A Program to Address the Psychosocial
Impact of Cancer
Melissa Wright, LMSW, OSW-C
Program Director
Gilda’s Club Quad Cities is an affiliate of
the Cancer Support Community
Our mission is to ensure that all people
impacted by cancer are:
•Empowered by Knowledge
•Strengthened by Action
•Sustained by Community
www.cancersupportcommunity.org
Psychosocial Support: A Documented Need
GUIDELINES
•
•
•
In 2008, the Institute of Medicine released a consensus report “Cancer Care for the
Whole Patient,” addressing the non-treatment needs of patients 1
Consensus-based guidelines developed by the Distress Management Panel of the
NCCN recommend screening all patients regularly for psychosocial distress 2
CDC recently presented a National Action Plan for Cancer Survivorship 3
LEGISLATION
Patient Navigator Outreach and Chronic Disease Prevention Act of 2005
requires that each grantee agrees to …facilitate the care of individuals, including by:
• Acting as contacts
• Facilitating the involvement of community organizations
• Coordinating with health insurance programs
• Notifying individuals of clinical trials
• Helping patients …to ensure prompt diagnostic and treatment resolution
• Conducting ongoing outreach to health disparity populations
www.cancersupportcommunity.org
The Need
Cancer diagnosis
creates unique
psychosocial
needs
Overcoming
psychosocial
challenge leads
to therapy
adherence, side
effect awareness
and physical
persistence
Psychosocial
screening
improves the
care process
and potential
outcome
Psychosocial support offers a
gateway to improved patient wellbeing and clinical outcomes.
source “Cancer Care for the Whole Patient: Meeting Psychosocial Health Needs - Institute of Medicine." IOM Home - Institute of Medicine. Web. 31 Jan. 2012.
www.cancersupportcommunity.org
Screening Addresses
Seven Areas of Need
Cancer
Treatment
Information
Emotions
Related to
Cancer
Managing the
Illness
Changing
Behaviors
Material and
Logistical
Resources
Disruptions in
Work, School,
and Family
Financial
Advice and
Assistance
Cancer Care for the Whole Patient: Meeting Psychosocial Health Needs - Institute of Medicine." IOM Home - Institute of Medicine. Web. 31 Jan. 2012.
<http://www.iom.edu/Reports/2007/Cancer-Care-for-the-Whole-Patient-Meeting-Psychosocial-Health-Needs.aspx>.
www.cancersupportcommunity.org
Psychosocial Distress
Screening Program
Design
• Web-based, validated 25 item distress screening program for the
community setting
• Data is protected and system is HIPAA compliant
• Patient empowered to self-identify both concerns and how to receive
support
• Real-time summary reports to both patient and clinical team
• Referral to appropriate community resources, if identified
• Capacity for customization and EHR interface
Use
• Community Cancer Centers
• Private Oncology Practices
• Cancer Support Community Affiliates
www.cancersupportcommunity.org
CSC Screener Sample Question
www.cancersupportcommunity.org
7
CSC Screener Sample Question
www.cancersupportcommunity.org
8
CSC Screener Sample Question
www.cancersupportcommunity.org
9
CSC Screener Sample Question
www.cancersupportcommunity.org
10
Excerpt from
CSS Patient Personal Support Care Plan
When a patient answers
specific
CancerSupportSource
questions, there is
pre-defined information that
is generated back to them in
form of the Support Care
Plan.
www.cancersupportcommunity.org
Excerpt from
CSS Clinician Summary Report-Part 1
When a patient
answers positively
to concerns about
taking one’s life,
there is an email
that is automatically
sent to a pre-defined
email address. The
patient will then be
contacted by a
member of the
clinical team.
www.cancersupportcommunity.org
Excerpt from
CSS Clinician Summary Report-Part 2
This portion of the
report displays
‘Concern, Answer
and Action’ as
requested by patient
for easy review by
clinical staff and
medical team.
www.cancersupportcommunity.org
Patient response
triggers referral to specialists
www.cancersupportcommunity.org
Specialists can track referral resolution
www.cancersupportcommunity.org
CSS Pilot Program
CSS Pilot Objectives:
•Identify distress-related problems cancer patients are experiencing
•Link patients (members) to resources available in the community
including print materials, online resources, GCQC/CSC programs,
and other appropriate referrals
•Conduct evaluation of the screening program
•To develop best practices for screening in the community
www.cancersupportcommunity.org
CSS Pilot Program
Lessons learned thus far:
•
•
•
•
•
•
It is feasible to screen and members find it helpful
The technology is user-friendly
Provides members/patients with vital information
Provides objective tools to plan/deliver programs
Validates individual needs while deepening their
connection in the Community
Generally see distress scores decrease between baseline
and 30 day re-screen
www.cancersupportcommunity.org
Next Steps to
Implementation
Timeline
• Comprehensive Pilot Project in Davenport, Iowa and Atlanta,
Georgia, currently underway concluding Fall 2012
• Validated CSS version 2.0 available for implementation
September-October 2012
Costs
• Annual license fee including support and maintenance
• One-time set-up cost
• One-time customization cost (to include EHR or other system
interface, if desired)
www.cancersupportcommunity.org
For more information
For information on
CancerSupportSource™
contact:
Mitch Golant, PhD, Senior VP Research and Training
Cancer Support Community
mitch@cancersupportcommunity.org
Vicki Kennedy, LCSW
Vice President, Program Development & Delivery
vicki@cancersupportcommunity.org
www.cancersupportcommunity.org
About Cancer Support Community
The largest psychosocial cancer organization,
Cancer Support Community (CSC) provides personalized, evidence-based
social and emotional support to any person impacted by cancer
Headquarter Offices:
• Washington DC
• New York City
• Philadelphia
International Reach
• The Living Room Online Community
• Group Loop
• National Call Center
• Mobile App
• Internet Radio Broadcast
Network:
• Recognized Frankly Speaking About
• 44 US-based Affiliates
Cancer Series of Educational Materials
• 4 International Affiliates
• 9 Affiliates in development
• 4 International Partners
www.cancersupportcommunity.org
Questions and Discussion
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Notes and Citations
1.“Cancer Care for the Whole Patient: Meeting Psychosocial Health Needs - Institute of Medicine." IOM Home - Institute of Medicine. Web.
31 Jan. 2012. <http://www.iom.edu/Reports/2007/Cancer-Care-for-the-Whole-Patient-Meeting-Psychosocial-Health-Needs.aspx>.
2.National Comprehensive Cancer Network. NCCN practice guidelines for the management of psychosocial distress. Oncology (Williston
Park) 1999;13:113–147.
3."CDC - Cancer Survivorship - The National Action Plan." Centers for Disease Control and Prevention. Web. 31 Jan. 2012.
<http://www.cdc.gov/cancer/survivorship/what_cdc_is_doing/action_plan.htm>.
www.cancersupportcommunity.org