Mon_Bayside106_1100_Goldfinch

advertisement

How do we measure health in children

0-5 years in Out of Home care?

Margaret GOLDFINCH , Diana BARNETT, Stacey BLACK, Holly DONNELLY,

Santhini KUMARAN , Anna STACHURSKA, Romina TUCKER

The Children’s Hospital Westmead and Redbank House

1

What health needs?

• Children in OOHC are a vulnerable “at-risk” group.

• This group are likely to have poorer physical, mental and developmental health than their peers. (RACP, 2006)

• 45% if all children in care in NSW in June 2010 were 0-6 years old.

2

• impacts on placement stability

,

(Horwitz et al, 2000; Rubin et al 2004)

• poor academic achievement

• increased risk of mental health problems in adolescence

• poor attachment in relationships as adults.

(Leslie et al, 2005)

3

National Clinical Assessment

Framework

(March 2011)

Physical

- Physical health history

- Physical examination and assessment

- Oral Health assessment

- Health literacy

Developmental

- Developmental history

- Speech, language and communication

- Motor development

- Cognitive development

- Sensory

Psychosocial and

Mental Health

- History

- Mental Health

- Behavioural

- Emotional development

- Social competence

- Development of identity

5

Why is this work so challenging?

• Children/P in OOHC have complex needs

• Change of placements/ carers

• Change of case workers

• Limited medical history

• Information lost/ not handed over

• No consistent advocate for the child

• Contact with birth parents

• Kinship/ relative carers- FOI issues

6

SCHN - OOHC clinic model

• Comprehensive Multidisciplinary assessments for 0- 5 year olds already in care.

• Model based on health, developmental and psychosocial needs identified in literature.

• Partnership between ACC, Redbank House and SCHN

(Randwick and Westmead)

• MD team- Paediatrician, Social Worker/Psychologist,

Audiologist, Orthoptist, SP, and OT. Senior Psychologist to provide supervision

7

OOHC Clinic Assessment

Background info:

• Caseworker makes health referral providing details of background, health information and reasons for entry into care

• Questionnaires sent to carers (ASQ3, ASQSE,

CBCL, SDQ, PSI-SF)

• Teachers- pre-school questionnaire (designed by clinic, four areas- motor performance, preacademic skills, language skills, social and behaviour)

8

0-5 yr old OOHC Clinic Assessment

Physical

Medical examination

Audiology Asst

Vision and eye screen

Psychosocial and

Mental Health

Play assessment

Interview with carer

Observation of child/ carer interaction/ relationship and attachment

Address any concerns raised by caseworker

Review preschool FB

Developmental

Developmental hx

ASQ3 review

Play assessment

Clinical observations during appointment

Formal assessment by

OT and/or Speech pathologist if indicated

Preschool quest’aire

9

Questionnaires

ASQ3 (Ages and Stages 3)- parent completed, developmental screener, covers communication, gross motor, fine motor, problem-solving, personal-social

CBCL (Child Behaviour Checklist)- assess a child’s behavioural, emotional and social problems and competencies from their parent or carers point of view

PSI (Parenting Stress Index)- measures stress experienced by a carer in caring for a particular child, due to the specific features of the child or the nature of interactions with them

10

• ASQ SE (Ages & Stages Questionnaire –

Social/Emotional ) monitors a child’s development in the areas of self-regulation, compliance, communication, adaptive, autonomy, affect and interaction with people.

SDQ (Strengths & Difficulties Questionnaire) - focuses on whether a child has difficulty with emotions, concentration, behaviour or getting along with others.

• Preschool/ School Questionnaire

11

Referral Information –

Search for

“Red Flags”

• Reasons for Removal

• Exposure to DV, abuse, AOD,

• Placement History

• Age at entry to care, number of placements, any placement breakdowns

• Medical history

• Genetic vulnerability, perinatal insults, neonatal abstinence syndrome, is child on medications

• Any Concerns from carer, child care, agencies

• Behaviour (tantrums, aggression),illness, developmental, social skills

• Inconsistencies between reports of child’s behaviour in different settings (eg carer and childcare)

12

Paediatric Assessment

Medical history

Sources of information :

• FaCS

(pre assessment - health questionnaire), blue book, ACIR, carer,

• Medical records

(neonatal and other discharge summaries, copy of medical letters)

,

• Reports

(AOD centre, psychologists, preschool)

Focus on: prenatal exposure to alcohol/ illicit drugs, prenatal exposure to Hepatitis B or C, perinatal complications, family history of developmental /intellectual disabilities, genetics, early growth parameters and how it change over time,immunization status, medications, allergies and current health concerns

Physical examination:

Focus on: growth, nutritional state, physical evidence of prenatal exposure to alcohol, dysmorphic features & thorough systemic examination ie. respiratory, cardiovascular, neurological, etc…

Allied health

• Audiology clinic: hearing testing

• Eye clinic: vision and eye screening

13

Psychosocial Assessment

• Any emotional or behavioral concerns? –eg tantrums, aggression, “spacing out”, sexualized behaviour, regulation problems

• Sleeping, eating, settling, comfort seeking, play, peer relations, sibling issues

• How these are managed by carer

• How does child relate within the foster family?

• Response to contact w biological family

• Developmental history (if available)

• Social and communication skills

• Review preschool feedback

14

Semi structured Play Assessment

Modified from Crowell Assessment (1988)

Approx 20 minutes

• Play as you normally would

• Follow child’s lead ( play skills collaboration, reciprocity, enjoyment)

• Ask child to pack up ( compliance , cooperation)

• Bubbles (enjoyment, collaboration)

• Puzzles (skills, attention, concentration, scaffolding, collaboration)

• Brief separation (3 mins)

• Reunion

• Reflection

15

Observations

Carer - sensitivity, structuring , intrusiveness, hostility

- Availability as a secure base

Child -responsiveness, involvement, initiative, regulation, cuing/miscuing carer, imagination

- Use of carer as a secure base

Dyad – comfort, tension and regulation, joint attention, reciprocity, enjoyment, mutuality

Multi D team Observations – developmental/play skills, fine motor, communication, multiple views of same behaviour or interaction -> rich discussion

16

Multi D Team Discussion

Medical Investigations/

Specialist referrals

Referral to

Speech or Occ

Therapy

HM

Report

Further Psych

Assessment or follow up support

Early Intervnention services

17

Steven

• 4 year old boy, removed at 24mths

• Two short term placements and has been in current placement for last 18 months

• Birth parents have intellectual disabilities, two siblings with developmental delay

18

• History of neglect , A & D during pregnancy and parental IV drug use (unknown Hep C status)

• Starting school next year, attends pre-school 3 days/week

• Pre-school worries about his learning, fine motor skills and outbursts of aggression towards peers

• Monthly contact with birth family. Carer reports difficulties with his behaviour before/after contact visit

19

Questionnaires :

• ASQ- III concerns in communication, fine motor, problem solving and personal social skills

• ASQ- SE and CBCL, SDQ- indicate problems with aggression, emotion regulation, concentration and sleep

20

Psychosocial

• Carer struggling with his behaviour at home

• Stephen has difficulty following directions (observed)

• Puzzle skills poor for his age. Carer not able to help him persist and had trouble encouraging him to pack up

• Quickly moved between play objects but didn’t persistently engage with any activity to developmental expectations

• Steven didn’t acknowledge return of carer after separation, or use her as a ”secure base” during the interview

21

Physical/ Medical

• No medical history prior to this placement

• Growth - 3 rd centile for height and weight (genetic? early neglect or organic ? no previous measurements)

• Mild facial dysmorphic features (no biological relatives to compare with)

• Dental decay

• Sleep difficulties- snores

• Hearing assessment: mild conductive hearing loss bilaterally

• Unremarkable rest of examination

22

Developmental

• Pre-school teacher indicated difficulties at preschool, poor fine motor skills and inability to follow instructions

• Clinic observations and screening questionnaires indicate need for formal developmental assessment

• Referred to OT and Speech Pathology within clinic

23

OT Assessment

• Completed M-FUN. Scores on fine motor component and visual motor component were below average.

• General observations showed some inattention during activities.

• Scattering of abilities and experience across different skills eg. Unable to cut along a line, poor drawing skills but aged appropriate self care skills

• Carer not having good knowledge of what is appropriate for their age

24

Speech Assessment

• Language skills assessed using the CELF-

Preschool-2.

• Difficulties with following directions accurately.

• Expressive language testing revealed reduced vocabulary and short length of utterance for age.

• Short attention span noted

25

Health Management Plan

(Recommendations)

• Continued stability in placement

• Support for carer around understanding and managing behavioural presentation

• OT &SP referral with Early Intervention

• Liaison with Department of Education and Communities (DEC) school planning

• Psychometric assessment prior to school

26

• ENT referral

• Routine oral health follow-up

• ?Genetics referral and investigation for DD

• Link with Paediatrician and GP - to monitor health, growth and developmental progress

• Caseworker to compile all health information and have access to this on file

27

Strengths of Multidisc Team

Assessment

• Combined interview :-

• More than one perspective on behaviour, symptoms or observations which appear contradictory in interview

• Allows medical assessment longer time frame

• Raises the profile of importance of developmental and psychosocial issues in health management of foster children

• Each clinician learns from other disciplines and improves assessment eg evolution of the play assessment

• Less clinic visits for carer and child

28

• Second occasion and location of assessment by OT & SP

• Picked up consistencies in child’s presentation and interaction w carer

• Subsequent team discussion

• richer and more balanced view of overlapping and complex symptoms and the child’s needs

• Combined HMP and Report

• Broader view of child’s wellbeing

• Greater access to/knowledge about services for follow-up

29

Difficulties we Encountered

• Some carers/families uncomfortable or suspicious of emotional or psychosocial assessment

• Large time allocation needed for collating information and writing comprehensive report

(considerable time)

• Single interview – sometimes needed time for discussion and reflection after interview before giving feedback

• Background history and information difficult to find due to fragmentation

• Different carers have different needs or expectations from the assessment process

30

Questions??

31

Reference:

Australian Institute of Health and Welfare (2010)

Chambers, M., Saunders, A., New, B. Williams, C. & Stachurska, A. (2010). Assessment of children coming into care: Processes, pitfalls and partnerships. Clinical Child Psychology

and Psychiatry. 15(4): 511-526.

Community Services Annual Report (2010)

Horwitz, S., Owens P., & Simms, M. (2000). Specialized assessments for children in foster care. Journal of Pediatrics. 106: 59–66.

Kaltner, M. & Rissel, K. (2011). Health of Australian children in out-of-home care: Needs and carer recognition. Journal of Paediatrics and Child Health. 47: 122-126.

Leslie, L., Gordon, J., Lambros, K., Premji, K., Peoples, J. & Gist K. (2005). Addressing the developmental and mental health needs of young children in foster care. Journal of

Developmental and Behavioral Pediatrics. 26: 40–51.

32

Nathanson, D. & Tzioumi, D. (2007). Health needs of Australian children living in out-ofhome-care. Journal of Paediatrics and Child Health. 43: 695-699.

Osborn, Alexandra and Delfabbro, Paul H. (2006) Research Article 4: An Analysis of the

Social Background and Placement History of Children with Multiple and Complex Needs in

Australian Out-of-home Care. Communities, Children and Families Australia. 1 (1): 33-42.

Rubin D, Alessandrini E, Feudtner C, Mandell D, Localio A & Hadley T. (2004). Placement stability and mental health costs for children in foster care. Journal of Pediatrics. 113:

1336–41.

Reynolds, S. (2008). Kari Clinic. KARI Aboriginal Resources Inc. SNAICC News

Tarren-Sweeney, M. & Hazell, P. (2006) Mental health of children in foster and kinship care in New South wales, Australia. Journal of Paediatrics and Child Health. 42: 89-97.

The Royal Australasian College of Physicians. (2006). Health of children in "out-of-home" care. 1-28.

Townsend, A. & Shelley, K. (2008). Validating an instrument for assessing workforce collaboration. Community College Journal of Research and Practice, 32 101-112.

33

Download