Appendix 1. Data Extraction Elements
Context
 Country
 World Bank Income group
 Language of plan
 Years covered by plan
 Organizational format of plan
Development
 Strategies used to prioritize interventions
 Stakeholder partners identified as participating in plan authorship
 Stakeholder planned partnerships for implementation of plan
 Framework
 Social determinants
 Cultural beliefs
 Traditional healer/ faith groups
 Health literacy
 Equity prioritization
 Equity prioritization components: access for poor; gender disparities; urban/rural
gaps; private/public gaps
Scope
 Prioritization of pediatric cancer (other than pediatric palliative care) in form of
investment promoted or planned
 Pediatric cancer specific needs/aims/objectives
 Mention of pediatric cancer facilities
 Mention of pediatric cancer-specific technologies
 Mention of pediatric cancer pharmaceuticals (curative or supportive)
 Mention of pediatric cancer specific treatment protocols
 Mention of pediatric cancer relevant human resources (child life, social work,
chaplain, nurse, child psychology, community health workers, patient navigators,
patient/parent experts)
 Pediatric-specific cancer prevention (vaccines, school-based promotion)
 Pediatric-specific early detection
 Pediatric-specific early and/or accurate diagnosis
 Pediatric-specific treatment
 Budget pediatric cancer
 Pediatric cancer crosstalk opportunities (hematology, infectious disease,
survivorship, genetics, adolescent/young adult)
 Prioritization of palliative care provision in form of investment promoted or
planned
 Palliative specific needs/aims/objectives
 Pediatric palliative care specific needs/aims/ objectives
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Upstream palliative approach
Access to pain medications (supply, culture)
Budget palliative care
Palliative care guidelines or frameworks specific for all ages
Palliative care guidelines or frameworks specific for pediatrics
Training (for general oncology, pediatric cancer, palliative care)
Research (for general oncology, pediatric cancer, palliative care)
Monitoring and Evaluation
 Pediatric cancer evaluation plan (targets, timelines, measurable outcomes)
 Palliative evaluation plan (targets, timelines, measurable outcomes)
 Mention of existing local cancer and/or pediatric cancer data
 Plan prioritizes creation/maintenance of cancer data
 Plan prioritizes creation/maintenance of palliative data
 Measurable equity targets
 Equity measures for access for poor (mention of universal insurance coverage;
insurance coverage for children)
 Equity measures for gender
 Equity measures for health literacy
 Abandonment description and interventions
 Housing/transport/employment protection
 Adherence description and interventions