Disseminating research findings to impact policy Jitendra Khanna Technical Editor The WHO Reproductive Health Library "Ta mard sukhan na gufta baashed Aib-o-hunarish na hufta baashed" Sheikh Saadi (Till a man says something, both his strong and weak points remain hidden). Objectives Review some basic principles of communication and information dissemination Explore channels of dissemination for peers and other stakeholders Some exercises _____________________________________ Based on – HRP communication workshops – Turning research into practice – Institute of Health Economics report (2008) Global publication of scientific research From: New Scientist, 2008 Science in Iran Iran increased its publication output nearly tenfold from 1996 to 2004 (Institute for Scientific Information) Iran ranks 49th for citations, 42nd in paper output, and 135th for citations per paper According to a British government study (2002), Iran ranked 30th in the world in terms of scientific impact. In 2008, Iran ranked 32, 46 and 56 in Chemistry, Physics and Biology, respectively, in the world. • from Wikipedia, 2009 Generally speaking…. Many problems – not as many sure solutions May have solutions – but no direct power to implement Knowledge – this today that tomorrow Knowledge is money (and power) The big gap – researchers and public The many brokers – noise or clarity? Power of science – or weaknesses? Interests – supportive and vested Others 10 0 Pos nef fe arm ful s. i s. H Pos ctiv wn e Lik 40 Un kn o l ely ben e 50 d eoff fi ci a fi ci a 60 Tra ben e l 70 Un cer t ain 80 Are 20 tain 30 Cer Distribution of interventions in RHL 90 Research to policy: some basics questions Whose idea was it anyway? Was there interest in it before and during the conduct of research? Does the research group have credibility? Where were the results published? Who is opposed to the idea? Is there capacity to implement the intervention? What are the risks in implementing it? Information dissemination The circulation or wide dispersal of information. Medical.webends-com What is communication? "Any act by which one person gives to, or receives from, another person information about that person's needs, desires, perceptions, knowledge, or affective states. Communication may be intentional or unintentional, may involve conventional or unconventional signals, may take linguistic or nonlinguistic forms, and may occur through spoken or other modes." National Joint Committee for the Communicative Needs of Persons with Severe Disabilities, 1992 Key points about communication Exchange – two-way Information (but reflects knowledge) Intentional or unintentional Linguistic or nonlinguistic Needs, wants, perceptions, knowledge Everybody (everything) says something…. Shannon's model Claude E. Shannon conceptualized the communication theory model in the late 1940s. It remains central to communication study today. Information source Message Transmitter Signal Noise source Receiver Destination Message Adapted model of communication Noise Noise Noise Sender Encoding Signal Decoding Noise Feedback Noise Noise Receiver Quality of communication Varies, depending on – Use of effective skills and strategies – Understanding of audience(s) – Use of correct channels Skills can be learnt Going from A to B… and back Means of transport (information channel) Timing (hook for the story) Information about B (know the audience) – Culture – Likes / dislike – History Risks (What can go wrong) Putting communication into practice in research Research Research is part of a process of knowledge production, management and use. A research institution is a "knowledge" factory Output: Input: information information Knowledge Processing The policy and execution grinding mill Information Knowledge Analyses of threats and benefits Policy and communication Processing Testing Impact Evaluation Worlds apart Since both research and policy-making are complex activities and very different from each other, mutual understanding requires concisions effort. – A generalization made based on research by Fox and Oxman (2001) Finding common ground Dealing with people Do we really make, and use reason in, all our choices? Philadelphia project Cornell study (Schouffle 2004) Video on choices Funny, lucky, religious? A B C Exercise 1 Speaker Interviewer Observer Interpersonal communication (person-to-person communication) Five insights into effective interpersonal communication Interpersonal communication Conflict occurs when communication fails Insight No. 1 If people perceive an attack, they will defend themselves. Vicious circle of attack and defence ATTACK DEFEND Conflict Note: Communication seeks to better understand other viewpoints and not necessarily to agree with them. Although, if you keep an open mind, you may achieve agreement as well. Insight No. 2 Listening is more than just waiting quietly for your turn to speak. The "art" of listening maintain an attitude of ‘inquiry’ and interest gently probe to understand the other draw out the other’s reasoning ask for examples check your understanding listen with an open mind refrain from preparing to destroy the other’s argument or promote your own agenda Insight No. 3 To really understand someone else's viewpoint you have to be able to get out of your own logic and into theirs. ??? Understanding other people’s logic Assume that people are rational – People behave "rationally" based on their internal logic: • how they see things • self-interest, which they are working to maximize • their important concerns People Other helpful assumptions – Other people are going to see things differently from you – You can understand those differences and their likely impact The BLM syndrome The anatomy of action/communication Logic of actions is based on personal factors Perception of events Personality Mindset Mind-set Reasoning Action taken Action and communication Mindset: the invisible side of communication Inquiry Open/closed questions Open – don’t influence the answer (transmit interest) – seek information Closed: – seek agreement/disagreement – don’t draw information The ladder of inference “Our ability to achieve the results we truly desire is eroded by our thinking that: our beliefs are the truth the truth is obvious our beliefs are based on real data the data we select are the real data.” Senge et al. The fifth discipline fieldbook. Insight No. 4 To influence someone you have to be able to speak their language. Insight No. 5 Humility works! In presenting your point of view: state assumption explain reasoning explain context give examples invite testing of your assertions reveal where you are least clear avoid being defensive (allow yourself to be vulnerable) The nature of knowledge and information….. "REAL science depends on the dispassionate search for truth." – Robert K. Merton, Sociologist "The wise see knowledge and action as one." -- the Bhagvad-Gita Information vs knowledge Words Data Non-personal Relates to media Computers/ technology “Facts provided” “What is conveyed…” Internal process Understanding Personal Longer-lasting Shapes behaviours “True, justified beliefs” “Sum of what is known” Communication is to information/knowledge as packaging and transportation are to goods Knowledge is a product that needs to be managed "Knowledge" management “We have managed money and buildings and people and energy. Now we need also to manage the most precious commodity of the 21st century knowledge and know how.” J A Muir Gray, Director, Research and Development. NHS Executive Anglia and Oxford, Oxford. BMJ, 26 September, 1998 (Volume 317) Knowledge management is about using people as a resource Information management is about using instruments, data, journals, media – what is exchanged between people Examples of underutilization of knowledge In Mexico 14 out of 22 hospitals in Mexico City were not using magnesium sulfate for the management of eclampsia (A WHO study) In the USA, patients received 55% of recommended care and quality varied by medical condition - 79% of recommended care for senile cataract to 11% of recommended care for alcohol dependence (McGlynn 2003) 20-30% of patients may get care that is not needed or care that could be potentially harmful (Schuster 2005) Purpose of research communication Ensuring that all stakeholders are aware of and use research evidence to inform their health and health-care decision-making. Some questions to ask What should be transferred? To whom should research knowledge be transferred? By whom should research knowledge be transferred? How should research knowledge be transferred? With what effect should research knowledge be transferred? What? Knowledge ripe (synthesized) for transmission/ implementation? – Proteus phenomenon – diminishing effect size – Why systematic reviews are important Type and quality of evidence – Single study (observational – RCT) – Systematic review Urgency of situation/opportunity cost Relevance to local setting – In time – Context – Setting in which evidence was generated To whom 1 Peers (for researchers) – – – – Co-workers Colleagues in the organization/university Researchers in your field Researchers in other fields Issues – Which journal • International, regional, local • Reputation, prestige, impact factor – International meetings? To whom? 2 Policy-makers – Government leaders/officials – Decision-makers – Regulators – Industry Programme managers Patients/public Donors By whom? Whose responsibility is it anyway? Researchers and brokers "Dr Fox Effect" THE DOCTOR FOX LECTURE: A PARADIGM OF EDUCATIONAL SEDUCTION Donald H. Naftulin, M.D., John E. Ware, Jr., and Frank A. Donnelly Journal of Medical Education, vol. 48, July 1973, p. 630-635 The channels -1 For peers (information) – – – – – Journals Meetings Newsletters Listservs Etc. For peers (behaviour change beyond policy) – – – – Educational outreach (vs self-learning) Opinion leaders Audit and feed-back Etc. The channels -2 Policy- and decision-makers – Policy briefs – Press releases • Radio/TV • Print media (newspapers, magazines) – Dissemination workshops and meetings – Personal contact Publics – Internet • Listservs • Facebook? – – – – Docudramas Infotainment Telephone Celebrity ambassadors How? Planned dissemination efforts works better – Time it well Know your hurdles – (Evidence for interviews and focus groups) Know your supporters ______________________________________ Select media/interventions – (Evidence for effectiveness generally weak) Follow the plan Evaluate Reaching out to masses Publics are often ignored as a stakeholder Video What effect? Proactively listen to what comes back Measure your success – Success may be slow – "Reason" may be less common than assumed Evidence is often lacking Evaluate Keep at it KT: What works… what doesn't…(from James Trostle) Category Influence Content Promote Target-specific issues, concrete results, low-cost recommendations High-quality research (not measured through publication) Biomedical and quantitative research favoured Impede Mutual intellectual disdain Differences in technical language Promote Groups have identified priority problems Official research organizations in the health sector International support for research Impede Differences in agendas, times, styles Lack of technical background for policy-makers Political culture values experience over information Actions of interest groups, especially financial interest Promote Opportunities for informal communication Formal communication channels (e.g. monthly bulletins) Interest group equilibrium, or solutions consonant with interests Impede Difficulty communicating research questions or results Vertical management of information Promote Researcher/decision-maker rotation When research is urgent and relevant Administrative change can promote policy change (new audiences) Impede Centralization: power and information Vertical organization Hierarchical power (middle more resistant) Administrative change can impede policy change (discontinuity in priorities) Restricted economic resources Actors Process Context Factor Summary Plan for use of knowledge before staring research Involve as many potential stakeholders as possible (including end-users) Plan for effective communication strategies (including training of researchers in communication skills) Evaluate impact Exercise Group 1 - Researchers – Key messages – Stakeholders – Strategy (elaborate) Group 2 – Policy-makers – Process for implementation – SWOT analysis – Strategy (elaborate) SWOT Strengths: Plus points of the findings. Weaknesses: Potentially harmful attributes of the findings. Opportunities: External conditions that are helpful to achieving impact. Threats: External conditions that could do damage. Remarks Adult learning: Adults don’t like being told…prefer to be part of decision-making “Change is difficult” – why? Low-cost interventions preferred – but what about opportunity cost? Want best for less --- realistic? Science being sidelined? Us health insurance company policies Why harsh approaches to BC are a no no? RCTs best for intervention studies? “Everyone has been made for some particular work, and the desire for that work has been put in every heart.” – Jalal ad-Din Rumi Thank you From: New Scientist People see things differently We experience life differently Information overload! There is always more coming! “Out beyond ideas of wrongdoing and rightdoing, there is a field. I will meet you there.” "Knowledge resides in the user and not in the collection [of information]. It is how the user reacts to a collection of information that matters." -- Churchman, C.W. (1971). The Design of INQUIRING SYSTEMS: Basic Concepts of Systems and Organization, Basic Books, New York, NY, p. 10. Objectives To understand key insights that affect the quality of IPC. To identify skills and attitudes associated with those insights. To increase awareness of one’s own effectiveness in IPC through practice, observation and feedback. Communication-related terms used in research dissemination Communication Information dissemination Knowledge transfer Knowledge transfer and exchange Knowledge translation HRP philosophy For a research institution, the job is not over until research findings: – have been peer-reviewed and published – have been disseminated to all audiences (including lay) – (where applicable) have led to policy impact. The view from the other side Quality (credibility) of evidence Extent of benefit Costs and opportunity cost