Room 208 Monday *Part One

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Room 208 Monday –Part One

Speaker one:

Concurrent session, that’s the (unknown word) the big one, isn’t it?

Speaker two:

Yes.

Speaker one:

Okay. So we’re here this morning to hear about the resource from Endeavour Foundation called

NDIS and You, following on from The Plenary session yesterday where this team were good enough to stand up and tell everybody in the whole conference about this particular resource. Today I understand we’re going to get to hear about it in a lot more detail.

Before we get started, I just want to check with our interpreter, do you need us to wait for your colleague to come back?

Speaker three:

(Inaudible).

Speaker one:

You’re happy for us to get under way?

Speaker three:

(Inaudible).

Speaker one:

Okay. So, we’re to Frank. Good morning and welcome on board as well.

Frank:

(Laughs).

Speaker one:

(Laughs) All right, so…

Frank:

(Laughs).

Unknown speaker:

(Inaudible).

Speaker one:

So I have a very easy role this morning because our team are well on top of what they need to do. So

I’m going to introduce Sam, who’s going to come up and organise the session. When we get towards the end you’re going to see me a little bit more in question time but otherwise I’m going to hand

over to the team here who are going to walk us through their resource that they produced for the

Endeavour Foundation for NDIS and You.

So, thank you Sam. You can come up and present for us.

(Applause).

Samantha Matheson:

Good morning everyone. I’m Samantha, I’m from Brisbane. I’d like to introduce all my crew over here that’s going to do the talking…

Leigh Elliott:

And me.

Samantha Matheson:

And Leigh. Sorry Leigh.

Leigh Elliott:

Good morning, everyone. I was involved in this wonderful project as a substitute decision maker for my son down the end, who James will introduce in a while. I had lots of fun.

Mark Reimers:

Hi. Hi and I’m Mark and I was the project manager for this team. I work for Endeavour Foundation and manage the systems advocacy unit at Endeavour.

Daniel Rivers:

Hello, I’m Dan. I work at (unknown term) Wacol Business Service; Wacol Endeavour Business Service.

Nagadeva Higgins:

Hi, my name’s Nagadeva. I work for the Endeavour Foundation Community and Advocacy Sport Unit.

James Pryce-Davies:

My name is James and I care for Jason, who participated in the NDIS and You workshop.

Mark Reimers:

And Paige will join us shortly. Paige was the project worker for this project. NDIS and You was a project that we developed in response to the work Endeavour Foundation does with engagement with people with intellectual disability. About nearly two years ago now we had an Endeavour council which brings together people from all over the state – people with intellectual disability predominantly from all over the state – to meet with the board and executive of the organisation.

And we had Robert Strike, who’s a man with an intellectual disability from the NSW Council on

Intellectual Disability present with (unknown term), their participation worker. And the staff from the community advocacy support unit were blown away by the degree of engagement and the change in quality of engagement that happened when a person with an intellectual disability was a presenter.

So when this opportunity presented itself – the practical (unknown term) grants – we knew that one of the key ways that we could support people with intellectual disabilities you understand the scheme was to train some peer facilitators of education program around DisabilityCare Australia.

And that’s what we did. We took a group of eight people, well nine including Jason and a substitute decision maker, and developed some workshops. And today what we want to do is to unpack for you a number of resources. We’ll showcase some of the resources that we used, and unfortunately at the workshop, the Plenary session yesterday, the presentation timed out and we couldn’t get it. We would have liked to have showcased it to everyone. But we wanted to showcase some of the resources we’ve developed and also talk about the process that we went through for developing peer leaders and peer educators, so that you, if you work for an organisation or if you’re a person with a disability who might want to go back to your organisation and say “this would be a great opportunity”. Wherever we ran these workshops people with an intellectual disability were inspired to say, “Could we do this in our organisation? I would love to be a presenter Sam or Dan and it’d be a fantastic way to do it.” And it inspired people quite literally to want to run these workshops.

So, first thing we’d like to do is for you to just turn to somebody and introduce yourself to them and tell them something that not many people know about you. We’re just going to take about a minute to that. So, just have a bit of a chat. Thank you.

(Audience interacts)

If you both haven’t (inaudible) it’s time to.

Okay, thank you. Can we just come back now? Thank you. One of the key features of how we ran our workshops was that people with a disability, when we were designing workshops, wanted very few people to be able to dominate the room. And so all our workshops were run of tables of no more than six with a facilitator. We started every workshop with that activity but we always did the whole room and what it did was model to people who… with a disability in the room, that they were welcome to speak and some of them had never spoken to a whole room of people before in their lives and it gave them the opportunity to start that. So the process of modelling, people being able to speak and have a voice started at the very start of a workshop with people telling us something about themselves. It was very interesting too in those workshops because we learned people were

Special Olympians or that they’d just become an aunty or an uncle, or things that people didn’t really know about them; and it just broke the silence, broke the ice and that’s what we’re going to do.

One of the resources we developed was a montage about people talking about intellectual disability and we’re going to play that for you now. This is one of the resources that we developed using people with intellectual disability.

(Video plays)

Alex Baker:

Oh, the NDIS basically just provides a reassuring thought that, you know, that we’re gonna be treated equally as people who don’t have disabilities.

Prue Chappel:

The NDIS means, to me, that I can get their help in having an opportunity to work with people.

Daniel Rivers:

Well, one for me, it helped me into the TAFE course I want to do is look after animals. Two, it helped the guys at my work cos most of them have got intellectual disabilities, help them with the funds and all that for transport.

Samantha Matheson:

It helped me reinvite to get into a course so once I can do that and I achieve that part then I want to work with animals.

Alex Baker:

Break down some barriers over what I can do.

Kane Wojcicki:

I hope that the... the NDIS can help... can help me change my... change my life and my family.

Kathy Ellem:

I see the NDIS being a flexible system in which people can choose where they want to be, who they want to be with and the opportunity for people to build really meaningful relationships with the people that matter to them.

Fran Vicary:

For me, it means knowing that I can continue to have the support that I want to have throughout my life knowing that as I age and my years change that my package of support can change with that to allow me to be all the kinds of things that adults are throughout their lives.

Ashley Carter:

Go to TAFE and try... and try into a course to fix computers so I hope the NDIS can help me probably get the money and the funding to do that from.

Kane Wojcicki:

I would like the NDIS to help me achieve my dream of becoming a mo... becoming a movie actor so I can have a lot... have a lot of fun and meet lot... lot of... lot of new... lot of new people.

Fran Vicary:

It means knowing that my family will have... know that I can sustain the lifestyle that I’ve established and that kind of thing.

Nola McCallion:

The biggest dream I have is to get into journalism, to follow that path, and hopefully the NDIS can help me reach it.

James Pryce-Davies:

Well, obviously, he... he’ll... he needs ongoing support in his living situation so we’re hoping to obviously maintain that but also maintain support that he gets in activities outside of... outside of living as well and hoping to not only maintain those but also hopefully get... get enhanced opportunities and funding through that as well.

Fiona Anderson:

Well, I’m a mum, I have two kids and one of them has a disability, and, for me, the NDIS will be the opportunity for our whole family to ensure that both our kids have opportunities in life and that having a disability isn’t going to make any difference.

Fran Vicary:

There are lots of families and carers of people with disabilities waiting to get some assistance to be part of community, to go to university or to get a job or to volunteer and to be part of their community and not have to rely on family or friends or broken systems to do those kind of everyday jobs.

Nola McCallion:

I definitely think it’ll give others the opportunity to speak up, have their say, have their rights be heard.

Sheena Cranwell:

For myself, I consider it a chance for my son who has a disability. I consider it’s a chance for him to have a different future than what I’ve been worried about for his 15 years that he’s been alive. I... I...

I would hope that he may be able to live more autonomously and be able to participate in life to the fullest and be supported.

Jen Barkmann:

I hope that the NDIS gives people an opportunity to be heard, particularly those people that are often ignored, marginalised and put aside, so I really hope that the NDIS gives them an opportunity to live a life, to have a great life.

(Video concludes)

Mark Reimers:

So that’s one of the resources that we use at the start of the workshop and then we do throughout the workshop what’s called table talk so that people get an opportunity to say “what did they get out of that? What do they understand? What didn’t they understand? Did they think it was real?

Didn’t they think it was real? What might they want?”

Audience member:

Can you talk into the microphone please?

Mark Reimers:

I am.

Audience member:

Oh, well it’s not loud enough.

Mark Reimers:

Oh, sorry. Can… bit more volume?

Audience member:

And could you also just slow it down so that…

Mark Reimers:

Okay, sorry. Okay, thank you. Okay, so do you want… I’ll repeat that. So we, we used this sort of information in small group work, a lot of small group work for people to talk through what they understood by that, what they didn’t understand, what needed clarification, what didn’t need clarification; so that they could continue on with the workshop in other ways.

The resources that we did develop include these sort of videos but also a workbook for, for working with people to develop peer education; a workbook for presenters for workshops; and a participant workbook. Unfortunately the pile of that stuff was put on a table and got given out, it was meant to be at this workshop but it all got distributed. But they are resources that are available online through

Endeavour Foundation or through (unknown term).

So, I’m going to hand over to Paige… oh no, to Dan now. Sorry. Thank you, Dan.

Daniel Rivers:

This project is important as it gives people with intellectual disabilities easy to understand information and a chance to learn…

Audience member:

Hi, Dan. Can you just make sure you speak nice and slowly for me because our interpreter needs to keep up with the way you’re talking? Thank you.

Daniel Rivers:

This project is important as it gives people with intellectual disabilities easy to understand information and a chance to learn and talk about what is DisabilityCare Australia, why we need the scheme, and how’s it going to work and what will it mean for them?

In this section we share how we did things for other organisations who want to do similar things to

(unknown term) peer leaders and/or do workshops to inform clients about DisabilityCare Australia.

I will now hand over to Paige to explain some more about it.

Paige Armstrong:

Thank you, Dan. So when we started work on this project we identified that there were a few key things that we needed to do. One of the first things that we needed to do was to build ourself into a team, a group of people that could work together because people that were part of the reference group came from a range of Endeavour’s business and disability services. Some of those people had

not met each other before and had very little knowledge of each other; and we were asking people to come together, put themselves in a vulnerable situation and start talking about how we might do a video, how we might develop a workshop format.

In the next part we’ll give you some ideas around how we did that but very central to anything that we did was that we would hold weekly meeting and having those weekly meetings we always made sure that we had lots of fun and good food. So, if anyone’s going to do this I will guarantee if you’ve got the fun and the food together, the rest of it goes quite smoothly.

As Mark said, the… that what the key role of ourselves, the team at the table and other people who weren’t… aren’t here today is to actually design and give us input into the videos, into the workshop format and into how we would run those workshops at the national trial sites. And Mark had started talking about some of the things that we did like table talk.

One of the other very important things about this project was being able to celebrate the success of the project and everyone feeling that we came out having learned new skills and abilities because work around developing the peers or peer support facilitators was also very much about us extending our skills as well.

And I’m going to hand over to Leigh and… oh sorry, I’m handing over to Nagadeva. We’ve got all out of order.

Nagadeva Higgins:

Thank you Paige. I’ll just move this microphone. I think one of the things that we… right at the beginning was a challenge for us was just the approach that we were going to take to work with, with our group of people because we were very clear that, you know, we wanted to make sure that in presenting these workshops that people weren’t going to be set up to fail. If you see what I mean?

But we also wanted to make sure that people were, you know, like Sam and Dan, you know, were able to be empowered and to speak up. And it was quite an interesting experience, certainly for me, to actually learn, you know, how to do that. How to provide the support but also, you know, allow them to shine in a sense, which I think, you know, I think we’ve done. I think they’ve done.

So, one of the things as it became clear was that we really had to work with, you know, what were

Sam and Dan’s strength and the other people’s strengths. And it had to be very contextual in it was about them and how they wanted to be supported in order for them to shine. So, we had quite a structured approach to it. We had weekly meetings for a period of about 12 weeks and we, I guess, the parts that we covered was actually for them – and us to some extent – to learn about

DisabilityCare Australia and of course, at that stage, getting good information wasn’t that easy for anybody; after Christmas.

And the other thing we focused on was actually, you know, the goals of, you know, getting ready to make the DVD and then presenting at the workshops.

We did have an advisory group as well to assist us with that and one of them is here today –

Katherine. So that was great. So we had people to come in to support the reference group, to support the project.

We also had David Barbagallo and... coming in for the CEO of Endeavour Foundation to speak to us about public speaking, of which I wish I’d listened more. He’s in the room so he’s looking at me now.

(Audience laughs)

I’m not nervous.

David Barbagallo:

Don’t read from your sheet.

Nagadeva Higgins:

(Laughs). I’ll put it down. I don’t know what to say now. The other… and we Fran Vicary, of course, coming in, which was fantastic to have Fran around to, just to give the support and the information to us all really. So, the other thing that because of the nature of it, you know, we had to develop as we went along, so it was a very kind of, you know, iterative processes – the more, you know, during the training sessions the more we learned the more the reference group learned the more we understood what the structure was going to work for this group of people. And I think if you’re, you know, using these resources which we really hope you do for your organisations, I think that’s something really to bear in mind. You have to be very, very centred around the person.

So, I think now we’re just going to have a quick look at another part of the DVD. I think we’re going to look at Sam’s story now. Thank you.

(Video plays)

Samantha Matheson:

I work in Endeavour Foundation at Geebung. It’s a lovely work. I’ve got a lot of friends. I’ve got 191 employees and I’ll... and I enjoy working with them. I have a lot of work areas. My favourite one is the warehouse. I’ve done packaging, I’ve done mailing, I’ve done recycling, so it’s a lot of work I’ve done.

Without the work, people are struggling, you know. They’ve got no... no other way to work. But putting them into Endeavour, it gives them a chance to work, gives them a chance to be around their friends.

With the NDIS, we can be heard and with the NDIS they can help us with the money and the funding and the skills to begin working.

I love to work with animals. I want to... I’m working for Endeavour for another five years and I eventually, you know, want to leave cos I... working with Endeavour’s not my dream; animals is. Wild animals are my favourite and if I can get the opportunity with this with the NDIS I’ll be a very happy person.

I’ve been into writing skills, I need that first, because, working with animals, you need a certain... certain degree to work with the animals, especially the wild ones, cos you gotta make sure you know what you’re doing, how to approach them, how to feed them, what food they eat, and how to, if they get sick, you know how to feed... look after ‘em so that’s why I need the help.

And the NDIS can help with more money and help... also help me as well cos I need a help as well. It will go a long way if... if the NDIS can... can help us.

(Video concludes)

Mark Reimers:

Once again, these are the sort of resources that in a workshop we would then talk at table about what the dreams and hopes and aspirations of the people at the table were and using the participant workbook they might start to think about some of the ideas, about what NDIS might mean or be or look like for them. And as was stated in one of the workshops, the mental health workshop, that often people didn’t know, didn’t have an idea of what they wanted. But through a series of these videos – there’s Cane’s story as well – but by the end of the workshop people are starting to think that they might have some sense of starting to think about and be starting to prepare themselves for what … for the process of thinking about what they might want because they understood that this was about a different way of thinking – not staff or family members necessarily telling them what to do. So it was just an awareness raising for people – the first step in a process that they might work towards thinking about knowing that there was a planning process that would happen. It was a very powerful tool and it was quite amazing at table the discussion and conversations that grew amongst table members. (Inaudible).

Paige Armstrong:

(Inaudible) I was involved and I was really, really lucky to be involved as Jason’s substitute decision maker and I got to be involved in the reference group as the… we were developing the peers; and also feeding back to the advisory group. I had like an inside position where I could see what was going on and sometimes have some extra ideas. And the way, the way I watched and observed the team come together was really fascinating. We played lots of theatre and drama, and some of the games that we did were like headliners, where we’d come in and we’d ask the group what they did over the weekend and we’d get them to come up with a really snappy headliner, so they were used to just getting the main point across; and that worked really, really well. And each week we worked on that headliner activity and other different activities where we built their confidence and I watched their self-esteem just grow incredibly. And you see these two guys up here today and even when we have problems, they’re just onto it, it doesn’t really worry them. They’re so self-confident and it’s wonderful to see that growth happen.

So we played a number of different games and another one that we’re going to show you that we played at the actual workshop was True or False? So Nagadeva has a copy of it and we’re going to get Sam just to facilitate it. So we’re going to hand out some sheets and Sam’s going to ask you whether or not you believe it’s true or false.

So Nagadeva’s bringing those around now. (Inaudible) help hand them out. (Inaudible). Oh , Dan…

Dan’s going to read the questions and Sam’s going to check the results for us. So invite Dan over.

So this was (coughs). This was one of the ways we reinforced the learnings. Can we make sure this is on? Yep, thank you. That’s great. Thanks Sam.

Mark Reimers:

Just because of limited time we’re just going to run through the first five questions.

Daniel Rivers:

First one: I will have to change all things in my life because of DisabilityCare Australia.

Samantha Matheson:

Put your hand up if it’s yes or… true or false. True. Put your hand up if it’s true.

Mark Reimers:

If that statement’s true. Does anyone think that’s true? Put your hand up if you think it’s false.

Samantha Matheson:

Put your hand up if it’s false.

Daniel Rivers:

Correct. DisabilityCare Australia is only going to happen in Victoria.

Mark Reimers:

Is it true? Is that true?

Samantha Matheson:

Is that true or false? Put your hand up if it’s true. Or put your hand up if it’s false.

Daniel Rivers:

Number three: I have more control and a say in the services and support I need because of my disability.

Samantha Matheson:

Put your hand up if it’s true.

Mark Reimers:

That’s right. That’s right.

Audience member:

Most cases.

Mark Reimers:

(Laughs) Yes.

Daniel Rivers:

The NDIS will be the same all over Australia.

Samantha Matheson:

Put your hand up if it’s true.

Mark Reimers:

Thanks. We’ll leave it at that. But it was what we did at table talk, the process we used was a very simple process. We’d give a small amount of information, we’d do table talk, people would talk about it, we’d then ask the questions back from the floor, we’d then answer those questions and then we’d play true or false? And it was a process that people with disability engaged with totally.

They loved the game playing, they loved the reinforcing, they loved establishing the information, understanding the information before more information went on.

And as I said in The Plenary yesterday, (unknown term) who was working with a group of people with intellectual disability at Launceston Polytech and she’d known for 10 years said she couldn’t believe the degree of engagement, that people were so engaged in the entire process. And it was because we actually used the wisdom of people with intellectual disability to design the process.

They knew how they and their peers learn, they knew what sort of activities and games would appeal. And we trialled it at workshops in Brisbane and we modified things as went along and it worked because it grew on their wisdom and their engagement with people.

We haven’t got much time left in this workshop and we’re just going to show one more video. And this was about the inclusion of substitute decision makers because this workshop was about people with intellectual disability, for people with intellectual disability. We wanted to ensure that people with mild intellectual disability were acknowledged as participants and also people with significant disability.

(Video plays)

Leigh Elliott:

Well, I’m a mother of a wonderful young man who has very complex needs so he has quite a lot of needs around his health and it’s taken us on a journey, a long journey, and as a parent we always want the best for our children and when Jason was much younger there was lots of gaps in services and applying for funding was very difficult and there were lots of challenges and it’s definitely changed over the year and it’s one of the things that I’m really excited about with the NDIS that the avenue to get the funding to support his lifestyle will be a lot simpler and a lot more equitable.

Currently, Jason lives in a housing home especially designed for people with a disability and he lives with two other support workers and another young man so there’s two people with a disability and then he has lifestyle support workers that come in casually and support him. That is really what creates a life around Jason is the support, for, without the support, he can’t really get out into the community.

The biggest expense in Jason’s life is... is his support staff, for, without those support staff, he’s unable to get out and about. He pays for his own nutritional needs and some of his other needs so most of his pension and any of his extra funding is gone so if he did get extra funding from the NDIS it would just extend the ability for him to join into other activities. So the money is actually related back to the number of hours that we can use to support him to go out into the community.

The NDIS will bring a lot of certainty for me knowing that we don’t actually have to keep applying for funding, that there are now, you know, that the NDIS is actually acknowledged that it... it’s an ongoing right for people with a disability to receive this support.

Looking towards the future with Jason’s life, it’s important that I feel that everything is... is in place for him to... to live a life, at least a life that we all would consider to be worthy. And, for Jason, that would mean that he’s still integrated into the community, that he’s still mixing with his friends and family as much as he can, that he’s seeing the events that excite him and... and bring... you know, bring him passion. And for us it means that there’s a sense of being valued and... and acknowledged and that there’s a sense of certainty going forward with his life that he won’t be just discarded and put into a nursing home, that he has the opportunity to live... to live his life fully.

(Video concludes)

Mark Reimers:

An unintended consequence of including Leigh and Jason in it was that workshops, people with a disability understood the scheme was for people with other needs other than their own and that actual video, in the workshop, was always created a lot of discussion with people with disability understanding the broad context of the scheme and where they might, their needs might sit in that.

And so in the three tiers of support under the scheme, people were much more easy to talk about oh, so it’s about equipment and things for Jason and his involvement was very powerful, particularly in the Brisbane workshop where Leigh and her daughter Natasha, and Jason presented. But that was another, you know, important part of us developing a tool and resource for people to understand the scheme in relation to the broad context of people with intellectual disability. So it’s, Laura.

Laura Green:

Thank you very much. And Jason it was really nice to see you up there in your video. That was pretty cool. Cool. We’ve got about 10 minutes left where we’re going to be able to take questions up for all of our panellists on the floor. If Henney, if you could stand up. Henney has a microphone and… good morning Frank. I think you might get the first question. So if you could come up and microphone goes to Frank’s interpreter. The other thing, before you start Frank, just to let you know that I understand we only have 10 minutes. This is a pretty rich resource and there’s a lot to learn so everyone’s going to be here through the break. If you don’t manage your question in this time people will be around, so we’ll keep to time. Just to let you know in advance we’ll have time for a few questions. Thank you Frank.

Audience member (Frank):

One problem, and it’s good for you to understand coming forward, is people’s ages. And that age barrier is going to be quite an issue.

Laura Green:

As you know Frank, if we have questions for the scheme, you can know that I’ve heard that and will keep thinking about that. We’ll see if there’s any questions for these guys about their resource as well.

Audience member:

Hi. Who deemed… who deems, under the NDIS, what’s fair and reasonable?

Laura Green:

Thank you. Again… that’s all right. So I think that’s something to let you know, I’m really interested in focussing on the process that Endeavour undertook for their design fund project.

Audience member:

But sorry. You just put up a case study with Jason and you just mentioned equipment and stuff.

Laura Green:

Yeah, sure.

Audience member:

So what I’m saying is who deemed what’s fair and reasonable for Jason, which is what you’re about, isn’t it? Isn’t this is what (inaudible) in your project you were funded to do in… under… is this right, under the NDIS? I’m just curious as to who sets the, the, the… because you’re talking fair and equitable.

Laura Green:

Sure. Thank you for your question. I’ll let Paige answer. And otherwise if you have questions for the scheme, I’ll be around in the break and we can talk about those further. But thank you Paige.

Paige Armstrong:

Because our project was about the NDIS for other people with intellectual disabilities, some of the things that the reference group thought it would be most important to focus on – and it came up at all our launch sites – is not how you deem it but what do the words mean? Like, what does anyone mean when they talk about things being fair and reasonable? So we would have discussions when we went around but they were very broad. They were, if you needed transport assistance, would it be fair and reasonable to say you wanted a limousine? Or would it be fair and reasonable to say you needed to go everywhere in a taxi? And they were the types of discussions that we had and it was more around getting people in the audience a bit more comfortable or understanding some of the key concepts that lie behind the NDIS. And in the time that we did the project, that… we heard time and time again, they were things that were very important. It was important for people to know the scheme went all over Australia, it was important for people to know and we did cover that it had a cut-off point at 65, it was important for them to know that there would be an agency that would look at things like fair and reasonable. And so then the discussions in the last bit went around well, what would they need if, regardless of what limits or whatever they set, how do we understand and start thinking about what we think it might be fair and reasonable for anyone, any agency to give us.

Mark Reimers:

Another example of the fair and reasonable and the inclusion in our workshop was Cane, who is the young man there who said he wanted to be a movie star. And this created a dilemma for us because we thought, “Oh my God. You know, here we have someone who’s thinking NDIS is going to be the aim for them to be a movie star”. But what was interesting about that is that Cane is involved in little theatre, he’s been involved in more productions than I could put on my fingers and toes. He’s quite well known in the arts industry for his work in that sort of thing, and it was like, well we could

(unknown term) what’s fair and reasonable but really for us it was then the discussion about what level of support he might get from NDIS. Might they fund him to do that or would he get someone who could talk through with him his, in his plan about how he might achieve that through generic arts services. And so it was about a determination, so we left it in even though, you know, we knew we’d crucified by some people saying, “Oh, that’s totally unrealistic and unreasonable”. But it…

Audience member:

No, because that’s his aspirations (inaudible).

Mark Reimers:

It is his aspiration. Yep.

Audience member:

And in the legislation, which the NDIS is saying, it’s to be fair and reasonable. And excuse me, you just said people with intellectual disabilities, my son is (inaudible) and he is under that banner as well, you don’t just have an intellectual. You can have (inaudible). There’s got to be a governing body that decides how many layers for each level of disability and that’s what I was trying to ask.

Mark Reimers:

And the question is, who will determine fair and reasonable will be the…

Audience member:

It won’t be an agency.

Laura Green:

Thank you. No, it certainly won’t be Endeavour, so those sorts of things – the planning conversations with DisabilityCare Australia – we’re going to park that and we’re going to move on to another question. We can take it up in the break.

Mark Reimers:

Okay. Someone up here. Thanks.

Audience member (Katherine):

Hi, Katherine from Down Syndrome Australia. I thought yesterday you possibly mentioned that you had a resource about either the supported or the substitute decision making process. Did you… was that one of the different project?

Mark Reimers:

That was the Discover Project which was the green book in here. There’s a section on supported decision making and it’s in that resource.

Audience member (Katherine):

There’s a section… oh, that’s where it is. Okay. I haven’t read it yet.

Mark Reimers:

That’s okay.

Audience member:

Hi everyone. Lovely to meet you young people, love listening to you. Look I’m just wondering whether you’re going to share your workshop format in the clips because I’m at the Hunter launch site and we’re really excited, it’s going to happen so soon; and I work with a lot of the services and I can see what you’re achieving there, you know, being shared around would be really helpful.

Mark Reimers:

As I said, the resources we’ve developed are these sort of video sources, the montage, people’s stories, there’s a (unknown term) presentation that Leigh could just flick through while I talk. Plus there is a developing peer leaders or peer educators manual about how we went around this process. There are the workshop guides and the presenters guides, which are a guide for people like

Sam and Dan. But we did train eight presenters and they presented in all the launch sites around disability services with Paige and myself and Nagadeva, and Michelle, who was the other one.

Audience member:

How do we get it?

Mark Reimers:

They’re online.

Audience member:

Oh, wonderful. Thank you.

Mark Reimers:

So they’ll be on the… they’ll be on the DisabilityCare website. I’m not sure whether they’re uploaded yet but they will be and they’ll be uploaded onto the Endeavour Foundation website as well. But you do it by contacting the community advocacy support unit and we’ll arrange for you to get it at this point if you can’t work out how to find the link and we’ll assist you to get those resources.

Question up here.

Laura Green:

Going to have to call time. Christian, you’re going to have to wait for the break. Sorry.

Mark Reimers:

Okay.

Laura Green:

So thank you very much. I’d actually just like to take a moment, and in particular, draw attention for

Jason, for Sam and for Dan. I think that… I fee; a bit shaky when I stand up in front of a room. I don’t know about you. So, I think, I’d just like take particular attention to your courage to stand up and present for us today and say thank you.

(Applause).

And for all of those of us who might have had to shake and be nervous otherwise up on the panel. So thank you to Endeavour for presenting their presentation and for those with outstanding questions

I’m sure we’ll be hanging around for just a few minutes more. Thank you.

END TRANSCRIPT

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