EQUAL PARTICIPATION AND
INLCUSION FOR
PEOPLE WITH DISABILITIES
30th November 2011
DR. CATE HARTIGAN
DISABILITY SERVICES HSE
PRINCIPLES
“Every person with a disability would be supported to enable
them, as far as possible, to lead full and independent
lives, to participate in work and in society and to
maximize their potential”
- Towards 2016
People with Disabilities need
 Flexible supports to suit individual needs though the use
of mainstream local services
 To do ordinary things in ordinary places
 More opportunities for families to play their part in
supporting their family member
Summary of Key Themes emerging from the Review of
Disability Policy
POLICIES



UN Convention on the Rights of Persons
with Disabilities, 2009
National Disability Strategy, 2004. This
provides the overarching framework for
legislative and policy development. (The
Disability Act 2005, the Education for
Persons with Special Educational Needs
Act 2004, The Health Act (HIQA) 2007
and the Citizens’ Information Act 2007).
The emerging DoH policy direction (Value
for Money and Policy Review),
CURRENT ISSUES








HSE Disability Service Governance
National Consultative Forum
Budget
Inspection and Registration
0-18 reconfiguration
Implementation of “Time to Move on from
Congregated Settings”
Resource Allocation Model
Cure or Care Model
VALUE FOR MONEY
From existing resource by
 Moving away from over-medicalised and
professionalised models of care
 Moving to more flexible models of support
focused on greater independence of
individuals
 Introducing a transparent system of
resource allocation
 This would result in more efficient use of
resources, and better value from the
monies invested in terms of individuals'
quality of life (NDA)
PENDING REPORTS




VFM & Policy Review
New Directions-Personal Supports for
Adults with Disabilities
Residential/Respite Care with Host
Families
Review of Autism
HSE Challenges







Basic management accountability
lacking
Governance and management process
variable
Crisis management dominates
Decision making processes unclear
Data unavailability
ICT systems platforms unfit for purpose
Many people committed but
overburdened
IMPLEMENTATION PLANNING
Governance Structure
Health Service Executive
Board
DoHC Cross Sectoral
Working Group
Integrated Service
Directorate
National Disability
Governance Group
New Directions
National Consultative
Forum
National Implementation
Group
Congregated Setting
Service User
New Directions
4 Regional Consultative
Fora
Regional Implementation
Group
Congregated Setting
Service User
New Directions
Local Consultative Fora
(17 bases on Service Areas)
Local Implementation
Groups
Congregated Setting
Service User
What is to be done?








Value for Money and Policy Review
Improving Primary and Community Care
provision
National processes-equity of access
From congregated to community
From segregation to inclusion
Skill mix
Shared services
Commissioning/Tendering
What is to be done?







Leadership
Stop doing some of what we are doing
Innovation, do some thing's differently
Collaboration, non-statutory providers
and State agencies
Early intervention and prevention
Person centred provision
Emphasis on cultural change rather than
structure
Reform: ‘Continuous Discontinuous
Change’


“Where organisations have to cope with many
simultaneous and interactive changes, reacting to
changes in strategy, structure and downsizing, all of
which are stressful and can result in resistance by
employees” (Marks 2007)
Health and Personal Social Services have to implement
 New strategies
 New Policies
 New Legislation
 New Technology
Concurrently with politically driven organisational reform
and
Keeping the “show on the road”