Maryland's Mental Health Initiatives

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Healthy Transitions Initiative:

An Effective Approach to Mental Health Services

Katie Herring, M.S.

Steven Reeder, M.Ed., CPRP, CRC

Kati Stein, Ph.D.

Sharon Stephan, Ph.D.

Acknowledgements

Maryland’s Healthy Transitions Initiative was funded by the US Department of Health and Human Services –

Substance Abuse and Mental Health Administration as part of the Emerging Adults Initiative (Grant Number SM-09-

008).

Characteristics of

Transition Age Youth with EBD

National Longitudinal Transition Study-2 (NLTS-2) found that the majority of youth with EBD:

• Male

• Living in poverty

• Head of household has no education past high school

• ADHD

• Disability is identified later (age 9 or after)

• 40% have attended five or more schools

• History of social adjustment problems

• Suspended or expelled at least once

Outcomes

• It is estimated that at any point in time, 13% of young adults ages 18-26 are experiencing some form of a mental health condition, and the majority of these individuals do not receive related services or supports.

• The results of the (NLTS-2) indicated that young adults who were identified as an EBD, and received special education services under the

Individuals with Disabilities Education Act (IDEA):

• Experienced a greater high school dropout rate, and lower post school employment (42% compared to 66%) than their non-disabled peers or peers with other disabilities (Wagner & Newman, 2012).

• Furthermore, young adults with serious mental health conditions may experience unemployment, substance abuse, incarceration, unnecessary disability, homelessness, and suicide at greater rates than the general population (Koerner, 2005).

Comparison of Transition Domains Between the General

Population and Young People with Emotional/Behavioral Disorders

70%

63%

60% 58%

56%

50%

45%

General Population

40%

33% EBD

30%

25%

21%

20% 18%

11%

10% 8%

0%

Dropouts Employed Post-Sec.

Ind. Living Arrested

Challenges

Parents and youth themselves blamed for the disability

Stigma

Ignorance; disability identified late and treatment delayed

Presence of disability is not always obvious

Limited Family Involvement

Limited youth involvement and engagement

Barriers to Service Delivery

• Services through special education, the foster care system, and state child and adolescent mental health systems often end at the age of 18 or 21, and provisions for smooth transitions into adult mental health systems are rare;

• Adult services are often more fragmented than child mental health services; therefore, individuals may have to interact with several agencies to enroll in different programs to get the range of services they need;

• Eligibility criteria are typically much more restrictive in adult mental health systems as compared to child and adolescent mental health systems (Koroloff, Davis,

Johnsen, & Starrett, 2009; Koyanagi & Alfano, 2013).

The Emerging Adults Initiative

• The Emerging Adults Initiative (EAI) was a five year systems change project funded by the Substance

Abuse and Mental Health Services Administration

(SAMHSA). Seven states were awarded funding:

Georgia, Maine, Maryland, Missouri, Oklahoma,

Utah and Wisconsin.

• In Maryland this program is called the Healthy

Transitions Initiative (HTI)

• HTI is a state/community partnership aimed at addressing issues transition-age youth encounter as they transition to adulthood.

HTI in Maryland

• The Healthy Transitions Initiative (HTI) is a program designed to provide services that meet the distinct needs of transition-age youth (TAY) ages 16-

25 with emotional and behavioral disorders (EBD) in Frederick and Washington Counties.

• Evidence-Based Practice (EBP) Supported

Employment + EBP Assertive Community

Treatment + Transition to Independence Process

(TIP) + Peer/Family support

Description of HTI Population

• DSM-IV diagnosis indicates severity of need

– a psychotic disorder (i.e., schizophrenia, schizoaffective disorder);

– a major mood disorder (major depression, bipolar disorder); or

– a major anxiety disorder (generalized anxiety disorder, obsessive compulsive disorder, panic disorder, post-traumatic stress disorder, or social phobia) – most have multiple and complex diagnoses.

Description of HTI Population

• Functional Impairment

– A clear, current threat to the ability to live or be maintained in the

community.

– A significant inability to negotiate the developmental tasks of emerging adulthood and to assume normative adult roles, including but not limited to: exploring opportunities for employment, school, housing, and social relationships, and making life course decisions.

This significant inability, or dysfunction, is not solely defined as the failure to fully meet societal expectations of residential stability, stable employment, school completion, or establishment of a family.

– A significant inability to manage the symptoms of one’s illness or modulate one’s behavior in response to social cues or societal norms

(not manifested solely by criminal behavior).

Description of HTI Population

• Multiple psychiatric hospitalizations

• Residential Treatment Center placement

• Substance Abuse

• Aggressive Behavior

• Behaviors resulting in danger to self or others

• Psychosis

• Poor reality testing

• High levels of impulsivity, poor judgment, and/or inability to self protect in community situations

Goals of HTI

Improve outcomes for TAY with serious mental health conditions in areas such as education, employment, housing, mental health and co-occurring disorders, and decrease contacts with the juvenile and criminal justice system;

Foster youth self determination;

Engage and support families;

Enhance core competencies of behavioral health practitioners in developmentally appropriate and empirically supported practices to support the needs of Transition Age Youth;

Link local implementation to state-level program and policy development to address broader system and financing issues;

Disseminate and replicate to other geographic locations throughout the state.

How is HTI Different?

HTI services and supports are: Traditional services and supports are:

• Co-designed and selected by youth • Designed and determined by professionals

• Strengths-Based Disability-/ Deficit-Based

• Developmentally-Sensitive

• Non-Stigmatizing

• Culturally Competent

Adult-Focused OR Child-Focused

Unintentionally stigmatizing

Designed for the majority culture

• Appealing to youth

• Convenient for youth and families

• Focused on real life goals/dreams

• Facilitative of youth self-determination

• Delivered in mental health centers

• Focused on skills development

• Empirically-supported

Unpleasant or undesirable to youth\

Convenient for professionals

Focused on treatment goals

Custodial and protective of risk

Delivered in natural settings

Focused on service provision

Based on professional judgment/wisdom

HTI Evaluation Overview

• Quantitative

– National Outcomes Measures (NOMs)

– Individual Interviews – Youth and Caregiver

• Domains include background and demographics; living situation; education and job training; employment, career, and finances; parenting; social connectedness; selfdetermination; perceptions of opportunity; efficacy and empowerment; physical health; satisfaction; mental health and substance abuse; and criminal justice.

• Qualitative

– Six focus group interviews – two youth focus group interviews

(one in each county); two caregiver group interviews (one in each county); one staff group interview; one supervisor group interview.

Quantitative Data Collection

NOMs Collected

Assessment

Baseline

6-Month

12-Month

18-Month

24-Month

30-Month

36-Month

42-Month

Total

N

160

72

50

35

28

18

12

5

380

Interviews

Conducted

Assessment

Baseline

6-Month

12-Month

18-Month

24-Month

30-Month

36-Month

42-Month

Total

Youth

15

16

6

9

48

27

25

1

148

Caregiver

4

3

7

7

25

19

18

1

84

Total

22

23

10

12

73

46

43

2

232

NOMs Analysis

Baseline Demographics

• 56.3% of HTI enrollees are male

• Average age at baseline was 19.4 years

30

25

20

15

10

5

0

50

45

40

35

16 17 18 19 20 21 22 23 24 25

Age

African American

17%

Other Multiracial

4%

Hispanic and

Caucasian

5%

Hispanic/Latino

3%

African American and Caucasian

6%

White/Caucasian

65%

Living Situation

• Baseline living situation

• 14.4% of youth were not retained in the community for the past 30 days

– 8 were homeless

– 6 were in inpatient mental health care*

– 6 were in a correctional facility*

– 1 was in an inpatient substance abuse facility

*1 youth reported being in both inpatient mental health care and in a correctional facility in the past 30 days.

Education and Employment

• TAY under age 18 at baseline

– 78% enrolled in school or job training

– 3% had completed high school

– 11% were employed part-time and 65% were looking for work

• TAY age 18 and over at baseline

– 41% enrolled in school or job training

– 19% were employed part-time, 9% were employed full-time, and 50% were looking for work

– 71% had completed high school or GED

– 11% had completed some college or university

Substance Use

• Baseline substance use in the past 30 days

Tobacco

Alcoholic beverages*

Cannabis

Cocaine

Prescription stimulants

Methamphetamine

Inhalants

Sedatives or sleeping pills

Hallucinogens

Street opioids

Prescription opioids

Other**

97.5%

9.0.%

96.3%

96.3%

92.5%

65.6%

Never Once or Twice Weekly Daily/Almost Daily

49.4% 6.3% 1.3% 40.6%

67.5%

80.0%

18.8%

8.8%

1.3%

2.5%

6.9%

5.0%

96.3%

93.8%

98.1%

1.3%

1.9%

0.0%

0.0%

0.0%

0.0%

0.6%

1.9%

0.0%

0.6%

2.5%

0.6%

0.6%

2.5%

0.6%

0.0%

0.6%

0.0%

0.0%

0.6%

0.0%

0.0%

5.0%

0.6%

0.6%

2.5%

1.3%

Missing/Refused

2.5%

5.6%

3.8%

1.9%

2.5%

1.9%

1.9%

1.9%

2.5%

2.5%

1.9%

32.5%

Psychological Distress

• Items asked “During the past 30 days, about how often did you feel... nervous, hopeless, restless or fidgety, so depressed that nothing could cheer you up, that everything was an effort, worthless?”

• At baseline, 73.1% of TAY reported serious psychological distress in the past

30 days.

– Mean scores on the psychological distress scale decreased significantly from baseline

(M=3.01) to the 12-month follow up (M=2.27).

2,5

2

1,5

1

0,5

0

4

3,5

3

3,03

3,35

2,19

Baseline 6-Month 12-Month

Perception of Functioning

• Example items: “I deal effectively with daily problems,” “I am able to control my life,” and, “My symptoms are not bothering me.”

• At baseline, 55% of TAY reported a positive perception of their functioning in everyday life.

– TAY were more likely to report positive perception of functioning at 6-month follow up compared with baseline.

– There was a significant increase in perception of functioning scores for youth with complete baseline through 18-month assessments.

Perception of Functioning Mean Scores (N=12)

3,89

3,51

3,72

4,29

5

4

3

2

1

0

Baseline 6-Month 12-Month 18-Month

Social Connectedness

• Example items: “I am happy with the friendships I have,” “I feel I belong in my community,” and, “In a crisis, I would have the support I need from family or friends.”

– At baseline, 71% of TAY reported the presence of social connections to family, friends, and the community.

– TAY were more likely to have a positive outcome on social connectedness at the 12-month and 18-month follow ups than at

6-months.

Perceptions of Care

• At the 6-month assessment, 92% of TAY reported positive overall perceptions of care.

Staff here believe I can grow, change and recover.

I felt free to complain.

I was given information about my rights.

Staff encouraged me to take responsibility for how I live my life.

Staff told me what side effects to watch out for.

Staff respected my wishes about who is and who is not to be given information about my treatment.

Staff were sensitive to my cultural background (race, religion, language, etc.)

Staff helped me obtain the information I needed so that

I could take charge of managing my illness.

I was encouraged to use consumer run programs

(support groups, drop-in centers, crisis phone line, etc.)

I felt comfortable asking questions about my treatment and medication.

I, not staff, decided my treatment goals.

I like the services I received here.

If I had other choices, I would still get services from this agency.

I would recommend this agency to a friend or family member.

40

64

64

64

61

62

63

63

63

N Minimum Maximum Mean

64

62

1

1

5

5

4.28

4.15

64

64

1

1

5 4.23

5 4.28

63

2

1

1

1

1

1

1

1

1

1

5

5

5

5

5

5

5

5

5

5

3.28

4.36

4.14

4.09

3.64

3.92

4.21

4.29

4.21

4.21

Local Evaluation Interviews

Goal

Perceptions of Opportunity

…to have a good job or career

…to graduate from college

…to earn a good living

…to provide a good home for your family

…to have a good marriage and/or long term committed relationship

Aspiration

(Importance)

Mean Score

2.90

2.71

2.96

2.92

2.54

Perception of

Opportunity

Mean Score

2.58

2.25

2.48

2.63

2.29

Significant

Difference?

Yes

Yes

Yes

Yes

Statistical Estimates t(47) = 3.92, p< .001

t(47) = 4.88, p< .001

t(47) = 4.86, p< .001

t(47) = 4.01, p< .001

Yes t(47) = 2.72, p= .009

…to have a good relationship with your parent or caregiver

…to have a good relationship with your significant other

…to have a good relationship with your children

…to have a good relationship with your friends

…to stay out of trouble with the law

…to stay clean (off drugs and/or alcohol)

Overall Index

2.67

2.94

2.85

2.78

2.75

2.65

2.75

2.58

2.75

2.73

2.55

2.52

2.52

2.77

No

Yes

No

Yes

Yes

No

No t(47) = 3.08, p= .003

t(47) = 1.35, p= .182

t(47) = -.375, p= .710

t(47) = 1.27, p= .209

t(47) = 2.44, p= .018

t(47) = 1.95, p= .057

t(47) = 5.94, p< .001

Self-Determination

• “Acting as a primary causal agent in one’s life and making choices and decisions regarding one’s quality of life free from undue external influence or interference” (Wehmeyer, 1996)

• At baseline, 51% of TAY reported that generally they “always” regulated their thoughts, feelings, and actions to work toward goals.

• 19% of caregivers reported that their youth “always” regulated their thoughts, feelings, and actions to work toward goals.

Youth

On average, always regulate self

On average, almost always regulate self

On average, sometimes regulate self

On average, almost never regulate self

On average, never regulate self

Frequency Percent

24

20

4

50.0

41.7

8.3

Total

0

0

0.0

0.0

48 100.0

Caregiver

On average, always regulate self

On average, almost always regulate self

On average, sometimes regulate self

On average, almost never regulate self

On average, never regulate self

Total

Frequency Percent

5

9

8

18.5

33.3

29.6

5

0

27

18.5

0.0

100.0

Efficacy and Empowerment

3 subscales

– At baseline, 86% of TAY reported that they were “mostly or always” able to self-manage their emotions and mental health

– 96% reported that they were “mostly or always” able to self-manage services and supports

– 77% reported that they were “mostly or always” able to improve or help change service systems

70

60

50

40

10

0

30

20

100

90

80

Youth and Caregiver Satisfaction

100,0

82,0

89,5

96,4

63,2

82,1 82,1

73,7

60,7

55,6

Youth

Caregiver

Qualitative Evaluation

Youth

Female

Male

Total

Caregivers

Female

Male

Total

Staff

Female

Male

Total

Overall Totals

4

0

4

2

4

6

2

1

3

13

Focus Groups

Frederick County Washington County Totals

4

0

4

2

3

5

2

1

3

12

8

0

8

4

7

11

4

2

6

25

Results

Services Provided

Strengths

Additional Needs

Services and Supports

• Transportation

• Dealing with agencies and services

• Assistance during IEP meetings

• Help with driver’s education

• Studying for and taking the GED

• Employment

• Housing

• Respite & emotional support

Strengths

• Availability and commitment of staff

• Flexibility

• Different from other service providers

• Self-directed funds

• Assistance navigating systems and other service providers

• Supports for caregivers

Additional Needs

• Housing

• Increased opportunities for employment

• Social interaction and more peer supports

• Additional supports for transition age youth with mild or moderate disabilities

• Smaller, more manageable case funds

• Increased assistance with Individualized Education

Program (IEP) meetings

Suggestions

• Additional group and social activities for youth

• Increased supports and information for caregivers

• Need for additional resources

• Increased assistance with employment & housing

• More manageable case loads

• Increased availability of housing

The Affordable Care Act

• Under the ACA provision, otherwise independent young adults can receive health care coverage through their parent’s plan up until the age of 26.

• Medicaid coverage is now available to children who have aged out of the foster care system but who are under age 26.

• Under Section 2703 of ACA, the Medicaid Health Home State Plan

Option states have the option to allow adult and child Medicaid beneficiaries with “at least two chronic conditions, one chronic condition and the risk of developing a second, or one serious and persistent mental health condition” to select a specific provider as their health home to help coordinate their treatments.

• Medicaid expansion allows individuals to be eligible for Medicaid at incomes up to 138% of the Federal Poverty Level (FPL).

Next Steps in Maryland

• In September 2014, Maryland was awarded a new five year

SAMHSA grant – Now is the Time: Healthy Transitions.

• This new program will be called Maryland Healthy

Transitions (MD-HT) and will serve TAY in Howard, Calvert,

Charles, and St. Mary’s Counties.

• MD-HT will build on the work of HTI by expanding access to individualized, strengths- and evidence-based supports for youth and young adults with mental health challenges.

• HTI services will be sustained in Frederick and Washington

Counties.

• The overarching goal of this work is to have best practices for serving TAY with mental health challenges adopted statewide.

Questions and Comments

Katie Herring

Kherring@psych.umaryland.edu

Kati Stein

Kstein@towson.edu

Steven Reeder

Steven.reeder@maryland.gov

Sharon Stephan

Sstephan@psych.umaryland.edu

Thank you!

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