Evaluation of the REALM Health Literacy Test in a Developing Country Ros Dowse Lebo Lecoko Tina Ehlers FIP September 2002 1 Introduction Health care systems require that patients be able to read Low-literate patients have the highest morbidity and mortality rates from chronic diseases and conditions FIP September 2002 2 Definition of health literacy “…the capacity of an individual to obtain, process and understand basic health information and services needed to make appropriate health decisions” FIP September 2002 3 South Africa Verbal information……… PROBLEM! Written information……… PROBLEM! Widespread limited literacy skills Literacy statistics: illiterate 45% semi-literate 25% literate 30% 3 out of 4 patients – problems with reading FIP September 2002 4 Measurement of health literacy Indirect measurement - standard of education Direct measurement - literacy test or task Valuable information - provide appropriately tailored medicine information FIP September 2002 5 REALM Test Health literacy test developed in USA Available in English Takes 1 – 3 mins to administer Estimates reading level below grade 9 Consists of 3 lists of 22 words each, arranged in order of increasing difficulty Words read aloud and pronunciation checked Grades estimated according to number of words pronounced correctly FIP September 2002 6 Objective To evaluate the applicability of the REALM test in a South African English second-language population FIP September 2002 7 Methodology 125 Xhosa respondents of different educational levels were tested with the aid of interpreters All stated that they could read and understand English Demographic data obtained Respondents asked to read aloud as many words as possible from the 3 lists and then to explain their meaning FIP September 2002 8 Criteria for success or failure Case Read Understand Succeeds / Fails 1 Succeeds 2 X X Succeeds 3 X Fails 4 X Fails Cases 1 and 2 to account for > 80% respondents Apply this to > 2/3 (44 of 66) words FIP September 2002 9 Demographics Characteristic Sex: Age (yrs): Education: Male Female < 21 21 – 40 41 – 65 > 65 None - Grade 3 Grades 4 – 6 Grades 7 – 8 > Grade 9 Number (%) FIP September 2002 50 75 6 65 51 3 30 30 30 35 (40.0) (60.0) (4.8) (52.0) (40.8) (2.4) (24.0) (24.0) (24.0) (28.0) 10 Case 3 – REALM test fails List 1 List 2 List 3 smear 58% pelvic 57% testicle 51% dose 58% menopause 62% obesity 56% incest 58% calories 71% hepatitis 59% rectal 65% irritation 62% hormones 66% constipation 64% bowel 72% anemia 73% herpes 74% inflammatory 73% impetigo 74% colitis 79% FIP September 2002 11 Case 4 – REALM test fails List 1 List 2 List 3 rectal 1% fatigue 1% testicle 1% asthma 2% notify 1% emergency 1% cancer 2% directed 1% sexually 1% kidney 2% nausea 1% menstrual 2% meals 2% appendix 2% alcoholism 2% germs 2% exercise 2% diabetes 6% nerves 6% arthritis 5% eye 13% miscarriage pregnancy 5% 6% FIP September 2002 12 Words which were poorly understood: Haemorrhoids Colitis Osteoporosis Hepatitis Inflammatory Seizure Anemia Menopause 0.0% 0.0% 0.8% 0.8% 1.6% 1.6% 2.4% 4.0% FIP September 2002 13 REALM Test Accept / Reject? REALM test only “worked” for 8 of the 66 words It “failed” in 41% of a total of 8250 cases (125 respondents x 66 words) FIP September 2002 14 Conclusion REALM test is not a suitable tool to assess health literacy in this population Ability to pronounce words gives no indication of comprehension Schooling is an unreliable literacy marker Enables suitable terms to be identified for inclusion in patient information leaflets FIP September 2002 15 Acknowledgements Rhodes University for financial support Professor Radloff for assistance with statistics Interpreters and respondents who contributed to this project FIP September 2002 16