Lymphoedema Network
Northern Ireland
PROJECT TEAM: NOTES OF MEETING HELD ON: 14th December AT: 1.30pm IN: Jane Rankin’s Office
Present:
 Attended
 Apology received
 Ms Gillian McCollum
 Ms Lynne Whiteside
 Ms Debbie Schofield
 Ms Pippa McCabe
 Ms Elaine Stowe
 Ms Jane Rankin
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ISSUE
CORE POINTS FROM DISCUSSION
ACTION
1.
Agree previous minutes and
actions
Previous minutes agreed – to be up-loaded to website
Jane
2.
Matters Arising
2.1 Western Trust recruitment/
review clinics
Jane and Pippa to attend Altnagelvin
Review clinics Northern- Full days 18th and 21st Dec 09
Southern- half days 15th and 22nd Dec 09
Leads
2.2 PfA
Theresa Magirr now the link to the Agency
Note
2.3 Sept Beeches Training
Leads to seek feedback from management and AD/Directors links re the poor
uptake of the courses and how to ensure better attendance when repeated
next year
Leads
Cardio vascular Framework
There will be a delay to data collection so that it can be achieved using
Lymphdat rather than manually. Will be used to measure a baseline and then
increase.
3
(This led to a discussion on the assessment form and the need for it to reflect
the Lymphdat info-leads to meet in Jan to work on this)
Leads
Lymphoedema Network
Northern Ireland
4
Cancer Framework
When scrutinized by ‘plain English’ there was a change to document-now
states it’s LNNI responsibility but should remain the clinical teams
responsibility
Stats for Gynae and Breast will be captured by ‘CAPS’
5.
Trust Audit programme
6.
Trust Contact Groups
6.1
Review the document and return comments directly and cc to Jane before
Jan
Leads
Services to be measured against the suggested criteria-to be completed by
end of Jan
Leads
To send Jane date and venue for next Trust Lymphoedema meeting
Leads
Lymphoedema Network
Northern Ireland
7.
Dates:
Complex Clinic
Complex Clinic - Potential dates agreed( *subject to the Network extending)
26th February 2010
*14th May 2010
*13th August 2010
*26th November 2010
Jane – to check availability of space and advise medical staff
Board meeting
Board meeting dates( *subject to the Network extending)
2nd March 2010
*8th June 2010
*14th September 2010
*7th December 2010
15th March 2011
Jane
Jane to share with Clare re availability
8.
Education strategy
9.
Trust Awareness Sessions
9.1 programmes
Training dates- Dermatology 18th Feb-leads to send around the flyer again
Casley Smith Feb-May, May dates update
Leads
To note
Update work plans to be sent to Jane by end of Dec- for Jan/Feb sessions
Leads
Also training records to date to include demographics
9.2 pre/post questionaires
Provide results to date
Lymphoedema Network
Northern Ireland
10.
Patient and Public involvement
Intratrust PPI group. Stakeholder events should happen by end of Feb. Send
dates, times and locations to Jane
All leads
Opportunity to launch non-cancer leaflets and lymphdat
11.
PR Work Plan
11.1 Journal of Lymphoedema
For publication in April
11.2 Engage Award
Not successful
11.3 AHA
Review submission- change of category
11.4 Mike Philpot
Deferred until New year
Jane
12
AOB

Leads
13.
Next Meeting
Monday 25th Jan All day, am for assessment, pm project meeting
Patient information leaflet – non-cancer (draft) reviewed. All final
comments to Jane by 18th Dec.
Jane