% Date of Last Injection and First Positive Date Last Injection After First Positive 33% Last Injection Prior to First Positive 67% Frequency of Alcohol Consumption in Past 12 Months* 50% 37% 40% 30% 22% 17% 20% 12% 10% 5% 5% 2% 0% More than Once a day More than Once a day once a week Once a week More than once a month Once a month Less than once a month *51% of those interviewed reported alcohol use in the past 12 months No. of Alcoholic Drinks in Typical Day in Past 30 Days 75% 60% 45% 40% 29% 20% 30% 9% 15% 3% 0% 1-2 3-5 6-10 > 10 No. of Drinks per Day Don't Know Drug Use in Past 12 months Other* 2% Ecstasy 2% A mphetamines 2% M ethamphetamines 4% P ainkillers 7% Do wners 7% Crack 11% P o ppers 11% 20% Co caine 52% M arijuana 0% *Embalming fluid 15% 30% 45% 60% 75% Mean Number of Sexual Partners in the Past 12 months Mean Male: Male Partner(s) 2 Male: Female Partner(s) 1 Female: Male Partner(s) 1 Male: Male Partner(s) 64% of men interviewed reported having male sexual partner(s) in the past 12 months n (%) Last partner main 21 (43%) Last partner casual 16 (33%) Anal sex 28 (57%) Unprotected anal sex* 13 (46%) Insertive partner* 5 (18%) Receptive partner 6 (21%) Insertive and receptive partner 17 (61%) Discussed HIV status before 1st sex w/ last partner* 8 (29%) *Among men who reported having anal sex in past 12 months Male: Male Partner(s) – Last Time You Had Sex Last Time You Had Sex: (n=39) Oral Sex Only 14 (36%) Sexual Partner was a Main Partner 22 (56%) Sexual Partner was a Casual Partner 17 (44%) Knew HIV Status of Last Partner 32 (82%) Partner was HIV+ 15 (47%) Partner was HIV- 17 (53%) Male: Female Partner(s) 10% (n=7) of men interviewed reported having female sexual partner(s) in the past 12 months Last partner main Last partner casual Vaginal Sex Unprotected vaginal sex 5 (71%) * 5 (71%) 3 (60%) Anal sex * Unprotected anal sex * Discussed HIV status before 1st sex * *Cell suppressed for n<3 Female: Male Partner(s) 46% (n=6) of women had male sexual partner(s) in the past 12 months Last partner main Last partner casual Vaginal Sex 6 (100%) 0 6 (100%) Unprotected vaginal sex * Anal sex 0 Unprotected anal sex 0 Discussed HIV status before 1st sex * *Cell suppressed for n<3 Access to Care & Need for Services Public Assistance and Homelessness in Past 12 Months 75% 56% 60% 45% 30% n=45 9% 15% n=7 0% Received Public Assistance Homeless *57% (n=4) of homeless were receiving public assistance Health Insurance Coverage Any Health Insurance 72% 43% Private or HMO 45% Medicare 34% Medicaid 0% 20% 40% 60% 80% Payment Method for HIV Meds & Other Meds in Past 12 Months Payment Method for Treatment n (%) Not on meds 6 (8%) Healthcare coverage 22 (27%) Received meds from public clinic 4 (5%) Out-of-pocket 2 (2%) Out-of-pocket & healthcare coverage 4 (5%) ADAP alone or in combination Other combination Other 27 (33%) 4 (5%) 12 (15%) Time to Start HIV Care 85% 100% 80% 60% 40% 15% 20% 0% ≤ 4 months ≥ 5 months Time between Positive test and Receiving HIV Care Reasons for Delay in HIV Care Didn’t want to think about being HIV positive (main reason) Felt good, didn’t need to go Too busy to go Didn’t want to believe HIV test results Drinking or using drugs Fear of being socially ostracized Felt meds were dangerous Need and Receipt of Services in the Past 12 Months Needed Not Received HIV Case Management 46% 14% Mental Health Counseling 30% 17% Social Services 25% 20% Help finding dental services 17% 7% Help with finding meals/food 17% 14% Transportation assistance 17% 29% Education or information on HIV risk reduction 16% 2% Help finding shelter or housing 12% 70% Help finding a doctor for ongoing medical services 7% 17% Adherence support services 6% 40% Home health services, such as home nursing care 4% 33% Chore or homemaker services 4% 33% Childcare Services 0% N/A Reasons for Not Receiving Services Needed Didn’t know where to go/who to call (n=12) Service not available in patient’s area (n=4) Waiting list too long (n=7) Transportation problems (n=*) Not eligible or denied services (n=*) Services too costly (n=*) *Cell suppressed for n<3 Receipt of Prevention Activity Items in Past 12 Months Free Condoms Free Needles Free Kits † † Received 36% (n=29) Used product 69%* (n=20) N/A N/A Now more likely to use 83%* (n=24) N/A N/A *Percentage computed using those who had received condoms as the denominator † 25% reported ever injecting drugs, but 0% have injected drugs in the past 12 months Free Condom Source % Community Health Ctr / Public Health Clinic 41% HIV/AIDS focused Community Based Org 24% Adult HIV/AIDS Specialty Clinic 24% Drug Treatment Program 7% Private Doctor’s Office/HMO 3% Other: Event 3% Preventive Therapies and Screenings Preventive Therapy Yes No Don’t Know Pneumocystis carinii pneumonia meds ever prescribed to treat/prevent 48% 49% 3% Mycobacterium avium complex meds ever prescribed to treat/prevent* 27% 55% 18% Pneumonia vaccine in past 5 years 68% 27% 5% Flu vaccine in past 12 months 83% 16% 1% Vaccine for Hepatitis A , B, or both 59% 30% 11% *Only prescribed to patients who have a CD4 cell count <49. Reasons For Not Receiving Hepatitis Vaccination Patient already has hepatitis Doctor indicated vaccine not necessary Patient did not believe they were at risk for contracting hepatitis Patient doesn’t like needles Patient was not aware vaccine was available Patient did not complete the series Ever Tested for and Ever Had Hepatitis 100% 88% 80% 68% 67% 60% 60% 38% 40% 21% 14% 20% 6% 0% Any Hepatitis Hepatitis A Had Hepatitis B Tested Hepatitis C Prevention: Tests Yes No Don’t Know TB skin test ever 95% 4% * Last TB test within past 12 months† 55% 35% 10% Last TB test positive 4% 90% 6% †Among patients who have ever had a TB skin test *Cell suppressed for n<3 STD Screening in Past 12 months 60% 44% 50% 37% 40% 30% 26% 27% 23% 20% 11% 10% 0% Chlamydia Gonorrhea Syphilis Herpes HPV Sexually Transmitted Disease NGU Female Sexual Health 100% 100% 77% 80% 60% n=13 n=10 40% 20% 0% Pelvic Exam Ever Pelvic in last 12 months Female Sexual Health PAP Smear Ever n=12 n=11 PAP at Last Pelvic* n=12 n=11 100% 42% n=5 n=5 Abnormal PAP Ever* 92% Follow-up to Abnormal PAP n=5 n=5 0% 20% 40% 100% 60% *Among patients who ever had a PAP smear 80% 100% Facility Type for Last Pelvic Exam Clinic/Doctor's office (not usual source of care) 8% OB/GYN Office 8% Usual Source of non-HIV Care 8% HIV Care Facility 76% CD4, Viral Load Tests & ARV Medications CD4 and Viral Load Tests in Past 12 Months CD4 Count Viral Load 0-2 tests 14% 14% 3-4 tests 57% 54% ≥ 5 tests 26% 27% Antiretroviral Usage 94% 100% 78% 80% 60% n=76 n=63 40% 15% 20% n=12 0% Ever Taken Antiretrovirals Currently Taking Antiretrovirals Taken Drug Holiday in Past 12 Months Drug Combinations of ARV Meds Currently Using Number of Drugs n=63 ≥ 3 Drugs* 27 (43%) 2 Drugs† 25 (40%) 1 Drug 8 (13%) *Includes combinations such as 3 nukes and 2 PIs; 3 nukes and 1 non-nuke; 3 nukes, 2 PIs, and 1 combination drug; 2 nukes, 1 PI, and 1 combination drug; 1 nuke, 1 non-nuke, and 1 combination drug †Including combinations such as 1 nuke and 1 PI; 1 nuke and 1 non-nuke; 1 nuke and 1 combination drug Reason Never Started Antiretroviral Treatment Doctor advised to delay treatment (main reason) CD4 counts and/or viral load good Felt good and didn’t need them Concerned about side effects Reason Not Currently on ARV Meds Doctor advised to delay treatment CD4 counts and/or viral load good Felt good and didn’t need them Concerned about side effects Allergic to medicines Tired of taking medicines Patient believed medicines complicate his/her life Last Time Missed Any ARV Dose* Within the past w eek 8% 1-2 w eeks ago 11% 3-4 w eeks ago 5% 1-3 months ago 11% 16% > 3 months ago 29% Never Skip 21% Don't Know 0% 10% 20% 30% *Among patients who were currently taking antiretrovirals 40% 50% Adherence to Medication Instructions in Past 2 Days 100% 80% 63% 60% 40% 17% 20% 5% 7% 7% 0% Alw ays Most of the Half of the Some of the time time time Never *Among patients who were currently taking antiretrovirals with special instructions Reason for Missing Doses of Antiretroviral Meds Forgot to take 41% Problems getting refill 22% Had problems taking at specified times 16% Felt too ill 13% Change in daily routine 13% Wanted to avoid side effects 6% Busy with other things 6% Couldn’t get to a doctor or clinic 6% Felt depressed or overwhelmed 6% Had too many pills to take 3% Other 16% Contact Information Email: TXMMP@dshs.state.tx.us Call Sylvia Odem, Project Coordinator at (512) 533-3053 National website under reconstruction Sign up for receiving newsletter