Proposal for ROCR Approval
1. Record
Type?
New
2. Unique
Number
R00428
3. Title
Care data Primary Care Extract
4. Collection
Type
National
5. Other
Reference
6. Description
The HSCIC has been commissioned by NHS England
Patients & Information Directorate to deliver the data
aspects of its care.data programme. Care.data
requires the HSCIC to collect more data and provide
more data routinely linked together to support the
care.data vision. As part of the care.data initiative and
under the powers of the HSCA 2012, NHS England has
directed the HSCIC to collect and process a linkage of
primary care data with Hospital Episode Statistics. The
data will be extracted as a set of patient records that
meet the extract specification criteria i.e. where
particular event types have been recorded in a
specified period and the record is not in the exclusions
criteria.
7. State
Submitted to ROCR
8. ROCR
Reference No
9. Start Date
13/04/2015
10. End Date
13/04/2019
Proposal for ROCR Approval
11. FT
Collection
Type
NOT REQUIRED
12. Collection
Type
VOLUNTARY
13. Owning
Organisation
Health and Social Care Information Centre
14. Owning
Department
care.data programme
15. Owner
Name and
Contact
Details
Name: Alex Brown
Email: alexander.brown3@hscic.gov.uk
Location: HSCIC, Bridgewater Place, Leeds
16. Senior
Supporting
Official Name
Tim Kelsey
17. Senior
Supporting
Official
Contact
Details
Title: National Director for Patients and Information
Tel No: N/A
Email: N/A
Location: NHS England
18. Data
Provider Burden Days
21.2
18. Data
Provider Burden £
£ 10515.41
Proposal for ROCR Approval
18. Frequency
Monthly
18. Source
Organisations
(Number of
orgs)
GP Practice (265)
19. Set Up
Costs
£0
20. Other
Costs
£ 4571439.0
21. Total
Costs
£ 4581954.41
22. Please
explain the
reason for any
increase or
decrease in
burden and
provide
details of the
any other
costs figure
provided in
Q20
This will be a new extraction, so no increase or
decrease in burden. Data is to be extracted using
GPES. Burden is: GPs have to review terms and agree
to sending the extract. This can be reduced by using
browser settings to always allow extract. GPs can
view/download extracted data as a .csv file and have
another opportunity to give/remove consent for data
to flow.
23. Benefits to
Patients and
the NHS
"Benefits identified by care.data Monitoring outcomes
e.g. measuring the effects of intervention Monitoring
care pathway at a CCG or Practice level e.g. activity
and cost for a specific type of pathway. Benchmarking
e.g. comparative data on GP Practice performance
Improving Data Quality Improved performance
monitoring e.g. identifying A&E trends or referral rates
across practices Increase accountability in the health
service by making data more widely available Possible
other benefits Reduction in local collections and
Proposal for ROCR Approval
reporting for national data collections Applying
national Risk Stratification Scoring" Benefits Planning
Analyst has identified the following benefits: Improved
service design and delivery with commissioning that is
responsive to local health requirements Improved
collaboration for whole health communities in the
design and delivery of services and supported by
responsive commissioning Improved continuity of care
Improved patient and carer confidence that the clinical
intervention they receive is responsive to their
individual needs Improved patient and carer
confidence that the clinical intervention they receive is
based upon an agreed, clinically endorsed care
pathway Improved patient and health related outcome
measures that are based upon complete pathways of
care Improved confidence in background health
information used clinical assessment and consultation
24. Financial
benefits to
running this
collection
Pathfinders is an exploratory phase of care.data
primary care extractions. The benefits have been
outlined above, and these may be realised as financial
benefits to the NHS.
25.
Publication
methods
Waiting for resources to publish.
26.
Publication
Links
There will be no publications initially but publications
are part of the HSCIC strategy for the primary care
function being established. We won’t know any
timescales until the primary care function gets up and
running.
27.
Requesting
Organisation
Health and Social Care Information Centre
28. Collection
Method
Extract from existing NHS systems, Database extract
Proposal for ROCR Approval
29. NHS
Mandate
Commitment
"Care.data is part of Offer 4: Better data, informed
commissioning, driving improved outcomes in
everyone counts. http://www.england.nhs.uk/wpcontent/uploads/2012/12/everyonecountsplanning.pdf"
30. Changes
since last
assessment
31. Data in
operational
systems
Yes
32. Plans for
collecting this
data from
operational
systems
33. If the data
was not
collected,
what would
the
consequences
be
We would not meet our public commitment made to
Secretary of State.
34. Is there an
impact
assessment or
business case
for this
collection? If
so please
attach
No
35. Process
required for
"Data will be applied for through the Data Linkage and
Extract Service, who have strict application and
Proposal for ROCR Approval
others to go
through to
obtain the
data
governance processes. http://www.hscic.gov.uk/dles"
36. Keywords
Care.Data, Primary care, Linkage
37. National /
Official
statistic
38. Method
used to store
the data
Data is received into a secure and dedicated area on
the DME File share. The DME Filestore is located in
Plymouth.
39. Why
sampling is
not used
The Pathfinders phase of the programme is an
exploratory phase, and an extract will be taken from a
maximum of 265 GP practices across 4 CCGs (Leeds
combined, Blackburn with Darwen, West Hampshire
and Somerset)
40. Details of
any pilots
Through the Pathfinder engagement we will be
communicating with the GP practices about the data
extract. We will have a set of products including a GP
toolkit and GP FAQs which will provide general
information regards using the GPES tool for data
extraction, what data will be extracted, the frequency
of the extraction and in the toolkit we’ve included a bit
more detail in terms of accessing GPES, the data
downloader and about the preferences settings with a
pointer out to the GPES guidance for more detailed
instructions. When we are closer to the point where
we know we are ready to go ahead with extraction i.e.
all the necessary approvals are in place we will contact
each GP practice that has agreed to participate to
make sure they are aware that they will be receiving
the Stage 1 notification and the timescales they will
have for this stage and the stage 2 process
Proposal for ROCR Approval
41. Equalities
dimensions
used in the
collection
Age/Date of Birth, Gender, Ethnicity (NHS standard 16
+ 1)
42. Policy that
the collection
supports
This extraction has not been completed yet.
43. IG Data
type
Patient identifiable, Record level, Pseudonymised,
Anonymised