40 W. CHESAPEAKE AVE ● SUITE 308 ● TOWSON, MD 21204 ● 800.296.4433 ● FAX 410.321.9165
www.primaryimmune.org ● www.usidnet.org
NEW FUNDING OPPORTUNITY FOR TRANSLATIONAL RESEARCH USING THE
USIDNET PATIENT REGISTRY
The U.S. Immunodeficiency Network (USIDNET) is an NIH funded research program of the Immune Deficiency
Foundation (IDF) that provides resources to accelerate work in Primary Immune Deficiency (PIDD). An
essential resource is the USIDNET Patient Registry. This web-based Registry contains clinical and laboratory
data on over 3800 patients with the most prevalent primary immune deficiencies. Over 40 medical centers and
private medical practices have been enrolling patients into the Registry and updating longitudinal records. Data
are validated and curated to provide a unique resource for our field. We provide de-identified data for use in
medical management, research grants, abstract presentations, and publications.
Dr. Richard Schiff and his colleagues at Baxter Pharmaceuticals have long shared a passion for improving the
understanding and treatment of PIDD. In honor of the late Dr. Schiff’s legacy, USIDNET and Baxter
Pharmaceuticals are partnering to offer grants to accelerate use of the USIDNET Registry for translational
research.
We are seeking proposals from physicians or researchers in any area, who will use the USIDNET Registry
data in the course of a project leading to a published manuscript on one or more of the diseases in the Registry
Eligibility: Recipients must be US citizens or green card holders. Clinicians and scientists at any level may
apply.
Format: The two page application should include Aims, Background, and Methods. References and the other
required components do not count against the two page limit. NIH margins and font sizes should be used.
Include a CV in the new NIH biosketch format with one paragraph related to expertise. A budget should clearly
spell out how the funds will be used and document other sources of support. Trainee level applicants require a
letter of support from the training program director specifying that resources and time will be available to
pursue this research. A single PDF of the application should be submitted no later than December 15, 2014.
Terms: Late applications will not be considered. Funding will provide $5,000, $10,000, or $20,000
salary/consumables support depending on the scope of the project. Awardees will provide a scientific
summary upon completion of the funded and a copy of the submitted manuscript.
Scoring of applications: A committee will score each application based on the following criteria:
40% Scientific merit of proposal and likelihood it will result in publication
30% Quality of candidate and commitment to the field of PIDD
20% Use of the registry for the project
10% Potential impact on patient care