Web Strategies of National Cancer Organizations

Web Strategies of National

Cancer Organizations

Kate Perch

MS/HCOMM Student

Tufts University School of Medicine

Research Associate

Tufts Medical Center

Web Strategies of National

Cancer Organizations

National Cancer Institute

American Cancer Society

Leukemia & Lymphoma Society

National Cancer Institute

About NCI

Organization:

One of 11 government agencies within the DHHS under NIH.

Mission:

NCI coordinates and supports research , education and training, and health information dissemination to improve diagnosis, prevention, and treatment of cancer, rehabilitation from cancer, and the continuing care of cancer patients and the families of cancer patients.

Target Audiences:

Researchers, health professionals, patients, families and friends of patients, and the public.

Web Strategy

Central Website: www.Cancer.gov

Initiative-specific websites

Social media

Facebook

YouTube

Twitter

LinkedIn

RSS feeds

 NIH videocasts

& podcasts

www.Cancer.gov

 1995: CancerNet  2002: Cancer.gov  2004/05: Awards

Information on cancer topics, clinical trials, cancer statistics

Educational publications & training modules (PDF/PPT)

Online Chat with cancer information specialist

NCI & other cancer-related news (website, e newsletter, videos,

RSS feeds)

Clinical trial search tool for patients & physicians

Information on research & funding opportunities and data sharing tool (caBIG) for researchers

Medical database (PDQ) for physicians/healthcare providers

Pressroom for media (video/audio footage)

Social media/RSS feeds organized/easily accessible

NCI SWOT Analysis

Strengths

Large number of qualified staff dedicated to communication initiatives

Accurate information (reviewed by board of medical experts)

Access to Usability.gov guidelines to developing user-centered websites

Several web-based mechanisms utilized to disseminate information (online chat, databases, search tools)

Social media , RSS feeds, e newsletter organized/accessible

Use of comprehensive user feedback survey (American

Customer Satisfaction Survey)

Opportunities

New web-based technologies for patients & providers available

(mobile applications, web-based tools/portals)

Weaknesses

 Umbrella website visually unappealing (too “crowded” and hard to read small font)

Not well organized to allow for easy access to information relevant to a specific target audience

No blogs

No user registration/account feature

Threats

Several other competing cancer-related websites are available on the web

American Cancer Society

About ACS

Organization:

The American Cancer Society is a nationwide, community-based, voluntary nonprofit health organization.

Mission:

The American Cancer Society is “dedicated to eliminating cancer as a major health problem by preventing cancer, saving lives, and diminishing suffering from cancer, through research, education, advocacy, and service .”

Target Audiences:

Patients, caregivers and families of patients, healthcare providers, researchers, advocates, sponsors, volunteers, and the public.

Web Strategy

Central Website: www.Cancer.org

Other websites

MoreBirthdays.com

AcsCan.org

Social Media

Facebook

Twitter

YouTube

LinkedIn

RSS feed

Dr. Len’s Cancer Blog

Powerful Choices

Podcasts

www.Cancer.org

Launched in 1996 as simple information tool for patients

New site launched in June 2010

Educational materials (print & video)

Health management tools (calculators, health quizzes, screening reminders)

Patient support tools (treatment locator, Cancer Survivors Network w/ discussion boards, online chat w/ cancer information specialist)

Clinical Trial Matching Service (online survey w/ customized feedback)

Event calendar & online registration for volunteers (local, nat’l)

Online donation capability

Grant finder & online application process for researchers

Links to advocacy website w/ news, event calendar, local/national advocacy alerts

ACS SWOT Analysis

Strengths Weaknesses

Large number of qualified staff dedicated to communication initiatives

Advanced search tool (site section & content type specific)

Links to other ACS websites easily accessible on homepage

Comprehensive website evaluation

Use of several web technologies to achieve mission

(discussion board, online donations, resource finders, online chat)

Social media sites, blog, podcasts and e newsletters and online chat feature not accessible through homepage

All resources for healthcare providers & researchers difficult to find

Clinical Trial Matching Service difficult to locate on website

Disappointing use of RSS feed technology

Opportunities

New web-based technology to link patients to volunteers and expert advice from healthcare providers (e.g. mobile apps)

Threats

Several other competing cancer-related websites are available on the Web (Cancer.gov, Cancer.net)

Leukemia & Lymphoma Society (LLS)

About LLS

Organization: The world's largest voluntary health organization dedicated to funding blood cancer research and providing education and patient services.

Mission: To cure leukemia, lymphoma, Hodgkin's disease and myeloma, and improve the quality of life of patients and their families by supporting research and connecting patients, families and caregivers to expert information and support .

Target Audiences: The target audiences of the LLS include patients, caregivers and their families, researchers, healthcare providers, volunteers, advocates, and sponsors.

Web Strategy

Central Website: www.LLS.org

Event-specific websites

Social Media

 Facebook

Twitter

YouTube

LinkedIn

RSS feeds

Blog

Podcasts

www.LLS.org

 Website launched in 1997  Updated 2001  Freddie Award finalist

Redesign in 2009 (LLS’ 60 th Birthday!)

Patient Services

Web-based support tools, Caregiver management tools

Treatment locator, Clinical Trial locator

Disease Information

Information on blood cancers & treatment options

Educational videos, webcasts & print materials

How to Help

 Online donations, Online volunteer registration

Advocacy

Advocates Network, ‘Toolbox’, Legislator finder

Science/Professionals

 Grant information, Education programs, PubMed

LLS

 About US

 Pressroom

LLS SWOT Analysis

Strengths

Website information and features well organized by target audience

Several web technologies used to achieve mission

(websites, Live chat, discussion boards, social media, podcasts, etc.)

Seals of approval displayed to communicate credibility to visitors

Weaknesses

Homepage very crowded

Links to other LLS sponsored websites and social media sites aren’t easily accessible

No website user feedback survey

Do not optimize use of social media for all audiences

Opportunities

New web-based technology to link patients to volunteers and expert advice from healthcare providers (Mobile apps)

Comprehensive website user feedback surveys have been developed and are available

Threats

Several other competing cancer-related websites are available on the Web

Comparison of Web Strategies

Website Features

User registration

Discuss. boards/Online support network

Live Chat

Enewsletter

Patient care-management tools

User feedback survey

Other Web Technologies

NCI x x x

Social Media

Blog

Videocasts/Podcasts

RSS feeds

Accessibility

Other sponsored websites

Social Media sites

RSS feeds

Blog

Videocasts/Podcasts x x x n/a x x n/a

ACS x x x x x x x x x x x x

LLS x x x x x x x x x x x

Comparison of Site Use

Popularity : Alexa Traffic Rank

Reputation : Sites Linking In

Reach : % Global Internet Users (1 mo.)

Cancer.gov

Cancer.org

LLS.org

12,620 14,556 231,102

7,299

0.013100

11,736

0.01200

563

0.00069

Alexa Traffic Rank: Combination of average daily visitors to website and pageviews on website over the past 3 months.

Sites Linking In: The number of other websites linking to site.

% Global Internet Users : % of global internet users who visited website in past month.

Data obtained from Alexa.com

Recommendations for NCI

Reorganize information on website by target audience

Website could be more visually appealing, less

“crowded”

Link to NIH videocasts/podcasts relevant to NCI constituents

Create blogs for different target audiences

Offer access to evidence-based web-technologies for patients & providers (communication, care management)

Allow users to register for an account on website

Optimize use of social media to reach patients & families

Recommendations for ACS

Create links to social media sites, blog, podcasts, e newsletters and online chat feature on homepage; and/or

Create one page with links and descriptions of content

(same as Cancer.gov)

Reorganize website contents by target audience

Make Clinical Trial Matching Service more accessible

Optimize use of RRS feed technology

Optimize use of social media to reach healthcare providers & researchers

Recommendations for LLS

Eliminate clutter from homepage

Move website sections to top of site

Add links to other LLS sponsored websites, social media sites & blog to homepage; and/or

Create one page with links and descriptions of content

(same as Cancer.gov)

Add website user feedback survey to website

Optimize use of social media to reach healthcare providers & researchers

Thank you.

Questions?