Presentation HPCA Conference 2014 Lynette Janse

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Creating awareness and
networking through
capacity building
Lynette Janse van Rensburg
Background
Brits-Hartbeespoort Hospice is a NGO
situated in the North West Province of
Bojanala Platinum district in Madibeng
(sub-district) that offers palliative homebased care.
Who Cares?
Brits-Hartbeespoort Hospice do!!!
We grab every opportunity to
create awareness, because
only with networking and capacity
building we will be able to reduce
the lost to follow up
With everything we do we want to
spread the message of
Hope and palliative care to
improve patient outcomes
Inner values influence all
around you
Building Compassionate
Communities are only possible by:
Strengthening the health care system by ways of
collaboration with other partners in the community
Taking hands to build a caring community with one
goal:
TO IMPROVE RETENTION IN CARE AND THE LOST IN
TO FOLLOW UP
Our priority is
• Bringing awareness of palliative care to the
local-, rural- and farming communities
The challenge is:
• To raise effective awareness in different areas
of the community to improve patient
outcomes once on the program and to reduce
the lost to follow up
The aim of this presentation is
• To highlight the teamwork approach between
Brits-Hartbeespoort Hospice, Agri-AIDS, DOHmobile clinic and the Madibeng Main Clinic in
addressing TB and other life-limiting
conditions as well as promoting the I ACT
program (Integrated Access to Care and
Treatment)
Methods
• We have the opportunity to access the
farming community by partnering with AgriAIDS
• To collaborate with Madibeng Main Clinic,
DOH Mobile Clinic to ensure continuum of
care
• By creating awareness as a team on Health
Calendar Days (International TB Day, World
AIDS Day, Hospice Week, World Health and
Palliative Care Day, etc.)
Outcomes
• Keep the partnership going through personal
relationship and nurturing.
• Awareness to improve patients outcomes and retain
referrals
• A strong and workable partnership will make a
difference one patient at a time
• Can one person make a difference?
• Yes, but together we can do more in raising
awareness of palliative- and hospice care
Recommendation
• Ongoing communication and feed back to ensure
continuum of care
• Together we can do more in building compassionate
communities in sharing information and knowledge
of palliative care to relief suffering to those infected
and affected by life-limiting conditions
Lessons learned
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NEVER GIVE UP
You can always do something in the way you care
Achieve small goals to improve patient outcomes
There will be obstacles and challenges
But our main focus is to bring hope-peace-comfort
and enhancing dignity for those suffering
• Make it a workable plan for all
• Be visible in your community
• Hold vast to your vision of palliative care for all
The access to Palliative care
• Is a light of hope that brings a smile to a
suffering patient by giving much needed
information regarding the illness, given with
care, time and trust.
• Teamwork is of great importance. You have to
listen with loving ears to understand how to
help and extend our practice of palliative care
Bricks in building a caring
community
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Compassion
Commitment
Loving care
Enthusiasm
Passion
BECAUSE WE BELIEVE: “THERE IS NO-END TO
CARING”
Collaboration with the Madibeng Main
Clinic
International Nurses day
International TB day
Evidence of awareness in our area
Grab every opportunity to nurture relationships
David Mathe (DOH Mobile
Clinic) is our Palliative Care
Champion
World AIDS Day Awareness at
our Charity Shop
Holistic Palliative Care for all
Compassionate care for all
A loving and caring
partnership with the Clinic
AWARENESS
• With every event we create an opportunity to
raise awareness for the I ACT program and TB
screening
• We had the opportunity to showcase our
hospice at the Marikana Wellness Day through
an extended invitation from DOH for all North
West Hospices.
Graceland Community
Raising awareness and
bringing palliative care to the
community
“I ACT” sessions during lunch
hour
Bokfontein
Strive to make a difference
Educating the community
I ACT
• When “I ACT” was introduced we realised it is
the perfect opportunity to start a Support
Group during lunchtime to share information.
It was a safe environment during lunch time to
gather information or ask questions.
I ACT
Creating a caring community through awareness
These are the
advocates for new
referrals and they
are the ones that
will call us and
report very sick
people in the
community.
Taking hands with Agri-AIDS
Sharing information with the
farming community
Teamwork makes everything
easier
I ACT at the farming communities
I ACT
• The I ACT program is the way forward to
encourage people to get tested and for the
infected to get referred and get support and
information from hospice
I ACT Success story
• We can confirm that all
our clients who went
through the I ACT
program are continuing
their follow-up
appointments and
treatment and feel free
to come and ask for
guidance or help at any
stage
Strategic awareness is possible in any setting
Training
Awareness
TB CAMPAIGN
Enthusiasm opens doors
Taxi drivers listen to
information
TB AWARENESS
Education and raising
awareness
Making a difference in our
community
TB AWARENESS
International TB Day 2014
working hand-in-hand with
the Taxi drivers at the Taxi
ranks where much needed
information was
distributed
Passionate carers
A one stop service by taking hands with the
DOH Mobile Clinic and Agri- AIDS
VALUE OF PARTNERSHIPS
• Improved patient outcomes
• Learn from each other
• Bringing awareness to the local-, rural and
farming communities regarding palliative care
• Support and assist comprehensive care
• With limited resources you can do more
together
World Hospice and Palliative Care
Day 2013 in Bokfontein
We do care!
Amos and his family
CONCLUSION
• As a team and individual you need to have the
ability to listen with your ears and to take
constructive criticism and let it mould you in
an effective palliative and hospice care giving
organisation.
• Our vision of creating, raising and bringing
awareness in our community is a challenging
learning experience
OUR CHALLENGE TO ALL….
DARE TO CARE!
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