Michelle Crozier Associate Professor Heidi Muenchberger Griffith Health Institute, Griffith University Presentation Outline • Your Life Your Choice – Queensland Government initiative • Industry Partnership • Research Program Logic • Research Aim • Staged Action Research • Interviews – YLYC Participants • Focus Groups & Interviews – Host Providers • Initial Findings • Survey development Your Life Your Choice • Your Life Your Choice (YLYC) self-directed support was launched by the Premier and Minister for Communities, Child Safety and Disability Services in September 2012 • YLYC enables people with disability and their families to have more choice and control over their disability supports and services • YLYC introduces self-direction to Queensland • YLYC helps people with disability and their families get ready for more choice and control under the NDIS Industry Partnership Your Life Your Choice “Self-Directed support is an approach which enables people with a disability and/or their family to have choice and control over their disability supports and services to achieve positive outcomes in their lives. By using funding and other resources to plan, purchase and select supports and services that suit individualised needs, people with a disability and/or their families become active participants in the design and delivery of their disability support.” Your Life Your Choice • This policy direction is consistent with other jurisdictions across Australia • Self-direction is not new • YLYC is not new funding, it is a new option to change the way services are delivered through increasing choice and control. • Changes to the Disability Services Act (2006) • Ruling from the Australian Tax Office and Department of Social Security that where this funding is paid directly to a person or family it is not included as income. • The funding is paid quarterly in advance. • Currently there are 109 approved host providers and over 1050 participants self directing under Your Life Your Choice. • Vision to embed people in community through purchasing services in more typical ways. Your Life Your Choice Research Aim • Develop a snap shot understanding of Your Life Your Choice on participants who have moved from a traditional model’s of service delivery (or are new to services) to Your Life Your Choice through two quarters of payments. • It also involves developing an understanding of the experiences of Host Providers. Staged Action Research Part 1 Part 2 Part 3 • Ethics • Literature Review • Protocol development •Interviews & Focus Groups (Participants and host providers) •Data Analysis •Survey (informed by focus groups and interviews) •Data Analysis • Data Synthesis • Final Report YLYC Research Participants • • • • • • Eligible Recruitment Pool (n=261) Random Sample (n=63) Invitation to participate Respondents (n=14; 22%) Interviewed (n=12; 19%) Mixture of participants YLYC Research Participants RELATIONSHIP REGION METHOD Guardian Brisbane Host Provider Father South East Host Provider Adult Foster Parent Brisbane Host Provider Mother North Coast Host Provider Adult Foster Parent Brisbane Direct Payment Mother Brisbane HP going to DP Person Brisbane Host Provider Person Brisbane Host Provider Mother North QLD Host Provider Person Brisbane HP going to DP Mother Mother Brisbane Central QLD Host Provider Host Provider Research Host Providers • • • • • Eligible Recruitment Pool (n=99) Respondents Focus Group (n=15; n=12 orgs) Interviewed (n=4; n = 3 orgs) Operating across regions (n=11) Organisations: Mamre, Staffing Options, Bespoke, Alara, Muscular Dystrophy QLD, Uniting Care, Autism QLD, HealthCare group, Xavier Children Support Network, Carers QLD, Endeavour Foundation, Horizon, Compass, Centacare & Flexi QLD. Key Research Themes • The journey toward Your Life Your Choice • Experiences of Your Life Your Choice • Operating Your Life Your Choice Research Survey: Participants • Background Information • Your Life Your Choice Experiences • Host Provider Experiences • Departmental Experiences Research Survey: Host Providers • Region/s • Participants • Host Provider Arrangements • NDIS readiness What is next? • Distribute Host Provider Survey • Distribute Participant Survey • Analyse Survey Results • Prepare Final Report References • • • • • • • • Crozier, M., Muenchberger, H., Colley, J., & Ehrlich, C. (2013). 'The disability self-direction movement: Considering the benefits and challenges for an Australian response'. Australian Journal of Social Issues, 48 (4), 455-471 Crozier, M., & Muenchberger, H. (2013). ‘It’s your problem, not mine’: does competence have anything to do with desire and aspiration to self-direct? Australian Health Review, 37(5), 621-623. Dorsett, P. Chenoweth, L. Crozier, M. & Reese, K. (2014) Users experiences of self-direction: responding to the missing evidence for the new important policy paradigm within a national disability insurance scheme. Department of Health and Ageing. (2012). Evaluation of the consumer-directed care initiative Appendices. KPMG. Government of Western Australia. Model of Care Overview and guidelines: Ensuring people get the right care, at the right time, by the right team and in the right place. WA Health Networks Retrieved from http://www.healthnetworks.health.wa.gov.au/publications/docs/070626_WA_Health_Model_of_C are-overview_and_guidelines.pdf. New South Wales Government. (2011). Living Life My Way: putting people with a disability at the centre of decision making. Queensland Government. (2012). Your Life Your Choice: self-directed support framework. Brisbane. Victorian Government. Self-directed planning information sheet. Melbourne: Retrieved from http://www.dhs.vic.gov.au/__data/assets/pdf_file/0008/596573/1_cis_self_directed_planning_info _sheet_pdf_290609.pdf.