Eating Disorders and Beyond Learning Objectives Learn how to prevent eating disorders by providing a healthy feeding environment and a healthy emotional environment Learn how to Identify symptoms of eating disorders including anorexia, bulimia, EDNOS, prader-willi, pica and hoarding Learn when to seek professional help Learn the importance of encouraging a positive body image Learn how a positive attitude toward eating, and your body, IS THE BEST GIFT you can give your children Contact info for presentation outline/copy Meaghan: Meaghan@soundnutritioncounseling.com Anne: meyer@whidbey.com Who is the child that has brought you here today? The Division of Responsibility Parent/Caretaker provide: Children choose: Structure, support, opportunities How much, whether to eat from what the parent provides The Division of Responsibility Infants Parent/Caretaker is responsible for: The Child is responsible for: WHAT HOW MUCH The parent helps the infant to be calm and organized and feeds smoothly, paying attention to information coming from the baby about timing, tempo, frequency and amounts. The Division of Responsibility Toddlers through Adolescents Parent/Caretaker is responsible for: The Child is responsible for: WHAT, WHEN, WHERE HOW MUCH & WHETHER The parent’s job is to trust the child to decide how much and whether to eat. If parents do their job with feeding, children will do their job with eating. The Division of Responsibility Toddlers through Adolescents Parent/Caretaker feeding jobs: Choose and prepare the food Provide regular meals and snacks Make eating times pleasant Show children what they have to learn about food and meal time behavior Not let children graze for food/beverages between meal/snack times Let children grow into the bodies that are right for them The Division of Responsibility Toddlers through Adolescents The Child’s eating jobs: Children will eat well They will eat the amount they need They will learn to eat the food their parents eat They will grow predictably They will learn to behave well at the table Eating Disorders DSM (Diagnostic & Statistical Manual of Mental Disorders) definitions The full spectrum of eating disorders Disordered eating & sub-clinical eating issues Getting help What are eating disorders? Anorexia Nervosa Bulimia Nervosa Eating Disorder Not Otherwise Specified (EDNOS) Anorexia Nervosa Characterized by self-starvation and excessive weight loss. DSM definition Refusal to maintain body weight Intense fear of weight gain Disturbance in the way in which one’s body weight or shape is experienced. Females: cessation of menstrual cycle Anorexia Nervosa Sub-types Restricting Type Bingeing and/or Purging T Bulimia Nervosa Characterized by a secretive cycle of binge eating followed by purging DSM definition: Repeated episodes of binge eating in a discrete period of time Feeling out of control during a binge Recurrent inappropriate compensatory behaviors Self-evaluation is unduly influenced by body shape and weight Bulimia Nervosa Sub-types: Purging (vomit, laxative, diuretic, enema) Non-purging (fasting or exercising) Eating Disorder Not Otherwise Specified (EDNOS) Do not meet diagnostic criteria for AN or BN Meet AN criteria but menstruate BN but don’t binge AN but normal weight Chews/spits out food (“shamming”) Very serious Binge Eating Disorder Eating Disorder Not Otherwise Specified (EDNOS) Most EDs are EDNOS n = 2028 females age 12-23 3.06% met criteria for ED 0.39% anorexia (12.7%) 0.30% bulimia (9.8%) 2.37% EDNOS (77.5%) Binge Eating Disorder Periods of uncontrolled, impulsive, or continuous eating No purging, may include sporadic fasts or repetitive diets Compulsive eating may be triggered by negative feeling states Body weight range from normal to severely passed normal weight Eating Disorders: General Characteristics Severe disturbances in eating behavior Low self-esteem Self and other alienation Disturbance in perception of body shape and size Maturity fears Emotion regulation problems Primary manner of coping with “life” The Most Common Factor Eating Disorders are a way to cope with a painful life. Rule-outs for Child-specific Eating Concerns Eating disorders may: symptomatic of other disorders sensory hypersensitivities oral motor difficulties reflect co-morbid conditions of anxiety and/or depression biological problems All primary bio-medical diagnostic possibilities should be ruled out by a physician Eating Disorders: The Function Eating disorders are the solution to the dilemmas of one’s life. “Salvation through deprivation” A safe place to hide A relationship that makes sense Some Characteristics of Families with Eating Disorders Sponsoring of the false self Psychological Fusion Lack of healthy emotional expression High levels of conflict Performance based value system Absence of nurturing and comfort Inability to teach self-soothing Food insufficiency (not enough food) Fear of starvation - hoarding Family Dynamics and Early Childhood Development Caregivers measure her/his adequacy by weight of the baby – this drives the feeding not the child’s needs Caregiver/child interactions: vacillations between negativism, anxiety, feelings of failure as a caregiver Simple feeding challenges may undermine the confidence of infant and caregiver Absence of routine, chaos in the family, and lack of timely feeding patterns - derail competent eating Most Important Unresolved eating disorders or negative attitudes about food and weight in the caregiver can result in an eating disorder in a child. The Internal Experience of Eating Disorders Individual Differences Although there are commonalities among eating disorders – every eating disorder is as unique as the individual who suffers from the disorder. Affective States Depressive Symptoms Depressed mood Social withdrawal Low self-esteem Hopelessness Overwhelmed or empty Anxiety Symptoms Social Anxiety Risk avoidant Fearful Shy/timid Emotional Concerns Starved for care and affection Longing to be protected, cherished View self as Failure, weak, Shame-based (I’m irreducibly bad) Unworthy, ineffective, imperfect, lazy Fears of abandonment/withdrawal of love Anger and aggression outside of awareness Experience emotion as out of control Empty – no internal guide Feelings are overwhelming Cognitive Patterns Preoccupation - inadequate, incompetent, and being unlovable All or nothing thinking (views the world in all or nothing terms) Focus – maturity fears: growing up is unrewarding, frightening, and “I do not have what it takes to be a grown up.” Perfectionism: I must be perfect to be respected, valued and loved Somatic States Sense of “numbness” or a need to be numb Difficulty sensing internal cues Difficulty sensing a “self” on the inside – no internal guide Emptiness in the stomach may mean: I’m in control or I am a depleted person Relationship Patterns Control and perfectionism Emotional fusion Emotional exploitation Role as designated patient Role as “good child” Difficulty with intimacy Superficial relating style People pleasing style Avoidant and dependent relating styles Why do some children develop eating disorders and others do not? The Goodness of Fit Model -Thomas and Chess (1977), Lewin, K. (1935) Temperament/Personality interacts with the child’s environment (family, school, community, and culture). The better the fit the less likely an eating disorder will occur The Turtles and The Hares (Johnson, 2005) Turtles: Shy, harm avoidant, restrained, compliant, obsessive, anxious, concrete, orderly, inflexible, and perfectionistic Hares Dramatic, erratic, novelty seeking, impulsive, easily bored, argumentative, drawn to and then overwhelmed by complexity. It is not believed that there is a single gene which causes eating disorders. Some personalities are more vulnerable then others to eating disorders Subclinical Disordered Eating Dysfunctional Eating Eating in chaotic and irregular ways – dieting, fasting, bingeing, skipping meals Dysfunctional eating is separated from the normal function of satisfying hunger and providing energy for health, growth and well-being. Dysfunctional eating functions to reshape the body or relieve stress, and is not regulated by hunger and satiety. Dysfunctional eating inappropriately relies upon internal and external controls, such as emotions or will power. Francis Berg, Children and Teens Afraid to Eat “Disordered Eating” Not formally defined Central features: Strong body dissatisfaction Does not rely upon internal cues Control-based vs. trustbased Chronic as full-blown EDs Increased risk for depression Culturally reinforced Disordered Eater who Restricts Dieting Restricting through PseudoVegetarianism or “health nut” Disordered Eater who compensates for eating with exercise Disordered Eater who Binges or Overeats Diet mentality - Good/bad food #1 DISORDERED EATING Dieting & eating disorders Perhaps the most common trigger of disordered eating is dieting. D-I-E-T (a four letter word!) Dieting = external cues guide eating (versus internal hunger/fullness/satiety) Dieters are 8 times more likely to develop an ED than non-dieters. Not all dieters ED, but almost all EDs start with dieting Yo-Yo dieting risk for heart disease and other biomedical problems Forces body into starvation mode Mind-body disconnect Body believes there is a famine and responds accordingly…. Mind-Body Disconnect (with Disordered Eating/Dieting) Slowed metabolism Food preoccupation Under Eating = not enough nutrients for normal functions Miss important nutrients (calcium!) Loss of muscular strength & endurance Loss of coordination Dehydration & electrolyte imbalances Fainting, weakness, slowed heart rates Slower reaction times Decreased concentration Dieting = semi-starvation Dieting and Eating Disorders We Vote For Health At Every Size Weight-Centered: You must lose weight to be healthy Lifestyle-Centered: Live a healthy lifestyle and you will always lose weight and be healthy. Health At Every Size: When you attend to your biopsychosocial wellness your body will reflect your natural weight. Emotional Eating Using food for the purpose of affect regulation (mood altering) Food and Mood Brain chemistry – reward pathway, neurotransmitter precursors, immediate effect of food, stress Non-hunger eating – when food is more than fuel Often “treated” with a diet Diet/binge cycle Tribole, NCES (Seemingly healthy) Signs & Symptoms of Disordered Eating Thoughts about "feeling fat“ Food preoccupation disguised as “interest” (or cooking, cooking shows, recipe collecting) Interest in vegetarianism Interest in food labels Fasting Compulsive exercise Laxative use Scale use More Signs & Symptoms of Disordered Eating Pro-ana sites & pro-mia “Ed-ucation” “thin-spiration” Menstrual irregularities Gastrointestinal complaints Excessive condiment use Sneaking food Getting Help If you have any concerns: Assessment by a Registered Dietitian specialized in EDs is recommended Help your children by helping yourself: Embrace your own food issues and get help Getting Help Early detection is ideal Outpatient care Levels of care: Outpatient Residential treatment Hospitalization Getting Help The Treatment Team (look for ED experience) Medical professional (MD, ARNP) Nutrition professional (RD) Psychotherapist (LCSW, PhD, LMHC) Medication manager (MD, ARNP) Be the parent! Getting Help Other resources: (Do not diagnosis your own child) Support groups for ED sufferer Support groups for family & friends of ED sufferer Therapeutic groups Online support Books and newsletters Learning stage Changing stage Anticipating Some Statistics In the U.S 5-10 million girls and women 1 million boys and men are struggling with eating disorders including anorexia, bulimia, binge eating disorder Most fashion models are thinner than 98% of American women Without treatment, up to twenty percent of people with serious eating disorders die With treatment - two to three percent Other Eating Concerns Food Insecurity & Hoarding Prader-Willi Pica What is Prader-Willi? 1 in 12,000 – 15,000 Genetic disorder that typically causes low muscle tone, short stature, incomplete sexual development, cognitive disabilities, problem behaviors, and a chronic feeling of hunger Prader-Willi Multidisciplinary Team Physician experienced in PWS Mental Health practitioner Family therapy upon diagnosis Registered Dietitian familiar with principles of feeding dynamics Prader-Willi Syndrome Association (USA) at 1-800926-4797 What is Pica? The persistent eating of nonnutritive substances, such as: dirt clay paint chips plaster chalk cornstarch laundry starch baking soda coffee grounds cigarette ashes burnt match heads cigarette butts feces ice glue hair buttons paper sand toothpaste soap How Common is Pica? Difficult to estimate prevalence in non-institutionalized populations 4-26% in institutionalized populations Usually begins in childhood and lasts just a few months What Causes Pica? Cause unknown Usually begins in childhood and lasts just a few months Increased risk with: Nutritional deficiencies Dieting Malnutrition Cultural factors Parental neglect Food deprivation Developmental problems Mental health conditions, such as OCD & schizophrenia Pregnancy Does My Child Have Pica? Repetitive consumption of a nonfood item, despite efforts to restrict it, for a period of at least 1 month or longer The behavior is considered inappropriate for your child's age or developmental stage (older than 18 to 24 months) The behavior is not part of a cultural, ethnic, or religious practice Complications Potential for poisoning Displacement of nutrient-dense food nutritional deficiencies Digestive tract blockages or tearing Infections from bacteria Treating Pica Call doctor if child is at risk or already consuming nonfood substances Positive reinforcement for edible foods Collaboration with mental health practitioner Poison control 800-222-1222 What is “Normal Eating”? Normal Eating HOW TO GET YOUR KIDS TO EAT BUT NOT TO MUCH SATTER, 1987, PP. 69-70. What is “Normal Eating”? Positive attitudes and behaviors toward food Food acceptance skills Internal regulation Contextual skills -Ellyn Satter, RD, MSW What is “Internal regulation”? Appetite Hunger Satiety We’re born with the ability to… Over time… Eating Attitudes & Behaviors: General Conflicts Diet vs nondiet mentality (Intuitive Eating, Tribole) Weight-centered vs Health-centered Non-hunger vs Hunger eating External versus Internal cues Eating Attitudes & Behaviors: General Conflicts Targeting/blaming specific foods/food groups: Food is food Food “power” Food “power” over enjoyment The benefits of neutrality Glamorized foods/nutrients “You are what you eat”… Eating Attitudes & Behaviors: General Conflicts Children With Healthier Diets Do Better In School, Study Suggests Learn to shake the salt habit While the FDA considers limiting sodium, it's up to you to curb your craving New proposal for global, legal junk food ad ban White bread may bring greater disease risk Key to way stomach expands found Blueberry and green tea containing supplement protects against stroke damage The Food Need Pyramid Current national recommendations: asks Americans to focus on external control disregards appetite, hunger, and satiety disregards psychosocial needs Food-avoidant environment food preoccupation incompetent, disordered eaters The Food Need Pyramid At least 2 generations of confused parents Confused, conflicted regarding food Who will teach our children to be competent, normal eaters? Feeding relationship data not reflected in national policy Food Need Pyramid Nutrition Sustaining Good Tasting Reliable Access Enough Current Recommendations Upside down food need pyramid Emphasis is on nutrition Disregards psychosocial needs Focus on external control Does not reflect the science on eating attitudes and behavior Current Recommendations Contributed to a fear-based, food-avoidant environment Food preoccupation nation of incompetent, disordered eaters Confused, conflicted parents and grandparents no one to teach our kids to be competent, normal eaters Do not reflect data on the feeding relationship Our Food Culture Harmful messages eating pathology “Super Nutrients” Good/bad food Fatness death Deprivation Deprivation backlash “I shouldn’t be eating this” Our Food Culture Percentage of Children Ages 6 to 17 who Ate Meals with Their Family, by Number of Days Meals Eaten Together, 2003 Age 6-11 12-14 15-17 0-3 days 19.9 26.3 35.8 4-5 days 24.5 26.1 28.0 6-7 days 55.5 47.6 36.3 Why do people hoard food? Food insecurity hoarding Because of Food Insecurity Food security = assured access to enough food for an active healthy life Food insecurity = limited or uncertain availability of nutritionally adequate and enjoyable food Hoarding and Food Insecurity It is normal to fear starvation! Food Insecurity What type of child manifests food insecurity: Any child who has learned to fear not having enough food Any child with tendencies to be anxious or obsessive Children of all ages dependent upon others to ensure they will be fed Any child at any percentile, body weight, or size A fat child’s fear of not having enough is as legitimate as a thin child’s fear Hoarding: Prevention and Intervention Prevention: Honor the Division of Responsibility Intervention: Provide structure, reliable access, and enough food Establishing food security takes time – Be Patient and Consistent Remember Sleeping with Bread Hoarding and Food Insecurity Bottom line: access & enough food Any time access restricts our ability to take care of a physiological need, there will be insecurity and feelings of deprivation Any time there is deprivation, there is a deprivation backlash – often in the form of hoarding Hoarding and Food Insecurity It is normal to fear starvation! Fears of not having enough drives hoarding behavior. The Division of Responsibility Parent/Caretaker provide: Children choose: Structure, support, opportunities How much, whether to eat from what the parent provides Children know how to Eat & Grow 32 30 28 26 eating 24 22 20 Day 1 Day 2 Day 3 Day 4 Day 5 Children know how to eat and grow Children know how to eat and grow Missed cues Disruptions in the DOR Examples Rewarding with food (e.g. potty) Clean plate club Restricting access to palatable food (forbidden foods) Assumption that parent knows internal needs of child better than the child Disruptions in the DOR “He won’t eat anything but graham crackers, yogurt, milk, & pears, so that’s what I end up giving him each day” (mother of 13 mo) “If we were to let him eat as much as he wants, he would eat so much he would explode!” (mother of 10 mo) “You can’t have dessert until you’ve eaten your veggies” (caregivers everywhere, with children of all ages) Disruptions in the DOR What Division of Responsibility (DOR) dilemmas do you have? Practice using the DOR to solve problems Share with group The Division of Responsibility Parent/Caretaker provide: Children choose: Structure, support, opportunities How much, whether to eat from what the parent provides The Eating Environment: Making Eating Times Pleasant The Eating Environment: Making Eating Times Pleasant The table needs to be a pleasant place to be Eat with your children (show up) Light, positive conversation Avoid pressure, food focus Wandering attention = full Avoid clean plate club Avoid hunger extremes (with snacks) The Importance of Family Meals Family connectedness Families who eat together, eat better Teens less at risk for substance abuse Better grades Some research related to decreased likelihood of eating disorders Eating Competence Attitudes and Behaviors no good/bad food food police clean plate club Internal regulation hunger scale Food Acceptance skills Contextual skills Defining Body Image In our mind’s eye, how we see ourselves The perception of how we believe others see our bodies The experience of living in our body Giving the Gift of Positive Body Image Love the body you were born with Model positive attitudes and behaviors Teach your children to love and accept their bodies More on Body Image… Help your children by: Promoting Size and Shape Diversity Educating your children about models and the media Limiting exposure to advertisement that demoralizes your children Encouraging pleasurebased movement without associating it with weight loss Primary Prevention: Honor the Division of Responsibility between parent and child Secondary Prevention: Seek professional help if you suspect a feeding problem Eating disorders are always biopsychosocial . . . The Healing Begins with YOU! Resources The Prader-Willi Syndrome Association (www.pwausa.org) 1-800-926-4797 Books -Raising Emotionally Intelligent Children by John Gottman -Child of Mine by Ellyn Satter -Secrets of Feeding a Healthy Family by Ellyn Satter -Your child’s Weight: How to help without harming, by Ellyn Satter -The Body Project by Joan Brumberg -Big Fat Lies by Glen Gaesser Clinicians who treat eating disorders Websites www.ellynsatter.com References National Eating Disorder Association www.edreferral.com Rader Programs Eating Disorder Recovery Online Anred Eating Disorders: Nutrition Therapy in the Recovery Process. (Dan and Kathleen Kim Lampson Reiff) Children Afraid to Eat. (Francis Berg) The Parent’s Guide to Childhood Eating Disorders (Marcia Herrin and Nancy Matsumoto) References The Prader-Willi Syndrome Association (www.pwausa.org) Medline Plus (http://www.nlm.nih.gov/medlineplus/praderwilli syndrome.html) Barth, 1988 Fischer, 1989 Gila, Castro, Cesena, & Toro, 2005 Goodsitt, 1977 Keck & Fiebert, 1986 References Ritvo, 1984 Seiffge-Krenke, 1997 The prevalence of eating disorders not otherwise specified. Machado PP, Machado BC, Gonçalves S, Hoek HW.Int J Eat Disord. 2007 Apr;40(3):212-7 http://www.kidshealth.org/parent/emotions/behavior/pic a.html http://www.webmd.com/mental-health/mental-healthpica Frac.org Growth chart example: http://www.supermagnus.com/mac/Growth_Charts/ References Family meals: http://www.childtrendsdatabank.org/indicators/96FamilyMeals.cfm Appetite. 2007 Apr 7; Do not eat the red food!: Prohibition of snacks leads to their relatively higher consumption in children. Jansen E, Mulkens S, Jansen A. Eating Disorders: a Clinical Guide to Counseling and Treatment. Monika Woolsey, MS, RD Food and Mood, Elizabeth Somer, MS, RD References Images www.washingtonpost.com http://newsimg.bbc.co.uk/media/images/41004000/jpg/_41004339_an orexia203.jpg http://www.swedauk.org/leaflets/edbox2.gif http://images.ask.com/fr?q=Warning+Signs+of+Anorexia&desturi=http%3A%2F%2Fwww.freewebs.com%2Fmentalhealthissues%2Fanorexiabulimia.htm&f m=i&ac=18&ftURI=http%3A%2F%2Fimages.ask.com%2Ffr%3Fq%3DWarning%2BSigns%2Bof%2BAnorexia%26desturi%3Dhttp%253A%252F%25 2Fwww.freewebs.com%252Fmentalhealthissues%252Fanorexiabulimia.htm%26imagesrc%3Dhttp%253A%252F%252Fwww.freewebs.com%252Fm entalhealthissues%252Fcry.jpg%26thumbsrc%3Dhttp%253A%252F%252F65.214.37.88%252Fts%253Ft%253D13037628548860643162%26thumb uselocalisedstatic%3Dfalse%26fn%3Dcry.jpg%26imagewidth%3D388%26imageheight%3D299%26fs%3D69%26ft%3Djpg%26f%3D2%26fm%3Di% 26ftbURI%3Dhttp%253A%252F%252Fimages.ask.com%252Fpictures%253Fq%253DWarning%252BSigns%252Bof%252BAnorexia%2526page%2 53D1%2526pstart%253D&qt=0 http://images.ask.com/fr?q=Starvation+Symptoms&desturi=http%3A%2F%2Fwww.smith.edu%2Fourhealthourfutures%2Fanorexia.html&fm=i&ac=18&ftURI =http%3A%2F%2Fimages.ask.com%2Ffr%3Fq%3DStarvation%2BSymptoms%26desturi%3Dhttp%253A%252F%252Fwww.smith.edu%252Fourhea lthourfutures%252Fanorexia.html%26imagesrc%3Dhttp%253A%252F%252Fwww.smith.edu%252Fourhealthourfutures%252Fimages%252Fcol22b.j pg%26thumbsrc%3Dhttp%253A%252F%252F65.214.37.88%252Fts%253Ft%253D7752590126148186640%26thumbuselocalisedstatic%3Dfalse%2 6fn%3Dcol22b.jpg%26imagewidth%3D452%26imageheight%3D247%26fs%3D28%26ft%3Djpg%26f%3D2%26fm%3Di%26ftbURI%3Dhttp%253A% 252F%252Fimages.ask.com%252Fpictures%253Fq%253DStarvation%252BSymptoms%2526page%253D1%2526pstart%253D&qt=0 http://www.helpguide.org/index.htm http://woxy.lala.com/boards/showthread.php?t=14191&page=137&pp=20 http://plaza.ufl.edu/paty/paperone.html http://www.telegraph.co.uk/health/main.jhtml?xml=/health/2003/01/14/hdis14.xml&sSheet=/health/2003/01/14/ixhmain.html http://www.lionking.org/~ryan/sip/characters/fran/binge.html http://www.thamike.com/fn_images/fat_anorexic.jpg http://www.funnyguy.com/anorexic.gif http://www3.sympatico.ca/jim.rowe2/paintings/anorexic3-7.jpg http://www.fda.gov/fdac/graphics/1996graphics/pyr.gi http://www.ncfh.org/pateduc/images/!familyo.giff http://www.wirestaurant.org/images/news/obesity/super_america.jpg Pbs.org for pic of scale on diet and ED slide