STROKE MANAGED CLINICAL NETWORK (MCN)
STROKE PUBLIC INVOLVEMENT SUB GROUP
Minutes of meeting held Monday 22 June 2009 at 1.30pm in
Margaret Blackwood Centre, Raeden Court, Midstocket Road, Aberdeen
Present:
Chairperson:
Margaret Somerville, Chest, Heart and Stroke Scotland
Dorothy Ballantyne, Member of Public (Ex. Patient)
Ronald Collie, Member of Public (Ex. Patient)
Barbara Dalgetty, Chest, Heart and Stroke Scotland
Brenda Duthie, Member of Public (Ex. Patient)
Heather Fyvie, Conversation Support Partner, CHSS
Dave Hartley, Member of Public (Ex. Patient)
Thérèse Jackson, Consultant OT, Stroke, NHSG
Avril Linton, Conversation Support Partner, CHSS
William Murray, Member of Public (Ex. Patient)
Karen Yuill, Speech & Language Therapist, NHSG
In attendance:
Item
1.
Christine Gray – Secretary CHD/Stroke Office
Actions
Welcome and Apologies
Apologies : Christina Cameron, Gordon Edgar, Jim Pratt, Colin
Thomson
2.
Resignations: Archie Cordiner, Alan Emslie
Minutes of Meeting 30 March 2009
3.
Agreed.
Matters Arising from last minutes
(a)
(b)
Stroke Information Packs –Karen had emailed the nursing home list
to Christine. Christine was still awaiting the flyer to be developed
so she could send this information out. Margaret to action the flyer.
Carer Representation –Barbara was still to draw up a leaflet stating
that the Stroke MCN Public Involvement Sub Group were looking
for carers who cared for stroke patients. As this is an NHS group
the NHSG logo to be used on the leaflet – Margaret would email
this to Barbara. Group could only accommodate a maximum of five
carers. Once the leaflet was agreed, Christine would email out to
all group members who would forward on as appropriate. Leaflet to
state clearly that the sub group was an advisory group looking at
stroke services within NHSG not a personal support group. The
leaflet would have Christine’s name and email etc. as contact and
Christine would pass on to Margaret any queries received.
MS
MS/BD
CG
Item
(c)
Actions
Feedback leaflet – “Do you have any issues about stroke care in
Grampian that you think are important?”
This draft leaflet was discussed further. Dave had already used
this leaflet and emailed out to someone who might be interested.
There was a few suggestions for amendments to the draft –
To add (MCN) after Managed Clinical Network.
Last sentence was to be changed “If you have a suggestion about
stroke care and services in Grampian …….” If anyone had an
individual complaint then they should be referred to the NHSG
weblink
http://www.nhsgrampian.org/nhsgrampian/gra_display_hospital.jsp
?pContentID=5271&p_applic=CCC&p_service=Content.show&
CG
It was agreed that once the amendments as above were made that
this leaflet could be used by members of the group
Action:
Members from VSS groups present agreed to take the flyer to the
group to develop it in aphasia-accessible format. This may take a
few months but if ready will be tabled at next meeting.
4.
BD
Patient Passport
A patient passport which had been produced by Speakability
(pocket sized) was passed around for comment. The Stroke MCN
Education Sub Group wanted to know whether it would be useful
for the MCN to purchase these.
Comments included:
 Not easy to turn pages for anyone who has had a stroke.
Possibly to insert flaps indicating different topics would make
this easier.
 Some members felt the booklet was too small but some liked
the size as it could be carried in a pocket.
 Possibly produce an A5 size booklet also
To note GP training regarding communication would shortly take
place so that GPs should be able to deal with aphasic patients
more effectively.
Action: Margaret would feed back comments to the Education Sub
Group.
MS
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Item
5.
Actions
Stroke Care Pathway
As stated in the last minutes, the pathway mapped what happened
to the patient from when they first recognised something was amiss
to life after stroke.
Thérèse reported that following on from the last meeting, the Stroke
Care Pathway was discussed at a Stroke MCN Conference on 17th
June. It was recognised that there had been a lot of work done
about what happened during the early stages of stroke. However,
much work was still to be done on the last quarter of the pathway –
(rehabilitation and beyond). Work was planned to help identify what
services were available, where the gaps were and how the MCN
could fill those gaps. This work would look at long term
management, such as self care, leisure centres, etc.
Christine would send Barbara the website link which could be
enlarged and looked at via the screen at future meetings whenever
the pathway was to be discussed:
http://www.nhsgstrokemcn.scot.nhs.uk/wpcontent/uploads/2009/03/strokepathwayjan09.pdf
CG
It was noted that this item did not need to be kept as a regular
agenda item as Thérèse would request this to the added to the
agenda when there was any further update.
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Quality Assurance Framework Standards
Standard 2 – Patient and Carer Information, Education and Support
2(a)8 In Consultation with the MCN Public Involvement Sub Group,
an aspect of the patient or carer experience is selected and
assessed each year across the services in Grampian
The MCN had now requested that this group identify the ‘aspect’.
7.
Action:
Margaret would contact Christina Cameron, Network Manager,
regarding with matter and possibly request attending a Stroke
Quality Assurance Sub Group Meeting and explain her concerns
about this standard.
Feedback from Groups/Projects
MS
The CHSS Volunteer Stroke Service was undertaking a lot of work
regarding audit evaluation and evaluation, had developed 12
standards which would be examined over 3 years. The
department were also looking at “core” community services.
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Item
8.
Actions
AOCB
(a)
Speech & Language – two projects were underway. (1) Easy
access breakfast menus (pictures and symbols) tried at Aberdeen
hospitals and patient feedback would be collected. (2) A
provisional date (1st July) had been identified for picture menus to
be trialled at the WRVS canteen at Woodend Hospital for staff,
patients and visitors.
(b)
Communication for Scotland – Dave would be involved with this
group in the near future. He would keep members posted at future
meetings.
(c)
Stroke SIGN Guidelines (patient version) –Ronnie was involved in
this work.
(d)
Stroke Voices (CHSS) – This would be piloted in Glasgow,
Lanarkshire and Highland – three half day sessions in each area.
Grampian would be invited to come on board after the pilot.
(e)
Launch of FAST Campaign
DH
To note today, 22 June 09, the FAST Campaign had been
launched.
F = Face, A = Arm, S = Smile and T = Time to dial 999.
The majority of the funding for the campaign was from Chest Heart
Stroke Scotland with NHSG making a small contribution. Margaret
informed members of what was happening during the campaign
which included:
 Branded “FAST” pink taxi in Aberdeen City for one year – Taxi
driver had been given some training in FAST and the message
was displayed both inside and outside the taxi. FAST is to be
displayed on taxi receipts and pocket cards were given to the
taxi driver to hand out to customers if they were interested.
 Campaign launch announced on GMTV and STV.
 Radio advertisements
 Message also on buses and at the Aberdeen Railway Station
 On 22 July all households (not businesses) within Grampian
would receive a leaflet drop about FAST.
 NHSG staff would have FAST message on their July pay slips.
 The Stroke FAST Sub Group would meet in September to
update and review
(f)
Marks and Spencers – Aberdeen M&S have chosen Chest Heart
and Stroke Scotland as their charity for this year, along with
Alzheimer’s.
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Item
(g)
Actions
Exit Questionnaires Barbara made a suggestion and explored how the group felt about
using exit questionnaires for any member who had resigned
(Optional to complete). It would offer an opportunity for feedback –
good or bad and could be valuable to help with planning future
meetings. It was agreed to place the matter on the agenda at the
next meeting for further discussion – To title “Leaving the Group”.
(h)
Aphasia Minutes – it was agreed that viewing the aphasia minutes
on the screen via laptop and project at meetings was successful
and to use this method at future meetings.
9.
Date of Next Meeting:
BD
Monday 5 October 2009 at 1.30pm – same venue
Items of next agenda to include:
“Leaving the Group”
Feedback Leaflet – aphasia friendly version( if draft ready)
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Do you have any issues about stroke care in
Grampian that you think are important?
I am a member of the Public Involvement subgroup of the
Managed Clinical Network for Stroke. The Managed Clinical
Network for stroke is a network of people whose shared interest
is stroke. Representative health professionals from hospitals,
general practice and the ambulance service work in partnership
with NHS managers, social services, voluntary organisations
and patient/carer representatives.
The role of the subgroup is to work together
 To make recommendations about what local healthcare
services are required
 How to make the best use of the resources available to
provide them
 To ensure standards of care are equal to those provided
elsewhere in Scotland
The Public Involvement Subgroup meets every three months.
If you have a concern, a comment or suggestion about stroke
care in Grampian please let me know. If I feel it is an issue the
group can address I will take it to the next meeting.
My contact details are:
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